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Hi! I was diagnosed almost 3 yrs ago with small fibroids. Along with the

heavy bleeding, clots and cramping I also had and still have constipation and

back aches. My Dr. put me on Prempro and it has all but stopped the bleeding.

I still have some minor spotting every few months & he claims that's from the

fibroids " filling up " . After the spotting leaves I have a few back aches

still but I will live with the pain rather than have any surgery. I am due

9/1/00 for another pelvic ultrasound to see if the fibriods are shrinking.

I don't know if they have or not, but I am sure I am alot more comfortable

since I have been taking the Prempro.

Hope I have been of some help to you

Helen

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Hi Jo-Ann;

This sounds like what I heard 8 years ago from my gyn., my answer was

thanks, but no thanks. Easy for a male dr. to say, you have a couple of

small fibroids, lets get rid of everything now & you won't have anymore

problems in the future. I wonder how quickly they would react if someone

suggested we get rid of there gems. I am sorry to react this way, but I am

so fed up of hearing the correlation amongst drs. " FIBROIDS=HYSTERECTOMY " .

There are a lot of options at your stage of the game, had I known of all my

options when I was 1st diagnosed, I would not have suffered for all these

years. I am scheduled for a UAE on 8/28/00, if I don't do something I will

bleed to death. After doing all of my research I found that this is what I

am most comfortable with. My advice, go for 2nd, 3rd, etc.opinions, find a

good Dr. that is open to new ideas and whatever you decide to do, don't

wait. Good luck in your journey and my prayers are with you.

Alyce

(no subject)

> i was just diagnosed with small fybroid on uterus and adenomyosis

> been in pain for over 6 weeks. drs are recomending a hysterectomy for the

> aden saying that is the cause of the pain.

> has anyone with a small fibroid had

> pressure on bladder back pain and constipation or is he right in assuming

> most of the pain is from the aden.

> thanks

> jo-ann

> ps anyone who has had a hyst please let me know your experience.

> im scared.but cant stand the pain anymore

>

>

>

>

>

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Get a fertility specialist. I had a fibroid have three needle dot size onces

left and just had a cyst on my ovary. Still hanging in there. Most doc's

choose hysterectomy because its cheaper and easier. And if your a minority

and don't have medical insurance watch out at county hospitals . County

hospitals are the best because they do allot a research and have some of the

best doctors teaching future doctors. Just make sure you get one that will

sit down and talk with you. You do have options!

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hi,

thanks for writing. i am concerned because the one thing i do not have is

heavy or prolonged bleeding. my cycles are pretty normal 3-5 days but only

two or three is any real bleeding the rest of the days it kinda only bleeds

when i empty my bladder. my main symptoms are severe lower abdominal pain

across the pelvic area and bladder area. and lower back. everything i read on

aden and fibroids suggest heavy irregular bleeding. could they be way off

here maybe i have aden but also something else.

i live in pittsburgh pa and would love a refferal to a specialist in this

area.if you could

thanks

jo-ann

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Dear Jo-ann

First and foremost, please know that hysterectomy is not your only option.

Here at Albany Medical Center, in Albany, N.Y., Dr. Siskin has

performed dozens of uterine artery embolizations on women with adenomyosis

with good result. Adenomyosis is most often the cause of heavy menstrual

bleeding and can produce pelvic discomfort as well. We have had many women

come to our offices for consultation who have been told that they have

fibroids and have ultrasound reports stating as such. Only after we obtain

the required pre-procedure MRI do we realize that they have adenomyosis.

MRI is the only radiologic modality that can accurately diagnose

adenomyosis. If you do not desire to have a hysterectomy please contact an

IR in your area and ask about his/her feelings of performing UAE on someone

with adenomyosis. If you tell us where you are located we may be able to

refer you to an IR in your area, or visit the SCVIR website at www.scvir.org

to find an IR near you. I hope this helps, please feel free to contact Dr.

Siskin or I for further information.

Good Luck,

A. Meo, R.N.

Dept. of Vascular and Interventional Radiology

Albany Medical Center Hospital

Albany, New York

(no subject)

> i was just diagnosed with small fybroid on uterus and adenomyosis

> been in pain for over 6 weeks. drs are recomending a hysterectomy for the

> aden saying that is the cause of the pain.

