Guest guest Posted February 4, 2001 Report Share Posted February 4, 2001 Paz... First of all what caused your father`s cirrhosis? Cirrhosis itself cannot be treated. What they try to do is treat the cause of the cirrhosis....in this way it is hoped that the progression can be stopped. In order to help you I would need to know the underlying cause of the cirrhosis. If it is alcohol he must immediately stop drinking, If it has other causes, then those must be addressed. Give us a little more info. What your father is displaying is called " ascites " ... it is a complication of cirrhosis. Other complications in advanced cirrhosis are bleeding internally... esp. in the esophagus and stomach and mental confusion that could progressively get worse leading to coma. Each of these can be treated to varying sucess. Your father had a procedure called " paracentisis " where they drew off the excess fluid that accumulated in his abdomen due to blockages in his liver. When they did that they should have tested the fluids, and probably given him some anti-biotics to prevent infections. He should have also been put on a salt (sodium) restricted diet.He probably should also have been prescribed diuretics to take. Each transplant center has its own criteria for listing. Age is usually considered on a case to case basis. The best way to find out is contact one and get an appointment,none of us are doctors and can only reccount our own expeiences. Talking about it won`t help you, you must take some action. Does your father see a specialist.. hepatologist or gastroentrologist? If not, he should get one. Please give us a little more detail on what caused his cirrhosis and we can help you better. I believe Texas has a number of fine transpant centers, contact the American Liver Foundation (ALF) and they can direct you to one, they can also sugget specialists in your area. I would be glad to answer as many of your questions as I can. I was transplanted in 1995 due to end stage cirrhosis (alcoholic) and I know quite a bit about it and what to expect. My wife died of cirrhosis 12 years ago at the age of 39 and like Joan and her late husband, not a day goes by that I don`t miss her. The people in this group are all suffering from some sort of potentially terminal liver disease, some with multiple problems or thier sons. daughters. mothers or fathers are. I myself have AIH and bone marrow cancer... each of which are incurable. Yet you will find that each is caring and loving and more than willing to support you and each other.Give them a chance. You will find that sometimes your posts are not answered immediately as not every one reads his/her emails each day Myself included.. Again I personally would be more than happy to respond to any or all questions I`m able to answer. I am posting a page to the group of one transplant center`s requirements for transplant consideration and I will see if I can find more. There is much information on the internet about cirrhosis and I wil send one of the pages to this site. Joanne of our group regularly posts incredibly helpful information and web sites, if you have time, look in our archives for some of them and previous discussions on cirrhosis. In the meantime keep sending your questions and thoughts and welcome to the group. May God bless you and your father. Love and serenity Jerry AIH `00 Multiple myeloma `97 Transplant `95 GREETINGS EVERYONE, I NEED INFORMATION URGENTLY AND I WOULD APPRECIATE ANY HELP YOU COULD GIVE ME. MY FATHER WAS DIAGNOSED WITH CIRRHOSIS IN SEPT. HE WAS DOING FINE WITH MEDICATION UNTIL LAST MONTH. HE GAINED 13 POUNDS AND WAS BECOMING VERY WEAK. THE DOCTOR DECIDED TO TAKE THE EXCESS WATER OFF HIS ABDOMINAL CAVITY. EVERY THING WENT WELL AND HE CAME BACK 30 POUNDS LIGHTER. THE DOCTOR SAID HE REMOVED 11 LITERS OF WATER. NOW MY FATHER IS WEAKER AND LETHARGIC. DO YOU ALL KNOW IF THIS IS NORMAL . THIS IS VERY NEW TO US AND I WOULD ALSO LIKE TO KNOW WHAT TO EXPECT AS THE DISEASE PROGRESSES. ONE LAST QUESTION, WOULD ANY ONE BE CONSIDERED FOR A TRANSPLANT IF HE IS 69 YEARS OLD? THANKS FOR ANY INFO YOU CAN GIVE ME. GOD BLESS. " Specialists in Transit Fwdg. Inc." 1801 Markley Laredo,Texas 78041 Ph.