Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Hi Dan. Thanks for the advise. They did tell me about the MXT taking a while to get into my system, it's just hard trying to learn to slow down but I'm trying. I have gotten a stool for in the shower, as I really can't stand for that long without the weakness or pain in the legs. They have me on the Viccoden for pain, but unless I take two at a time, it really doesn't help much so I just try to bear with it, I really don't like taking the pain meds but I will when I have to. The storms last night missed me, they pretty much stayed out east. I have lived in the Springs all of my life. I love it here, I love the mountains a lot. Kelley Knight 1400 E Boulder St Colo Spgs, CO 80909 719-365-1154 719-365-6834 fax The mission of Memorial Hospital is to optimize the health and comfort of our patients, their families and the community we serve by providing the best and most sensitive professional care and service. www.memorialhospital.com The information contained in or attached to this electronic message is privileged and confidential, intended only for the use of the individual(s) named above. If the reader of this message is not the intended recipient, or the employee or agent responsible to deliver it to the intended recipient, you are hereby notified that any dissemination, distribution, or copying of this communication is strictly prohibited. If you have received this communication in error, please inform the sender immediately and remove any record of this message. " Dan Steppe " <dan@...> " Dan Steppe " <dan@...> 04/29/2003 06:04 PM Please respond to Stillsdisease Stillsdisease cc: Subject: and MTX Did your doctor tell you that it takes somewhere around 2 to 3 months before MTX makes real improvements for you? The only thing I ever found to curb that awful pain was very potent pain pills. They just put you out in LA-LA land. The inflamation in the joints and the pain and weakness is something most people just do not comprehend at all. Get yourself some helpful goodies. Like those rubber strap wrench things that work on jar lids, door knobs, yes damned old door knobs were a major obstical for me for a while. It was like being locked in everywhere. haha. It is just terrible loosing the ability to do things before, but rest assured when you get better, AND YOU WILL, that you will look at all kinds of little things and appreciate them more. Hang in there and GET YOUR REST, can not say how very important rest, and sometimes a LOT of rest too. Are you getting any storms along the front range this evening? They ran me out of Montana this week, so I am camping out in Casper Wyoming for the week. Question for you. Have you lived in the Springs for a long time? Dan BS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Kelley, I don't believe I have given you my great big hi and hello!!! How are you? My name is Patti and I was diagnosed at age 19 just back in October 2002. It is great of you to join us and hope you have an amazing day! Patti~Canada >From: Kelley.Knight@... >Reply-Stillsdisease >Stillsdisease >Subject: Re: and MTX >Date: Wed, 30 Apr 2003 09:39:49 -0600 > >Hi Dan. Thanks for the advise. They did tell me about the MXT taking a >while to get into my system, it's just hard trying to learn to slow down >but I'm trying. I have gotten a stool for in the shower, as I really >can't stand for that long without the weakness or pain in the legs. They >have me on the Viccoden for pain, but unless I take two at a time, it >really doesn't help much so I just try to bear with it, I really don't >like taking the pain meds but I will when I have to. > >The storms last night missed me, they pretty much stayed out east. I have >lived in the Springs all of my life. I love it here, I love the mountains >a lot. > > >Kelley Knight >1400 E Boulder St >Colo Spgs, CO 80909 >719-365-1154 >719-365-6834 fax > >The mission of Memorial Hospital is to optimize the health and comfort of >our patients, their families and the community we serve by providing the >best and most sensitive professional care and service. > >www.memorialhospital.com > >The information contained in or attached to this electronic message is >privileged and confidential, intended only for the use of the >individual(s) named above. If the reader of this message is not the >intended recipient, or the employee or agent responsible to deliver it to >the intended recipient, you are hereby notified that any dissemination, >distribution, or copying of this communication is strictly prohibited. If >you have received this communication in error, please inform the sender >immediately and remove any record of this message. > > > > " Dan Steppe " <dan@...> > > > > > > > > > > > > > > > > " Dan Steppe " <dan@...