Re: New Question

[Guest guest]

It is possible that your liver had to really battle with some toxins and was

getting overloaded. The clay stools just shows the liver is not producing the

bile it needs and that I think would be part of the problem. that goes for the

dark urine as well.

Sent from my iPad

Hi everyone

I have a question and certainly hope that some of you can give me your thoughts.

As you know, I have terminal liver cancer. It is awesome that I have been

granted the last 11 months with very little problem. Then, about 2 weeks ago,

all the signs of a very unhealthy liver. Fatigue came bounding back in and

doesn't seem to want to leave yet. But, I also had dark urine and gray stools,

plus it took nothing for me to suddenly have a bruise.

So, I went in to see my Dr and of course, she sent me for blood tests, urine

test and soon I'll have an Ultra Sound. Well, she wanted to see me and I guess

we all worry a bit when our Drs want us to come in. However, all my blood work

came back stupendously wonderful. Still battling with a good urine specimen;

but, I'll get there.

Anyway, so my question is this - is this part of the whole cycle of the liver??

Except for the fatigue, I'm back to feeling pretty damn good again.

I'd like to believe that the Creator isn't done with me yet, so it's not my time

anyway.

Gloria

[Guest guest]

Hi Gloria

Its don in ks, and I have some thoughts on what you have said here, if that is

ok. I have sorta followed your progress for years now, because I have a stake in

you - 'weird friendship'. And we have always been able to talk, and even when we

bang heads, its 'productive. Besides, you know that you enjoy my words. :-)

First, I find that your use of the word 'terminal', to be unsettling to say the

least. You say youve been praying - 'I'd like to believe that the Creator isn't

done with me yet, so it's not my time anyway'.

- Now change your 'THINKING' to - *I WANT TO LIVE*, and I encourage you, Gloria,

to fight. I will tell you -THAT- until the bitter end, because I can and I am

right.

*Never give up.

Besides, they have all sorts of new ideas that they are working on to fight

diseases. The past couple of weeks there has been a bunch of talk about 'nano

particles', that eat certain types of cells - like HCV and cancers. Perhaps you

could get into a Clinical Trial, and outlive us all? Just a thought....

*My* answer to your question -

My understanding is that when the liver starts to fail [ESLD], it will cycle

between 'working/not working' for various peroids of time, to various degrees.

The poisons will build up, causing other body parts to react badly. Then a

person will cycle back somewhat, and 'feel better' for a time. This continues

until a person gets a liver transplant, cancer, and/or passes on.

It is a very simple process, because without our liver and brain, we are done

for.

I helped my last GF, Hospice her sister , for 2 months, who died from

liver cancer. I got to watch all the details, up close. That was 2008, and Im

still remembering things.

To this day, I think that she sorta committed suicide, basically because she

mentally 'gave up'. [This is why I talk to you the way I do Gloria. I am afraid

that you are giving up sorta, too.]

In 2006, tried the HCV Inf/Riba treatment, and couldnt finish due to side

effects.

Then she not only did NOT try to use an 'alternative' path to get healthier, but

she went the other way, using alcohol and meth for 2 years, really pushing her

liver.

2 years is all it took for her to go from possible treatable HCV & life, to

'terminal' liver cancer & dead.

In Hospice, was pretty drugged up on sleep/pain meds. It was a chore for

her to use the 'porta-potty' next to her bed. Bathing was a nightmare. Sleep,

spoon feeding, diapers, and slurred talk. But of course, she couldnt see how she

appeared to others.

I know that she didnt suffer too much. The drugs took care of that. If she did,

it wasnt something that she remembered.

In the end, she was reclined, dozing, hot pad on her Ascites swollen stomach,

drugged out.

She suddenly sat up, vomited blood when her stomach ruptured, and her heart

stopped. That was it. Bang, bang, bang.

I dont think that she suffered or died too hard.

But for her only sister, 's boyfriend, me, and the Hospice nurse - well we

all saw the drama unfold.

I will never forget that experiance, thats for sure.

Gloria, I dont want to see you go down the road of no-return.

I think that there are things that you can do - right now - to improve your

health, allowing your body to fight better.

I hope that you wont outright reject what I am trying to say to you.

Also, I did want to give you a positive boost, because it sounds like your

feeling a bit down.

One quick last word - remember - 'bodies come and go, but *YOU* are eturnal'.

Sorry for the book - stay well my friend.

