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In a message dated 7/23/01 10:44:24 PM Eastern Daylight Time,

katiebug1998@... writes:

> I hope one of these days I will be very confident in my ability to control

> this stupid disease.

>

>

Hi Beth,

Soon you will be in control of diabetes and you will look back and laugh.

Diabetes is not the end of the world. You don't have to give up everything.

In the beginning, until you get your sugars regulated, you may have to eat

low carbs along with medication. If you work hard enough (lots of exercise

and the right foods) you will be able to control it without medication. I'm

not on medication anymore. If I want a bite of a candy bar or ice cream bar,

I have it. I no longer want the whole candy or ice cream bar. The one bite

satisfies my craving.

Another thing, every individual is different. Some people can tolerate foods

that others cannot. After testing for a while, you will automatically know

what you can and cannot eat. That does not mean you can stop testing. It

means you will almost know what your reading will be before you do the test.

You do need to see a doctor as soon as possible, but in the meantime, stop

worrying about your numbers. They will come down, it will take time. Do not

exercise when your numbers are really high. Concentrate on eating low carbs.

Until you can see a doctor, try to get your stress level down by reading,

listening to soft music, just relaxing, etc. If you don't, you may find out

that your blood pressure has gone up, then you will need meds for that.

In the meantime, ask any and all the questions you want. That is the reason

for the group.

Eunice

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Thank you Eunice. I'm trying hard to relax tonight. I took a long hot bath and

soaked for a while. Now I'm in very comfy sweats and I'm putting a good movie

on. I'm making myself sick by worrying and I don't want to do it anymore.

Beth

Re: Sorry

In a message dated 7/23/01 10:44:24 PM Eastern Daylight Time,

katiebug1998@... writes:

> I hope one of these days I will be very confident in my ability to control

> this stupid disease.

>

>

Hi Beth,

Soon you will be in control of diabetes and you will look back and laugh.

Diabetes is not the end of the world. You don't have to give up everything.

In the beginning, until you get your sugars regulated, you may have to eat

low carbs along with medication. If you work hard enough (lots of exercise

and the right foods) you will be able to control it without medication. I'm

not on medication anymore. If I want a bite of a candy bar or ice cream bar,

I have it. I no longer want the whole candy or ice cream bar. The one bite

satisfies my craving.

Another thing, every individual is different. Some people can tolerate foods

that others cannot. After testing for a while, you will automatically know

what you can and cannot eat. That does not mean you can stop testing. It

means you will almost know what your reading will be before you do the test.

You do need to see a doctor as soon as possible, but in the meantime, stop

worrying about your numbers. They will come down, it will take time. Do not

exercise when your numbers are really high. Concentrate on eating low carbs.

Until you can see a doctor, try to get your stress level down by reading,

listening to soft music, just relaxing, etc. If you don't, you may find out

that your blood pressure has gone up, then you will need meds for that.

In the meantime, ask any and all the questions you want. That is the reason

for the group.

Eunice

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In a message dated 7/23/01 11:47:24 PM Eastern Daylight Time,

katiebug1998@... writes:

> I'm making myself sick by worrying and I don't want to do it anymore.

>

>

Beth, you will be okay, just don't worry. When you do get the monitor and

start testing, be sure to keep a record of your readings. Also, you should

keep a journal of all the food you eat, at least for several months.

Whenever I try a different food, I write it down along with the reading I got

two hrs after eating.

Eunice

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---Glad to hear you say this, Beth!!!!!!! Laughter is good medicine

also. I try to find humor in almost everything. Everything will

come together but it just takes time. So hang in there and smile!

Less wrinkles from smiling too!!!

madge

In diabetes@y..., " Beth Capozio " <katiebug1998@h...> wrote:

> Thank you Eunice. I'm trying hard to relax tonight. I took a long

hot bath and soaked for a while. Now I'm in very comfy sweats and

I'm putting a good movie on. I'm making myself sick by worrying and

I don't want to do it anymore.

>

> Beth

> Re: Sorry

>

>

> In a message dated 7/23/01 10:44:24 PM Eastern Daylight Time,

> katiebug1998@h... writes:

>

>

> > I hope one of these days I will be very confident in my ability

to control

> > this stupid disease.

> >

> >

>

> Hi Beth,

>

> Soon you will be in control of diabetes and you will look back

and laugh.

> Diabetes is not the end of the world. You don't have to give up

everything.