> > >04/29/2003 06:04 PM >Please respond to Stillsdisease > > > Stillsdisease > cc: > Subject: and MTX > > >Did your doctor tell you that it takes somewhere around 2 to 3 months >before MTX makes real improvements for you? The only thing I ever >found to curb that awful pain was very potent pain pills. They just >put you out in LA-LA land. The inflamation in the joints and the >pain and weakness is something most people just do not comprehend at >all. Get yourself some helpful goodies. Like those rubber strap >wrench things that work on jar lids, door knobs, yes damned old door >knobs were a major obstical for me for a while. It was like being >locked in everywhere. haha. > >It is just terrible loosing the ability to do things before, but >rest assured when you get better, AND YOU WILL, that you will look >at all kinds of little things and appreciate them more. > >Hang in there and GET YOUR REST, can not say how very important >rest, and sometimes a LOT of rest too. > >Are you getting any storms along the front range this evening? They >ran me out of Montana this week, so I am camping out in Casper >Wyoming for the week. > >Question for you. Have you lived in the Springs for a long time? > >Dan >BS > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Hi Patti, thank you for your big hi and hello. It means a lot. I hope you have an amazing day and are enjoying your day off. Kelley in Colorado Kelley Knight 1400 E Boulder St Colo Spgs, CO 80909 719-365-1154 719-365-6834 fax The mission of Memorial Hospital is to optimize the health and comfort of our patients, their families and the community we serve by providing the best and most sensitive professional care and service. www.memorialhospital.com The information contained in or attached to this electronic message is privileged and confidential, intended only for the use of the individual(s) named above. If the reader of this message is not the intended recipient, or the employee or agent responsible to deliver it to the intended recipient, you are hereby notified that any dissemination, distribution, or copying of this communication is strictly prohibited. If you have received this communication in error, please inform the sender immediately and remove any record of this message. " ~PaTz~the~ jOvIaL~jUnIpEr~ " <qt_4_him@...> " ~PaTz~the~ jOvIaL~jUnIpEr~ " <qt_4_him@...> 04/30/2003 03:35 PM Please respond to Stillsdisease Stillsdisease cc: Subject: Re: and MTX Kelley, I don't believe I have given you my great big hi and hello!!! How are you? My name is Patti and I was diagnosed at age 19 just back in October 2002. It is great of you to join us and hope you have an amazing day! Patti~Canada >From: Kelley.Knight@... >Reply-Stillsdisease >Stillsdisease >Subject: Re: and MTX >Date: Wed, 30 Apr 2003 09:39:49 -0600 > >Hi Dan. Thanks for the advise. They did tell me about the MXT taking a >while to get into my system, it's just hard trying to learn to slow down >but I'm trying. I have gotten a stool for in the shower, as I really >can't stand for that long without the weakness or pain in the legs. They >have me on the Viccoden for pain, but unless I take two at a time, it >really doesn't help much so I just try to bear with it, I really don't >like taking the pain meds but I will when I have to. > >The storms last night missed me, they pretty much stayed out east. I have >lived in the Springs all of my life. I love it here, I love the mountains >a lot. > > >Kelley Knight >1400 E Boulder St >Colo Spgs, CO 80909 >719-365-1154 >719-365-6834 fax > >The mission of Memorial Hospital is to optimize the health and comfort of >our patients, their families and the community we serve by providing the >best and most sensitive professional care and service. > >www.memorialhospital.com > >The information contained in or attached to this electronic message is >privileged and confidential, intended only for the use of the >individual(s) named above. If the reader of this message is not the >intended recipient, or the employee or agent responsible to deliver it to >the intended recipient, you are hereby notified that any dissemination, >distribution, or copying of this communication is strictly prohibited. If >you have received this communication in error, please inform the sender >immediately and remove any record of this message. > > > > " Dan Steppe " <dan@...> > > > > > > > > > > > > > > > > " Dan Steppe " <dan@...> > >04/29/2003 06:04 PM >Please respond to Stillsdisease > > > Stillsdisease > cc: > Subject: and MTX > > >Did your doctor tell you that it takes somewhere around 2 to 3 months >before MTX makes real improvements for you? The only thing I ever >found to curb that awful pain was very potent pain pills. They just >put you out in LA-LA land. The inflamation in the joints and the >pain and weakness is something most people just do not comprehend at >all. Get yourself some helpful goodies. Like those rubber strap >wrench things that work on jar lids, door knobs, yes damned old door >knobs were a major obstical for me for a while. It was like being >locked in everywhere. haha. > >It is just terrible loosing the ability to do things before, but >rest assured when you get better, AND YOU WILL, that you will look >at all kinds of little things and appreciate them more. > >Hang in there and GET YOUR REST, can not say how very important >rest, and sometimes a LOT of rest too. > >Are you getting any storms along the front range this evening? They >ran me out of Montana this week, so I am camping out in Casper >Wyoming for the week. > >Question for you. Have you lived in the Springs for a long time? > >Dan >BS > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Hi Patti, thank you for your big hi and hello. It means a lot. I hope you have an amazing day and are enjoying your day off. Kelley in Colorado Kelley Knight 1400 E Boulder St Colo Spgs, CO 80909 719-365-1154 719-365-6834 fax The mission of Memorial Hospital is to optimize the health and comfort of our patients, their families and the community we serve by providing the best and most sensitive professional care and service. www.memorialhospital.com The information contained in or attached to this electronic message is privileged and confidential, intended only for the use of the individual(s) named above. If the reader of this message is not the intended recipient, or the employee or agent responsible to deliver it to the intended recipient, you are hereby notified that any dissemination, distribution, or copying of this communication is strictly prohibited. If you have received this communication in error, please inform the sender immediately and remove any record of this message. " ~PaTz~the~ jOvIaL~jUnIpEr~ " <qt_4_him@...