Guest guest Posted September 17, 2000 Report Share Posted September 17, 2000 I thought Rick unsubscribed. Shireen >From: mhe3053904@... >Reply- egroups > egroups >Subject: Re: [ ]Sylvana >Date: Sat, 16 Sep 2000 23:21:33 EDT >MIME-Version: 1.0 >Received: from [208.50.144.95] by hotmail.com (3.2) with ESMTP id >MHotMailBB8D83D5001FD820F3CAD032905F923E78; Sat Sep 16 20:22:34 2000 >Received: from [10.1.10.37] by ef. with NNFMP; 17 Sep 2000 >03:21:39 -0000 >Received: (qmail 17000 invoked from network); 17 Sep 2000 03:21:37 -0000 >Received: from unknown (10.1.10.26) by m3.onelist.org with QMQP; 17 Sep >2000 03:21:37 -0000 >Received: from unknown (HELO imo-d10.mx.aol.com) (205.188.157.42) by mta1 >with SMTP; 17 Sep 2000 03:21:37 -0000 >Received: from MHe3053904@... by imo-d10.mx.aol.com (mail_out_v28.15.) >id a.12.25d5aac (3897) for < egroups>; Sat, 16 Sep 2000 >23:21:33 -0400 (EDT) >From sentto-165537-21880-969160898-shireen42 Sat Sep 16 20:23:13 2000 >X-eGroups-Return: >sentto-165537-21880-969160898-shireen42=hotmail.comreturns (DOT) onelist.com >Message-ID: <12.25d5aac.26f592bd@...> >X-Mailer: AOL 5.0 for Windows sub 120 >Mailing-List: list egroups; contact > -owneregroups >Delivered-mailing list egroups >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeegroups> > >Sylvana - I sent Rick apost probably five days ago and it never posted that >I >know of. > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Rick: That was a great post - you said it all very well. That is the reason we are here in this group - we truly do understand each other, and the pain, emotional and physical, that comes from these diseases. Thanks for sharing your 2 cents with us. Kathe in CA --- Rick <rhow176@...> wrote: > I couldn't resist, I had to respond with my 2 cents. > First of all, you > said, " I trust him, it's not that " . If you truly do > trust him, and only > you can answer that for sure. Then this is NOT the > issue. The issue with > you, yourself. That's not saying anything bad about > you or anything like > that. I think it several things, not just the RA > itself or even the > depression that unusually comes with RA. We all have > our own > insecurities about ourselves, physically as well as > emotionally. These > insecurities tend to get a bit magnified when we are > going through > depressions and/or physical problems such as RA. Our > insecurities feed > the depression and the depression feeds the > insecurities, forming a > paradox that we often can't seem to get out of, so > it just grows until > if finds outside situations or circumstances that > validate the vicious > cycle we have fallen into. Look back at your story: > > " I feel fat and ugly and old " > > I'm 47 years old, 180 pounds, used to weight 100 > soaking wet. > > My husband's co-workers (he works in the field and > at home but does have > an office for his occasional use in his company) are > all young, pretty, > skinny, full of life and do not have RA and all the > #% that goes along > with it. (Basically you're saying, " I'm old, I'm > ugly, I'm fat, I lack > life and I have RA " ) > > I can't believe I'm like this > > Maybe the kiss thing was inappropriate, maybe it was > completely > innocent, that's not for me to say and you say you > trust him. > > We all have a disease. A disease that can and does > lessen the quality of > our lives and force us to accepting (if we're lucky > enough to be able to > accept) alternatives to living and how we live. > These alterations > directly effect the ones we love and love us. Of > course, that comes with > a degree of guilt because they have to make up for > our slack when we're > down, they have to make alterations to their lives > too, they have to > live with us and our disease. > It's really easy for us to add this guilt to the > fire of depression > within us. > > Yes, I used the word " guilt " . Guilt is about what " I > did " or " what I am > doing " How many of us have told ourselves during our > disease. " I'm > ruining his/her life " " I caused them to have to do > without. " " They > couldn't have (or do) something special because of > me " GUILT..I can > honestly say that this is something I battle with > everyday, with my wife > and my kids. They don't make me feel guilty. That's > a gift I give > myself. > > But what about the other??? If guilt is " I did " > what is all the " I am " > in your story and in your mind? > I am fat, I am ugly, I am less then.. I am diseased. > This is by > definition shame. > I'm ashamed of my appearance. I'm ashamed of the > fact that I am a 39 > year old man who's wife supports him and his kids. > I'm a fairly young > man that uses a cane, when I'm not too absolutely > embarrassed to be seen > in public using it. I feel both the guilt and shame > every time I park my > car only to get out and notice people staring at me > because I'm parked > in a handicap space. After all, I am only 39. Tell > me most of you don't > have some of the same thoughts, I would guess you > do. > This disease, like most other diseases or illness > comes with more then > just the physical aspects of it. We also have a > constant emotional > battle. Sometimes we do well and sometimes we don't. > > > Like you said in your story: " I'm 47 years old, 180 > pounds, used to > weight 100 soaking wet. " > > We all use to be younger, better looking, more > energetic and more > capable. A big part of all this is the harsh reality > of what we used to > be but aren't anymore because of our disease. > > All these things tie in together, the depression, > insecurities, guilt, > shame and our disease. This is a lot to handle. > Sometimes it seems > impossible to handle. But I suspect that's why we > form support groups > like this. So we can talk with other people who are > going through the > same things and truly understand without us having > to explain, they > (you) just know. > If you truly do trust him like you say. Then I think > you did the best > therapy you can do. You used your support system to > vent out some > frustrations and feelings. Hopefully you get a lot > of good feedback from > everyone. I'm sure we can all relate in one way or > another. Maybe not > with identical circumstances, but fairly close, > especially when it comes > to our spouses and significant others. > I don't mean to ramble. I hope you all don't mind my > ramblings. I just > feel these very issues are as critical as what meds > we take and their > side effects. We watch the medicine side effects > like a hawk, don't we? > We need to watch our disease side effects as well. > > I guess the bottom line of what I'm saying , Becky > and everyone, is what > you have all already said to each other in here > before. > " We understand, We share your pain, We're sorry for > your pain (physical > and emotional), Thank you for sharing your pain, We > love you and We > truly understand!! > > > Rick > [ ] Jealous > > > I am really having a problem lately with my jealousy > and my husband. I > don't know where this is coming from. Well, yes, > maybe I do. I'm 47 > years old, 180 pounds, used to weight 100 soaking > wet. I feel fat and > ugly and old. My husband's co-workers (he works in > the field and at > home but does have an office for his occasional use > in his company) are > all young, pretty, skinny, full of life and do not > have RA and all the > #% that goes along with it. We went to a business > dinner last week that > I really didn't want to go to and I wish I hadn't. > My husband does > nothing to come on to any of them but he looks a lot > younger than he is > and everyone loves him. He just nice to everyone. > I felt like the old > woman in the shoe. I had bought a nice little pink > and black pant suit, > fixed up decently, but still felt ugly. I'm good at > small conversation > but no one seemed to really care to want to talk to > me unless I started > the con! versation, then it was just answering me. > When we went to > leave, my back was turned as he said goodbye to one > of the young > lovelies and I turned around to say goodbye and she > was blowing him a > kiss. She wrinkled