something I have noticed about getting treatment

[Guest guest]

The docs where I live are not at all aggressive in ordering tests for people. M

frind lost an eye to cancer, she has MS and for 4 years the docs blamed her

vision complaints on MS. FINALLY she got an ultrasound on her eye and they

found very advanced eye cancer. (she is in early 30s) - they had to remove her

eye. My son was exposed to meds that can cause spina bifida during my pregnncy

with him- my husband also is documented Agent Orange exposed- heavy exposure-

which also can cause spina bifida, - he was 2 months preemie, and his labor was

especially long with him in fetal distress- BUT even when he could not toilet

train, even with an in home behavior modification PHD coming to our house daily-

even with him not being able to lern to ride a bike, even with him toe walking-

and having a hemangioma (classic signs of spina bifida) we could not get any of

the local pediatricians to check him out. (we wound up referring ourself to

SHriners and THEY found brain damage and seizure disorders)

I cannot even tell you how many times I was in clinic, docs office and ER with

RA symptoms, and what would they say? You are bipolar, are you upset? DId you

hit something? Did you fall? Did you jump from somewhere and hurt yourself,

causing this?

A friend of mines child died when our ER refused to examine their child, he had

a twisted bowel that ruptured upon discharge from ER. My husband had a

motorcycle accident, ambulance too him in from the scene. Local hospital

discharged him, I called an ambulance that took him to a VA hospital and they

kept him a MONTH.

Now I am wondering- gosh- do I even have RA? Everything I read tells me this is

correct- BUT------ gosh- there are not that many rheumys around- and already I

travel with my osn 6 hours round trip to take HIM to a teaching hospital- and I

travel 3 hours each way to take my bipolar daughter to a teaching hospital, and

I travel 90 mins each way for my husband VA healthcare----am I going to have to

also go to the city for MY healthcare? Is anyone else having a hard time

getting treatment? Tests? I guess I assumed RA was pretty much concrete, cut

and dried for dx and treatment. AM I wrong?

[Guest guest]

I was also diagnosed with Lupus and RA. I was asking Janie the other

day about it. She was saying the doctor took her off the Humira,

because of the Lupus diagnose. That scared me because I'm on Humira,

and suppose to have Lupus. So, I am going to talk to my doc on my

next visit. I am not good with medical terms at all.

You have really had so much going on in your family, I'm so sorry

dear. I will keep you, and your family in my prayers, tawny

--- In , " dreamer_plus " <dreamer_plus@w...>

wrote:

> The docs where I live are not at all aggressive in ordering tests

for people. M frind lost an eye to cancer, she has MS and for 4

years the docs blamed her vision complaints on MS. FINALLY she got

an ultrasound on her eye and they found very advanced eye cancer.

(she is in early 30s) - they had to remove her eye. My son was

exposed to meds that can cause spina bifida during my pregnncy with

him- my husband also is documented Agent Orange exposed- heavy

exposure- which also can cause spina bifida, - he was 2 months

preemie, and his labor was especially long with him in fetal distress-

BUT even when he could not toilet train, even with an in home

behavior modification PHD coming to our house daily- even with him

not being able to lern to ride a bike, even with him toe walking-

and having a hemangioma (classic signs of spina bifida) we could not

get any of the local pediatricians to check him out. (we wound up

referring ourself to SHriners and THEY found brain damage and seizure

disorders)

> I cannot even tell you how many times I was in clinic, docs office

and ER with RA symptoms, and what would they say? You are bipolar,

are you upset? DId you hit something? Did you fall? Did you jump

from somewhere and hurt yourself, causing this?

> A friend of mines child died when our ER refused to examine their

child, he had a twisted bowel that ruptured upon discharge from ER.

My husband had a motorcycle accident, ambulance too him in from the

scene. Local hospital discharged him, I called an ambulance that

took him to a VA hospital and they kept him a MONTH.

>

> Now I am wondering- gosh- do I even have RA? Everything I read

tells me this is correct- BUT------ gosh- there are not that many

rheumys around- and already I travel with my osn 6 hours round trip

to take HIM to a teaching hospital- and I travel 3 hours each way to

take my bipolar daughter to a teaching hospital, and I travel 90 mins

each way for my husband VA healthcare----am I going to have to also

go to the city for MY healthcare? Is anyone else having a hard time

getting treatment? Tests? I guess I assumed RA was pretty much

concrete, cut and dried for dx and treatment. AM I wrong?