> " ~PaTz~the~ jOvIaL~jUnIpEr~ " <qt_4_him@...> 04/30/2003 03:35 PM Please respond to Stillsdisease Stillsdisease cc: Subject: Re: and MTX Kelley, I don't believe I have given you my great big hi and hello!!! How are you? My name is Patti and I was diagnosed at age 19 just back in October 2002. It is great of you to join us and hope you have an amazing day! Patti~Canada >From: Kelley.Knight@... >Reply-Stillsdisease >Stillsdisease >Subject: Re: and MTX >Date: Wed, 30 Apr 2003 09:39:49 -0600 > >Hi Dan. Thanks for the advise. They did tell me about the MXT taking a >while to get into my system, it's just hard trying to learn to slow down >but I'm trying. I have gotten a stool for in the shower, as I really >can't stand for that long without the weakness or pain in the legs. They >have me on the Viccoden for pain, but unless I take two at a time, it >really doesn't help much so I just try to bear with it, I really don't >like taking the pain meds but I will when I have to. > >The storms last night missed me, they pretty much stayed out east. I have >lived in the Springs all of my life. I love it here, I love the mountains >a lot. > > >Kelley Knight >1400 E Boulder St >Colo Spgs, CO 80909 >719-365-1154 >719-365-6834 fax > >The mission of Memorial Hospital is to optimize the health and comfort of >our patients, their families and the community we serve by providing the >best and most sensitive professional care and service. > >www.memorialhospital.com > >The information contained in or attached to this electronic message is >privileged and confidential, intended only for the use of the >individual(s) named above. If the reader of this message is not the >intended recipient, or the employee or agent responsible to deliver it to >the intended recipient, you are hereby notified that any dissemination, >distribution, or copying of this communication is strictly prohibited. If >you have received this communication in error, please inform the sender >immediately and remove any record of this message. > > > > " Dan Steppe " <dan@...> > > > > > > > > > > > > > > > > " Dan Steppe " <dan@...> > >04/29/2003 06:04 PM >Please respond to Stillsdisease > > > Stillsdisease > cc: > Subject: and MTX > > >Did your doctor tell you that it takes somewhere around 2 to 3 months >before MTX makes real improvements for you? The only thing I ever >found to curb that awful pain was very potent pain pills. They just >put you out in LA-LA land. The inflamation in the joints and the >pain and weakness is something most people just do not comprehend at >all. Get yourself some helpful goodies. Like those rubber strap >wrench things that work on jar lids, door knobs, yes damned old door >knobs were a major obstical for me for a while. It was like being >locked in everywhere. haha. > >It is just terrible loosing the ability to do things before, but >rest assured when you get better, AND YOU WILL, that you will look >at all kinds of little things and appreciate them more. > >Hang in there and GET YOUR REST, can not say how very important >rest, and sometimes a LOT of rest too. > >Are you getting any storms along the front range this evening? They >ran me out of Montana this week, so I am camping out in Casper >Wyoming for the week. > >Question for you. Have you lived in the Springs for a long time? > >Dan >BS > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Toni, He did put me on folic acid (1 mg) as well as the MTX pills. Thank you for your input. It sounds like everyone has better luck with the shots. I just took my first dose of the pills yesterday. I'm sure it will take awhile for the side effects. I just want to thank everyone here. I have only been a member for one day and I already feel better about things. I am a care taker in my family and do not like people to worry about me so I have tried to fluff it over with my son, husband and sisters. But there are times that I am scared to death and it helps to know that there is a group that will understand that. Thanks again! > Hi , > > Did he also prescribe Folic acid to go along with the MTX? If not you may > want to ask about it. It can help lessen the side effects of the MTX if you get > any. I started on MTX pills and it did not go well, constant nausea, > vomiting and diarrhea even with high doses of folic acid. Finally I got the drug > induced pneumonitis which can be a very serious and fatal side effect from the > MTX. We stopped the pills for a month and I went back on MTX injections. I get > no nausea or vomiting. I do get some diarrhea and bad mouth sores. So I am > on Folic acid 5 mg a day and Leukovorin the day I take my MTX injection. I > also take Enbrel, Bextra and prednisone, calcium/vit D. > > Good luck > > Toni > > In a message dated 4/27/04 5:05:35 PM Central Daylight Time, > writes: > > > I just got back from the Rheumatologist and have been diagnosed with > > fast acting Rheumatoid Arthritis. He put me on Bextra and > > Methotrexate. Any input on Methotrexate that anyone has would be > > greatly appreciated. I am a little concerned with what I have read > > so far. > > > > Thanks! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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