her pert little nose and > giggled. I wanted to smack > her. He told me that they all do that little kiss > blowing thing when > people are leaving. I didn't see anyone else do > that. It's been 18 > years since I worked in an office and back then that > was would have been > inappropriate. He did it back. I didn't say > anything until that night > and then I let him have it. I've mentioned it > several more times > tonight and he said he's sick of hearing about it. > He was going to the > grocery store for me and was not being very patient > when I was trying to > make my list. I blew him a kiss goodbye and he got > pissed. What is my > problem? I trust him, it's not that. I just feel > that I don't fit in > with th! at bunch and really do not care to be > around them at all. I > used to work with 40 men in an office (steel mill) > and I don't think he > was ever jealous. But, I never did what I > considered flirt with the > men. I was more like the sister that gave them > advice for their wives, > always took the wives side on anything they told me > and tried to give > them a woman's perspective. Sorry this is so long, > I can't believe I'm > like this. > > Becky > > [Non-text portions of this message have been > removed] > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Rick, this is funny, funny funny! My children would tell you that you were describing " normal " for me. Thanks for your well wishes. Iris --- Rick <rhow176@...> wrote: > > RE: A.A.A.D.D > > Does this sound familiar to anyone....? > > I'm sure some of you can relate, and those that can't, well, this might > explain why we are the way we are. > > Recently, I was diagnosed with A. A. A. D. D. - Age Activated Attention > Deficit Disorder. > > This is how it manifests: > I decide to wash my car. > > As I start toward the garage, I notice that there is mail on the hall > table. I decide to go through the mail before I wash the car. > > I lay my car keys down on the table, put the junk mail in the trash can > under the table, and notice that the trash can is full. So, I decide to > put > the bills back on the table and take out the trash first. But then I > think, > since I'm going to be near the mailbox when I take out the trash > anyway, I > may as well pay the bills first. > > I take my checkbook off the table, and see that there is only one check > left! t > My extra checks are in my desk in the study, so I go to my desk where I > find > the can of Coke that I had been drinking. > > I'm going to look for my checks, but first I need to push the Coke > aside so > that I don't accidentally knock it over. > > I see that the Coke is getting warm, and I decide I should put it in > the > refrigerator to keep it cold. > > As I head toward the kitchen with the coke a vase of flowers on the > counter > catches my eye--they need to be watered. > > I set the Coke down on the counter, and I discover my reading glasses > that > I've been searching for all morning. I decide I better put them back on > my > desk, but first I'm going to water the flowers. > > I set the glasses back down on the counter, fill a container with water > and > suddenly I spot the TV remote. Someone left it on the kitchen t able. > > I realize that tonight when we go to watch TV, I will be looking for > the > remote, but I! won't remember that it's on the kitchen table, so I > decide to > put it back in the den where it belongs, but first I'll water the > flowers. I > splash some water on the flowers, but most of it spills on the floor. > > So, I set the remote back down on the table, get some towels and wipe > up the > spill. Then I head down the hall trying to remember what I was planning > to > do. > > At the end of the day: the car isn't washed, the bills aren't paid, > there > is a warm can of Coke sitting on the counter, the flowers aren't > watered, > there is still only one check in my checkbook, I can't find the remote, > I > can't find my glasses, and I don't remember what I did with the car > keys. > > Then when I try to figure out why nothing got done today, I'm really > baffled because I know I was busy all day long, and I'm really tired. > > I realize this is a serious problem, and I'll try to get some help for > it, > but first I'll check my e-mail. > > Do me a favor, will you? Forward this message to ever! one you know, > because > I don't remember to whom it has been sent. > > > Don't laugh -- if this isn't you yet, your day is coming! > > GROWING OLDER IS MANDATORY. > GROWING UP IS OPTIONAL > LAUGHING AT YOURSELF IS THERAPEUTIC! > > > > > GOD BLESS AMERICA > > Rick > www.whosyomama.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 I am 66 and they found cancer cells in my bloodwork 3 months ago. My gastro said no chance for transplant as platelet count is ony 54,000. Am I getting correct advice or should I seek anothr dr. One other thing. Does Medicare pay for transplant and drugs? How many pills a day do u have to take, what are they and how much a month. I'm on SSI and make 850 per month.  Glad to hear of your success  Patti From: Rick Kipp <rickkipp@...> Subject: My Daughter Hepatitis C Date: Monday, February 22, 2010, 3:25 PM  Your daughter sounds a lot like me, only much younger! I'm 63 and have had Hep C for 30+ years. I have no spleen, have had very severe gastric varices (almost died then), have had 3 " ERCP " procedures where they put a shunt in my bial duct between the liver and kidney I believe. Nothing has occured with my small intestines. After 3 separate year long HCV treatments and no long term success, I got a cancerous tumor on my liver. They performed a " chemoembolization " on me (You may need to Google some of these terms!), and finally received a liver transplant in September of '08. Many of us on this forum have been to " hell " and back, and are still here fighting away. And we are mostly happy, too! Always remember that most of us heppers die with the disease, and not because of it. If your daughter is still involved with drugs and alcohol, she is severely compromising her chances for a bright future. She must get sober and clean immediately, as those of us here have had to do. With great advances in research and upcoming medicines, as well as the high success rate for us transplant recipients, I feel that your daughter has a very good chance for a normal future. Taking care of oneself is most important, from diet to sleep to exercise. When you see your new liver specialist, make sure you bring paper and pen to take lots of notes! Your daughter will need a liver biopsy to accurately determine the condition of her liver and how seriously she has been affected. This is a long, sometimes scary process for both of you. The folks on this forum are the best and most knowledgeable. Continue to do research on the internet. Here is a good start: http://www.liverfou ndation.org/ education/ info/Hepatitis C/ Cheer up, as this is not a death sentence. Your are just beginning the battle against the " Dragon " , and all of us will be here to help you with support, knowledge and humor. Please keep asking questions as you learn more, and DO report back after you see the new Doctor. Make sure you like and trust the Doc, as many of us have had to change Doctors, due to there ignorance or rudeness, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 I am 66 and they found cancer cells in my bloodwork 3 months ago. My gastro said no chance for transplant as platelet count is ony 54,000. Am I getting correct advice or should I seek anothr dr. One other thing. Does Medicare pay for transplant and drugs? How many pills a day do u have to take, what are they and how much a month. I'm on SSI and make 850 per month.  Glad to hear of your success  Patti From: Rick Kipp <rickkipp@...