Welcome,

[Guest guest]

Welcome Dawn, I can't wait to get to know you, Tawny

[Guest guest]

Hello everyone. I am new too. We live in land, and my son’s story

sounds just like ’s son Caleb. We had multiple mis-diagnoses which

lead to countless unnecessary treatments. My son has now been on oral

antibiotics for 5 weeks, and complains of significant pain everywhere. Our

nutritionist advises that it could be yeast overgrowth, since when the

antibiotics kill the bacteria, the yeast moves in unchecked. He is going to

have blood work done to check this (they check for anti-Candida antibodies;

she also referred to it as an ASO test for yeast overgrowth). She said

there is medication you can take to keep the yeast in check. I don’t know

if that’s remotely helpful, but just wanted to pass it on.

*From:* [mailto:

] *On Behalf Of *endomr

*Sent:* Thursday, October 28, 2010 7:37 AM

*To:*

*Subject:* [ ] Welcome,

:

I'm glad you introduced yourself. When I hear stories so similar to mine, it

helps to confirm we are on the right road in treatment. I wasn't crazy

afterall. I'm sorry you had to go through this with your boys. Do they have

congenital Lyme? My boys are 15 and 17 with congenital Lyme. One really

sick, one not.

I lived in Rocky Mount, NC for 3 years and it was there that I started

getting so sick. We moved to get away fromt he pine pollen, but it was

actually the Lyme in me coming out. Not one doctor brought up Lyme. What

state is ready for Lyme and sickness brought on by a tick bite? Frustrating!

Better days ahead,

Kari

>

> From: Natasha Moiseyev <nmoiseyev@...>

> Subject: Re: [ ] Re:: difficulty breathing

> < %40>

> Date: Monday, October 25, 2010, 10:40 AM

>

> I keep telling my daughter that. And she IS getting better, but with

rampant

> symptoms for 5 years, she is now 15 months into treatment and definitely

better

> (no longer spends the days and nights alone in her dark room in bed

moaning) she

>

>

> wants to be better NOW. Her little sister, also congenital, is bouncing

back

> more quickly but this morning also woke up in pain.

>

> I wake up in the night with my heart racing, worrying about hem, what they

have

> due for school, how to push it through, how to make money for living.Â

>

> I believe that the Lyme we have encountered is actually genetically

engineered

> -- probably on Plum Island or the like. Whoever created it should rot in

hell.

>

> Natasha

>

> ________________________________

> From: Pavone <pavone1@...>

> < %40>

> Sent: Mon, October 25, 2010 7:14:27 AM

> Subject: Re: [ ] Re:: difficulty breathing

>

> Â

> Natasha,

> It was disappointing that they didn't even mention the " first " vaccine

that

> caused such pain and suffering for so many. Still there is hope for a

better

> future for all of us. The more progress gained through research the

better.

>

> My heart goes out to you and your girls. Watching your child suffer is

> torture... I can't imagine how difficult it must be to deal with it all

when you

>

>

> yourself are sick. I'm so sorry your family is going through all of this.

>

> I have two sick also, my oldest and first to be treated is 7 months in

treatment

>

>

> now and doing amazingly well. He was unable to pick his head up off a

pillow

> last spring and now he is back in school. My daughter has only just begun

and I

> know that it gets worse before it gets better. I'm just hanging in there

right

> now as I watch her spiral downward, its scary, I keep looking to my sons

> progress for encouragement and hope for her. My first trip to a Lyme Ped.

I meet

>

>

> a woman who was there for a follow up with her son and she said " they do

get

> better " and i hung onto that for a long time last spring and now I can say

that

> to you first hand, " they do get better " . Hang in there!

>

>