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i went to visit dr tan today. he said arthritis wise i am doing very well. he

believe's that i suffer from sciatica and diabetic neuropathy. i go back next

tuesday for the emg. i am tired as i went to work at 7am-10 then to the dr. i

am going to run some errands then just hang out at home.

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  • 2 years later...

Oh Sue, I'm so sorry . . . please don't let it drop at that. You have his short answer - the quick and easy one . . give it a little time and call back telling him you are still dizzy. Many doctors don't want to take the time to delve into complex issues . . . Make him! That's his job - - or insist that he refer you to someone who knows what to do. Love, Rogenegibbense@... wrote: Dear Rogene, I had my appointment today what a complete waste of time, after listening to what I had to say he looked into my eyes with a light and told me I had migraines and prescribed me two different kind of tablets, needless to say I ripped it up before I left the hospital. Six months I have waited for that appointment just to be kept waiting for an hour then told I suffer with migraines. He seemed to ignore the dizziness my WORST symptom, another waste of my time. Love Sue.

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Sue,

I am so sorry that you are still dealing with that awful dizziness!

I have to wonder if it is all hormonally related. I am having some menopause type symptoms, and I noticed a little dizziness with the creams when I had too much in my system.

Another thought....are you taking high doses of either Cod liver oil, fish oil and/or evening primrose oil? If you are not, you may want to consider stepping that up. When I take alot of cod liver oil in one sitting, I feel alot better!

Patty

neurologist

Dear Rogene,

I had my appointment today what a complete waste of time, after listening to what I had to say he looked into my eyes with a light and told me I had migraines and prescribed me two different kind of tablets, needless to say I ripped it up before I left the hospital. Six months I have waited for that appointment just to be kept waiting for an hour then told I suffer with migraines. He seemed to ignore the dizziness my WORST symptom, another waste of my time.

Love Sue.

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Hi Ladies, My name is . I am still healing and my mom has

been on here. I thought I was dizzy and I had my mom checking me all

the time, and she was the one that figured out that it was my eyes

like bouncing up and down would be the best discription I can think of

to describe it the best way. If I were you I would have someone check

your eyes while you look to the right and the left. Let me know if you

have any questions. Thanks, .

> Dear Rogene,

>

> I had my appointment today what a complete waste of time, after

listening to what I had to say he looked into my eyes with a light and

told me I had migraines and prescribed me two different kind of

tablets, needless to say I ripped it up before I left the hospital.

Six months I have waited for that appointment just to be kept waiting

for an hour then told I suffer with migraines. He seemed to ignore

the dizziness my WORST symptom, another waste of my time.

>

> Love Sue.

>

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Oh, dear, Sue.....I can empathize with you, for sure. I also waited a

long time to see the rheumatologist I saw. He was an arrogant, very

elderly man. Wrote me off very quickly, especially when he heard I

used " holistic " methods. He as much as said, " why don't you just use

your holistic methods to make yourself all better? " I said, " I'm

trying to....that's why I'm here. Western medicine is part of my

holistic healing program. "

I left feeling very frustrated and invalidated. He wrote a letter to

my family doctor....when I had my visit for the results, my doc said

there was no diagnosis. I asked for a copy of his letter....oh, my

gosh....he had put I had myalgia. Don't know why my doc didn't

mention that. Oh, yeah, ofcourse I know why! He also eluded to the

fact I had mental illness problems and should probably be checked up

on in awhile. Oh, I tell ya!

I'm praying for you, Sue. Please try to let that negative visit go.

It'll only stress you more. Easier said than done, I know.

Love & Comfort,

Sunny :)

>

> Dear Rogene,

>

> I had my appointment today what a complete waste of time, after

listening to

> what I had to say he looked into my eyes with a light and told me I

had

> migraines and prescribed me two different kind of tablets, needless

to say I

> ripped it up before I left the hospital. Six months I have waited

for that

> appointment just to be kept waiting for an hour then told I suffer

with migraines.

> He seemed to ignore the dizziness my WORST symptom, another waste

of my time.

>

> Love Sue.

