Can anyone help me? Expand on this please.

[Guest guest]

Hi everyone,

I usually never post anything but I'm always reading posts and replies from

other members ever since I joined this group and always found everything so

helpful.

Today I'm posting because I do not understand the severity of my father's

disease at this point and I don't know what's going to happen. I thought with a

transplant he would get better but now I'm confused.

This is my dad's story in brief:

My dad has hemochromatosis within the years he developed cirrhosis ( let me tell

you dad never drank) out of his disease. On November 2011( the day before

Thanksgiving, I never forget that date) they found 3 tumors in his liver so

doctors said his best chance was a liver transplant and he got on the list,

while we were waiting he started Chemoembolization and the tumors were shrinking

and the levels of AFP decreased a lot. On April 3, 2012 we got a phone call with

a possible donor for my dad, so we rushed to the hospital and it was a perfect

match and got transplanted. I was really happy and thankful for this event. I

really couldn't believe how soon he found a donor. It's been almost 4 1/2 months

after the transplant and he's been looking and even feeling better. 3 weeks ago

he went for his examinations and after the results were in, they told us that

dad has another tumor in his liver, that the cancer came back and that he needed

surgery to remove it, that this recurrence is not a good thing. It usually

doesn't happen. So he is scheduled for surgery this coming Wednesday to remove

the 2cm tumor. The surgeon said that it's more likely that he'll get more tumors

in the liver but he won't operate on them and also that he as chances of

metastasis in the lungs and bones and that there is no cure. he also

mentioned that after surgery he will need to start chemotherapy.

I'm just so confused now because he said he's taking the tumor out for a

diagnosis only and that if he saw anything else he would not remove.

Can anyone explain to me why did the cancer come back? Why so quick? How bad is

this? Any insight? Any similar experiences? why transplant if he still has

cancer?

Thank you for your time reading this,

Love,

[Guest guest]

I am so sorry to hear about your Dad!  Sadly though, I understand very well,

his situation.  Without a transplant though!

I was initially told in the fall of 2009 that it was highly likely that I had

liver cancer.  This while I was still on my 2nd Hep C treatment.  Even then we

knew that the Hep C was gone; but, left in its wake - cancer due to the

cirrhosis.  Then in April 2010, the surgeon performed a liver resection.  I

believe that is what the Dr is suggesting for your Dad.  Without a transplant,

my cancer came back in 15 months.  That was last summer.  I too had been

feeling wonderful; because, after fighting 8 years for my liver, I finally felt

like I had a great deal of health back. 

However, 15 months after the liver resection, the cancer was back.  I was aware

back in 2009, what my chances probably were without a transplant.  It just came

back sooner than I had anticipated.  Although the surgeon suggested a procedure

called TACE to me, I came home and studied it and decided that I'd had enough of

the no quality of life.  Now, it was 9 years of fighting and I just could not

envision giving up more quality of life, for a little bit of quantity.  I had

put poison into my system for 48 weeks each treatment and the liver resection. 

I was flat out done with chemo!!  I said thanks; but, no thanks.  Instead, I

have deeply accepted the path that I am on now and extremely grateful for each

and every day.

It's been a year now, since that diagnosis and so far, I do not have any signs

of being a terminal cancer patient.  In fact, I like to ask people if I look

terminal.  It's my way of including a little humor.  Some folks are honestly

shocked when I say that.  I just see no reason to curl up in my bed and wait to

die.  Instead, I want to live every day to the fullest and probably selfish at

times.  I no longer will allow any negativity into this life and over the past

3-1/2 yrs, I've lost a lot of folks that I thought were friends and even

family.  However, the ones that are still here are the greatest people in the

world.

Sharing with people on these groups also keeps me together.  Each one here or

any other group, may have a slight difference of circumstances: but, I believe

that we all have a reason to share with each other.

Gloria

________________________________

 

Hi everyone,

I usually never post anything but I'm always reading posts and replies from

other members ever since I joined this group and always found everything so

helpful.

Today I'm posting because I do not understand the severity of my father's

disease at this point and I don't know what's going to happen. I thought with a

transplant he would get better but now I'm confused.