> Subject: My Daughter Hepatitis C Date: Monday, February 22, 2010, 3:25 PM  Your daughter sounds a lot like me, only much younger! I'm 63 and have had Hep C for 30+ years. I have no spleen, have had very severe gastric varices (almost died then), have had 3 " ERCP " procedures where they put a shunt in my bial duct between the liver and kidney I believe. Nothing has occured with my small intestines. After 3 separate year long HCV treatments and no long term success, I got a cancerous tumor on my liver. They performed a " chemoembolization " on me (You may need to Google some of these terms!), and finally received a liver transplant in September of '08. Many of us on this forum have been to " hell " and back, and are still here fighting away. And we are mostly happy, too! Always remember that most of us heppers die with the disease, and not because of it. If your daughter is still involved with drugs and alcohol, she is severely compromising her chances for a bright future. She must get sober and clean immediately, as those of us here have had to do. With great advances in research and upcoming medicines, as well as the high success rate for us transplant recipients, I feel that your daughter has a very good chance for a normal future. Taking care of oneself is most important, from diet to sleep to exercise. When you see your new liver specialist, make sure you bring paper and pen to take lots of notes! Your daughter will need a liver biopsy to accurately determine the condition of her liver and how seriously she has been affected. This is a long, sometimes scary process for both of you. The folks on this forum are the best and most knowledgeable. Continue to do research on the internet. Here is a good start: http://www.liverfou ndation.org/ education/ info/Hepatitis C/ Cheer up, as this is not a death sentence. Your are just beginning the battle against the " Dragon " , and all of us will be here to help you with support, knowledge and humor. Please keep asking questions as you learn more, and DO report back after you see the new Doctor. Make sure you like and trust the Doc, as many of us have had to change Doctors, due to there ignorance or rudeness, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 I am 66 and they found cancer cells in my bloodwork 3 months ago. My gastro said no chance for transplant as platelet count is ony 54,000. Am I getting correct advice or should I seek anothr dr. One other thing. Does Medicare pay for transplant and drugs? How many pills a day do u have to take, what are they and how much a month. I'm on SSI and make 850 per month.  Glad to hear of your success  Patti From: Rick Kipp <rickkipp@...> Subject: My Daughter Hepatitis C Date: Monday, February 22, 2010, 3:25 PM  Your daughter sounds a lot like me, only much younger! I'm 63 and have had Hep C for 30+ years. I have no spleen, have had very severe gastric varices (almost died then), have had 3 " ERCP " procedures where they put a shunt in my bial duct between the liver and kidney I believe. Nothing has occured with my small intestines. After 3 separate year long HCV treatments and no long term success, I got a cancerous tumor on my liver. They performed a " chemoembolization " on me (You may need to Google some of these terms!), and finally received a liver transplant in September of '08. Many of us on this forum have been to " hell " and back, and are still here fighting away. And we are mostly happy, too! Always remember that most of us heppers die with the disease, and not because of it. If your daughter is still involved with drugs and alcohol, she is severely compromising her chances for a bright future. She must get sober and clean immediately, as those of us here have had to do. With great advances in research and upcoming medicines, as well as the high success rate for us transplant recipients, I feel that your daughter has a very good chance for a normal future. Taking care of oneself is most important, from diet to sleep to exercise. When you see your new liver specialist, make sure you bring paper and pen to take lots of notes! Your daughter will need a liver biopsy to accurately determine the condition of her liver and how seriously she has been affected. This is a long, sometimes scary process for both of you. The folks on this forum are the best and most knowledgeable. Continue to do research on the internet. Here is a good start: http://www.liverfou ndation.org/ education/ info/Hepatitis C/ Cheer up, as this is not a death sentence. Your are just beginning the battle against the " Dragon " , and all of us will be here to help you with support, knowledge and humor. Please keep asking questions as you learn more, and DO report back after you see the new Doctor. Make sure you like and trust the Doc, as many of us have had to change Doctors, due to there ignorance or rudeness, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 I am 66 and they found cancer cells in my bloodwork 3 months ago. My gastro said no chance for transplant as platelet count is ony 54,000. Am I getting correct advice or should I seek anothr dr. One other thing. Does Medicare pay for transplant and drugs? How many pills a day do u have to take, what are they and how much a month. I'm on SSI and make 850 per month.  Glad to hear of your success  Patti From: Rick Kipp <rickkipp@...> Subject: My Daughter Hepatitis C Date: Monday, February 22, 2010, 3:25 PM  Your daughter sounds a lot like me, only much younger! I'm 63 and have had Hep C for 30+ years. I have no spleen, have had very severe gastric varices (almost died then), have had 3 " ERCP " procedures where they put a shunt in my bial duct between the liver and kidney I believe. Nothing has occured with my small intestines. After 3 separate year long HCV treatments and no long term success, I got a cancerous tumor on my liver. They performed a " chemoembolization " on me (You may need to Google some of these terms!), and finally received a liver transplant in September of '08. Many of us on this forum have been to " hell " and back, and are still here fighting away. And we are mostly happy, too! Always remember that most of us heppers die with the disease, and not because of it. If your daughter is still involved with drugs and alcohol, she is severely compromising her chances for a bright future. She must get sober and clean immediately, as those of us here have had to do. With great advances in research and upcoming medicines, as well as the high success rate for us transplant recipients, I feel that your daughter has a very good chance for a normal future. Taking care of oneself is most important, from diet to sleep to exercise. When you see your new liver specialist, make sure you bring paper and pen to take lots of notes! Your daughter will need a liver biopsy to accurately determine the condition of her liver and how seriously she has been affected. This is a long, sometimes scary process for both of you. The folks on this forum are the best and most knowledgeable. Continue to do research on the internet. Here is a good start: http://www.liverfou ndation.org/ education/ info/Hepatitis C/ Cheer up, as this is not a death sentence. Your are just beginning the battle against the " Dragon " , and all of us will be here to help you with support, knowledge and humor. Please keep asking questions as you learn more, and DO report back after you see the new Doctor. Make sure you like and trust the Doc, as many of us have had to change Doctors, due to there ignorance or rudeness, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Patti, UNOS (Google it) really sets the rules on who is a transplant candidate. They base your candidacy on your " MELD " (Google) score mainly.Your platelet count is low, and the following may help explain: http://www.labtestsonline.org/understanding/analytes/platelet/test.html It seems to me that you should find out exactly what is causing the cancer cells in your bloodwork. I am certainly no expert on this subject at all, and am reluctant to give advice based on my ignorance. However, you really have a right to know more details from your Doc. Do you have cancer? Exactly what type and where is it? What is your next step for this? A liver transplant is not usually given to a cancer patient, due to the increased risks. My cancer was a single tumor on the liver, which they temporarily solved with the chemoembolization (which simply buys time and is not considered a