Re: Illinois weather and an update

[Guest guest]

Judi...Do you have cancer or autoimmune disease or both? My husband's chemo

was also good news/bad news. He now has cirrhosis from the chemo pumped

directly into his liver.

We are in Illinois but in Crestwood, a southwest suburb. We just had lots of

warnings on the TV but nothing more. Judy

[Guest guest]

I'm in Illinois near St. Louis, Missouri. We are supposed to get storms the

rest of this week into the weekend. That makes me a little nervous as my son

was struck by lightning when he was 13 in 1996 during a bad thunderstorm.

Becky

[ ] Illinois weather and an update

To all the Illinoisans: I don't miss the flooding Des Plaines River

but I sure do miss " cooler by the lake! " It has been in the upper

80's and humid, and we have cicadas by the thousands. It's so noisy

we have to keep the windows closed in order to hear TV. We had a

real strong storm about 1 AM this morning with hail and high wind,

but no damage here at our house. Not much rain, so the river that

bisects our town is at a low level, but when it rains north of here,

then we get flooding.

I finished 4 weeks of alpha Interferon chemotherapy (Intron A) and

saw the oncologist this morning. He agreed with me that it backfired

and was causing more problems that it was curing. I grew new tumors,

the old ones got bigger and more painful, and the joint pain was so

bad it felt like something was tearing me apart from the inside out.

So now we know that Dercum's is " probably " autoimmune, and he kindly

said " sorry I can't help you any more. " Now I'm back where I was a

month ago, with no sign of any help. But I refuse to give up--where

there's life there's hope, and we'll just have to keep looking. God

has a plan for me with this.

Peace,

Judi

[Guest guest]

In a message dated 24/05/2004 13:18:20 Central Standard Time,

mormar46@... writes:

> But I refuse to give up--where

> there's life there's hope, and we'll just have to keep looking

i'm soso sorry, judi...i hope they figure out something else to do for you.

i'm thinking about you............cary

[Guest guest]

Judi, I'm so sorry that the interferon alpha didn't seem to help you.

What about a trip to see that physician who's collecting all the samples

of blood from Dercum's patients? Have you called or written Mayo to see

if they have any bright ideas? If they can't help you, perhaps they know

who can.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Illinois weather and an update

> To all the Illinoisans: I don't miss the flooding Des Plaines River

> but I sure do miss " cooler by the lake! " It has been in the upper

> 80's and humid, and we have cicadas by the thousands. It's so noisy

> we have to keep the windows closed in order to hear TV. We had a

> real strong storm about 1 AM this morning with hail and high wind,

> but no damage here at our house. Not much rain, so the river that

> bisects our town is at a low level, but when it rains north of here,

> then we get flooding.

>

> I finished 4 weeks of alpha Interferon chemotherapy (Intron A) and

> saw the oncologist this morning. He agreed with me that it backfired

> and was causing more problems that it was curing. I grew new tumors,

> the old ones got bigger and more painful, and the joint pain was so

> bad it felt like something was tearing me apart from the inside out.

> So now we know that Dercum's is " probably " autoimmune, and he kindly

> said " sorry I can't help you any more. " Now I'm back where I was a

> month ago, with no sign of any help. But I refuse to give up--where

> there's life there's hope, and we'll just have to keep looking. God

> has a plan for me with this.

>

> Peace,

> Judi

[Guest guest]

Sorry about your husband, Judy. Now what?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Illinois weather and an update

> Judi...Do you have cancer or autoimmune disease or both? My husband's

chemo

> was also good news/bad news. He now has cirrhosis from the chemo

pumped

> directly into his liver.

> We are in Illinois but in Crestwood, a southwest suburb. We just had

lots of

> warnings on the TV but nothing more. Judy

[Guest guest]

> Judi,

> I¹m sorry that the interferon wasn¹t effective and made things worse.

> Hopefully this is a clue

> that will help your doctor decide what to try next.

> a

>

>