This is my dad's story in brief:

My dad has hemochromatosis within the years he developed cirrhosis ( let me tell

you dad never drank) out of his disease. On November 2011( the day before

Thanksgiving, I never forget that date) they found 3 tumors in his liver so

doctors said his best chance was a liver transplant and he got on the list,

while we were waiting he started Chemoembolization and the tumors were shrinking

and the levels of AFP decreased a lot. On April 3, 2012 we got a phone call with

a possible donor for my dad, so we rushed to the hospital and it was a perfect

match and got transplanted. I was really happy and thankful for this event. I

really couldn't believe how soon he found a donor. It's been almost 4 1/2 months

after the transplant and he's been looking and even feeling better. 3 weeks ago

he went for his examinations and after the results were in, they told us that

dad has another tumor in his liver, that the cancer came back and that he needed

surgery to remove it,

that this recurrence is not a good thing. It usually doesn't happen. So he is

scheduled for surgery this coming Wednesday to remove the 2cm tumor. The surgeon

said that it's more likely that he'll get more tumors in the liver but he won't

operate on them and also that he as chances of metastasis in the lungs and bones

and that there is no cure. he also mentioned that after surgery he will need

to start chemotherapy.

I'm just so confused now because he said he's taking the tumor out for a

diagnosis only and that if he saw anything else he would not remove.

Can anyone explain to me why did the cancer come back? Why so quick? How bad is

this? Any insight? Any similar experiences? why transplant if he still has

cancer?

Thank you for your time reading this,

Love,

[Guest guest]

Hi

I'm very sorry to hear about your Dad. The doctor probably suspects the cancer

has mestastisised and that has caused it to spread back to the new liver. But

don't give up hope. Look at Gloria who is defying all the odds. There is a

chance that once this 2cm tumour is removed he may remain healthy for some time.

Also, could they not consider chemo if it has in fact spread elsewhere?

I have a friend who's cancer returned about 18 months after a liver transplant.

They zapped the tumour (not sure which process they used) and she has remained

cancer free so far (12 months). She's currently as healthy as a horse.

I would also consider getting a second opinion. There may be a doctor who's

prepared to take a more aggressive approach to fighting any subsequent tumours.

I feel for your Dad after going through all that a transplant entails to then

have the cancer return.

Good luck and don't give up hope.

Marie

diana_pt6 wrote:

>Hi everyone,

>

>I usually never post anything but I'm always reading posts and replies from

other members ever since I joined this group and always found everything so

helpful.

>Today I'm posting because I do not understand the severity of my father's

disease at this point and I don't know what's going to happen. I thought with a

transplant he would get better but now I'm confused.

>

>This is my dad's story in brief:

>

>My dad has hemochromatosis within the years he developed cirrhosis ( let me

tell you dad never drank) out of his disease. On November 2011( the day before

Thanksgiving, I never forget that date) they found 3 tumors in his liver so

doctors said his best chance was a liver transplant and he got on the list,

while we were waiting he started Chemoembolization and the tumors were shrinking

and the levels of AFP decreased a lot. On April 3, 2012 we got a phone call with

a possible donor for my dad, so we rushed to the hospital and it was a perfect

match and got transplanted. I was really happy and thankful for this event. I

really couldn't believe how soon he found a donor. It's been almost 4 1/2 months

after the transplant and he's been looking and even feeling better. 3 weeks ago

he went for his examinations and after the results were in, they told us that

dad has another tumor in his liver, that the cancer came back and that he needed

surgery to remove it, that this recurrence is not a good thing. It usually

doesn't happen. So he is scheduled for surgery this coming Wednesday to remove

the 2cm tumor. The surgeon said that it's more likely that he'll get more tumors

in the liver but he won't operate on them and also that he as chances of

metastasis in the lungs and bones and that there is no cure. he also

mentioned that after surgery he will need to start chemotherapy.

>I'm just so confused now because he said he's taking the tumor out for a

diagnosis only and that if he saw anything else he would not remove.

>Can anyone explain to me why did the cancer come back? Why so quick? How bad is

this? Any insight? Any similar experiences? why transplant if he still has

cancer?

