Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 a, I am sorry that I gave the impression that I am " slipping into depression " . Thank God, I do not have that particular disease and I feel compassion for those who must deal with it. I guess I was also horrified that you felt you had to point out the danger of self-pity when I felt this was a safe place to let it all hang out when I was so miserable. I misunderstood what was acceptable for this support group and I think it is better that I not participate further. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 Depression is very common for people that have RA and other chronic diseases. The self pity I was talking about was my own. I¹m sorry, maybe I phrased it wrong. The cave you spoke about being in is one of places I go to all to frequently. This is a very acceptable place to express your feelings and I¹m sorry I didn¹t express myself the way I intended. One problem with email is that it is so easy to write one thing and mean another. a This is definitely a safe place to let it all hang out. > a, I am sorry that I gave the impression that I am " slipping into > depression " . Thank God, I do not have that particular disease and I feel > compassion > for those who must deal with it. I guess I was also horrified that you felt > you had to point out the danger of self-pity when I felt this was a safe place > to let it all hang out when I was so miserable. I misunderstood what was > acceptable for this support group and I think it is better that I not > participate > further. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 I haven't responded for months but this site is such a support. I was diagnosed last Christmas time with AIH/ RA and PBC. I was put on 6mp and imuran and prednisone. Also a weekly shot of Embrel. Well things looked pretty good except my WBC was 2.1 so the doc decreased my 6mp to half dose and that wasn't working to raise the WBC so I have been off 6mp for several months. Well my total protein is 9.5,alk phos is 156. Direct bili is.22, Alt.sgpt is 40. I had a flare of RA so I am back on 10 mg of prednisone. I fx my right wrist on Good Friday and am still in therapy. I have developed a lymph edema. I am so bummed. Any thoughts on what to ask my doc to do next????? I see the GI doc tomorrow and my rheumatologist later in the week. I look forward to any answers or advise from someone. Thanks, Jackie from MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 In a message dated 8/19/2005 12:20:26 A.M. Pacific Standard Time, writes: http://www.enzymestuff.com/conditionsensitivities.htm , You and Dana both have wonderful sites....and I am glad they are not toll sites or I would be in deeeeeeeeeeeeeeeeep doodoo!! lol. There are some things I still don't understand. The sites don't always agree. Is the UK different from the US? There is no listing for Phenols....are they the same as salicyclates? Carob doesn't seem to be a problematic food for any as far as I can see...but it drives the kids as wild or wilder than chocolate. Is that because they are similar?? What other foods would be related? They are not allergic to either per their tests (blood Elise) Also my kids are not allergic to turkey but we have yet to find a form of turkey that they can handle. We have tried organic and everything else....I have heard that the color of the feathers....like chickens makes a difference in the meat, also...or is this just a myth. We are really struggling at times. Their diet is so limited as it is....we are just starting enzymes....and that is also not an easy venture for us....they are making inroads but the price is very dear some days. (deep sigh) Any help would be greatly appreciated. Thanks Ronni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Carob is high in B vitamins and is related to the legume family (beans and peas and peanuts). Peace, Kathy E. On Aug 20, 2005, at 1:26 PM, HISSPECIALTOUCH@... wrote: > Carob doesn't seem to be a problematic food for any as far as I can > see...but it drives the kids as wild or wilder than chocolate. Is > that because they > are similar?? What other foods would be related? