Kathi

[Guest guest]

Kathi - There must be a full moon why are people brining up things that have

long passed? This certinally isn't the room I joined months ago.

[Guest guest]

Kathi - would you also please send it to me? My e-mail address is

mhe3053904@.... I would really appreciate it. Thank you,

[Guest guest]

Kathi - I had the nerve conduction tests done and it's not fun but you just

grin and bear it . Did your Doctor tell you that this test they so with

needles and like a shock

thing. I had to have it done on my neck and shoulders and upper back. I

didn't

mind the little pricks fromthe needles it was the shock (Very mild) that I

didn't care for. When she was done I wanted to belt her not because of the

tests becasue she

was so arrogant because I told her I wanted clean needles.

[Guest guest]

Kathi - my gallbladder was removed two years ago when they found my liver

problems, I strongly believe that leaving a very badly diseased gallbladder

there

for 6years did the damage to my liver. I saw the picture oof it when they

took it out.

it was red, white, with stringy stuff hanging from hit. My surgeon even

called me after

and told me that it should have come out seven years before. But the Gastro

doctor thought he knew everything and so did my primary. Kathi, if you are

having probleems with your gall bladder have it taken out, I don't think I

would be where I am

today if they had taken it out sooner. I know it's bad but all I want to do

lately is stay in bed and sleep. Take care Kathi - Hugs,

[Guest guest]

Hi Kathi, I don't know if you read my post but they did a bone density test

on Jodi already. Her's turned out good, thank the Lord. Wouldn't you feel

better knowing for sure? I don't remember if I told you but we are the same

age. Have a good week, Genny/Jodi's Mom

[Guest guest]

Kathi, if you have dry mouth this can cause a burning feeling in the mouth.

If so there are a lot of drugs that have this side effect. Just a thought,

hope it gets better. Take care, Genny/Jodi's Mom

[Guest guest]

Patty,

I forgot I did feel the transjugular one. My liver was so sick I felt every

sample they pulled my side hurt so bad each time I begged the doc to stop and

he wouldn't. I will forever remember all of the tests.

gayle/trans.6-99

galye@... ^OO^

[Guest guest]

> Can anybody tell me if they had Versed and what if anything they

can

> remember?

And also what if any techniques(drugs or other) were used

numbing the ribs intercostal space and

> Anybody have it done by a radiologist under sedation? Or

> most by the hepatologist or gastroenterologist.

>

> AMY

Amy, I had Versed (I think it was 10 mg.?) and felt relaxed and

sleepy but I remember everything. My biopsy was performed by my hep.

Doctor who is the Director of liver transplants at Scripp. But I

wouldn't mind next time if his Physician's assistant performed it as

I trust them both. If the ribs are numbed, and they swear the liver

has no pain receptors, and you have Versed--there should be no cause

for anxiety or pain. I hope you overcome your dread if you should

ever need to repeat the procedure. But I highly recommend having it

performed by someone you know and trust.

Patty O

[Guest guest]

Amy..... I`ve had Versed every time I`ve had sclerotherapy done and it

put me in a twilight type sleep where I was faintly aware of things

going on but couldn`t remember them later... all in all a very nice

drug... The biopsy I had done post transplant was done with a local but

they did it more from the front and with the guidance of a radiolgist

using ultrasound.... they were very careful as to not disturb my recent

incisions and this made it time consuming and uncomfortable as i had to

stay very still while they guided the needle.... as usual it had to be

done over as the first pass didn`t snip enough tissue... i can`t say it

was painful though just uncomfortable....I stayed awake and watched the

procedure on the screen or at least what I could see of it....

Versed in the wrong hands could be dangerous I suspect.....

Jerry

You sound exactly like me. My name is Amy and when I had my first biopsy I

said the exact same thing. I think I just will never have it done the way I

did the first time. I said that I would never never ever have it done again.

After waking up with sweats and nightmares for about two years and thinking

about it for days on end and crying to anyone who would listen, I decided to

stop that. I now know that chances are I probably will have to have another

one in my lifetime to say the least. And, I will have to be a " big girl "

about it. Hard as that is(I am born in early July, so I am a Cancer) I am

very emotional and a big baby. I have to not think about it until that time

comes and when it does I will have it under some IV sedation and some

Versed(a wonderful drug that makes you not remember the whole thing). How

does that sound??

