RE: Asymptomatic uterine fibroids

[Guest guest]

silvrfaux@... wrote:

> In the meantime, here is a discussion on uterine fibroids by

> Dr. Hill, editorial advisor to OBGYNET. A little more enlightened,

> but once again, no mention of UAE---would anyone care to

> write to Dr. Hill?

I already have. He's a huge disseminator of incorrect information on the

ob/gyn.net forum board--along with many other ob/gyns on that board. If others

wish to write to him, be prepared for deep wrath.....they're a little sensitive

about the issue of UAE....oh, you should also be prepared to be accused of

being me.....apparently they think no other woman has an interest in UAE or

can speak intelligently about it....my posts over there on the topic of UAE

etc. have all been deleted and I've been banned from posting to their forum.

In addition, the editor of ob/gyn.net forum recently banned the topic of UAE

from further discussion on the board.

Carla Dionne

Executive Director

National Uterine Fibroids Foundation

mailto:carla@...

http://www.NUFF.org

/list/uterinefibroids

Personal email & website:

mailto:cdionne@...

http://www.uterinefibroids.com

" Never doubt that a small group of thoughtful committed citizens can change the

world. Indeed it's the only thing that ever has. " Margaret Mead

[Guest guest]

Thanks for your response Marsha. I'll try to answer some of your questions.

I've been to several gynecologists. There are two I've narrowed it down to

if I decide to take surgical action.

One of them mentioned UAE to me, which is one of the reasons I feel a

certain amount of trust with him. Most doctors around here don't mention

it. The other gyn didn't bring it up, but when I mentioned it, she said it

was certainly an option if I didn't want children. These are the two most

enlightened doctors I've found in the area. Both said I could keep waiting.

One of them said women have carried full-term pregnancy size tumors without

problems. The one I'm primarily going to said I should do it prior to

20-week size though because he said the bigger bulk just made the surgery

more difficult.

I have never had children, and they have never been in the plans, but I

guess I wasn't completely ready to close that option forever. I have

considered UAE, especially since reading all the positive posts about it,

but there are a few reasons why I'm hesitant:

1. Not being 100% certain I won't want children.

2. I spoke to the HERS Foundation about fibroids and they are very adamant

about it being dangerous (deaths from infection), experimental, and even

said the particles that are injected contain carcinogenic material. Their

response frightened me. Anyone have any response on why they would do this?

3. Only two local IRs do it. I spoke to one on the phone and he said he

wouldn't recommend it unless I was very symptomatic. So, even he made it

seem sort of like an emergency last-ditch effort. He said the long-term

affects were unknown.

4. I know it's rare, but I have a slight fear of early menopause too.

I know many of you have had it performed, with success, but all of this

still frightens me, especially since I'm young. If there are long-term

affects of some sort, I'll have to live with them a long time.

Back to your questions: I had an ultrasound in Dec. of 99. The fibroid

measured 7.4cm X 10.9cm x 10.5 cm. Since then, I have had two pelvic exams.

I'm small, so the gyn. says he can get a pretty good idea of the size from a

pelvic. In the last three months, he didn't think there had been any

growth.

I guess I thought that if I had a myomectomy and I end up having continued

problems with fibroids, I'd consider UAE then.

Sorry this is so lengthy. Thanks for any feedback from the group.

Asymptomatic uterine fibroids

Hi ,

I have been one to advocate for medical

therapy for rapidly growing benign symptomatic

uterinefibroids in the past, using UAE, unless

there is a pregnancy desired.

If I may please ask?

Are you desiring a or another pregnancy?

Your 16 week size was measured by pelvic exam, ultrasound,

MRI?

Your gynecologist is recommending watchful waiting and

is not concerned about your growing asymptomatic fibroid?

I have some real concerns about Gynecologists and this

" watchful waiting " game. What are we doing, " watchfully

waiting " these growing asymptomatic/or symptomatic fibroids

until they are no longer manageable except via hysterectomy?

The burden is on the Gynecologists to disprove me, via studies,

statistics, that this is not the case. They need to show me also,

that endocrine disruptors (xenoestrogens) from the millions of tons

of chemicals released in air/soil/water are not impacting us. I can't

believe how many younger women are coming aboard now----

there is tremendous need for research, this watchful waiting

is outdated and obsolete in my opinion. If the uterine fibroids are

growing in a woman in her 30's--how is she going to make it to

menopause (age 45+)?

In the meantime, here is a discussion on uterine fibroids by

Dr. Hill, editorial advisor to OBGYNET. A little more enlightened,

but once again, no mention of UAE---would anyone care to

write to Dr. Hill?

http://www.obgyn.net/women/articles/fibroids_dah.htm

<A HREF= " http://www.obgyn.net/women/articles/fibroids_dah.htm " >Click here:

OBGYN.net Publications - Uterine Fibroids - D. Hill, MD

</A>

Hope you'll continue the discussion . There may be

many women also presenting with asymptomatic uterinefibroids

that could provide additional insight or benefit from.

Take good care of yourself.

Marsha

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