> In the beginning, until you get your sugars regulated, you may

have to eat

> low carbs along with medication. If you work hard enough (lots

of exercise

> and the right foods) you will be able to control it without

medication. I'm

> not on medication anymore. If I want a bite of a candy bar or

ice cream bar,

> I have it. I no longer want the whole candy or ice cream bar.

The one bite

> satisfies my craving.

>

> Another thing, every individual is different. Some people can

tolerate foods

> that others cannot. After testing for a while, you will

automatically know

> what you can and cannot eat. That does not mean you can stop

testing. It

> means you will almost know what your reading will be before you

do the test.

>

> You do need to see a doctor as soon as possible, but in the

meantime, stop

> worrying about your numbers. They will come down, it will take

time. Do not

> exercise when your numbers are really high. Concentrate on

eating low carbs.

>

> Until you can see a doctor, try to get your stress level down by

reading,

> listening to soft music, just relaxing, etc. If you don't, you

may find out

> that your blood pressure has gone up, then you will need meds for

that.

>

> In the meantime, ask any and all the questions you want. That is

the reason

> for the group.

>

> Eunice

>

>

>

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---the right spirit really helps, . Because ya know what, there

is enough bad stuff out there that one could go nuts if dwelt on and

I figure no matter what happens, it will be dealt with and I want to

have the sun shining all the time even if its raining! I learned a

long time ago that by keeping the right frame of mind and everything

in perspective, it all works out. I developed a sense of humor and I

keep it going. I also learned to live just one day at a time and to

do the best that day and make the most of that day and enjoy the time

to its fullest. Tomorrow will come, tomorrow.

madge

In diabetes@y..., " " <linda@m...> wrote:

> Madge!

>

> Be proud of your life. It's making you healthy!

>

>

>

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  • 4 years later...

Dawn,

You are in my prayers. It is hard not just only for the MS'r but for the other family members. It's good you found a websight that you can email when you want to, just to vent, ask questions, you name it. When I was diagnosed in 95, I didn't have anywhere to go to on a web.

Keep your head up!!!!!!!!!!

Darlene

Kickin Cane Covers

www.canecovers.org

-- Sorry

I'm sorry that I haven't posted in quite awhile. The first week went thru my " This wasn't my plan when I had children, Lord phase." There was about 2 weeks after Rick was diagnosed I couldn't look at much that had to deal with MS. I just couldn't deal with much. And then we had the craziness with the insurance company. A week ago Rick's neurologist called the medical director of Rick's insurance carrier. I guess it was a long, loud argument where his neuro had to finally relented and let Rick be on the Avonex. Then we wait another week for approval, which didn't come in a phone call so it would be faster, no, it came in a letter and to my ex-husband instead of Rick!

But here we are now. Waiting for the medication to come to the pharmacy which hopefully will be on Thursday.

I'm still coping with the fact that Rick has MS, I guess I'm coming to except it. Now and even those first few weeks when I was telling God this wasn't my plan for my kids, I would right away remind myself that God's plan is much better than my own. We just don't see it/know it yet.

I still cry, just not as often.

I am still waiting to hear from the Rebif company to see if Rick can get that through them. I've read good things about Rebif and it is a newer drug than Avonex. But, God wanted him on the Avonex for now. Things will work the way they are suppose to.

The insurance will be another issue come in a couple of years. I'm not going to presue that avenue just yet. I have a little bit of time.

That's what has been going on. I post things off and on. It's that busy time of year at school and it will be Christmas break before I know it.

You are all in my prayers.

~hugs~

Dawn

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Dear Dawn:

I've been wondering about you and Rick. I'm sorry Rick has MS. He's so young. Hang in there. Keep being Rick's proactive mother and fight for him to get what he needs.

We just never know what's around the corner for us, do we?

hugs)))

Sharon

dawnarie4 wrote:

I'm sorry that I haven't posted in quite awhile. The first week went thru my " This wasn't my plan when I had children, Lord phase." There was about 2 weeks after Rick was diagnosed I couldn't look at much that had to deal with MS. I just couldn't deal with much. And then we had the craziness with the insurance company. A week ago Rick's neurologist called the medical director of Rick's insurance carrier. I guess it was a long, loud argument where his neuro had to finally relented and let Rick be on the Avonex. Then we wait another week for approval, which didn't come in a phone call so it would be faster, no, it came in a letter and to my ex-husband instead of Rick!

But here we are now. Waiting for the medication to come to the pharmacy which hopefully will be on Thursday.