Can anybody tell me if they had Versed and what if anything they can

remember? And also what if any techniques(drugs or other) were used others

besides the normal punch biopsy eg... numbing the ribs intercostal space and

then opening you up like a sardine can and slam in and then a hunk of lovely

liver comes out. Anybody have it done by a radiologist under sedation? Or

most by the hepatologist or gastroenterologist.

AMY

[Guest guest]

Hey,

I just had a needle biopsy. It was nothing. To say I was scared is

an understatement. I had to take my therapist with me. I'm a big

baby when it comes to anyone touching my body. They gave me

something to relax me but I can't remember what it was. I will try

to find out. It took 1min at the most to do the actual biopsy. They

numbed a small area. That probably hurt the most. Put a needle (?)

into me using ultrasound to pinpoint where they wanted to go. I have

a tiny hole (O). I had to lay still for a while to watch for

complications. It was scheduled at 9 am and I was out the door by 12

complete with lunch (bluk) I will not be afraid the next time.

Debbie

[Guest guest]

Debbie That describes almost to a tee what my last biopsy was

like.... except I knew what to expect so I had no

trepidation........Laid down (just had to take my shirt off) a little

Lidocaine,scoped

my rib cage, marked an area, slid in the needle, snap!----- and it was

over. I had to lie on the bed for a couple 21/2 hours and they said

adios. I went in at 9:00 and was out by 12:00---- no lunch

though....hmmmm.

Jerry

Hey,

I just had a needle biopsy. It was nothing. To say I was scared is

an understatement. I had to take my therapist with me. I'm a big

baby when it comes to anyone touching my body. They gave me

something to relax me but I can't remember what it was. I will try

to find out. It took 1min at the most to do the actual biopsy. They

numbed a small area. That probably hurt the most. Put a needle (?)

into me using ultrasound to pinpoint where they wanted to go. I have

a tiny hole (O). I had to lay still for a while to watch for

complications. It was scheduled at 9 am and I was out the door by 12

complete with lunch (bluk) I will not be afraid the next time.

Debbie

[Guest guest]

Hi Amy,

I just had my liver biopsy last week. Mine was done by the radiologyst. He

was very good and talked me through it. I did ok untell the last numbing

shot. My liver was so swolen I am sure it was worse than it should have been.

I am very bad when it comes to needles as well.

[Guest guest]

I go for my biopsy Thursday Amy, and though I'm not scared of the procedure, I am very scared of the outcome, I have lots of needles in me at various times due to Lupus as well as possible AIH, and the best way to deal with the fear is just bring your mind somewhere else, and if your awake, think your on the outside looking in, like an episode of ER. Thats what I will do Thursday. Good luck.

Christi

[Guest guest]

No fooling hes my total fantasy heheheheheh

Christi

[Guest guest]

Christi

That would be easy if Cloony was at the other end of the needle

Heidi

> egroups

>From: christibro33@...

>Date: Mon, 13 Nov 2000 14:34:42 EST

>Reply- egroups

>Subject: Re: [ ] kathi

>

>I go for my biopsy Thursday Amy, and though I'm not scared of the procedure,

>I am very scared of the outcome, I have lots of needles in me at various

>times due to Lupus as well as possible AIH, and the best way to deal with the

>fear is just bring your mind somewhere else, and if your awake, think your on

>the outside looking in, like an episode of ER. Thats what I will do Thursday.

>Good luck.

>

>Christi

>

><< msg2.html >>

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[Guest guest]

Oh Kathi, I'm so glad you got to have all your kiddles with you. (My

son is 28 too!) I just cannot imagine you are pig-headed...just a

little strong-willed probably! : )

My eldest graduates from rehab on Monday and has worked so hard to get

her life going on a better track. My youngest and I are driving up to

her graduation.

Ah, my little Emmy...her head is in the " in love " zone which of course

can be lovely, but also complicated. What scares me is her not wanting

to know some hard answers about things in her fellow's life cause she

doesn't want her " happiness to get messed up " - her words. I know she

has to work through these things, but I PRAY she doesn't get hurt

terribly. I do like him, which makes it harder to have to question some

things about him. But, they are not small issues.

As of nearly a month ago I was down 55 pounds...will weigh and let you

know after my July 12 appt. Em took " before " photos, and we'll take

some at the 3 month annversary next week. I will try to post a couple

of each. Em is also going to help me get my measurments so I can

compare to pre-op.

