Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 In a message dated 25/06/2004 22:58:53 Central Standard Time, tawnyokc@... writes: > Cary, how are things going your way? Hiya Tawny! Nice of you to ask! Actually, things are so-so. I need to go see the rheumy. The remicade is only lasting me 4 weeks instead of 8 weeks. I'm running low grade fevers most of the time, and having pain all the time. Not excruciating, but everything is a big effort. And as we all are so familiar with, the fatigue. It's making it really hard to go to work, and I confess lately I have actually been grumpy at times! It sounds weird, but I am rarely grouchy for some reason, so it is obvious something isn't right when I am grumpy or snippy with anyone. I am dreading the Dr. appt., cuz I'm sure there will be a med change or addition, and if it is something that will make me sick like methotrexate can, I'm not sure how I'll keep working full time. Anyways, I'm pretty worried and trying not to think about it-something I know you are familiar with!!!!!! heehee On the plus side, I am buying a house with my long time boyfriend and moving probably in August. Kinda nervous but happy about that. Thanks again for asking, Tawny. I hope you are feeling a little better. You've really been having a tough year. Cary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Cary, Sorry to hear that the Remicade isn't lasting the 8 weeks, I have heard that from others taking it. I'm sorry to hear that your having pain and fatigue, we all know about that. What causes the low grade fever? I know how you dread a change in your meds, but I really think it would be in your best interest for you to make an appointment. Have you thought of going on Enbrel and Humira? I can imagine how hard it is for you to work, please see the rheumy. That is great news that you will be buying a house, that is cool. I went to the rheumy last week, and it was really a nice visit. He was very upset that I'm still in so much pain and swelling. He put me on Hydrocodone(Vicodin) for the pain. If that don't work he is going to try Oxycontin patches Also, the rise in blood pressure and pulse rate he believes is my pain. So, he wants me to watch it for a couple of weeks, and see if it don't go down. If not I will have to go for testing, and probably blood pressure meds. He did take me off the Prednisone, so that is a plus to me. Also, he put me back down to bi-weekly injections of Humira, instead of the weekly injections. Since it's not really doing any better there is no use taking so much of it. Also, there is new RA damage, but I kind of thought that with so much pain. I am just praying that things will get better, and the rest of the year gets better. Hope you have a great weekend, and pain free meds ahead, hugs Tawny > In a message dated 25/06/2004 22:58:53 Central Standard Time, > tawnyokc@s... writes: > > > > Cary, how are things going your way? > > Hiya Tawny! > Nice of you to ask! Actually, things are so-so. I need to go see the > rheumy. The remicade is only lasting me 4 weeks instead of 8 weeks. I'm running > low grade fevers most of the time, and having pain all the time. Not > excruciating, but everything is a big effort. And as we all are so familiar with, the > fatigue. It's making it really hard to go to work, and I confess lately I have > actually been grumpy at times! It sounds weird, but I am rarely grouchy for > some reason, so it is obvious something isn't right when I am grumpy or snippy > with anyone. I am dreading the Dr. appt., cuz I'm sure there will be a med > change or addition, and if it is something that will make me sick like > methotrexate can, I'm not sure how I'll keep working full time. Anyways, I'm pretty > worried and trying not to think about it-something I know you are familiar > with!!!!!! heehee On the plus side, I am buying a house with my long time > boyfriend and moving probably in August. Kinda nervous but happy about that. > Thanks again for asking, Tawny. I hope you are feeling a little better. You've > really been having a tough year. Cary > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Sue, I was on 10mg of Prednisone, so he told me to just go ahead and stop it, Tawny > > > He did take me off the Prednisone, so that is a > > plus to me. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Did he tell you to stop abruptly, or is he having you taper off of it? I'm sorry that you are still having so much pain. Sue On Saturday, June 26, 2004, at 03:20 PM, Tawny wrote: > He did take me off the Prednisone, so that is a > plus to me. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Thanks, Tawny. A decrease in pain and prednisone could help your blood pressure a lot. Thanks a lot for the concern. It's really thoughtful of you. I hope you enjoy a decent, relatively (at least) pain-free weekend. Cary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Hi, Tawn Just a quick note to say you sound so much better. Is it not amazing to come out the other side of something like cancer scare and unbelievable pain. I feel relief for you. Good going. I know my codeine helps, so I assume your vicodin does. At least it takes the edge off so I can work. But not too much, cuz then I get sleepy. God Bless, Dana [ ] Re: Hi Cary Cary, Sorry to hear that the Remicade isn't lasting the 8 weeks, I have heard that from others taking it. I'm sorry to hear that your having pain and fatigue, we all know about that. What causes the low grade fever? I know how you dread a change in your meds, but I really think it would be in your best interest for you to make an appointment. Have you thought of going on Enbrel and Humira? I can imagine how hard it is for you to work, please see