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2005 Report Share Posted August 21, 2005 > The sites don't always agree. Is the UK different from the US? For some things, UK is different than US. > There is no listing for Phenols....are they the same as salicyclates? Phenols is a broad category and includes lots of things, one of which is salicylates. > Carob doesn't seem to be a problematic food for any as far as I can > see...but it drives the kids as wild or wilder than chocolate. Is that because they > are similar?? What other foods would be related? Leguminosae: Pea or Pulse Family (Legumes) -- peas, beans, lentils, peanuts/ground nuts, alfalfa, carob, soybeans, garbanzos/chickpeas, fenugreek, guar Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 We make waffles with 6 eggs per 8 waffles (need a stick blender for this). Usually kefir-soaked oat or spelt and buckwheat flour, served with raw butter and honey. She'll eat waffles any time, any place. Also, I make a lot of gently cooked custard and puddingy things, including milk drinks gently heated with whole eggs or yolks to give them body. I'd rather make something a little sweet or cocoa-y with an egg or egg and a half in it than have her turn down the protein entirely. We also make gelato and custard ice cream with raw milk. Others... Mini sourdough pizzas Cold chunked cooked chicken/meat with dipping sauce (molasses-based bbq, tomato-based) Hummus/veggies (probably good with coconut oil) Coconut cookies (frozen raw coconut mixed w/ beaten egg, sometimes nut butter, baked at 350) Kefir/juice popsicles (cherry, blueberry, prune, etc.) egg can also be blended into these, or custard can be frozen Fondue (cheese and veggies) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Sent with Wireless Sync from Verizon Wireless ---- Original Message ---- From: " " < > Date: 4/3/08 6:07 am " " < > Subj: Digest Number 3992 (;_ylc=X3oDMTJkN2RqbWhsBF9TAzk3MzU5NzE1BGdyc\ ElkAzc5NjIwNjcEZ3Jwc3BJZAMxNzA1MDEzNDkwBHNlYwNoZHIEc2xrA2hwaARzdGltZQMxMjA3MjE3M\ jQ1) Miracles Happen - Hearing Is Restored Messages In This Digest (3 Messages) 1a. (#1a) ci batteries From: ChatterboxLS@... 1b. (#1b) Re: ci batteries From: Carol 2a. (#2a) Re: Using disability as an excuse From: Altha Reinecke (/messages;_ylc=X3oDMTJmbWlxMTBkBF9TAzk3MzU5\ NzE1BGdycElkAzc5NjIwNjcEZ3Jwc3BJZAMxNzA1MDEzNDkwBHNlYwNkbXNnBHNsawNhdHBjBHN0aW1l\ AzEyMDcyMTcyNDc-?xm=1 & m=p & tidx=1) View All Topics | (/post;_ylc=X3oDMTJmcGFoYXVmBF9TAzk3MzU5NzE1\ BGdycElkAzc5NjIwNjcEZ3Jwc3BJZAMxNzA1MDEzNDkwBHNlYwNkbXNnBHNsawNudHBjBHN0aW1lAzEy\ MDcyMTcyNDc-) Create New Topic Messages 1a. (/message/58303;_ylc=X3oDMTJycHQxNmkzBF9TAzk\ 3MzU5NzE1BGdycElkAzc5NjIwNjcEZ3Jwc3BJZAMxNzA1MDEzNDkwBG1zZ0lkAzU4MzAzBHNlYwNkbXN\ nBHNsawN2bXNnBHN0aW1lAzEyMDcyMTcyNDc-) ci batteries Posted by: " ChatterboxLS@... " (mailto:ChatterboxLS@...?Subject= Re%3Aci%20batteries) ChatterboxLS@...  (chatterboxls) chatterboxls Wed Apr 2, 2008 5:40 am (PDT) just curious as to where's a good place to get the cheapest batteries for rubys bte? - she still has some of what came with her 'initial pack' from when she first got her implant (p675), but was wanting to see where's the cheapest place to get more of them (i've got some websites/links, but the search's so exhaustive, i thought asking might be faster & more helpful - thanks ahead of time! Lori .... keep smilin' 317.770.9032 (H) 317.432.3103 (C-Indiana) 011.509.930.6728 (C-Haiti) (mailto:ChatterboxLS%40aol.com) ChatterboxLS@... _(http://fromourbunchtoyours.blogspot.com/_) http://fromourbunchtoyours.blogspot.com/_ ((http://fromourbunchtoyours.blogspot.com/) http://fromourbunchtoyours.blogspot.com/) Co-Founder of 'HANDS THAT HEAL' _(http://handsthatheal-mk1618b.blogspot.com/_) http://handsthatheal-mk1618b.blogspot.com/_ ((http://handsthatheal-mk1618b.blogspot.com/) http://handsthatheal-mk1618b.blogspot.com/) Haiti Program Director for Shiloh Adoptions (mailto:lori%40shilohadoptions.org) lori@... _(http://shilohadoptions.org/haiti.shtml_) http://shilohadoptions.org/haiti.shtml_ ((http://shilohadoptions.org/haiti.shtml) http://shilohadoptions.org/haiti.shtml) SHILOH ADOPTIONS PRIVATE & CONFIDENTIAL STATEMENT: This transmission & all attached files are privileged, confidential or otherwise the exclusive property of the intended recipient or His Kids Ministries, Incorporated dba Shiloh Adoptions. If you're not the intended recipient, any disclosure, copying, distribution or use of any of the information contained in or attached to this transmission's strictly prohibited. If you've received this transmission in error, please contact us immediately by email at (mailto:teri%40shilohadoptions.org) teri@... or by telephone at 785.273.0937 & promptly destroy the original transmission & its attachments. uuuuuuuuuuuuuuuuuuuuuuuuu Spike, Lori, , Brittan, Kiara, Ruby, Karleigh & 'Baby' ~ Isaiah 46:11 ~ " What I've said, that will I bring about & what I've planned, that will I do. " uuuuuuuuuuuuuuuuuuuuuuuuu **************Create a Home Theater Like the Pros. Watch the video on AOL Home. ((http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & ncid=aolhom0003\ 0000000001) http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & ncid=aolhom000300\ 00000001) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.