I saw my rheumy last week and he was so happy with how I'm doing. As it

turns out, I did have rhabdomyelosis (I thought they were just watching

for it) but the hospital has such aggressive protocol re: that condition

for obese surgical patients, that they nipped the problem in the bud,

thank God. My rheumy is checking the muscle enzymes, plus all the

Ra/Psa stuff.

I wish I could find my StarTrek transporter and just come give you a big

ol' squishy Oregon hug!

((((((((((((((((Kathi))))))))))))))

Take sweet care of you!

Love Always & Forever...

Tess

[Guest guest]

Hi Kathi,

Congratulations! I hope that you are doing just as well.

Things have not been good here in Florida. My computer went down for about 2

weeks and I have lost all my information. I have also lost about another 50

lbs and had a serious reaction wth the pain medication and my knee. The knee

surgeon is suggesting that I get nerve blocks for the severe knee pain, but it

would not improve any movement of that knee. It is hard to believe that it

has all most been 2 years that this nightmare began.

I miss you ALL so much and try to write when I can. We do have WONDERFUL

news that happened on 7-4-04: got engaged to be married on

7-16-05!!!!!!!

We are all so happy for her! It will be a busy time next year at this time

next year.

Vickie gets married, graduates and and go to

Proms!!!!!!!!!!! Gotta get myself better ASAP!

Iris, I miss you so much and I wrote to our Carol and never heard back. I

pray that all is wel with her.

Kathi, sweetie, I have given up looking for my snazzy looking

heels...............The way I am now, I thank God if I can get any kind of shoe

on my

foot!!!! What a difference a little time makes!!!!! Love you, my Friend!

Gentle, tender, angel hugs.................

Debs in FL

[Guest guest]

Kathi...It isn't an awful name but I can't stop thinking about that cat! The

name is Cecily (cat)

Eva (dog). I am glad that you got a chuckle. I will let you know if I succeeded

in talking her out

of that name. Hugs to you. Iris

--- Kathi <iamladybird@...> wrote:

> She has decided to name the child the same name that she named

> her cat (the

> ugliest cat know to mankind) and the second name after the baby's

> father's dog.

>

>

> .......OK what is this name???? I have to admit to having a good

> laugh when I read this. I have stopped asking the names, as I must

> make a face, because I always get OH mom...still having a good

> chuckle...Kathi in Ok

>

>

>

>

>

[Guest guest]

Had to laugh at this one.

A coworker is having twins and her husband wants to name one after the

dog and the other after the cat.

Noreen

> <html><body>

>

>

> <tt>

> Kathi...It isn't an awful name but I can't stop thinking about that

cat! The name is Cecily (cat)<BR>

> Eva (dog). I am glad that you got a chuckle. I will let you know if I

succeeded in talking her out<BR>

> of that name. Hugs to you. Iris<BR>

> <BR>

> --- Kathi & lt;iamladybird@... & gt; wrote:<BR>

> & gt; She has decided to name the child the same name that she

named<BR>

> & gt; her cat (the<BR>

> & gt; ugliest cat know to mankind) and the second name after the

baby's <BR>

> & gt; father's dog.<BR>

> & gt; <BR>

> & gt; <BR>

> & gt; .......OK what is this name???? & nbsp; I have to admit to having

a good <BR>

> & gt; laugh when I read this. I have stopped asking the names, as I

must <BR>

> & gt; make a face, because I always get OH mom...still having a good

<BR>

> & gt; chuckle...Kathi in Ok<BR>

> & gt; <BR>

> & gt; <BR>

> & gt; <BR>

> & gt; <BR>

> & gt;

[Guest guest]

Iris: I still think your verbage was a hoot......hugs Kathi in OK

> > She has decided to name the child the same name that she named

> > her cat (the

> > ugliest cat know to mankind) and the second name after the baby's

> > father's dog.

> >

> >

> > .......OK what is this name???? I have to admit to having a good

> > laugh when I read this. I have stopped asking the names, as I

must

> > make a face, because I always get OH mom...still having a good

> > chuckle...Kathi in Ok

> >

> >

> >

> >

> >

[Guest guest]

Kathi,

Sorry I took your message the wrong way.

I would much rather be friends than fighting!

Although, I do think being able to discuss these things rationally, and

respecting each other's opinions is very important. We're all different, and

may react different to various meds, may have read differing opinions in

articles, have had our doctors tell us different things, and so on.