the rheumy. That is great news that you will be buying a house, that is cool. I went to the rheumy last week, and it was really a nice visit. He was very upset that I'm still in so much pain and swelling. He put me on Hydrocodone(Vicodin) for the pain. If that don't work he is going to try Oxycontin patches Also, the rise in blood pressure and pulse rate he believes is my pain. So, he wants me to watch it for a couple of weeks, and see if it don't go down. If not I will have to go for testing, and probably blood pressure meds. He did take me off the Prednisone, so that is a plus to me. Also, he put me back down to bi-weekly injections of Humira, instead of the weekly injections. Since it's not really doing any better there is no use taking so much of it. Also, there is new RA damage, but I kind of thought that with so much pain. I am just praying that things will get better, and the rest of the year gets better. Hope you have a great weekend, and pain free meds ahead, hugs Tawny > In a message dated 25/06/2004 22:58:53 Central Standard Time, > tawnyokc@s... writes: > > > > Cary, how are things going your way? > > Hiya Tawny! > Nice of you to ask! Actually, things are so-so. I need to go see the > rheumy. The remicade is only lasting me 4 weeks instead of 8 weeks. I'm running > low grade fevers most of the time, and having pain all the time. Not > excruciating, but everything is a big effort. And as we all are so familiar with, the > fatigue. It's making it really hard to go to work, and I confess lately I have > actually been grumpy at times! It sounds weird, but I am rarely grouchy for > some reason, so it is obvious something isn't right when I am grumpy or snippy > with anyone. I am dreading the Dr. appt., cuz I'm sure there will be a med > change or addition, and if it is something that will make me sick like > methotrexate can, I'm not sure how I'll keep working full time. Anyways, I'm pretty > worried and trying not to think about it-something I know you are familiar > with!!!!!! heehee On the plus side, I am buying a house with my long time > boyfriend and moving probably in August. Kinda nervous but happy about that. > Thanks again for asking, Tawny. I hope you are feeling a little better. You've > really been having a tough year. Cary > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Hi Dana, Yes, That scare didn't help a bit, I am feeling a little better. The Vicodin does help, and I'm just so glad there is some relief. What is strange, I don't get sleepy. I am like wide awake after taking it, but when I do go to sleep, I'm a log,lol I'm so glad that there are pain meds for people with chronic pain, it helps make our life a little better. You take care, and have a good weekend, Tawny > > In a message dated 25/06/2004 22:58:53 Central Standard Time, > > tawnyokc@s... writes: > > > > > > > Cary, how are things going your way? > > > > Hiya Tawny! > > Nice of you to ask! Actually, things are so-so. I need to go see > the > > rheumy. The remicade is only lasting me 4 weeks instead of 8 > weeks. I'm running > > low grade fevers most of the time, and having pain all the time. > Not > > excruciating, but everything is a big effort. And as we all are so > familiar with, the > > fatigue. It's making it really hard to go to work, and I confess > lately I have > > actually been grumpy at times! It sounds weird, but I am rarely > grouchy for > > some reason, so it is obvious something isn't right when I am > grumpy or snippy > > with anyone. I am dreading the Dr. appt., cuz I'm sure there will > be a med > > change or addition, and if it is something that will make me sick > like > > methotrexate can, I'm not sure how I'll keep working full time. > Anyways, I'm pretty > > worried and trying not to think about it-something I know you are > familiar > > with!!!!!! heehee On the plus side, I am buying a house with my > long time > > boyfriend and moving probably in August. Kinda nervous but happy > about that. > > Thanks again for asking, Tawny. I hope you are feeling a little > better. You've > > really been having a tough year. Cary > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Sorry the Remicade is pooping out on you, Cary. I'll be interested to hear what you and rheumatologist decide on. Try not to worry. Maybe Enbrel or Humira? Moving! The best of luck to you. That sounds both stressful and exciting. Ask a, LOL. Is your son OK with it? I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org Re: [ ] Hi Cary > In a message dated 25/06/2004 22:58:53 Central Standard Time, > tawnyokc@... writes: > > > > Cary, how are things going your way? > > Hiya Tawny! > Nice of you to ask! Actually, things are so-so. I need to go see the > rheumy. The remicade is only lasting me 4 weeks instead of 8 weeks. I'm running > low grade fevers most of the time, and having pain all the time. Not > excruciating, but everything is a big effort. And as we all are so familiar with, the > fatigue. It's making it really hard to go to work, and I confess lately I have > actually been grumpy at times! It sounds weird, but I am rarely grouchy for > some reason, so it is obvious something isn't right when I am grumpy or snippy > with anyone. I am dreading the Dr. appt., cuz I'm sure there will be a med > change or addition, and if it is something that will make me sick like > methotrexate can, I'm not sure how I'll keep working full time. Anyways, I'm pretty > worried and trying not to think about it-something I know you are familiar > with!!!!!! heehee On the plus side, I am buying a house with my long time > boyfriend and moving probably in August. Kinda nervous but happy about that. > Thanks again for asking, Tawny. I hope you are feeling a