true cure). I, too, am on SSI. I believe Medicare will cover the transplant (hope you also have supplemental insurance). The anti-rejection medication (normally Prograf) is very expensive, and is not fully covered by Medicare. I take 10 pills, 1 mg each, per day, and this costs me around $260 per month, but I believe the drug companies will help supplement you with that limited income. Prograf is now finally sold in a Generic form, which is only 10% cheaper at the moment. I believe these costs will go down soon, but as I said, the drug companies are likely to help you out. Your Doc should be able to help you with all these questions. If not, I really would look for another Doc. You not only need the Doc's expertise with the liver, but you need one who is compassionate, who will listen to and answer all your questions, and will help you get all the outside assistance that is available. Our Doc's seem to vary tremendously in their abilities to help us physically and emotionally. Are you in the D.R. right now? I know it's truly beautiful there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Patti, UNOS (Google it) really sets the rules on who is a transplant candidate. They base your candidacy on your " MELD " (Google) score mainly.Your platelet count is low, and the following may help explain: http://www.labtestsonline.org/understanding/analytes/platelet/test.html It seems to me that you should find out exactly what is causing the cancer cells in your bloodwork. I am certainly no expert on this subject at all, and am reluctant to give advice based on my ignorance. However, you really have a right to know more details from your Doc. Do you have cancer? Exactly what type and where is it? What is your next step for this? A liver transplant is not usually given to a cancer patient, due to the increased risks. My cancer was a single tumor on the liver, which they temporarily solved with the chemoembolization (which simply buys time and is not considered a true cure). I, too, am on SSI. I believe Medicare will cover the transplant (hope you also have supplemental insurance). The anti-rejection medication (normally Prograf) is very expensive, and is not fully covered by Medicare. I take 10 pills, 1 mg each, per day, and this costs me around $260 per month, but I believe the drug companies will help supplement you with that limited income. Prograf is now finally sold in a Generic form, which is only 10% cheaper at the moment. I believe these costs will go down soon, but as I said, the drug companies are likely to help you out. Your Doc should be able to help you with all these questions. If not, I really would look for another Doc. You not only need the Doc's expertise with the liver, but you need one who is compassionate, who will listen to and answer all your questions, and will help you get all the outside assistance that is available. Our Doc's seem to vary tremendously in their abilities to help us physically and emotionally. Are you in the D.R. right now? I know it's truly beautiful there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Patti, UNOS (Google it) really sets the rules on who is a transplant candidate. They base your candidacy on your " MELD " (Google) score mainly.Your platelet count is low, and the following may help explain: http://www.labtestsonline.org/understanding/analytes/platelet/test.html It seems to me that you should find out exactly what is causing the cancer cells in your bloodwork. I am certainly no expert on this subject at all, and am reluctant to give advice based on my ignorance. However, you really have a right to know more details from your Doc. Do you have cancer? Exactly what type and where is it? What is your next step for this? A liver transplant is not usually given to a cancer patient, due to the increased risks. My cancer was a single tumor on the liver, which they temporarily solved with the chemoembolization (which simply buys time and is not considered a true cure). I, too, am on SSI. I believe Medicare will cover the transplant (hope you also have supplemental insurance). The anti-rejection medication (normally Prograf) is very expensive, and is not fully covered by Medicare. I take 10 pills, 1 mg each, per day, and this costs me around $260 per month, but I believe the drug companies will help supplement you with that limited income. Prograf is now finally sold in a Generic form, which is only 10% cheaper at the moment. I believe these costs will go down soon, but as I said, the drug companies are likely to help you out. Your Doc should be able to help you with all these questions. If not, I really would look for another Doc. You not only need the Doc's expertise with the liver, but you need one who is compassionate, who will listen to and answer all your questions, and will help you get all the outside assistance that is available. Our Doc's seem to vary tremendously in their abilities to help us physically and emotionally. Are you in the D.R. right now? I know it's truly beautiful there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Patti, UNOS (Google it) really sets the rules on who is a transplant candidate. They base your candidacy on your " MELD " (Google) score mainly.Your platelet count is low, and the following may help explain: http://www.labtestsonline.org/understanding/analytes/platelet/test.html It seems to me that you should find out exactly what is causing the cancer cells in your bloodwork. I am certainly no expert on this subject at all, and am reluctant to give advice based on my ignorance. However, you really have a right to know more details from your Doc. Do you have cancer? Exactly what type and where is it? What is your next step for this? A liver transplant is not usually given to a cancer patient, due to the increased risks. My cancer was a single tumor on the liver, which they temporarily solved with the chemoembolization (which simply buys time and is not considered a true cure). I, too, am on SSI. I believe Medicare will cover the transplant (hope you also have supplemental insurance). The anti-rejection medication (normally Prograf) is very expensive, and is not fully covered by Medicare. I take 10 pills, 1 mg each, per day, and this costs me around $260 per month, but I believe the drug companies will help supplement you with that limited income. Prograf is now finally sold in a Generic form, which is only 10% cheaper at the moment. I believe these costs will go down soon, but as I said, the drug companies are likely to help you out. Your Doc should be able to help you with all these questions. If not, I really would look for another Doc. You not only need the Doc's expertise with the liver, but you need one who is compassionate, who will listen to and answer all your questions, and will help you get all the outside assistance that is available. Our Doc's seem to vary tremendously in their abilities to help us physically and emotionally. Are you in the D.R. right now? I know it's truly beautiful there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2010 Report Share Posted February 24, 2010 You/ve hit the head of the nail. My gastro is very uncaring. I had a good one in tx but cant seem to find on in FL on recommebnded drs. by Wellcare which is secondary insurance. Will have to go back to primary dr. when I return fron Costa Rica in 3 weeks. He told me I would have maybe 3 months before being bedbound so came to do one last time all the water things I love. Went diving yesterday with wonderful dive master. He never let go of my hand, helped me back into boat, I went home and slept till 8 pm, ate a bananna and thens slept till 8 this morning. BUT I DID IT. Yes it is beautiful here in Playa Coco. Many inconviences. One day no water, next day no elect, next day neither but if I wanted comfort, I would be in the US right? This is my last adventure to central America and I am telling my fish, monkeys, and varmits goodbye. I finally scattered my sons's ashes, who died from drugs 12 years ago at Volcan Irazu, 10,300 ft. The next volcano gave a little burp as I scattered the first handfull of ashes. He was saying Thanks Mom for finally letting me go, I think. When I go back to US, I want to find someone in my position to live with and we can help each other when we are too tired to cook,, shop, clean house, etc. Just hope its on different days.LOL  I cut myself off from the world for awhile after divorce, but now willing to return as I think God stilll has something for me to do. Wish they had a dating site for single sick people. I got the silent dragon by taking accupuncture in Thailand in 1980, before disposable needles, but regardless how we got it, we are all victims. Have met kids, nurses, doctors, ministers and understand the anger, the 'WHY ME "  The frustration of my mind being so active and questiioning but my body says, sleep. The cancer cells are coming from the liver via Dr. just started 4 months ago. He told me go to CR and enjoy while I can so here I am. have a good day  ________________________________ From: Rick Kipp <rickkipp@...