Guest guest Posted March 19, 2000 Report Share Posted March 19, 2000 My GI has suggested that I take a Multi Vitamin for quite awhile, but he never told me what kind to buy, or what I should look for in the vitamins. When I started seeing the Transplant DR, he put me on prenatal vitamins (I'm not pregnant), this is helped quite a bit with fatigue, and my nails and hair are growing like crazy! Just a suggestion. Love, P.S. Welcome to the group, I'm the moderator, so let me know if you have any questions, comments, or concerns! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2000 Report Share Posted March 19, 2000 Hello, I am new to the group and was diagnosed with PSC last August. It's nice to be able to communicate with others with the same disease, now I don't feel like the only one. Since the disease is considered " rare " it seems very few people know about it. My only symptoms are itching(it drives me crazy) and fatigue. I'm currently on Actigall and slowly being taken off of predinsone. My doctor also suggested multi-vitamins with vitamin K. Does anyone else take vitamin K? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2000 Report Share Posted March 19, 2000 Hi , Welcome to the group. My husband was also diagnosed 8/99 so we're still learning here. Don't know anything about vitamin K either, so I would like to hear from the group as well. is still on prednisone, actigal and has had itching in one isolated area on his back that drives him crazy (me too LOL). I've found the group to be a great help and learned a lot since joining. Look forward to your posts. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2000 Report Share Posted March 20, 2000 Hello , WELLCOME! I was diagnosed 5 years ago but have never itched. I do suffer from fatigue though. As I said in an earlier message; I was gardening over the weekend and am feeling it today. You are among friends here so take heart. Yes it is rare but there are plenty of people to talk to here. Feel free to tell us about anything that bothers you; we all know how scary it is when you are recently diagnosed. We are a select group. Not many people have our disease; unfortunatly it isn't something that you can brag about <g>. If you tell us roughly where you live (just the city) you may discover there is another PSC'er nearby. Steve (the English eccentric). -------------------------------- wrote: > > Hello, > > I am new to the group and was diagnosed with PSC last August. It's nice to > be able to communicate with others with the same disease, now I don't feel > like the only one. Since the disease is considered " rare " it seems very few > people know about it. > > My only symptoms are itching(it drives me crazy) and fatigue. I'm currently > on Actigall and slowly being taken off of predinsone. My doctor also > suggested multi-vitamins with vitamin K. Does anyone else take vitamin K? > > Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2000 Report Share Posted March 20, 2000 Thanks to all for the warm welcome. It is greatly appreciated! I was living in Washington state about an hour away from Seattle but now live in Groton and I see a doctor at Yale in New Haven. Sandy Re: A few updates > Hello , > > WELLCOME! > > I was diagnosed 5 years ago but have never itched. I do suffer from > fatigue though. As I said in an earlier message; I was gardening over > the weekend and am feeling it today. > > You are among friends here so take heart. > > Yes it is rare but there are plenty of people to talk to here. Feel free > to tell us about anything that bothers you; we all know how scary it is > when you are recently diagnosed. > > We are a select group. Not many people have our disease; unfortunatly it > isn't something that you can brag about <g>. > > If you tell us roughly where you live (just the city) you may discover > there is another PSC'er nearby. > > Steve (the English eccentric). > -------------------------------- > > wrote: > > > > Hello, > > > > I am new to the group and was diagnosed with PSC last August. It's nice to > > be able to communicate with others with the same disease, now I don't feel > > like the only one. Since the disease is considered " rare " it seems very few > > people know about it. > > > > My only symptoms are itching(it drives me crazy) and fatigue. I'm currently > > on Actigall and slowly being taken off of predinsone. My doctor also > > suggested multi-vitamins with vitamin K. Does anyone else take vitamin K? > > > > Thanks! > > ------------------------------------------------------------------------ > You have a voice mail message waiting for you at iHello.com: > http://click./1/2377/5/_/24674/_/953549465/ > > -- Easily schedule meetings and events using the group calendar! > -- /cal?listname= & m=1 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2000 Report Share Posted March 20, 2000 Hi Everyone!! As far as vitamin K goes, it helps the blood clot and one of the things with liver disease is the slow clotting time that eventually happens. My husband was diagnosed in 1997 and took vitamin K up until recently. They stopped it when he stopped drinking as he is an alcoholic as well. I imagine he will be back on it eventually as he can't stay away from his beer for too long at time. I guess that eventually perhaps all PSC patients need it or maybe just those with low platlet counts, 's is 64. Don't know if I helped any but I hope it helped some. Spring Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 Sandy, You mentioned the other day that you are seeing a doctor at Yale. Since Yale seems to have an esteemed digestive disorders center (one of the 10 or 12 National Institutes of Health affiliated centers in the country), I thought I'd ask which doctor you see there and whether he/she has mentioned anything about liver-related research they may be involved with. Thanks, Ezra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2000 Report Share Posted March 23, 2000 I'm seeing Dr. Boyer. No he hasn't mentioned any liver related research (I've only seen him twice). My next appointment is in May and I'll certainly ask him then. Sandy Re: A few updates > Sandy, > > You mentioned the other day that you are seeing a doctor at Yale. Since Yale > seems to have an esteemed digestive disorders center (one of the 10 or 12 > National Institutes of Health affiliated centers in the country), I thought > I'd ask which doctor you see there and whether he/she has mentioned anything > about liver-related research they may be involved with. Thanks, Ezra > > ------------------------------------------------------------------------ > Special Offer-Earn 300 Points from MyPoints.com for trying @Backup > Get automatic protection and access to your important computer files. > Install today: > http://click./1/2344/5/_/24674/_/953647059/ > > eGroups.com Home: /group// > - Simplifying group communications > > > Quote Link to comment Share on other sites More sharing options...
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