Re: New Question-answer-physiatrist

[Guest guest]

Tommie, you might think I sound like a broken record, but it is unlikely you

will ever receive any good pain management until you seek a  specialist in the

field of pain  medicine. Pain  medicine is it's own specialty, and is NOT the

same as pain management. Doctors who are not pain medicine specialists will just

lie to you, or prescribe you pain pills with poisonous Tylenol in it, or other

much worser NSAIDS, which are contraindicated in patients with liver disease.

The specialty for prescribing non poisonous opiate analgesics is called

" Physaiatrist " . It looks like psychiatrist, as in PSYC, but it is different.

Think, PHYS-EYE-UH-TRIST. People who get torn up in car accidents, or war see

these kinds of doctors, who specialize in rehabilittion. Some double as

addiction medicine doctors, which makes them more useful.

http://www.aapmr.org/patients/aboutpmr/pages/physiatrist.aspx

You cannot get a cavity filled by a primary care doctor, nor can you get a heart

catheterization. For those, you need  a specialist.-For pain in my bulging

liver capsule, enlarged spleen and rib tumor-a physiatrist is whom I went to

see. They do exist, several people here on this forum have them. Anyone who has

a loved one or is themselves suffering needlessly, my heart goes out to them. 

love,Bobby

 

________________________________

To: livercirrhosissupport

Sent: Monday, August 6, 2012 5:58 PM

Subject: Re: New Question

 

HELLO everyone

i got some questions and comments, anyone been taking the drug gabmapentin,

excuse my spelling, short for gerneric nuerontin... this drug work for me for a

couple of hours, then its back to square one, it good for my nerve naparaphy...

but other than that you are left out in the cold.... i also got acid reflex.

and i am catching hell.. but anyway, i am changing doctor, because this the one

i have now just dont give a shit, i saw him last week and i got the colonos....

and the egd....no varices, no cancer, but now back to the hepc... i am so weak

all the time, on the complete right side, pain everywhere from the toe to the

top of my head...i got an excellent nuerologist, he is the best in the country,

but that damn hepc doctor, i would give 2 dollar for his treatment....anytime a

doctor can answer any of your questions, then he shouldnt be in the field.... i

ask him about pain management he all but told me i had to live with it.....i am

going crazy

with being so weak....

i dont have all the syptoms, that most people are going through, i thank god for

that... but side pain on the right...it is killing me... i had an xray said

everything was okay, but my pain tell me different... i am sure there is someone

out that that is having the same pain, if you are please talk to me,

yours going crazy... tommie

Tommie Davenport

dtdaven7398@...

New Question

Hi everyone

I have a question and certainly hope that some of you can give me your thoughts.

As you know, I have terminal liver cancer. It is awesome that I have been

granted the last 11 months with very little problem. Then, about 2 weeks ago,

all the signs of a very unhealthy liver. Fatigue came bounding back in and

doesn't seem to want to leave yet. But, I also had dark urine and gray stools,

plus it took nothing for me to suddenly have a bruise.

So, I went in to see my Dr and of course, she sent me for blood tests, urine

test and soon I'll have an Ultra Sound. Well, she wanted to see me and I guess

we all worry a bit when our Drs want us to come in. However, all my blood work

came back stupendously wonderful. Still battling with a good urine specimen;

but, I'll get there.

Anyway, so my question is this - is this part of the whole cycle of the liver??

Except for the fatigue, I'm back to feeling pretty damn good again.

I'd like to believe that the Creator isn't done with me yet, so it's not my time

anyway.

Gloria

[Guest guest]

hi tommi the pain you are having on the right side is it a burning that takes

for ever to go away you are having a heart attack or a closing in your chest?

 

bev

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Tuesday, August 14, 2012 2:22 PM

Subject: Re: New Question-answer-physiatrist

 

Tommie, you might think I sound like a broken record, but it is unlikely you

will ever receive any good pain management until you seek a  specialist in the

field of pain  medicine. Pain  medicine is it's own specialty, and is NOT the

same as pain management. Doctors who are not pain medicine specialists will just

lie to you, or prescribe you pain pills with poisonous Tylenol in it, or other

much worser NSAIDS, which are contraindicated in patients with liver disease.

The specialty for prescribing non poisonous opiate analgesics is called

" Physaiatrist " . It looks like psychiatrist, as in PSYC, but it is different.

Think, PHYS-EYE-UH-TRIST. People who get torn up in car accidents, or war see

these kinds of doctors, who specialize in rehabilittion. Some double as

addiction medicine doctors, which makes them more useful.

http://www.aapmr.org/patients/aboutpmr/pages/physiatrist.aspx

You cannot get a cavity filled by a primary care doctor, nor can you get a heart

catheterization. For those, you need  a specialist.-For pain in my bulging

liver capsule, enlarged spleen and rib tumor-a physiatrist is whom I went to

see. They do exist, several people here on this forum have them. Anyone who has

a loved one or is themselves suffering needlessly, my heart goes out to them. 

love,Bobby

 

________________________________

From: Tommie Davenport <mailto:DTDaven7398%40aol.com>

To: mailto:livercirrhosissupport%40yahoogroups.com

Sent: Monday, August 6, 2012 5:58 PM

Subject: Re: New Question

 

HELLO everyone

i got some questions and comments, anyone been taking the drug gabmapentin,

excuse my spelling, short for gerneric nuerontin... this drug work for me for a

couple of hours, then its back to square one, it good for my nerve naparaphy...

but other than that you are left out in the cold.... i also got acid reflex.

and i am catching hell.. but anyway, i am changing doctor, because this the one

i have now just dont give a shit, i saw him last week and i got the colonos....