> Hepatitis C Sent: Mon, February 22, 2010 7:37:40 PM Subject: Re: Rick  Patti, UNOS (Google it) really sets the rules on who is a transplant candidate. They base your candidacy on your " MELD " (Google) score mainly.Your platelet count is low, and the following may help explain: http://www.labtestsonline.org/understanding/analytes/platelet/test.html It seems to me that you should find out exactly what is causing the cancer cells in your bloodwork. I am certainly no expert on this subject at all, and am reluctant to give advice based on my ignorance. However, you really have a right to know more details from your Doc. Do you have cancer? Exactly what type and where is it? What is your next step for this? A liver transplant is not usually given to a cancer patient, due to the increased risks. My cancer was a single tumor on the liver, which they temporarily solved with the chemoembolization (which simply buys time and is not considered a true cure). I, too, am on SSI. I believe Medicare will cover the transplant (hope you also have supplemental insurance). The anti-rejection medication (normally Prograf) is very expensive, and is not fully covered by Medicare. I take 10 pills, 1 mg each, per day, and this costs me around $260 per month, but I believe the drug companies will help supplement you with that limited income. Prograf is now finally sold in a Generic form, which is only 10% cheaper at the moment. I believe these costs will go down soon, but as I said, the drug companies are likely to help you out. Your Doc should be able to help you with all these questions. If not, I really would look for another Doc. You not only need the Doc's expertise with the liver, but you need one who is compassionate, who will listen to and answer all your questions, and will help you get all the outside assistance that is available. Our Doc's seem to vary tremendously in their abilities to help us physically and emotionally. Are you in the D.R. right now? I know it's truly beautiful there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2010 Report Share Posted February 24, 2010 You/ve hit the head of the nail. My gastro is very uncaring. I had a good one in tx but cant seem to find on in FL on recommebnded drs. by Wellcare which is secondary insurance. Will have to go back to primary dr. when I return fron Costa Rica in 3 weeks. He told me I would have maybe 3 months before being bedbound so came to do one last time all the water things I love. Went diving yesterday with wonderful dive master. He never let go of my hand, helped me back into boat, I went home and slept till 8 pm, ate a bananna and thens slept till 8 this morning. BUT I DID IT. Yes it is beautiful here in Playa Coco. Many inconviences. One day no water, next day no elect, next day neither but if I wanted comfort, I would be in the US right? This is my last adventure to central America and I am telling my fish, monkeys, and varmits goodbye. I finally scattered my sons's ashes, who died from drugs 12 years ago at Volcan Irazu, 10,300 ft. The next volcano gave a little burp as I scattered the first handfull of ashes. He was saying Thanks Mom for finally letting me go, I think. When I go back to US, I want to find someone in my position to live with and we can help each other when we are too tired to cook,, shop, clean house, etc. Just hope its on different days.LOL  I cut myself off from the world for awhile after divorce, but now willing to return as I think God stilll has something for me to do. Wish they had a dating site for single sick people. I got the silent dragon by taking accupuncture in Thailand in 1980, before disposable needles, but regardless how we got it, we are all victims. Have met kids, nurses, doctors, ministers and understand the anger, the 'WHY ME "  The frustration of my mind being so active and questiioning but my body says, sleep. The cancer cells are coming from the liver via Dr. just started 4 months ago. He told me go to CR and enjoy while I can so here I am. have a good day  ________________________________ From: Rick Kipp <rickkipp@...> Hepatitis C Sent: Mon, February 22, 2010 7:37:40 PM Subject: Re: Rick  Patti, UNOS (Google it) really sets the rules on who is a transplant candidate. They base your candidacy on your " MELD " (Google) score mainly.Your platelet count is low, and the following may help explain: http://www.labtestsonline.org/understanding/analytes/platelet/test.html It seems to me that you should find out exactly what is causing the cancer cells in your bloodwork. I am certainly no expert on this subject at all, and am reluctant to give advice based on my ignorance. However, you really have a right to know more details from your Doc. Do you have cancer? Exactly what type and where is it? What is your next step for this? A liver transplant is not usually given to a cancer patient, due to the increased risks. My cancer was a single tumor on the liver, which they temporarily solved with the chemoembolization (which simply buys time and is not considered a true cure). I, too, am on SSI. I believe Medicare will cover the transplant (hope you also have supplemental insurance). The anti-rejection medication (normally Prograf) is very expensive, and is not fully covered by Medicare. I take 10 pills, 1 mg each, per day, and this costs me around $260 per month, but I believe the drug companies will help supplement you with that limited income. Prograf is now finally sold in a Generic form, which is only 10% cheaper at the moment. I believe these costs will go down soon, but as I said, the drug companies are likely to help you out. Your Doc should be able to help you with all these questions. If not, I really would look for another Doc. You not only need the Doc's expertise with the liver, but you need one who is compassionate, who will listen to and answer all your questions, and will help you get all the outside assistance that is available. Our Doc's seem to vary tremendously in their abilities to help us physically and emotionally. Are you in the D.R. right now? I know it's truly beautiful there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2010 Report Share Posted February 24, 2010 You/ve hit the head of the nail. My gastro is very uncaring. I had a good one in tx but cant seem to find on in FL on recommebnded drs. by Wellcare which is secondary insurance. Will have to go back to primary dr. when I return fron Costa Rica in 3 weeks. He told me I would have maybe 3 months before being bedbound so came to do one last time all the water things I love. Went diving yesterday with wonderful dive master. He never let go of my hand, helped me back into boat, I went home and slept till 8 pm, ate a bananna and thens slept till 8 this morning. BUT I DID IT. Yes it is beautiful here in Playa Coco. Many inconviences. One day no water, next day no elect, next day neither but if I wanted comfort, I would be in the US right? This is my last adventure to central America and I am telling my fish, monkeys, and varmits goodbye. I finally scattered my sons's ashes, who died from drugs 12 years ago at Volcan Irazu, 10,300 ft. The next volcano gave a little burp as I scattered the first handfull of ashes. He was saying Thanks Mom for finally letting me go, I think. When I go back to US, I want to find someone in my position to live with and we can help each other when we are too tired to cook,, shop, clean house, etc. Just hope its on different days.LOL  I cut myself off from the world for awhile after divorce, but now willing to return as I think God stilll has something for me to do. Wish they had a dating site for single sick people. I got the silent dragon by taking accupuncture in Thailand in 1980, before disposable needles, but regardless how we got it, we are all victims. Have met kids, nurses, doctors, ministers and understand the anger, the 'WHY ME "  The frustration of my mind being so active and questiioning but my body says, sleep. The cancer cells are coming from the liver via Dr. just started 4 months ago. He told me go to CR and enjoy while I can so here I am. have a good day  ________________________________ From: Rick Kipp <rickkipp@...