Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 June, Congratulations on a job well done. I don't know how you do it. I don't think I could handle all that stress anymore. And speaking in front of people would send me to the corner quickly. You do a wonderful job and if you do get that one provider to listen that is a job well done. So many of them just do not understand what it is like to live with pain 24/7. I wonder what the doctor's and the nurses would do in their offices if we all came in just screaming and truly acted out how we feel. I think sometimes we are all just too polite and that they just don't believe us when we say we are hurting. Even though they have those signs up on their walls stating that they will believe what the patient says. What calm patient could be sustaining all that pain and not be screaming. God bless, Althea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Congratulations, June! It sounds as if your speech and Q & A session were a tremendous success. I'm grateful that there are determined and generous people like you who are willing to be such strong advocates for those with rheumatic diseases. Do you suppose you can make it to the US to help us, too? Maybe a world tour? Please do send me whatever you have to: Matsumura_Clan@... Thanks! I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] I'm back with news > Hi all, as most of you know, I gave a presentation to about 25 copayors last Wed. These are the movers and shakers that make decisions as to what, how and when, patients are allowed access to the new biologics. My talk was 25 mins, and I included pictures of before, after and during my days with RA. At the end they were allowed 20 mins for questions and answers but somehow this went on for about 45 mins. One copayor said " I will never look at a claim in the same way " . Anther said, 'I don't think I will come to any more of your talks, you made me cry and men are not supposed to cry " . I did get a standing applause, so I came away with the feeling that my message was not in vain. > > On the weekend, I and others, did a 2 day workshop teaching them how to become more efficient advocates(we had people from all over Canada, which included patients,GP's and rheumatologists) People think advocators are a group who jump up and down, talking a mile a minute to get their point across.We spent a couple of hours teaching patients how to lobby politicians and this, for some reason. got them all excited LOL. I will be drafting up some of the items I brought to the table, later this week. If anyone would like a copy, let me know your email address and I will be happy to send it to you. > > On the whole, I came away with a very satisfied feeling. You were all very much in my thoughts as I told them the truth of what it is like for people who live with chronic pain. > > I am very tired at the moment and the pain seems to hover at 10. There were times I had almost made up my mind to stop these speaking sessions but if I only reach and educate at least one health care provider, then I have a hard time not doing it. I feel that I am speaking for all of you. > > Still waiting for an appt with a neurologist to see what options are available to me, then I can decide which joint is causing me the most grief, my ankle or my knee, some choice LOL > > Hugs > June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 June, I wish I could have been there to see your speech. It sounds like you touched many people. I would very much like to read your draft paula54@... Thanks for all that you do. I agree with , we need more like you in the US. Maybe your draft will give us some ideas. a > Hi all, as most of you know, I gave a presentation to about 25 copayors last > Wed. These are the movers and shakers that make decisions as to what, how and > when, patients are allowed access to the new biologics. My talk was 25 mins, > and I included pictures of before, after and during my days with RA. At the > end they were allowed 20 mins for questions and answers but somehow this went > on for about 45 mins. One copayor said " I will never look at a claim in the > same way " . Anther said, 'I don't think I will come to any more of your talks, > you made me cry and men are not supposed to cry " . I did get a standing > applause, so I came away with the feeling that my message was not in vain. > > On the weekend, I and others, did a 2 day workshop teaching them how to become > more efficient advocates(we had people from all over Canada, which included > patients,GP's and rheumatologists) People think advocators are a group who > jump up and down, talking a mile a minute to get their point across.We spent a > couple of hours teaching patients how to lobby politicians and this, for some > reason. got them all excited LOL. I will be drafting up some of the items I > brought to the table, later this week. If anyone would like a copy, let me > know your email address and I will be happy to send it to you. > > On the whole, I came away with a very satisfied feeling. You were all very > much in my thoughts as I told them the truth of what it is like for people who > live with chronic pain. > > I am very tired at the moment and the pain seems to hover at 10. There were > times I had almost made up my mind to stop these speaking sessions but if I > only reach and educate at least one health care provider, then I have a hard > time not doing it. I feel that I am speaking for all of you. > > Still waiting for an appt with a neurologist to see what options are available > to me, then I can decide which joint is causing me the most grief, my ankle or > my knee, some choice LOL > > Hugs > June > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 June....Bravo.....Kudos....And I would love a looksee.....Kathi in OK - iamladybird@... -- In , " June Dixon " <juner24@r...