> has anyone with a small fibroid had

> pressure on bladder back pain and constipation or is he right in assuming

> most of the pain is from the aden.

> thanks

> jo-ann

> ps anyone who has had a hyst please let me know your experience.

> im scared.but cant stand the pain anymore

>

>

>

>

>

>

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what is UAE

I DO NOT KNOW WHERE THE fibroid is or what type i will ask the gyne tomorrow.

i had a laporoscopy done last friday and that is when they said they saw it.

thanks

joann

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______________________________________

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Jo-ann wrote:

i was just diagnosed with small fybroid on uterus and adenomyosis

been in pain for over 6 weeks. drs are recomending a hysterectomy for the

aden saying that is the cause of the pain.

has anyone with a small fibroid had

pressure on bladder back pain and constipation or is he right in assuming

most of the pain is from the aden.

--------------

Jo-ann, depending on the location of your fibroid, it's possible that it is

causing the symptoms you mention. I don't know enough about adenomyosis to know

what types of pain it can cause, other than very bad cramps during menstruation.

Do you know what type of fibroid you have (submucosal, intramural, or

subserosal) and where it is located in the uterus (front, back, etc.). Knowing

these things can help determine whether the symptoms you are getting are related

to the fibroid or not. A fibroid located on the back of the uterus would be

most likely to cause your type of symptoms.

If you feel like taking a chance, you could have a UAE adn see if the bladder

pressure, back pain and constipation improve. If they don't, you can still have

the hysterectomy that is being advised. At this point in time, the only

recommended treatment for adenomyosis is hysterectomy. Can I ask how the

adenomyosis was diagnosed, what type of tests you had? There is some

speculation that UAE can have a positive effect on adenomyosis, but I don't

believe there is any research to support this yet. You have a complicated

situation. I would try to get more info on the fibroid, and also on what makes

your GYN think you have adenomyosis. Please keep in touch. LEonie

______________________________________

This message, together with any attachments, is intended only for the

use of the individual or entity to which it is addressed and may contain

information that is legally privileged, confidential and exempt from

disclosure. If you are not the intended recipient, you are hereby

notified that any dissemination, distribution, or copying of this

message,or any attachment, is strictly prohibited. If you have received

this message in error, please notify the original sender (or the WSPR

Help Desk) immediately by telephone () or by return

E-mail and delete the message, along with any attachments, from

your computer. Thank you.

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  • 2 weeks later...

In a message dated 8/29/00 2:07:05 PM Central Daylight Time,

bjtfw@... writes:

<< Where would I go to find these organic foods? I live in a small town in

Nebraska. I am sure there would be some type of store in Omaha, but I just

don't know what store to look for.

>>

Hey Jen,

Hi from a fellow Nebraskan. I live in Omaha. If you want to contact me

privately I can look in the yellow pages for stores for you.

Sue Ostronic

sueostronc@...

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Dear Karin,

Thank you for this advice! I also heard something about caffeine and sugar

contributing to fibroids?

Where would I go to find these organic foods? I live in a small town in

Nebraska. I am sure there would be some type of store in Omaha, but I just

don't know what store to look for.

Thanks again!

Jen

(no subject)

> Dear ,

>

> Something else I forgot to tell you. Your diet is important.

> Stay away from dairy products. Eat only orgainc eggs, as commerical

> types are laden with hormones. Only eat organic meat, because other

> meat is hormone laden too.

> Pesticides on fruits and vegetebles contribute to bad health. Eat

> organic. I have been on an organic diet for about 5 + years now and my

> fibroids are not growing. They are very small.

> Karin

>

>

>

>

>

>

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  • 7 years later...
Guest guest

Testing! Can someone respond?

Jen Zingaro RD

CNY Dialysis Center

910 Erie Blvd.

Syracuse, NY 13210

(315)410-8040

**Confidentiality Notice**

The information in this message and/or the accompanying attachments

contain confidential privileged information. The information is the

property of the sender and intended only for use by the individual or

entity named above. The recipient of this information is prohibited

from disclosing the contents of the information to another party.

If you are neither the intended recipient nor the employee or agent

responsible for delivery to the intended recipient, you are hereby

notified that disclosure of contents in any manner is strictly

prohibited. Please notify Jen Zingaro by calling

immediately if you received this information in error.

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