Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Hi Dave, I, too, was concerned about toxicity and side effects (and price!) of DMARDs. After discussing with my doctor, he put me on sulfasalazine. Have you heard of it? It's an old stand-by, and my doctor said the toxicity is lower with this than other DMARDs. You can read about it at: http://www.hopkins-arthritis.som.jhmi.edu/rheumatoid/rheum_treat.html#hydroxy. I've just been taking it for two weeks, and it takes up to 4 months to start working, so I don't know yet how effective it will be for me, but I thought I'd pass it on in case you'd like to check it out. Kind regards, dave francis <hbdave@...> wrote: Thanx for the story ... I hope that things somehow turn out ok for you!! .. I just said a quicky prayer for you, if you consider yourself spiritual, at all, pray sister .. it certainly cannot hurt!! I felt very anxious about doing any of the DMARDS .. especially remicade, which the doctor's assistant was pressuring me to go on .. I hesitated for a couple of reasons.. 1)the cost to my fellow medical insureds, $2000.00 an injection .. I know this is not common, but I really don't want to be that much of an expense to anyone 2)When I tried to look it up on the net for info., found 2 things.. promotion from 'big drug co.s & offers from lawyers to sue the snot out of the doctor's that prescribed it to you.. Needless to say, I passed and decided to stay with the prednisone and pain killers .. Gettin back into the sun, for natural VitD manufacturing by my body ,, and going back to the 'Judy Mazel' way of eating .. Looking back before this RA hit these are two things that I faltered or stopped, right before. Takereasy .. DaveF. [ ] Enbrel Want too... talk side effects!!!!! > Hi there, > This is my first post here, I hope I can help others from the heart > break I had gone thur. I am not here to scare any one just toooo.. > let u know what happened to me on Enbrel for RA. I also have > Fibromyalgia for 8.5 years RA dx 1997 and other diease i will post > about at another time. > > I was put on a waiting list for this drug in 2000. I came to the top > of the list 11/2002, I started the Enbrel right away I found relief > from RA in 5 to 6 weeks or sooo... I believed I was back to Normal > (right) I was so happy. But the evilness of this FDA approved drug > came to a head. In my right eye I started having a hard time with my > sight and things going blurry , I thought that they were just tried. > then on 2/26/2003 I could not see all, I could see was the out line > of > thing for Example I could see your face but not you eyes ot mouth > just the figure. > > I decieded I needed to go see an Eye doc and he told me that I had > Optic Nerutris(one of the signs of Ms abd bought on by Enbrel). > From there I went to see rheummy and told her what was going on > She then admitted me right away and started mega doses of steroids. > I now am legaly blind in that eye from the Enbrel > > I was will to do any thing to get out of pain, Enbrel is a hermone > from a chinnies hamster overies i was put this into my body i must > have been crazy To put forign thing into my body to me i will live > life in pain and have my sight my left eye tooo.. me I do nt believe > this drug id worth lossing our sight over > > I do kow that this side effect was a freak one but if it happened to > me COULD IT HAPPEN TO YOU. > > I dont believe this is worth it to me to risk your sight or to get MS > or death. > > Please becarfull on this drug and learn all you can about this drug. > My lawyer told me that remicaid is 10times worst > these new RA drugs BIO'S should have not been aaproved by the FDA. > > Good luck To....All > Take Care Chessygirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 --- In , <prairiemoonpottery@y...> wrote: , One of the medications that I was put on after prednisone didn't do anything for me was sulfasalazine. I had a severe panic attack on it. My RA doc immediately took me off of it. That was when I first started taking MTX. I had been reluctant to take the MTX because it was described to me as a cancer drug and it scared me to death but the panic attack from the sulfasalazine was worse then anything I have ever had. I wish you luck with it. It works quite well for some people but I'll never forget being afraid to get out of my truck and go into the therapy center for my appointment. God bless, Althea Quote Link to comment Share on other sites More sharing options...
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