- I wonder if the afterlife has internet?

love

don in ks

>

> Hi everyone

>

> I have a question and certainly hope that some of you can give me your

thoughts.

>

> As you know, I have terminal liver cancer.  It is awesome that I have been

granted the last 11 months with very little problem.  Then, about 2 weeks ago,

all the signs of a very unhealthy liver.  Fatigue came bounding back in and

doesn't seem to want to leave yet.  But, I also had dark urine and gray stools,

plus it took nothing for me to suddenly have a bruise. 

>

>

> So, I went in to see my Dr and of course, she sent me for blood tests, urine

test and soon I'll have an Ultra Sound.  Well, she wanted to see me and I guess

we all worry a bit when our Drs want us to come in.  However, all my blood work

came back stupendously wonderful.  Still battling with a good urine specimen;

but, I'll get there.

>

> Anyway, so my question is this - is this part of the whole cycle of the

liver??  Except for the fatigue, I'm back to feeling pretty damn good again.

>

> I'd like to believe that the Creator isn't done with me yet, so it's not my

time anyway.

>

> Gloria

>

>

>

[Guest guest]

 Dear Gloria, the liver is finicky, and can be like an ally cat. Ardis and my

uncle both drank copious amounts of alcohol during liver failure, and

neither one died for YEARS after. Their livers just seemed to go on and on.  I

can relate to your sudden changes. I can tell when my liver is struggling day to

day, because of the fatigue, encephalopathy, and especially nose bleeds and

bruising. Ocassionally, my blood work will reflect these changes, and my MELD

does the roller coaster ride some more.  Hang in there, my friend, and keep

your chin up. Your're not going crazy, this is just par for the course. Love,

Bobby

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Tuesday, July 24, 2012 9:01 PM

Subject: New Question

 

Hi everyone

I have a question and certainly hope that some of you can give me your thoughts.

As you know, I have terminal liver cancer.  It is awesome that I have been

granted the last 11 months with very little problem.  Then, about 2 weeks ago,

all the signs of a very unhealthy liver.  Fatigue came bounding back in and

doesn't seem to want to leave yet.  But, I also had dark urine and gray stools,

plus it took nothing for me to suddenly have a bruise. 

So, I went in to see my Dr and of course, she sent me for blood tests, urine

test and soon I'll have an Ultra Sound.  Well, she wanted to see me and I guess

we all worry a bit when our Drs want us to come in.  However, all my blood work

came back stupendously wonderful.  Still battling with a good urine specimen;

but, I'll get there.

Anyway, so my question is this - is this part of the whole cycle of the

liver??  Except for the fatigue, I'm back to feeling pretty damn good again.

I'd like to believe that the Creator isn't done with me yet, so it's not my time

anyway.

Gloria

[Guest guest]

Thanks Bobby

Ya, I had a Portuguese client that also seemed to go on and on and on!!  The

wife of 37 yrs finally had had enough and had him removed from their property. 

Then, we or just me tried to get him sensible about divorce and property

division in today's rules.  That went on for 5 yrs!!  Oh the divorce happened

after 1 year and then it was another 4 yrs of giving the lawyers the price of

one of their rentals units, just to get to the point that I told him would

happen right from the beginning.  What I hadn't counted on was that he hired

the scum of the earth for a lawyer.  He was extremely rude and arrogant and

worked very hard to get more money out of that division than any 2 lawyers

together.

Then, his cancer began with something like prostate or around there and moved on

to liver cancer.  Couldn't tell if he ever had encephalopathy because prior to

that, couldn't tell if his behavior was that of an alcoholic that he was, or

bi-polar like a couple of his kids.

This results of the blood tests have actually thrown me right back up to

knowingthe Creator isn't done with me yet.  I can't help but believe, that if I

had gone to bed and pulled the blankets up over my head, I'd likely already be

gone.  Not only did I not do that; but, this latest word just made me want to

keep my attitude right tuned up again.

I've just told folks around me, that maybe I'm going to be here a good time

longer.  I'm just curious to find out if it's because I have something to teach

or something to learn.  But, life is good!!  It's just over a week before I go

over to Vancouver with my son for our first and last concert together.  I truly

believe that he is going to get a bit of a changed opinion by the time that

concert is over, as it's Yanni.  I've always just tried to tell him to keep his

mind opened to different forms of music.  Yanni is the guy that has continued

to go on with his " New Age " music after 32 years now.  That was the type of

music I really like, such as the Moody Blues etc.