> Hepatitis C Sent: Mon, February 22, 2010 7:37:40 PM Subject: Re: Rick  Patti, UNOS (Google it) really sets the rules on who is a transplant candidate. They base your candidacy on your " MELD " (Google) score mainly.Your platelet count is low, and the following may help explain: http://www.labtestsonline.org/understanding/analytes/platelet/test.html It seems to me that you should find out exactly what is causing the cancer cells in your bloodwork. I am certainly no expert on this subject at all, and am reluctant to give advice based on my ignorance. However, you really have a right to know more details from your Doc. Do you have cancer? Exactly what type and where is it? What is your next step for this? A liver transplant is not usually given to a cancer patient, due to the increased risks. My cancer was a single tumor on the liver, which they temporarily solved with the chemoembolization (which simply buys time and is not considered a true cure). I, too, am on SSI. I believe Medicare will cover the transplant (hope you also have supplemental insurance). The anti-rejection medication (normally Prograf) is very expensive, and is not fully covered by Medicare. I take 10 pills, 1 mg each, per day, and this costs me around $260 per month, but I believe the drug companies will help supplement you with that limited income. Prograf is now finally sold in a Generic form, which is only 10% cheaper at the moment. I believe these costs will go down soon, but as I said, the drug companies are likely to help you out. Your Doc should be able to help you with all these questions. If not, I really would look for another Doc. You not only need the Doc's expertise with the liver, but you need one who is compassionate, who will listen to and answer all your questions, and will help you get all the outside assistance that is available. Our Doc's seem to vary tremendously in their abilities to help us physically and emotionally. Are you in the D.R. right now? I know it's truly beautiful there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2010 Report Share Posted February 24, 2010 You/ve hit the head of the nail. My gastro is very uncaring. I had a good one in tx but cant seem to find on in FL on recommebnded drs. by Wellcare which is secondary insurance. Will have to go back to primary dr. when I return fron Costa Rica in 3 weeks. He told me I would have maybe 3 months before being bedbound so came to do one last time all the water things I love. Went diving yesterday with wonderful dive master. He never let go of my hand, helped me back into boat, I went home and slept till 8 pm, ate a bananna and thens slept till 8 this morning. BUT I DID IT. Yes it is beautiful here in Playa Coco. Many inconviences. One day no water, next day no elect, next day neither but if I wanted comfort, I would be in the US right? This is my last adventure to central America and I am telling my fish, monkeys, and varmits goodbye. I finally scattered my sons's ashes, who died from drugs 12 years ago at Volcan Irazu, 10,300 ft. The next volcano gave a little burp as I scattered the first handfull of ashes. He was saying Thanks Mom for finally letting me go, I think. When I go back to US, I want to find someone in my position to live with and we can help each other when we are too tired to cook,, shop, clean house, etc. Just hope its on different days.LOL  I cut myself off from the world for awhile after divorce, but now willing to return as I think God stilll has something for me to do. Wish they had a dating site for single sick people. I got the silent dragon by taking accupuncture in Thailand in 1980, before disposable needles, but regardless how we got it, we are all victims. Have met kids, nurses, doctors, ministers and understand the anger, the 'WHY ME "  The frustration of my mind being so active and questiioning but my body says, sleep. The cancer cells are coming from the liver via Dr. just started 4 months ago. He told me go to CR and enjoy while I can so here I am. have a good day  ________________________________ From: Rick Kipp <rickkipp@...> Hepatitis C Sent: Mon, February 22, 2010 7:37:40 PM Subject: Re: Rick  Patti, UNOS (Google it) really sets the rules on who is a transplant candidate. They base your candidacy on your " MELD " (Google) score mainly.Your platelet count is low, and the following may help explain: http://www.labtestsonline.org/understanding/analytes/platelet/test.html It seems to me that you should find out exactly what is causing the cancer cells in your bloodwork. I am certainly no expert on this subject at all, and am reluctant to give advice based on my ignorance. However, you really have a right to know more details from your Doc. Do you have cancer? Exactly what type and where is it? What is your next step for this? A liver transplant is not usually given to a cancer patient, due to the increased risks. My cancer was a single tumor on the liver, which they temporarily solved with the chemoembolization (which simply buys time and is not considered a true cure). I, too, am on SSI. I believe Medicare will cover the transplant (hope you also have supplemental insurance). The anti-rejection medication (normally Prograf) is very expensive, and is not fully covered by Medicare. I take 10 pills, 1 mg each, per day, and this costs me around $260 per month, but I believe the drug companies will help supplement you with that limited income. Prograf is now finally sold in a Generic form, which is only 10% cheaper at the moment. I believe these costs will go down soon, but as I said, the drug companies are likely to help you out. Your Doc should be able to help you with all these questions. If not, I really would look for another Doc. You not only need the Doc's expertise with the liver, but you need one who is compassionate, who will listen to and answer all your questions, and will help you get all the outside assistance that is available. Our Doc's seem to vary tremendously in their abilities to help us physically and emotionally. Are you in the D.R. right now? I know it's truly beautiful there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2010 Report Share Posted February 24, 2010 God bless u patti,u are my inspiration From: patti <fishinggal2008@...