>

>Thank you for your time reading this,

>Love,

>

[Guest guest]

Hello ..I'm Hep-d with cirrhosis..Waiting on a liver..my Meld is in range

now..as far as Zapping the tumor..I had it done to me..It's called microwave

ablation ..my tumor was less than 2 cm. in size..and the location made it a

option..sucess!..now I have a cat scan every 2-3 momths..to make sure it doesn't

come back..cause if it does...well it will come back I should say..they can

still do it again..if it has not spread!.I feel ok most of the time..I tire

easy..and I have constant pain in my back area..kinda like a knife being stuck

in there..so I have to take meds to control the pain..so I can work. The

drawback is.I've become dependent on the oxycodone..I'll have to deal with that

when the time comes I guess. no other symptoms for now..except constipation from

the meds..so stool softener helps that way..keep your mind and body working

together.. )

>

> >Hi everyone,

> >

> >I usually never post anything but I'm always reading posts and replies from

other members ever since I joined this group and always found everything so

helpful.

> >Today I'm posting because I do not understand the severity of my father's

disease at this point and I don't know what's going to happen. I thought with a

transplant he would get better but now I'm confused.

> >

> >This is my dad's story in brief:

> >

> >My dad has hemochromatosis within the years he developed cirrhosis ( let me

tell you dad never drank) out of his disease. On November 2011( the day before

Thanksgiving, I never forget that date) they found 3 tumors in his liver so

doctors said his best chance was a liver transplant and he got on the list,

while we were waiting he started Chemoembolization and the tumors were shrinking

and the levels of AFP decreased a lot. On April 3, 2012 we got a phone call with

a possible donor for my dad, so we rushed to the hospital and it was a perfect

match and got transplanted. I was really happy and thankful for this event. I

really couldn't believe how soon he found a donor. It's been almost 4 1/2 months

after the transplant and he's been looking and even feeling better. 3 weeks ago

he went for his examinations and after the results were in, they told us that

dad has another tumor in his liver, that the cancer came back and that he needed

surgery to remove it, that this recurrence is not a good thing. It usually

doesn't happen. So he is scheduled for surgery this coming Wednesday to remove

the 2cm tumor. The surgeon said that it's more likely that he'll get more tumors

in the liver but he won't operate on them and also that he as chances of

metastasis in the lungs and bones and that there is no cure. he also

mentioned that after surgery he will need to start chemotherapy.

> >I'm just so confused now because he said he's taking the tumor out for a

diagnosis only and that if he saw anything else he would not remove.

> >Can anyone explain to me why did the cancer come back? Why so quick? How bad

is this? Any insight? Any similar experiences? why transplant if he still has

cancer?

> >

> >Thank you for your time reading this,

> >Love,

> >

>

[Guest guest]

last post..I'm Hep-C..not D...LOL

> >

> > >Hi everyone,

> > >

> > >I usually never post anything but I'm always reading posts and replies from

other members ever since I joined this group and always found everything so

helpful.

> > >Today I'm posting because I do not understand the severity of my father's

disease at this point and I don't know what's going to happen. I thought with a

transplant he would get better but now I'm confused.

> > >

> > >This is my dad's story in brief:

> > >

> > >My dad has hemochromatosis within the years he developed cirrhosis ( let me

tell you dad never drank) out of his disease. On November 2011( the day before

Thanksgiving, I never forget that date) they found 3 tumors in his liver so

doctors said his best chance was a liver transplant and he got on the list,

while we were waiting he started Chemoembolization and the tumors were shrinking

and the levels of AFP decreased a lot. On April 3, 2012 we got a phone call with

a possible donor for my dad, so we rushed to the hospital and it was a perfect

match and got transplanted. I was really happy and thankful for this event. I

really couldn't believe how soon he found a donor. It's been almost 4 1/2 months

after the transplant and he's been looking and even feeling better. 3 weeks ago

he went for his examinations and after the results were in, they told us that

dad has another tumor in his liver, that the cancer came back and that he needed

surgery to remove it, that this recurrence is not a good thing. It usually

doesn't happen. So he is scheduled for surgery this coming Wednesday to remove

the 2cm tumor. The surgeon said that it's more likely that he'll get more tumors

in the liver but he won't operate on them and also that he as chances of

metastasis in the lungs and bones and that there is no cure. he also

mentioned that after surgery he will need to start chemotherapy.