Can you tell, I'm excited??

Luv Gloria

________________________________

 Dear Gloria, the liver is finicky, and can be like an ally cat. Ardis and my

uncle both drank copious amounts of alcohol during liver failure, and

neither one died for YEARS after. Their livers just seemed to go on and on.  I

can relate to your sudden changes. I can tell when my liver is struggling day to

day, because of the fatigue, encephalopathy, and especially nose bleeds and

bruising. Ocassionally, my blood work will reflect these changes, and my MELD

does the roller coaster ride some more.  Hang in there, my friend, and keep

your chin up. Your're not going crazy, this is just par for the course. Love,

Bobby

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Tuesday, July 24, 2012 9:01 PM

Subject: New Question

 

Hi everyone

I have a question and certainly hope that some of you can give me your thoughts.

As you know, I have terminal liver cancer.  It is awesome that I have been

granted the last 11 months with very little problem.  Then, about 2 weeks ago,

all the signs of a very unhealthy liver.  Fatigue came bounding back in and

doesn't seem to want to leave yet.  But, I also had dark urine and gray stools,

plus it took nothing for me to suddenly have a bruise. 

So, I went in to see my Dr and of course, she sent me for blood tests, urine

test and soon I'll have an Ultra Sound.  Well, she wanted to see me and I guess

we all worry a bit when our Drs want us to come in.  However, all my blood work

came back stupendously wonderful.  Still battling with a good urine specimen;

but, I'll get there.

Anyway, so my question is this - is this part of the whole cycle of the

liver??  Except for the fatigue, I'm back to feeling pretty damn good again.

I'd like to believe that the Creator isn't done with me yet, so it's not my time

anyway.

Gloria

[Guest guest]

Gloria, I haven't had the same problems as you, but I do have both ckd

and liver cirrhosis stage4. My kidney levels change all the time, but

the levels for my liver stay the same. However, my worst problem

right now is anemia and epo shots aren't taking care of it. I have

had one instance of internal bleeding which of course aggravated the

anemia, and am going to have an endo and colonoscopy in about 2 weeks

because I show internal bleeding again. The hemotologist I had been

going to finally said the anemia itself is caused by the two chronic

diseases and believes the bleeding is being caused by portal

hypertension. As I said, he is my former hemotologist. After I had

been seeing him for quite a while, getting the shots every 2 weeks,

when I mentioned I was stage 4 cirrhotic, he said you can't be, your

blood work doesn't show it. I told him I had two biopsies which did

show it if he cared to see them. He said but then you are dying. I

told him no because I was compensated. He didn't seem to know much

about cirrhosis. Then he quit explaining things to me, wouldn't

cooperate with my other doctors and refused to tell me why he wouldn't

consider certain diagnostic tests and treatments.

I had a point to make in regard to your question, but can't remember

it, happens all the time. People tell me it is my age, but they have

been saying it for almost 10 years and I wasn't that old then. The

fatigue and bruising I have had for many years. They have taken me

off aspirin and plavix in an effort to stop the bleeding, seems to be

helping some, but still getting bruises, not as many and usually know

what causes them now. ex hemo gave me a prescription which causes

blood to clot which really made me feel uncomfortable taking since my

cardios were really leery about quitting both aspirin and plavix. Then

I started hurting in different parts of my body, but pain somewhere

all the time. Called the gastro who is treating me for internal

bleeding and he said to stop. In my opinion, this having serious

illnesses, diseases is just one roller coaster ride after another.

Now if I could get a reliable ride to my dr. appointments and

procedures, life would be a lot easier. lol My doctors are 35, 80 and

140 miles away. I used to drive the 35 but not the 80 unless someone

came with me, and now I will have 2 drs at 140 miles. Besides which I

am being moved, trying to do as little myself as possible, but have to

change addresses, arrange utilities, repairs on my new house, my

granddaughter is coming to visit in the middle of all of it and I am

too tired to go to church tomorrow since I don't have to play. I need

to be out of here before Sept. 1st, expected to move as soon as

possible, but now it looks like having to move before my lease runs

out here, I have a feeling I have not answered your concerns which

is what I intended to do, but maybe I have. Having these diseases is

a process of constant adaptation so we can do what we need to do. I

have hired my cleaning lady to take care of the physical packing and

letting everybody know what they are supposed to do when we get to the

actual moving. Then her uncle died so she had to go to Oregon, lost 5

days of packing. She offered to stay, but I said she had to go. I t

ry not to dwell on all of the above unless it comes to mind like when

I am reading the emails here. Life is good, God has blessed me beyon

anything I could possibly have imagined. It is enjoyable, i have fun

and then I come home and crash for hours or a day or so. I just

noticed there were other responses to your post. I had forgotten

about the clay stools, and when not bleeding so they are very dark,

that is what mine looks like, so maybe I have begun decompensating.