(956) 712-4120 Fax:(956) 712-1564 Paz Bandae-mail:pbanda@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2001 Report Share Posted June 29, 2001 Please spend some time poking around LPA Online. Be especially sure to see " Frequently Asked Questions, " the achondroplasia section of " Dwarfism Types, " and the LPA Online Library. Dan Kennedy Internet services coordinator Little People of America, Inc. http://www.lpaonline.org ==================================================== Date: Thu, 28 Jun 2001 06:15:23 -0700 From: <asdf1234@...> Subject: I need information My daughter was born with achondroplasia and I was wondering if there is anything special I should know. The father and her grandfather both have achondroplasia but dont know anything about except " we're just short and have shorter limbs. " This doesnt tell me if I should know anything. Will someone please let me know if there is something I should know. Also does somebody have any experiences they might find helpful? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2004 Report Share Posted May 16, 2004 It is common to have the disease under control with medication and then have a flare. The question is this just a flare or is your disease progressing (as RA does do). You need to get in to see your rheumatologist and have him/her determine what treatment is best. I can't imagine needing to go to the hospital, they will not have the familiarity with your disease that your rheumy does and will not be able to consider long-term treatment options. Sometimes your rheumy will up your dose for a short time to combat the flare, or perhaps it is time to consider another medication if the one's you are on are no longer working (this is common). Also, prednisone can have very damaging side effects to your body, is your rheumy planning to have you on this long-term? Have you talked about one of the biological drugs, if you are able to take one? Jennie > HI, MY NAME IS JO CAMPBELL, I COMMUNICATED WITH SOMEONE FROM YOUR GROUP ABOUT > A YEAR AGO...I WAS DIAGNOSED WITH RA ABOUT 2 YEARS AGO...I WANT TO ASK > MEMBERS WHAT THEY KNOW ABOUT FIBROMYALGIA, AND NEUROPATHY OF THE FEET...I'VE NOT > HAD A MAJOR 'FLARE' AND I WAS WONDERING IF EVERYONE WITH RA HAS THEM AND DO YOU > HAVE TO GO TO THE HOSPITAL. I'M CURRENTLY TAKING ARAVA, PLAQUENIL AND > PREDNISONE...I'D APPRECIATE ANYTHING YOU AND MEMBERS CAN TELL ME...I HAVE BOOKS, > PAMPHLETS ETC...BUT I WANT TO CONNECT WITH PEOPLE WITH THIS CONDITION. THANK YOU > MUCH MY E-MAIL ADDRESS IS JOCAMP54@A... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 In a message dated 17/05/2004 16:56:44 Central Standard Time, Matsumura_Clan@... writes: > Did you have the peripheral neuropathy before you started Arava > (leflunomide)? Just wondering since there have been several reports of > Arava-induced peripheral neuropathy. > and all Arava gave me peripheral neuropathy which went away after I was off of it for awhile. That was the final nail in the Arava coffin for me-having an MRI of my head to rule out MS when I just needed to stop the Arava. Cary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 Jo, no, not everyone with RA experiences major flares and, no, it isn't routine to be hospitalized for them. Did you have the peripheral neuropathy before you started Arava (leflunomide)? Just wondering since there have been several reports of Arava-induced peripheral neuropathy. a's Web site has a lot of great information about fibromyalgia, RA, and related matters: http://rheumatoid.arthritis.freehosting.net/ I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] I NEED INFORMATION > HI, MY NAME IS JO CAMPBELL, I COMMUNICATED WITH SOMEONE FROM YOUR GROUP ABOUT > A YEAR AGO...I WAS DIAGNOSED WITH RA ABOUT 2 YEARS AGO...I WANT TO ASK > MEMBERS WHAT THEY KNOW ABOUT FIBROMYALGIA, AND NEUROPATHY OF THE FEET...I'VE NOT > HAD A MAJOR 'FLARE' AND I WAS WONDERING IF EVERYONE WITH RA HAS THEM AND DO YOU > HAVE TO GO TO THE HOSPITAL. I'M CURRENTLY TAKING ARAVA, PLAQUENIL AND > PREDNISONE...I'D APPRECIATE ANYTHING YOU AND MEMBERS CAN TELL ME...I HAVE BOOKS, > PAMPHLETS ETC...BUT I WANT TO CONNECT WITH PEOPLE WITH THIS CONDITION. THANK YOU > MUCH MY E-MAIL ADDRESS IS JOCAMP54@... Quote Link to comment Share on other sites More sharing options...
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