Re: Re: not a good road - /Bonnie

[Guest guest]

I FEEL YOUR PAIN, AND KNOW WHAT YOU ARE GOING THOUGHT. I CAN'T GIVE YOU ANY

ANWERSER. BUT MY HUSBAND IS GOING THOUGHT ALL THIS TOO. HES BEEN ON WHAT I CALL

GOOD DAYS HE DOESN'T. HE JUST WANTS IT ALL TO BE OVER. BUT I SIT AND WAIT FOR

HIM TO GET SICK AGAIN AND NOT KNOW WHAT HES DOING OR WHERE HES AT. AND THEN HE

FIGHTS ME ABOUT TAKING HIS MEDS AND WHAT HES DOING. SOMETIMES HE GETS REALLY

UGLY AND OTHER TIMES ITS LIKE TAKING CARE OF A VERY YOUNG CHILD. I THINK THATS

THE HARDEST. NOT KNOWING WHAT TO EXPECT AND TRYING TO REMEMBER HE DOESN'T KNOW

WHAT HES DOING OR SAYING.AND WHEN HE GETS BAD ENOUGHT THAT I HAVE TO TAKE HIM TO

HOSIPTAL THEN HE REALLY GETS MAD. HE HATES IT THERE SAY THEY DON'T TAKE CARE OF

HIM, OR LET HIM GET UP AND MOVE AROUND.OR GIVE HIM HIS MEDS CORRECTLY. SO MY

PRAYS ARE WITH ALL OF YOU OUT THERE.

---- deniseymca wrote:

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> Hi Don

> Thank you so much for your words, they do resonate with me as I have similar

beliefs but it feels good to be reminded of that at this time. My son has been

unhappy for so long, I pray he will find peace one day and feel happiness, I do

not believe it will be in his present life as much as I wish he could. He is 26

years old, he is a gentle, sensitive, romantic young man....I wish I could

change places with him ..I wish I could spare him whatever is to come, I will

look into alternative medicines...Thank you again for your response and support.

> love

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> Hi Bonnie

> Thank you for your response

> I am so sorry to hear of what you are going through also. It is so hard, I

also work full time and there are not enough hours in the day.

> Your husband sounds very poorly, you must be exhausted, I wish I had words of

wisdom for you but can only say that I send you strength and positive thoughts.

I don't know if it helps to know you are not alone. Thank god for this support

group, there are some wonderful people who just know what we are going through.

Thinking of you love x

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> > > > Hi all

> > > > I have not posted for sometime now but always check in to read the

posts. I am sad to say my Son is sicker now than he was last year. Then they

said he had alcoholic hepatitis, was very jaundiced etc after spending a couple

of months in hospital he came out but never lost the jaundice...he started to

drink again..this resulted in him having a variceal bleed...they have treated it

by a Variceal band ligation....he was due to have a biopsy but discharged

himself from hospital. He is now at home, quite poorly, I am going in to care

for him a couple of times a day. The Dr said he has got cirrhosis they just need

to see how bad it is. He had nose bleeds yesterday and I feel scared as he had

those before his last bleed. He is very thin and sleeping quite a lot...his

bilirubin levels are 100 which is good for him as when he went into hosp last

year they reached 480. He is eating fairly well. He is definitely not drinking

now. His blood is not able to clot very well and when they do the biopsy it will

be by the Transjugular liver biopsy method. What do you all think? can he

recover? he has mental health issues which make him anxious and he cannot handle

being with other people which is what led to him discharging himself. He says he

wants to die at home...he does not want to go into hospital as a patient anymore

although he will go for his biopsy as a day patient. He says life has nothing

for him. He has to have all his teeth removed soon as they are crumbling due to

hosp meds last year..is this common??

> > > > I feel at a loss, can he get better, might he die soon? Sorry I know I

have rambled and everything is disjointed but thank you for reading this and any

thoughts will be appreciated..Kind regards to you all,

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