God, if so, let me enjoy my new house for a while, I pray. I pray

that you can continue to feel better for a long time, enjoy with your

family and friends. I think our purpose in life is to help others to

learn that there can be life after these diseases set in and to help

them learn to cope with them. Although in one case I know, my

handling them has sent someone else into a state of depression. Time

for meds and then devotions and bed. For some reason I don't feel

like going to bed at night, getting my days and nights turned around

again. Jan

> Hi everyone

>

> I have a question and certainly hope that some of you can give me your

thoughts.

>

> As you know, I have terminal liver cancer. It is awesome that I have been

granted the last 11 months with very little problem. Then, about 2 weeks ago,

all the signs of a very unhealthy liver. Fatigue came bounding back in and

doesn't seem to want to leave yet. But, I also had dark urine and gray stools,

plus it took nothing for me to suddenly have a bruise.

>

>

> So, I went in to see my Dr and of course, she sent me for blood tests, urine

test and soon I'll have an Ultra Sound. Well, she wanted to see me and I guess

we all worry a bit when our Drs want us to come in. However, all my blood work

came back stupendously wonderful. Still battling with a good urine specimen;

but, I'll get there.

>

> Anyway, so my question is this - is this part of the whole cycle of the

liver?? Except for the fatigue, I'm back to feeling pretty damn good again.

>

> I'd like to believe that the Creator isn't done with me yet, so it's not my

time anyway.

>

> Gloria

>

>

>

[Guest guest]

Tommie Davenport

dtdaven7398@...

New Question

Hi everyone

I have a question and certainly hope that some of you can give me your thoughts.

As you know, I have terminal liver cancer. It is awesome that I have been

granted the last 11 months with very little problem. Then, about 2 weeks ago,

all the signs of a very unhealthy liver. Fatigue came bounding back in and

doesn't seem to want to leave yet. But, I also had dark urine and gray stools,

plus it took nothing for me to suddenly have a bruise.

So, I went in to see my Dr and of course, she sent me for blood tests, urine

test and soon I'll have an Ultra Sound. Well, she wanted to see me and I guess

we all worry a bit when our Drs want us to come in. However, all my blood work

came back stupendously wonderful. Still battling with a good urine specimen;

but, I'll get there.

Anyway, so my question is this - is this part of the whole cycle of the liver??

Except for the fatigue, I'm back to feeling pretty damn good again.

I'd like to believe that the Creator isn't done with me yet, so it's not my time

anyway.

Gloria

[Guest guest]

HELLO everyone

i got some questions and comments, anyone been taking the drug gabmapentin,

excuse my spelling, short for gerneric nuerontin... this drug work for me for a

couple of hours, then its back to square one, it good for my nerve naparaphy...

but other than that you are left out in the cold.... i also got acid reflex.

and i am catching hell.. but anyway, i am changing doctor, because this the one

i have now just dont give a shit, i saw him last week and i got the colonos....

and the egd....no varices, no cancer, but now back to the hepc... i am so weak

all the time, on the complete right side, pain everywhere from the toe to the

top of my head...i got an excellent nuerologist, he is the best in the country,

but that damn hepc doctor, i would give 2 dollar for his treatment....anytime a

doctor can answer any of your questions, then he shouldnt be in the field.... i

ask him about pain management he all but told me i had to live with it.....i am

going crazy with being so weak....

i dont have all the syptoms, that most people are going through, i thank god for

that... but side pain on the right...it is killing me... i had an xray said

everything was okay, but my pain tell me different... i am sure there is someone

out that that is having the same pain, if you are please talk to me,

yours going crazy... tommie

Tommie Davenport

dtdaven7398@...

New Question

Hi everyone

I have a question and certainly hope that some of you can give me your thoughts.

As you know, I have terminal liver cancer. It is awesome that I have been

granted the last 11 months with very little problem. Then, about 2 weeks ago,

all the signs of a very unhealthy liver. Fatigue came bounding back in and

doesn't seem to want to leave yet. But, I also had dark urine and gray stools,

plus it took nothing for me to suddenly have a bruise.

