Re: tomntracy/hi newbie

[Guest guest]

Thank you so much! I do feel like I am going nuts though. Did you feel that

way? It is weird, I can get around and all- but it is always there. When

people ask if the medicine (celebrex and baltrex) work- I tell them, it takes me

from a 8-9pain to a 1-2- but it is still pain! UGHH! tracy

CINDI <heinscsf@...> wrote:HELLO TRACY,

WELCOME TO THE GROUP. YOU WILL FIND REALLY NICE AND HELPFUL PEOPLE

HERE WHO REALLY CARE AND STICK BY YOU.

I AM 44 AND 3 YEARS AGO MY WORLD TURNED UPSIDE DOWN FAST, JUST LIKE

YOURS. I HAVE RA AND FIBROMYALGIA AND NEUROPATHIC PAIN. MY RA TEST

WAS ALWAYS NEGATIVE. ONE MINUTE I AM DRIVING AN ENORMOUS 7120 CASE

TRACTOR DOING FIELD WORK FOR MY HUSBAND AND PICKING ROCK BY HAND OUT

OF THE FIELDS AND THE NEXT THING I CAN'T BARLEY WALK AND QUICKLY IT

CAME TO MOSTLY NOT WALKING. EXCRUCIATING PAIN, RED, SWOLLEN JOINTS,

STIFFNESS AND BIG-TIME FATIQUE. I COULD FALL ASLEEP STANDING UP

TALKING TO YOU.

YOU DEFINITLEY NEED A GOOD REUMOTOLOGIST. SOME 20% OF ALL PEOPLE

WITH RA TEST NORMAL. THAT DOES NOT MEAN YOU DO NOT HAVE RA. GET A

GOOD REPUTABLE REUMY AND START A DAILY PAIN JOURNAL OF YOUR PAIN

LEVELS, HOW IT AFFECTS YOUR DAILY ACTIVITIES AND YOUR FAMILY AND

YOUR RELATIONSHIP WITH PEOPLE AND YOUR JOB. IF YOU EVER NEED

DISABILITY THIS WILL HELP AND IT WILL ALSO HELP WHEN YOU GO TO THE

DOCTOR. DO NOT GIVE UP UNTIL YOU FIND SOMEONE YOU ARE COMFORTABLE

WITH AND WAITNG SEVERAL MONTHS FOR AN APPT IS NOT UNCOMMON FOR ALL

OF US JUST STARTING OUT.

I HAVE BEEN ON DISABILITY SINCE 2 DAYS AGO, FINALLY APPROVED. I AM

UNABLE TO DO ANYTHING AT THIS POINT, SO IT IS IMPORTANT TO BE IN A

GROUP LIKE THIS FOR SUPPORT, KNOWLEDGE AND A PLACE TO LET OFF PAIN

STRESS WHERE SOMEONE CAN UNDERSTAND WHAT YOU ARE GOING THROUGH,

BECAUSE AFTER A WHILE YOUR FAMILY WON'T WANT TO HEAR IT ALL THE

TIME, THEY CAN'T UNDERSTAND IT IF THEY ARE NOT THE ONES IN PAIN ALL

THE TIME. LEARN EVERYTHING YOU CAN ON THE INTERNET AND BE PREPARED

WITH WRITTEN DOWN QUESTIONS WHEN YOU GO FOR YOUR APPT.

HOPE SOME OF THIS HELPS WRITE ME ANY TIME AND YOU CAN WRITE ME

PERSONALLY OFF THE GROUP IF YOU WANT TO.

SINCERELY,

CINDI HEIN

heinscsf@...