>

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Sue, that is awful - what is your next step?

>

> Dear Rogene,

>

> I had my appointment today what a complete waste of time, after

listening to

> what I had to say he looked into my eyes with a light and told me I

had

> migraines and prescribed me two different kind of tablets, needless

to say I

> ripped it up before I left the hospital. Six months I have waited for

that

> appointment just to be kept waiting for an hour then told I suffer

with migraines.

> He seemed to ignore the dizziness my WORST symptom, another waste of

my time.

>

> Love Sue.

>

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Hi . . . It's so good to see you here! . . Welcome! .We've been following your progress! . . . You have a wonderful mom - as if you didn't know that! I'm thrilled to hear you've made so much progress! . . . It will probably take more time - but you're headed in the right direction. Do your doctors agree that it was your implants making you sick now? Hugs, Rogene carcamo79 <carcamo79@...> wrote: Hi Ladies, My name is . I am still healing and my mom hasbeen on here. I thought I was dizzy and I had my mom checking me allthe time, and she was the one that figured out that it was my eyeslike bouncing up and down would be the best discription I can think ofto describe it the best way. If I were you I would have someone checkyour eyes while you look to the right and the left. Let me know if youhave any questions. Thanks, .> Dear Rogene, > > I had my appointment today what a complete waste of time, afterlistening to what I had to say he looked into my eyes with a light andtold me I had migraines and prescribed me two different kind oftablets, needless to say I ripped it up before I left the hospital.Six months I have waited for that appointment just to be kept waitingfor an hour then told I suffer with migraines. He seemed to ignorethe dizziness my WORST symptom, another waste of my time.> > Love Sue.>

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Sue,

I'm so disappointed for you! I'd have reacted the same way! My

neurologist has disappointed me greatly; I respect his obvious

intelligence, medical training, experience, kindness, decency,

but....what? It's his medical training. He can't think outside the

box. And that's the problem. We're outside the box. I had hopes of

seeing him again and getting some help, because my symptoms have flared,

and my problems, residual damage, etc., is mainly neurological, fueled

by vasculitis which is the root process which silicone + sets off. Then

it depends of where the vasculitis is the worst. Mine is CNS (central

nervous system) and PNS (peripheral nervous system). And it's scary stuff!

I agree with Rogene's response. And I plan to have a whole strategy, a

plan of attack, as it were, in place this time when I see mine! <grin>

I'm going to tell him, ask him for, exactly what I want from him!

Pretty please, with sugar on it! Hope you get some help with what's

going on, Sue. No fun living in limbo.

2 British Butterflies (Papillons)

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Patty,

I can understand cod liver oil might well help, but I wonder if you

worry about the high level of vitamin A in it. If not careful, and

getting A in other products as well, you can get too much, and too much

A is harmful, I believe I've read that somewhere, warning against use of

cod liver oil as opposed to just plain fish oil. Can't find what I'm

looking for right now! <grin> What's your take on this?

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> > >

> > > ,

> > >

> > > It was recommended that I take cod liver oil, but I haven't

> taken it

> > > because last year, while sick from implants, I ended up getting

> sick

> > > from vitamin A as well, so I've been concerned about getting too

> > > much vitamin A and haven't taken the cod liver oil. I wasn't

> sure

> > > if it had the potential to make me sick like the vitamin A from

> > > regular vitamins did.

> > >

> > > Sis

> > >

> >

>

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I did not see Dr. Lewy for treatment, only for consultation, testing,

and diagnosis.

> >

> > Hi ,

> >

> > I think I made a mistake in not asking the group with help in how to

> > approach the neurologist, and having a strategy like you referred

> to, the stupid

> > thing is I spoke with Rogene and told her I was going to do exactly

> > that.......get some advise and I didnt, I forgot as usual.

> > I have lived in limbo forever...well so it seems, my Dr thinks I am

> loopy so

> > I am up against it from the start.

> > How did you manage to get your diagnoses? my main symptoms are

> neurological

> > and I hate it.

> >

> > Thank

> >

> > Love Sue

> >

>

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