So, I went in to see my Dr and of course, she sent me for blood tests, urine

test and soon I'll have an Ultra Sound. Well, she wanted to see me and I guess

we all worry a bit when our Drs want us to come in. However, all my blood work

came back stupendously wonderful. Still battling with a good urine specimen;

but, I'll get there.

Anyway, so my question is this - is this part of the whole cycle of the liver??

Except for the fatigue, I'm back to feeling pretty damn good again.

I'd like to believe that the Creator isn't done with me yet, so it's not my time

anyway.

Gloria

[Guest guest]

Tommie

I would suggest first of all, that you be referred to a Arthritis Dr to either

find you do or don't have Fibromyalgia!!    I learned that mine came on bad,

just as I finished my 1st Hep C treatment in 2005.  However, there is not a

whole lot that can be done for it.  I have learned that the physical sides to

Hep C (Fibro for 1), will never be cured even though my Hep C is gone.  Now, I

don't know if I was just meant to get Fibro as a result of my sedentary life

style or the Hep C.  Doesn't really matter if it was the chicken or the egg. 

It hurts.  I have a sheer celebration if I can pull myself up even1 staircase,

never mind 2.  I have 2 little steps to go to the bathroom here in my 5th wheel

then 2 more to get to my bed.  Some days (not many) they don't bother me at

all; but, other days I'm in agony.

Actually, one of my prescriptions is to help with the pain from Fibro - it's

called Cyclobrnzaptine.  It's actually a muscle relaxant; but, helps me deal

with the Fibro for some reason.

By the way, my pain is mostly on my left side.  Seems weird to me, because I am

sooo right handed.  However, you don't want to ask me about my lower back at

all.  It is truly disabling when you can't make your own bed or even unload a

dishwasher.  I am thankful though, that it's not as bad as other folks. 

However, I do know the crazy about feeling so weak.  I except it a lot better

now; but, for a few years I would almost cry at how many things sent me into a

cycle of pain and weakness.  Of course, even spouses and children, never mind

friends, just can't not understand what I speak about.

As I say, the Arthritic Dr can test for the Fibro pain spots or tell you it's

not that at all. 

Gloria

________________________________

HELLO everyone

i got some questions and comments, anyone been taking the drug gabmapentin,

excuse my spelling, short for gerneric nuerontin... this drug work for me for a

couple of hours, then its back to square one, it good for my nerve naparaphy...

but other than that you are left out in the cold.... i also got acid reflex.

and i am catching hell.. but anyway, i am changing doctor, because this the one

i have now just dont give a shit, i saw him last week and i got the colonos....

and the egd....no varices, no cancer, but now back to the hepc... i am so weak

all the time, on the complete right side, pain everywhere from the toe to the

top of my head...i got an excellent nuerologist, he is the best in the country,

but that damn hepc doctor, i would give 2 dollar for his treatment....anytime a

doctor can answer any of your questions, then he shouldnt be in the field.... i

ask him about pain management he all but told me i had to live with it.....i am

going crazy

with being so weak....

i dont have all the syptoms, that most people are going through, i thank god for

that... but side pain on the right...it is killing me... i had an xray said

everything was okay, but my pain tell me different... i am sure there is someone

out that that is having the same pain, if you are please talk to me,

yours going crazy... tommie

Tommie Davenport

dtdaven7398@...

New Question

Hi everyone

I have a question and certainly hope that some of you can give me your thoughts.

As you know, I have terminal liver cancer. It is awesome that I have been

granted the last 11 months with very little problem. Then, about 2 weeks ago,

all the signs of a very unhealthy liver. Fatigue came bounding back in and

doesn't seem to want to leave yet. But, I also had dark urine and gray stools,

plus it took nothing for me to suddenly have a bruise.

So, I went in to see my Dr and of course, she sent me for blood tests, urine

test and soon I'll have an Ultra Sound. Well, she wanted to see me and I guess

we all worry a bit when our Drs want us to come in. However, all my blood work

came back stupendously wonderful. Still battling with a good urine specimen;

but, I'll get there.

Anyway, so my question is this - is this part of the whole cycle of the liver??

Except for the fatigue, I'm back to feeling pretty damn good again.

I'd like to believe that the Creator isn't done with me yet, so it's not my time

anyway.

Gloria