> Subject: Re: Rick Hepatitis C Date: Wednesday, February 24, 2010, 9:45 AM  You/ve hit the head of the nail. My gastro is very uncaring. I had a good one in tx but cant seem to find on in FL on recommebnded drs. by Wellcare which is secondary insurance. Will have to go back to primary dr. when I return fron Costa Rica in 3 weeks. He told me I would have maybe 3 months before being bedbound so came to do one last time all the water things I love. Went diving yesterday with wonderful dive master. He never let go of my hand, helped me back into boat, I went home and slept till 8 pm, ate a bananna and thens slept till 8 this morning. BUT I DID IT. Yes it is beautiful here in Playa Coco. Many inconviences. One day no water, next day no elect, next day neither but if I wanted comfort, I would be in the US right? This is my last adventure to central America and I am telling my fish, monkeys, and varmits goodbye. I finally scattered my sons's ashes, who died from drugs 12 years ago at Volcan Irazu, 10,300 ft. The next volcano gave a little burp as I scattered the first handfull of ashes. He was saying Thanks Mom for finally letting me go, I think. When I go back to US, I want to find someone in my position to live with and we can help each other when we are too tired to cook,, shop, clean house, etc. Just hope its on different days.LOL  I cut myself off from the world for awhile after divorce, but now willing to return as I think God stilll has something for me to do. Wish they had a dating site for single sick people. I got the silent dragon by taking accupuncture in Thailand in 1980, before disposable needles, but regardless how we got it, we are all victims. Have met kids, nurses, doctors, ministers and understand the anger, the 'WHY ME "  The frustration of my mind being so active and questiioning but my body says, sleep. The cancer cells are coming from the liver via Dr. just started 4 months ago. He told me go to CR and enjoy while I can so here I am. have a good day  ____________ _________ _________ __ From: Rick Kipp <rickkippearthlink (DOT) net> Hepatitis Csupportgr oupgroups (DOT) com Sent: Mon, February 22, 2010 7:37:40 PM Subject: Re: Rick  Patti, UNOS (Google it) really sets the rules on who is a transplant candidate. They base your candidacy on your " MELD " (Google) score mainly.Your platelet count is low, and the following may help explain: http://www.labtests online.org/ understanding/ analytes/ platelet/ test.html It seems to me that you should find out exactly what is causing the cancer cells in your bloodwork. I am certainly no expert on this subject at all, and am reluctant to give advice based on my ignorance. However, you really have a right to know more details from your Doc. Do you have cancer? Exactly what type and where is it? What is your next step for this? A liver transplant is not usually given to a cancer patient, due to the increased risks. My cancer was a single tumor on the liver, which they temporarily solved with the chemoembolization (which simply buys time and is not considered a true cure). I, too, am on SSI. I believe Medicare will cover the transplant (hope you also have supplemental insurance). The anti-rejection medication (normally Prograf) is very expensive, and is not fully covered by Medicare. I take 10 pills, 1 mg each, per day, and this costs me around $260 per month, but I believe the drug companies will help supplement you with that limited income. Prograf is now finally sold in a Generic form, which is only 10% cheaper at the moment. I believe these costs will go down soon, but as I said, the drug companies are likely to help you out. Your Doc should be able to help you with all these questions. If not, I really would look for another Doc. You not only need the Doc's expertise with the liver, but you need one who is compassionate, who will listen to and answer all your questions, and will help you get all the outside assistance that is available. Our Doc's seem to vary tremendously in their abilities to help us physically and emotionally. Are you in the D.R. right now? I know it's truly beautiful there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2010 Report Share Posted February 24, 2010 God bless u patti,u are my inspiration From: patti <fishinggal2008@...> Subject: Re: Rick Hepatitis C Date: Wednesday, February 24, 2010, 9:45 AM  You/ve hit the head of the nail. My gastro is very uncaring. I had a good one in tx but cant seem to find on in FL on recommebnded drs. by Wellcare which is secondary insurance. Will have to go back to primary dr. when I return fron Costa Rica in 3 weeks. He told me I would have maybe 3 months before being bedbound so came to do one last time all the water things I love. Went diving yesterday with wonderful dive master. He never let go of my hand, helped me back into boat, I went home and slept till 8 pm, ate a bananna and thens slept till 8 this morning. BUT I DID IT. Yes it is beautiful here in Playa Coco. Many inconviences. One day no water, next day no elect, next day neither but if I wanted comfort, I would be in the US right? This is my last adventure to central America and I am telling my fish, monkeys, and varmits goodbye. I finally scattered my sons's ashes, who died from drugs 12 years ago at Volcan Irazu, 10,300 ft. The next volcano gave a little burp as I scattered the first handfull of ashes. He was saying Thanks Mom for finally letting me go, I think. When I go back to US, I want to find someone in my position to live with and we can help each other when we are too tired to cook,, shop, clean house, etc. Just hope its on different days.LOL  I cut myself off from the world for awhile after divorce, but now willing to return as I think God stilll has something for me to do. Wish they had a dating site for single sick people. I got the silent dragon by taking accupuncture in Thailand in 1980, before disposable needles, but regardless how we got it, we are all victims. Have met kids, nurses, doctors, ministers and understand the anger, the 'WHY ME "  The frustration of my mind being so active and questiioning but my body says, sleep. The cancer cells are coming from the liver via Dr. just started 4 months ago. He told me go to CR and enjoy while I can so here I am. have a good day  ____________ _________ _________ __ From: Rick Kipp <rickkippearthlink (DOT) net> Hepatitis Csupportgr oupgroups (DOT) com Sent: Mon, February 22, 2010 7:37:40 PM Subject: Re: Rick  Patti, UNOS (Google it) really sets the rules on who is a transplant candidate. They base your candidacy on your " MELD " (Google) score mainly.Your platelet count is low, and the following may help explain: http://www.labtests online.org/ understanding/ analytes/ platelet/ test.html It seems to me that you should find out exactly what is causing the cancer cells in your bloodwork. I am certainly no expert on this subject at all, and am reluctant to give advice based on my ignorance. However, you really have a right to know more details from your Doc. Do you have cancer? Exactly what type and where is it? What is your next step for this? A liver transplant is not usually given to a cancer patient, due to the increased risks. My cancer was a single tumor on the liver, which they temporarily solved with the chemoembolization (which simply buys time and is not considered a true cure). I, too, am on SSI. I believe Medicare will cover the transplant (hope you also have supplemental insurance). The anti-rejection medication (normally Prograf) is very expensive, and is not fully covered by Medicare. I take 10 pills, 1 mg each, per day, and this costs me around $260 per month, but I believe the drug companies will help supplement you with that limited income. Prograf is now finally sold in a Generic form, which is only 10% cheaper at the moment. I believe these costs will go down soon, but as I said, the drug companies are likely to help you out. Your Doc should be able to help you with all these questions. If not, I really would look for another Doc. You not only need the Doc's expertise with the liver, but you need one who is compassionate, who will listen to and answer all your questions, and will help you get all the outside assistance that is available. Our Doc's seem to vary tremendously in their abilities to help us physically and emotionally. Are you in the D.R. right now? I know it's truly beautiful there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2010 Report Share Posted February 24, 2010 God bless u patti,u are my inspiration From: patti <fishinggal2008@...