> wrote: > Hi all, as most of you know, I gave a presentation to about 25 copayors last Wed. These are the movers and shakers that make decisions as to what, how and when, patients are allowed access to the new biologics. My talk was 25 mins, and I included pictures of before, after and during my days with RA. At the end they were allowed 20 mins for questions and answers but somehow this went on for about 45 mins. One copayor said " I will never look at a claim in the same way " . Anther said, 'I don't think I will come to any more of your talks, you made me cry and men are not supposed to cry " . I did get a standing applause, so I came away with the feeling that my message was not in vain. > > On the weekend, I and others, did a 2 day workshop teaching them how to become more efficient advocates(we had people from all over Canada, which included patients,GP's and rheumatologists) People think advocators are a group who jump up and down, talking a mile a minute to get their point across.We spent a couple of hours teaching patients how to lobby politicians and this, for some reason. got them all excited LOL. I will be drafting up some of the items I brought to the table, later this week. If anyone would like a copy, let me know your email address and I will be happy to send it to you. > > On the whole, I came away with a very satisfied feeling. You were all very much in my thoughts as I told them the truth of what it is like for people who live with chronic pain. > > I am very tired at the moment and the pain seems to hover at 10. There were times I had almost made up my mind to stop these speaking sessions but if I only reach and educate at least one health care provider, then I have a hard time not doing it. I feel that I am speaking for all of you. > > Still waiting for an appt with a neurologist to see what options are available to me, then I can decide which joint is causing me the most grief, my ankle or my knee, some choice LOL > > Hugs > June > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 June- Congrats. What a wonderful service you do ...so many involved with claim payment are so cynical. I am actually glad you made a grown man cry. Big hugs to you and I hope you get some relief with both ankle and knee soon. Lotsa love, -------------- Original message from " Kathi " : -------------- > June....Bravo.....Kudos....And I would love a looksee.....Kathi in OK > - > iamladybird@... > > > -- In , " June Dixon " wrote: > > Hi all, as most of you know, I gave a presentation to about 25 > copayors last Wed. These are the movers and shakers that make > decisions as to what, how and when, patients are allowed access to > the new biologics. My talk was 25 mins, and I included pictures of > before, after and during my days with RA. At the end they were > allowed 20 mins for questions and answers but somehow this went on > for about 45 mins. One copayor said " I will never look at a claim > in the same way " . Anther said, 'I don't think I will come to any > more of your talks, you made me cry and men are not supposed to > cry " . I did get a standing applause, so I came away with the feeling > that my message was not in vain. > > > > On the weekend, I and others, did a 2 day workshop teaching them > how to become more efficient advocates(we had people from all over > Canada, which included patients,GP's and rheumatologists) People > think advocators are a group who jump up and down, talking a mile a > minute to get their point across.We spent a couple of hours teaching > patients how to lobby politicians and this, for some reason. got > them all excited LOL. I will be drafting up some of the items I > brought to the table, later this week. If anyone would like a copy, > let me know your email address and I will be happy to send it to you. > > > > On the whole, I came away with a very satisfied feeling. You were > all very much in my thoughts as I told them the truth of what it is > like for people who live with chronic pain. > > > > I am very tired at the moment and the pain seems to hover at 10. > There were times I had almost made up my mind to stop these speaking > sessions but if I only reach and educate at least one health care > provider, then I have a hard time not doing it. I feel that I am > speaking for all of you. > > > > Still waiting for an appt with a neurologist to see what options > are available to me, then I can decide which joint is causing me the > most grief, my ankle or my knee, some choice LOL > > > > Hugs > > June > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 June, Congratulations and thanks for all you do. It has to be a wonderful feeling to know that you are making a difference. That is what life is all about. Hope you have a great week-end. I am also anxious to see what the neuro has to say. Pat [ ] I'm back with news Hi all, as most of you know, I gave a presentation to about 25 copayors last Wed. These are the movers and shakers that make decisions as to what, how and when, patients are allowed access to the new biologics. My talk was 25 mins, and I included pictures of before, after and during my days with RA. At the end they were allowed 20 mins for questions and answers but somehow this went on for about 45 mins. One copayor said " I will never look at a claim in the same way " . Anther said, 'I don't think I will come to any more of your talks, you made me cry and men are not supposed to cry " . I did get a standing applause, so I came away with the feeling that my message was not in vain. On the weekend, I and others, did a 2 day workshop teaching them how to become more efficient advocates(we had people from all over Canada, which included patients,GP's and rheumatologists) People think advocators are a group who jump up and down, talking a mile a minute to get their point across.We spent a couple of hours teaching patients how to lobby politicians and this, for some reason. got them all excited LOL. I will be drafting up some of the items I brought to the table, later this week. If anyone would like a copy, let me know your email address and I will be happy to send it to you. On the whole, I came away with a very satisfied feeling. You were all very much in my thoughts as I told them the truth of what it is like for people who live with chronic pain. I am very tired at the moment and the pain seems to hover at 10. There were times I had almost made up my mind to stop these speaking sessions but if I only reach and educate at least one health care provider, then I have a hard time not doing it. I feel that I am speaking for all of you. Still waiting for an appt with a neurologist to see what options are available to me, then I can decide which joint is causing me the most grief, my ankle or my knee, some choice LOL Hugs June Quote Link to comment Share on other sites More sharing options...
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