little better. You've > really been having a tough year. Cary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 In a message dated 27/06/2004 08:37:55 Central Standard Time, Matsumura_Clan@... writes: > Ask a, LOL. Is your son OK with it? > Thank goodness I don't have to move as far as a did!!!! My son is thrilled-he's already driving his friends past the new house! It's pretty cute behavior for a 17 year old boy-I was surprised by it. We have known Jeff (the domestic partner, as the loan papers call him!) since Jay (the boy!) was 3 years old. Jeff was a sports coach for years, and kids always like him-I'm sure you've known that kind of guy. So Jay has liked Jeff for years, and says it will be totally cool to live with him. We've also had many conversations on how ideally people marry before living together and marry only once, etcetc.....but that his mother hasn't been so good at the marriage thing and is a little gun shy so we're doing things differently. Jay just laughs about it-he says he's just glad it's Jeff this time cuz he knows it will work out. I actually have a pretty amazing kid....wise beyond his years emotionally, totally dork otherwise! heehee I'll let you all know what the rheumy says. Cary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 No, Cary, I don't know any guys like Jeff, LOL. Sounds like an ideal situation all the way around though. So glad to hear that Jay is all for it. I have a 17-year-old boy, too, and we've had to discuss/deal with some of these issues. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org Re: [ ] Hi Cary > In a message dated 27/06/2004 08:37:55 Central Standard Time, > Matsumura_Clan@... writes: > > > > Ask a, LOL. Is your son OK with it? > > > > Thank goodness I don't have to move as far as a did!!!! My son is > thrilled-he's already driving his friends past the new house! It's pretty cute > behavior for a 17 year old boy-I was surprised by it. We have known Jeff (the > domestic partner, as the loan papers call him!) since Jay (the boy!) was 3 years > old. Jeff was a sports coach for years, and kids always like him-I'm sure > you've known that kind of guy. So Jay has liked Jeff for years, and says it will > be totally cool to live with him. We've also had many conversations on how > ideally people marry before living together and marry only once, etcetc.....but > that his mother hasn't been so good at the marriage thing and is a little gun > shy so we're doing things differently. Jay just laughs about it-he says he's > just glad it's Jeff this time cuz he knows it will work out. I actually have > a pretty amazing kid....wise beyond his years emotionally, totally dork > otherwise! heehee > > I'll let you all know what the rheumy says. Cary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Moving??? That is a very BAD word LOL! I¹m still having nightmares. I think I¹m cardboard-a-phobic. My pack rat ways definitely bit me. I just don¹t know what I was thinking when I put some of the things in the attic. Did I REALLY think someone would every want it? Did I really think I¹d find it up there if they DID want it? No, you DON¹T have to save every school paper, report cards are enough. No you DON¹T have to save every pretty picture. And the clothes you MAY fit into one day??? HAHAHAHA! They will be moth eaten before that happens, so make someone happy at your local Goodwill. But I have to say that moving is the ultimate way to clean your house. I¹ve learned a lot and think twice before saving anything. Good luck to you Cary. I hope your move is an easy one. Our move was complicated because we moved so far away with only 6 weeks to move due to job promises. I wish you were feeling better. I hope your doc has answers for you. a > Sorry the Remicade is pooping out on you, Cary. I'll be interested to > hear what you and rheumatologist decide on. Try not to worry. Maybe > Enbrel or Humira? > > Moving! The best of luck to you. That sounds both stressful and > exciting. Ask a, LOL. Is your son OK with it? > > > > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > > > Re: [ ] Hi Cary > > >> > In a message dated 25/06/2004 22:58:53 Central Standard Time, >> > tawnyokc@... writes: >> > >> > >>> > > Cary, how are things going your way? >> > >> > Hiya Tawny! >> > Nice of you to ask! Actually, things are so-so. I need to go see the >> > rheumy. The remicade is only lasting me 4 weeks instead of 8 weeks. > I'm running >> > low grade fevers most of the time, and having pain all the time. Not >> > excruciating, but everything is a big effort. And as we all are so > familiar with, the >> > fatigue. It's making it really hard to go to work, and I confess > lately I have >> > actually been grumpy at times! It sounds weird, but I am rarely > grouchy for >> > some reason, so it is obvious something isn't right when I am grumpy > or snippy >> > with anyone. I am dreading the Dr. appt., cuz I'm sure there will be > a med >> > change or addition, and if it is something that will make me sick like >> > methotrexate can, I'm not sure how I'll keep working full time. > Anyways, I'm pretty >> > worried and trying not to think about it-something I know you are > familiar >> > with!!!!!! heehee On the plus side, I am buying a house with my > long time >> > boyfriend and moving probably in August. Kinda nervous but happy > about that. >> > Thanks again for asking, Tawny. I hope you are feeling a little > better. You've >> > really been having a tough year. Cary > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Thanks, a. As a fellow packrat, I'm more than a little nervous....... Quote Link to comment Share on other sites More sharing options...
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