and the egd....no varices, no cancer, but now back to the hepc... i am so weak

all the time, on the complete right side, pain everywhere from the toe to the

top of my head...i got an excellent nuerologist, he is the best in the country,

but that damn hepc doctor, i would give 2 dollar for his treatment....anytime a

doctor can answer any of your questions, then he shouldnt be in the field.... i

ask him about pain management he all but told me i had to live with it.....i am

going crazy

with being so weak....

i dont have all the syptoms, that most people are going through, i thank god for

that... but side pain on the right...it is killing me... i had an xray said

everything was okay, but my pain tell me different... i am sure there is someone

out that that is having the same pain, if you are please talk to me,

yours going crazy... tommie

Tommie Davenport

mailto:dtdaven7398%40aol.com

New Question

Hi everyone

I have a question and certainly hope that some of you can give me your thoughts.

As you know, I have terminal liver cancer. It is awesome that I have been

granted the last 11 months with very little problem. Then, about 2 weeks ago,

all the signs of a very unhealthy liver. Fatigue came bounding back in and

doesn't seem to want to leave yet. But, I also had dark urine and gray stools,

plus it took nothing for me to suddenly have a bruise.

So, I went in to see my Dr and of course, she sent me for blood tests, urine

test and soon I'll have an Ultra Sound. Well, she wanted to see me and I guess

we all worry a bit when our Drs want us to come in. However, all my blood work

came back stupendously wonderful. Still battling with a good urine specimen;

but, I'll get there.

Anyway, so my question is this - is this part of the whole cycle of the liver??

Except for the fatigue, I'm back to feeling pretty damn good again.

I'd like to believe that the Creator isn't done with me yet, so it's not my time

anyway.

Gloria

[Guest guest]

Tommy

As usual, Bobby has given you some very good information.

I just finished typing a response on another group, where I strongly suggested

that the person have that one primary care Dr, who gets copies of reports from

any specialists you see and in one place.  Even easier, get a copy of any and

all blood tests and reports for yourself and then you would have them available

if the primary hasn't received one.  I am and have been very fortunate to have

had a couple of primary care Drs that did not try to treat me for something they

knew little about.  I was sent to the specialist in that field.

Also, I would not stand for a Dr that told me to just live with it!!  If that's

as much help as he/she can muster, then I do not want to ever come back. 

He/she are not in my body to feel the way that I do.  As well, I have great

respect for a Dr that out and out says, I don't know and will send you to that

specialist.  We definitely can not expect our primary to know everything.  Nor

can we expect the heart Dr can deal with the liver.  I battled through 2 Hep C

treatments; but, finally won that fight.  I'm just not going to beat the whole

war.

By the way, there is a little pill (prescription) that will help you greatly

with that acid reflux.  Seems my whole family have some kind of digestion

problems.  Mine is a sliding hiatus hernia, where as my mother had the

reflux.  Same medication though.  Also, why would they do an x-ray for what

you have described.  Even a CT Scan would be far better.  I only had x-rays

for my lungs.  When it comes to my very damaged liver, it was never less than

an Ultra Sound.

________________________________

hi tommi the pain you are having on the right side is it a burning that takes

for ever to go away you are having a heart attack or a closing in your chest?

 

bev

Tommie, you might think I sound like a broken record, but it is unlikely you

will ever receive any good pain management until you seek a  specialist in the

field of pain  medicine. Pain  medicine is it's own specialty, and is NOT the

same as pain management. Doctors who are not pain medicine specialists will just

lie to you, or prescribe you pain pills with poisonous Tylenol in it, or other

much worser NSAIDS, which are contraindicated in patients with liver disease.

The specialty for prescribing non poisonous opiate analgesics is called

" Physaiatrist " . It looks like psychiatrist, as in PSYC, but it is different.

Think, PHYS-EYE-UH-TRIST. People who get torn up in car accidents, or war see

these kinds of doctors, who specialize in rehabilittion. Some double as

addiction medicine doctors, which makes them more useful.

http://www.aapmr.org/patients/aboutpmr/pages/physiatrist.aspx

You cannot get a cavity filled by a primary care doctor, nor can you get a heart

catheterization. For those, you need  a specialist.-For pain in my bulging

liver capsule, enlarged spleen and rib tumor-a physiatrist is whom I went to

see. They do exist, several people here on this forum have them. Anyone who has

a loved one or is themselves suffering needlessly, my heart goes out to them. 

love,Bobby

 

HELLO everyone

i got some questions and comments, anyone been taking the drug gabmapentin,

excuse my spelling, short for gerneric nuerontin... this drug work for me for a

couple of hours, then its back to square one, it good for my nerve naparaphy...

but other than that you are left out in the cold.... i also got acid reflex.

and i am catching hell.. but anyway, i am changing doctor, because this the one

i have now just dont give a shit, i saw him last week and i got the colonos....

and the egd....no varices, no cancer, but now back to the hepc... i am so weak

all the time, on the complete right side, pain everywhere from the toe to the

top of my head...i got an excellent nuerologist, he is the best in the country,

but that damn hepc doctor, i would give 2 dollar for his treatment....anytime a

doctor can answer any of your questions, then he shouldnt be in the field.... i

ask him about pain management he all but told me i had to live with it.....i am

going crazy

with being so weak....

i dont have all the syptoms, that most people are going through, i thank god for

that... but side pain on the right...it is killing me... i had an xray said

everything was okay, but my pain tell me different... i am sure there is someone

out that that is having the same pain, if you are please talk to me,

yours going crazy... tommie

Tommie Davenport

mailto:dtdaven7398%40aol.com