> Subject: Re: Rick Hepatitis C Date: Wednesday, February 24, 2010, 9:45 AM  You/ve hit the head of the nail. My gastro is very uncaring. I had a good one in tx but cant seem to find on in FL on recommebnded drs. by Wellcare which is secondary insurance. Will have to go back to primary dr. when I return fron Costa Rica in 3 weeks. He told me I would have maybe 3 months before being bedbound so came to do one last time all the water things I love. Went diving yesterday with wonderful dive master. He never let go of my hand, helped me back into boat, I went home and slept till 8 pm, ate a bananna and thens slept till 8 this morning. BUT I DID IT. Yes it is beautiful here in Playa Coco. Many inconviences. One day no water, next day no elect, next day neither but if I wanted comfort, I would be in the US right? This is my last adventure to central America and I am telling my fish, monkeys, and varmits goodbye. I finally scattered my sons's ashes, who died from drugs 12 years ago at Volcan Irazu, 10,300 ft. The next volcano gave a little burp as I scattered the first handfull of ashes. He was saying Thanks Mom for finally letting me go, I think. When I go back to US, I want to find someone in my position to live with and we can help each other when we are too tired to cook,, shop, clean house, etc. Just hope its on different days.LOL  I cut myself off from the world for awhile after divorce, but now willing to return as I think God stilll has something for me to do. Wish they had a dating site for single sick people. I got the silent dragon by taking accupuncture in Thailand in 1980, before disposable needles, but regardless how we got it, we are all victims. Have met kids, nurses, doctors, ministers and understand the anger, the 'WHY ME "  The frustration of my mind being so active and questiioning but my body says, sleep. The cancer cells are coming from the liver via Dr. just started 4 months ago. He told me go to CR and enjoy while I can so here I am. have a good day  ____________ _________ _________ __ From: Rick Kipp <rickkippearthlink (DOT) net> Hepatitis Csupportgr oupgroups (DOT) com Sent: Mon, February 22, 2010 7:37:40 PM Subject: Re: Rick  Patti, UNOS (Google it) really sets the rules on who is a transplant candidate. They base your candidacy on your " MELD " (Google) score mainly.Your platelet count is low, and the following may help explain: http://www.labtests online.org/ understanding/ analytes/ platelet/ test.html It seems to me that you should find out exactly what is causing the cancer cells in your bloodwork. I am certainly no expert on this subject at all, and am reluctant to give advice based on my ignorance. However, you really have a right to know more details from your Doc. Do you have cancer? Exactly what type and where is it? What is your next step for this? A liver transplant is not usually given to a cancer patient, due to the increased risks. My cancer was a single tumor on the liver, which they temporarily solved with the chemoembolization (which simply buys time and is not considered a true cure). I, too, am on SSI. I believe Medicare will cover the transplant (hope you also have supplemental insurance). The anti-rejection medication (normally Prograf) is very expensive, and is not fully covered by Medicare. I take 10 pills, 1 mg each, per day, and this costs me around $260 per month, but I believe the drug companies will help supplement you with that limited income. Prograf is now finally sold in a Generic form, which is only 10% cheaper at the moment. I believe these costs will go down soon, but as I said, the drug companies are likely to help you out. Your Doc should be able to help you with all these questions. If not, I really would look for another Doc. You not only need the Doc's expertise with the liver, but you need one who is compassionate, who will listen to and answer all your questions, and will help you get all the outside assistance that is available. Our Doc's seem to vary tremendously in their abilities to help us physically and emotionally. Are you in the D.R. right now? I know it's truly beautiful there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2010 Report Share Posted February 24, 2010 God bless u patti,u are my inspiration From: patti <fishinggal2008@...> Subject: Re: Rick Hepatitis C Date: Wednesday, February 24, 2010, 9:45 AM  You/ve hit the head of the nail. My gastro is very uncaring. I had a good one in tx but cant seem to find on in FL on recommebnded drs. by Wellcare which is secondary insurance. Will have to go back to primary dr. when I return fron Costa Rica in 3 weeks. He told me I would have maybe 3 months before being bedbound so came to do one last time all the water things I love. Went diving yesterday with wonderful dive master. He never let go of my hand, helped me back into boat, I went home and slept till 8 pm, ate a bananna and thens slept till 8 this morning. BUT I DID IT. Yes it is beautiful here in Playa Coco. Many inconviences. One day no water, next day no elect, next day neither but if I wanted comfort, I would be in the US right? This is my last adventure to central America and I am telling my fish, monkeys, and varmits goodbye. I finally scattered my sons's ashes, who died from drugs 12 years ago at Volcan Irazu, 10,300 ft. The next volcano gave a little burp as I scattered the first handfull of ashes. He was saying Thanks Mom for finally letting me go, I think. When I go back to US, I want to find someone in my position to live with and we can help each other when we are too tired to cook,, shop, clean house, etc. Just hope its on different days.LOL  I cut myself off from the world for awhile after divorce, but now willing to return as I think God stilll has something for me to do. Wish they had a dating site for single sick people. I got the silent dragon by taking accupuncture in Thailand in 1980, before disposable needles, but regardless how we got it, we are all victims. Have met kids, nurses, doctors, ministers and understand the anger, the 'WHY ME "  The frustration of my mind being so active and questiioning but my body says, sleep. The cancer cells are coming from the liver via Dr. just started 4 months ago. He told me go to CR and enjoy while I can so here I am. have a good day  ____________ _________ _________ __ From: Rick Kipp <rickkippearthlink (DOT) net> Hepatitis Csupportgr oupgroups (DOT) com Sent: Mon, February 22, 2010 7:37:40 PM Subject: Re: Rick  Patti, UNOS (Google it) really sets the rules on who is a transplant candidate. They base your candidacy on your " MELD " (Google) score mainly.Your platelet count is low, and the following may help explain: http://www.labtests online.org/ understanding/ analytes/ platelet/ test.html It seems to me that you should find out exactly what is causing the cancer cells in your bloodwork. I am certainly no expert on this subject at all, and am reluctant to give advice based on my ignorance. However, you really have a right to know more details from your Doc. Do you have cancer? Exactly what type and where is it? What is your next step for this? A liver transplant is not usually given to a cancer patient, due to the increased risks. My cancer was a single tumor on the liver, which they temporarily solved with the chemoembolization (which simply buys time and is not considered a true cure). I, too, am on SSI. I believe Medicare will cover the transplant (hope you also have supplemental insurance). The anti-rejection medication (normally Prograf) is very expensive, and is not fully covered by Medicare. I take 10 pills, 1 mg each, per day, and this costs me around $260 per month, but I believe the drug companies will help supplement you with that limited income. Prograf is now finally sold in a Generic form, which is only 10% cheaper at the moment. I believe these costs will go down soon, but as I said, the drug companies are likely to help you out. Your Doc should be able to help you with all these questions. If not, I really would look for another Doc. You not only need the Doc's expertise with the liver, but you need one who is compassionate, who will listen to and answer all your questions, and will help you get all the outside assistance that is available. Our Doc's seem to vary tremendously in their abilities to help us physically and emotionally. Are you in the D.R. right now? I know it's truly beautiful there. Quote Link to comment Share on other sites More sharing options...
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