Re: Re: Don't know what to do here.

[Guest guest]

In a message dated 05/06/2004 16:11:03 Central Standard Time,

SandiT328@... writes:

> Thank you for reaching out. It meant a lot to me to talk to someone

> who knows what they are talking about and doesn't talk about of their

> arse! Pardon my french!

> Sandi

>

Hi Sandi

I am so sorry for all the junk you are going through right now. I hope at

least you can remind yourself that there are other people in this little

computer box who care and understand and hope things improve for you soon.

Cary

[Guest guest]

I think I would give your lawyer a call, Sandi.

Have you tried any of the rheumatologists at the Hospital for Special

Surgery?

http://rheumatology.hss.edu/

Again, sorry to hear that so many people in your life who should be more

supportive and helpful aren't.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: Don't know what to do here.

> Hi ,

>

> It was great to get your email today. It's going to rain and I am

> canceling plans with friends. I knew from last night I wasn't

> feeling good. She is acting a bit cold with me on account of that.

> She said, " I understand you don't want to drive around in the rain " .

> And I said, " it has nothing to do with driving around in the rain...I

> don't feel good when it rains. " I have said this a million times

> before. She just doesn't want to get it. I am sick of having to say

> things a million times for people to get it.

> I have been going to my therapist for 1 year and three months telling

> her about my pain and the other day she said, " I know that some days

> you have it and some days you don't " and I'm thinking am I on Mars?

> Who have I been talking to about this for the past year? I am in

> pain every second of every day and unbelievably fatigued. She also

> apparently seems to feel I have a choice in whether I can work or not.

> My psychiatrist is another story all together. I tell him I have

> arthritis he says it's because I don't " move " . As if he knows what I

> do with my life when I am home. He is the one that got me the

> disability based on depression. My father said he did it as a favor

> to him (they knew eacother). I am no longer on speaking terms with

> my father and the psychiatrist thinks I'm doing wonderful with my

> weight loss and asks me when I am going to get a lover and a job,

> every time I go to his office. I got the Review papers so I need him

> right now. I don't know. Everything seems to be falling apart.

> And I don't know why the Orthopedist and Rheumotologist would suggest

> Prednisone either! I stopped going to the Rheumy once he prescribed

> that for me. I knew even then (knowing nothing) that it was off. I

> don't know where to go to find a good doctor. Every where I turn

> they are all terrible. I live in NYC. I mean? It could be my

> insurance I don't know. I have HIP. I have been to so many doctors

> already and the ALL suck! And now the threat of having even these

> sucky doctors taken away from me with the possible threat of losing

> my disability and having no money. It's all coming crashing down on

> me.

> Yes, the Bextra is replacing the Celebrex.

> The Orthopedist was more concerned asking me " if I am eating? " about

> 5 times. I'm 130lb 5'3. I eat. I was 205lb this was a wonderful

> accomplishment for me. When I was down to 160 she said I don't have

> to loose anymore (she is about 160lb). How a doctor would tell me I

> don't have to loose anymore weight when you are 160lb and have

> horrific joint problems I don't know.

> I know I am rambling here and I sound very angry...sorry for that. I

> am very scared right now for my health, my disability insurance, my

> future, my present...everything. Emotionally I feel like I am alone.

> My regular therapist seems to not really understand me either lately

> my pain with the RA. She doesn't get it. She really doesn't get

> it. So what am I going there for either?

> I am so exhausted. Having to get referrals, go here, go there, call

> here, call there, it's all so exhausting. I have to be an Olympic

> athlete to take care of this.

> I had a lawyer help the first time around with the disability ...

> this is a Review I don't know I guess I should call them?

> Oh good God I am really going on here...sorry.

> Thank you for reaching out. It meant a lot to me to talk to someone

> who knows what they are talking about and doesn't talk about of their

> arse! Pardon my french!

> Sandi