I will always respect anyone's right to their opinion. Just may have a

different one myself. But I never mean to criticize anyone, and I absolutely

hate conflict and controversy. But have no problem with people expressing their

opinions, as long as we all realize that we all have a right to our own opinion,

and that we are all different, and that our experience may not be the same as

others.

It's waht makes this group so valuable and interesting!

Of course, I'd much rather laugh my way through pain than anything else.

And I just happen to have a few new " funnies " friends have sent me.

My depression support group has a very lively sense of humor, and we tease

each other mercilessly - and often, I'm just about falling off my chair

laughing. It really helps me forget the pain. (We do get very serious when

anyone writes in with a problem - it's a great group in more ways than one. I'm

very fortunate to have found both the best depression support group AND the best

Arthritis/fibro group!)

Right now, somehow the group got on the subject of " tooting " , and my

husband, who knows the group leader very well, wrote her that I can toot

musically and they are now planning on my making a CD for their new company

" Tooter Tunes " . She shared this with the group, and the whole group has gotten

into the act, from hamsters who can toot, to dancing kitties and so on.

We've all been laughing so much that no one is writing about being

depressed!

And by the way, I can NOT toot musically! lolol

Dix

[ ] RE: ..Thank you... Oxy

> > > >

> > > >

> > > > > : First may I say thank you for your posts on

narcotics, I

> > > only

> > > > > wish the stigma and misunderstanding would some how self

> resolve.

> > > > > Then I would like to say I am sorry, I was'nt trying to

imply

> > > anyone

> > > > > should take anything only citing experience. I don't take

any

> med

> > > > > before I have researched it throughly. Having scleroderma

> they are

> > > > > always trying to give me something, I think they feel

they

> must DO

> > > > > something, and as there are no proven therapies they feel

> > > helpless.

> > > > > Judi is in the same kinda of situation, I believe. But, if

> > > something

> > > > > works, and for me oxy does, I have a half a life back, I

will

> > > > > continue to take it. It took alot of convincing for me to

try

> it,

> > > and

> > > > > then I was so embarrassed because I could have felt so

much

> > > better if

> > > > > I had tried it to start off with. In IMHO there are alot

more

> > > scary

> > > > > drugs, and steroids would be my NO.1 choice to NOT take,

along

> > > with

> > > > > several others. I have gone off and on my oxy without any

> > > withdrawal

> > > > > problems, and I have been to a few pain clinics, their

drug

> of

> > > > > choice was methadone, which ....I....could'nt tolerate.

We

> each

> > > react

> > > > > to drugs differently, so I would never knock anything

that

> works

> > > for

> > > > > some one else. It seems the stigma will never go away,

and the

> > > > > narcotics will always have a bad rap, it is to bad these

> articles

> > > > > don't compare them with other choices. And of course the

> bottom

> > > > > line ...all drugs are bad for you, you are putting a

chemical

> in

> > > your

> > > > > body that was never suppose to be there, of course the

> wonderful

> > > > > diseases were'nt suppose to either.....thank you for

trying to

> > > keep

> > > > > us all educated......hugs Kathi in OK

>

>

>

>

[Guest guest]

Hiya, Kathi,

Welcome in and congratulations on your upcoming surgery.

I LOVE your doctor because he/she seems to understand the concept that the

amount of hearing in your " good " ear can be a huge help to you when you get your

" bad " ear implanted. While, theoretically, it has been said that the ear

that hears the most- and most recently, is the better choice, real life seems to

be contradicting that premise big time! I had my worse ear implanted and

thank

G-d everyday, as the little hearing (10% with hearing aid) has helped me

immensely. I would have lost my mind in the early days if not for that. (no

comments from the peanut gallery that I have already lost my mind!! ) I know

you will hear from others, who also feel this way. So - go ahead with

confidence that you are doing the right thing. And get ready for an amazing

journey.

If you are like me and still marvel at fax machines and e-mail - you will have

your socks knocked off by this technology that is going to allow you to hear!

Good luck and keep us updated!

Jackie

[Guest guest]

Hi, Kathi,

If you weren't nervous about your surgery the doctor would be concerned.

It is absolutely normal to have a healthy fear of the unknown. Honestly,

though, you won't feel a thing, and afterwards, most people have relatively

uneventful recoveries. I have had over 10 different surgeries over the years

and

I can tell you that the CI was one of the least difficult to recover from.

The benefits are amazing! Spend the next few days until surgery taking care of

things at home so you can relax for a week or even two and have others wait

on you as you recover. Just remember to move slowly the first few days.

) Jackie