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pre-transplant evaluation

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I don't recall having the urine test or the 20 vials. Sure they did a

lot of blood tests, but 20 vials?

Good luck,

Roy T.

pre-transplant evaluation

> I start my evaluation to be listed for a liver transplant tomorrow.

Most

> of the tests I understand (ECG, chest x-ray, lab work (about 20 vials

worth -

> wonder how dizzy I will be when they are done and I stand up :) ), etc.

> But I do have a question about one test. I am in the middle of the 24

hour

> urine collection test and was wondering what they are looking for with

this

> test. The last time I did this test was right after I had a kidney stone

> lithotripsied. Anybody know what this test is for?

> I have learned a lot from this list and appreciate all of you for your

> help. Thanks.

>

> Barby

>

> married 20 years, mom of 5 sons- KS

> UC - dx in 1965 (11yo)

> PSC- dx in 1995

> assymptomatic until 1999

>

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> http://click./1/2578/5/_/24674/_/954714138/

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Quantell did not have a 24-hour urine as part of his pre-transplant eval,

but he has had one previously. It was done to evaluate kidney function and

rule out tumors.

20 vials of blood seems a little on the high side, but not unreasonable --

Quantell's regular (now monthly) liver clinic labs involve 5-10. (And we've

found that some phelbotomists are better than others at grouping multiple

tests to be done from one vial.)

Pam (mom to Quantell, dx 1996)

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That test is probably to check your kidney's creatnine clearance over a 24

hr period....just a way of testing how effective your kidneys are working

and what kind of shape they are in

RN (wife to Steve....psc/uc since 6/98 and colectomy since 11/98...by

the way...when steve got his ostomy done it was nice to say goodbye to uc

flareups...even though he had only 2 acute ones they were enough...have many

of you had colectomies or ostomies done?)

pre-transplant evaluation

> I start my evaluation to be listed for a liver transplant tomorrow.

Most

> of the tests I understand (ECG, chest x-ray, lab work (about 20 vials

worth -

> wonder how dizzy I will be when they are done and I stand up :) ), etc.

> But I do have a question about one test. I am in the middle of the 24

hour

> urine collection test and was wondering what they are looking for with

this

> test. The last time I did this test was right after I had a kidney stone

> lithotripsied. Anybody know what this test is for?

> I have learned a lot from this list and appreciate all of you for your

> help. Thanks.

>

> Barby

>

> married 20 years, mom of 5 sons- KS

> UC - dx in 1965 (11yo)

> PSC- dx in 1995

> assymptomatic until 1999

>

> ------------------------------------------------------------------------

> Why buy CDs? Now you can swap for them. At Switchouse.com, you can

> choose from over 300,000 titles of every kind of music. Top 20 hits,

> R & B, hardcore, whatever. Get the music. Forget the money. Sound good?

> http://click./1/2578/5/_/24674/_/954714138/

>

> -- Create a poll/survey for your group!

> -- /vote?listname= & m=1

>

>

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I had 18 drawn.....I'm sure if they took number 19 it would show anemia!

Penny

Roy Toutant wrote:

> I don't recall having the urine test or the 20 vials. Sure they did a

> lot of blood tests, but 20 vials?

>

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I lied to all of you about how many vials of blood they would draw (20) -

they took 26!?!? I was able to get up without fainting even though I

hadn't had breakfast. :) It really wasn't so bad - the tech used a

butterfly since she was taking so much. I usually have to request it since I

have small, rolling veins. The lady doing the abdominal sonogram said I had

very good blood vessels around my liver and said the blood was flowing the

right way. Whatever..... as long as it is good news!

We go back tomorrow for a full day. My lung capacity is not very big so I

will probably " flunk " the pulmonary function test. lol I'll do ok on the

EKG, echocardiogram and the osteoporosis clinic check.

Hope you have a great day.

Barby

married 20 years, mom of 5 sons- KS

UC - dx in 1965 (11yo), ostomy 1972, BCIR 1994

PSC- dx in 1995

assymptomatic until 1999

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Pam/Quantell wrote:

> (And we've

> found that some phelbotomists are better than others at grouping multiple

> tests to be done from one vial.)

I think that # of tubes of blood can sometimes have to do with which

tests they can do in house and which they have to send out etc. My wife

is an MT at a doctors office, and they do a lot of the tests there at

their own lab, but some of the more specialized ones have to be sent

out, which can necessitate extra tubes of blood.

athan

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Barby,

Phil got listed with normal liver functions because he had 4 infections in 3

months last year. Now he's had another. They will not do an ERCP unless

there is no other recourse to stop an infection. They do not believe in

doing them everytime you turn around. If stenting will help that is another

story but Phil's got way too many constrictions for stenting to do any good

and right now he responds well to the antibiotic. I suppose there will come

a point when it won't. Glad your tests are coming out well. Phil's did too

he just has bad pipes.

Peg

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I'm confused.....should we be happy about normal or lowering LFT's or upset?

Mike just had bloodwork done and his Alk Phos and Gamma GT continue to

decline, AST and ALT are normal range, bilirubin is just a hair above

normal, white blood cells and platelets are climbing....should we be happy

or apprehensive?

Patti

>

>Reply-To: egroups

>To: egroups

>Subject: Re: Pre-transplant evaluation

>Date: Fri, 7 Apr 2000 17:56:30 -0700 (PDT)

>

>Alk Phos, ALT (SGPT), AST (SGOT) are enzymes released when liver

>(and some other types) cells die. Cells are dieing all the time,

>so there is a " normal " level of the LFT enzymes. PSC accelerates

>the death of the liver cells - increasing the enzyme levels in

>the blood. When all the cells have died, there are no more

>enzymes being released and LFT's drop.

>

>It's easy to tell the difference between all the cells are gone

>and LFT's drop and URSO/SAMe/treatment causes LFT's to drop. In

>the first case you feel like you are just about dead, in the

>second you feel like you can go out and conquer the world again.

>

>Tim ltx 4/4/98 my LFT's were coming down before tx, but not

>much.

>

>--- Biddy Santon wrote:

> > Hi!

> > From what I have read on this site and the PBC site,

> > normal LFT's are really the norm when one gets to the tx

>stage.

> > My son [a doctor] also told me this.

> > Biddy

> >

> > ----- Original Message -----

> >

> > >

> > > I have finished most of my evaluation (anesthesia and

> > psychiatry tomorrow :( ).

>. . .

> > >

> > > Here is the interesting part - all my liver function tests

> > > are absolutely normal. I couldn't believe it. ...

>

>__________________________________________________

>

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