> > >I'm just so confused now because he said he's taking the tumor out for a

diagnosis only and that if he saw anything else he would not remove.

> > >Can anyone explain to me why did the cancer come back? Why so quick? How

bad is this? Any insight? Any similar experiences? why transplant if he still

has cancer?

> > >

> > >Thank you for your time reading this,

> > >Love,

> > >

> >

>

[Guest guest]

The procedure that was offered to me is called TACE - biggest word in there is

Chemo.  However, I am not waiting for a transplant, so when I read up on it, I

realized that I was not willing to do that several times in order to get a few

months more.  As it is at the moment, I've had far more time already than

anyone can believe.

Since back in 2010, after the surgery, I knew that I did not want any oxy for my

minor aches and pains.  I wanted to keep that, so that it would work, when the

pain was finally hitting from the cancer.  I certainly liked it after my

resection!  The very first thing that I would reach for, is pot whether it's

medical or not.  I can certainly get it medically whenever I want.  Then I was

highly disappointed when oxy was pulled here in Canadian, because so many drug

addicts could get it.  I complained bitterly to my Dr and she assured me that

they would just change an ingredient and bring it back until a different name. 

Then I was happy and stuck to my plan.   LOL

________________________________

Hello ..I'm Hep-d with cirrhosis..Waiting on a liver..my Meld is in range

now..as far as Zapping the tumor..I had it done to me..It's called microwave

ablation ..my tumor was less than 2 cm. in size..and the location made it a

option..sucess!..now I have a cat scan every 2-3 momths..to make sure it doesn't

come back..cause if it does...well it will come back I should say..they can

still do it again..if it has not spread!.I feel ok most of the time..I tire

easy..and I have constant pain in my back area..kinda like a knife being stuck

in there..so I have to take meds to control the pain..so I can work. The

drawback is.I've become dependent on the oxycodone..I'll have to deal with that

when the time comes I guess. no other symptoms for now..except constipation from

the meds..so stool softener helps that way..keep your mind and body working

together.. )

>

> >Hi everyone,

> >

> >I usually never post anything but I'm always reading posts and replies from

other members ever since I joined this group and always found everything so

helpful.

> >Today I'm posting because I do not understand the severity of my father's

disease at this point and I don't know what's going to happen. I thought with a

transplant he would get better but now I'm confused.

> >

> >This is my dad's story in brief:

> >

> >My dad has hemochromatosis within the years he developed cirrhosis ( let me

tell you dad never drank) out of his disease. On November 2011( the day before

Thanksgiving, I never forget that date) they found 3 tumors in his liver so

doctors said his best chance was a liver transplant and he got on the list,

while we were waiting he started Chemoembolization and the tumors were shrinking

and the levels of AFP decreased a lot. On April 3, 2012 we got a phone call with

a possible donor for my dad, so we rushed to the hospital and it was a perfect

match and got transplanted. I was really happy and thankful for this event. I

really couldn't believe how soon he found a donor. It's been almost 4 1/2 months

after the transplant and he's been looking and even feeling better. 3 weeks ago

he went for his examinations and after the results were in, they told us that

dad has another tumor in his liver, that the cancer came back and that he needed

surgery to remove

it, that this recurrence is not a good thing. It usually doesn't happen. So he

is scheduled for surgery this coming Wednesday to remove the 2cm tumor. The

surgeon said that it's more likely that he'll get more tumors in the liver but

he won't operate on them and also that he as chances of metastasis in the lungs

and bones and that there is no cure. he also mentioned that after surgery he

will need to start chemotherapy.

> >I'm just so confused now because he said he's taking the tumor out for a

diagnosis only and that if he saw anything else he would not remove.

> >Can anyone explain to me why did the cancer come back? Why so quick? How bad

is this? Any insight? Any similar experiences? why transplant if he still has

cancer?

> >

> >Thank you for your time reading this,

> >Love,

> >

>