I'm still coping with the fact that Rick has MS, I guess I'm coming to except it. Now and even those first few weeks when I was telling God this wasn't my plan for my kids, I would right away remind myself that God's plan is much better than my own. We just don't see it/know it yet.

I still cry, just not as often.

I am still waiting to hear from the Rebif company to see if Rick can get that through them. I've read good things about Rebif and it is a newer drug than Avonex. But, God wanted him on the Avonex for now. Things will work the way they are suppose to.

The insurance will be another issue come in a couple of years. I'm not going to presue that avenue just yet. I have a little bit of time.

That's what has been going on. I post things off and on. It's that busy time of year at school and it will be Christmas break before I know it.

You are all in my prayers.

~hugs~

Dawn

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge

Yahoo! FareChase - Search multiple travel sites in one click.

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Honey, you have nothing to apologize for. You are human, that is fact and you do not need to excuse yourself for being a caring mother and responsible person. You should in fact be proud of the way your handling it, standing by him, supporting him, being proactive for him. I commend you and know that every day that passes will allow you more strength and more courage to continue to face this ever twisting, winding roller coaster of MS excitement. My heart and soul is with you on this. Continue to stay strong.

Yahoo! FareChase - Search multiple travel sites in one click.

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  • 3 years later...

I think every one here would agree that you need not apologize for anything.I

cant imagine the pain you must feel.Thats what we are all here for dear

friend.We can lean on eachother.Please exept my heartfelt condolences for the

loss of your dear child.We are here for you.Huge heartfelt hugs Ron

________________________________

To: LBDcaregivers

Sent: Thursday, November 6, 2008 3:24:40 PM

Subject: sorry

i also just want to say im sorry i keep telling some of you that i lost

my child earlier this year. technically it has nothing to do with this

group. but i am in agony BECAUSE i am already so traumatised, and now

having to face what is going on with my dad.

i am so very very afraid, and in pain

love jan

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  • 7 months later...
Guest guest

I'm doing ok Jena, thanks for asking. Just in the normal pain and in my mode of

not sleeping. So far, I've been up 3 days with the exception of a 5 hr nap the

other day. I go through this every month for some reason. I need to keep a sleep

journal and see if I can see a pattern or something. I'm in the middle of this

cycle so I have to wait for the onset of the next one to get a good log. I'll

log for a couple of months and see what I can see, then see my doc about it. lol

Thanks to my doc, he gives me Nuvigil, which is like Provigil but a higher mg

and lasts longer. I take these when I get in these modes hoping to sleep the

next night. They only last about 6 hrs, and I take them early in the day. I

don't take them everytime I get into this cycle, just on days I feel like I'm

going to drop. I try not to sleep in the day time so I can sleep at night, but

it doesn't always work that way. lol

How is your Daddy doing today? And your Mama? And more importantly, how are YOU

doing? How is your pain holding up? I wish we could share meds and I had some to

share, I'd send you some. lol But that is totally illegal for one, plus it's

against the contract we all sign when we get a pain doc. lol

Well it's a thought anyway.

I hope and pray you have a decent weekend! Try to take it easy.

Love and hugs,

~Tommie~

www.myspace.com/tommiejj

PH, CFS, FMS, Diabetes, Sleep Apnea, Restless Leg Syndrome

Don't waste energy second-guessing what you're missing or

what can go awry. If you put enough energy into doubt,

something will undoubtedly go wrong.

Instead, focus on the positive possibilities with a hopeful attitude.

sorry

sorry I haven't been on in several days. my daddy has been in the hospital

with bilateral blood clots in his lungs. scared the slop out of me. I have been

staying with my Mama. she went bazonnkers on me. daddy got to come home

yesterday afternoon and they sent me home and I went into a coma. I have 19 pain

pills to last 10 days. it will never happen. my back fills like it is completely

separatered right now. :(

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Jena, what caused the blood clots, in your daughter & your dad? I understand

about taking the pills way too early :) My pain doc put me on stronger pain

meds but I have to take them every 6 hours or less :-) The meds for your dad

don't sound too much considering he had 2 clots. But then I'm certainly no

expert. And Praise God on your daughter being healed! That's awesome. Nae

>

>

> I have took my pills a little early at times. I know I am not suppose too.

> but with all I have to take care of. that is the only way I can make it

> sometimes.

>

> as far as my dad. he goes back to his dr. in the morning. I will be so

> glad. he is taking 2 Loveinox shots a day plus 5mg of Coumadin. My opinion

> that is way to much. my daughter had a blood clot that collapsed a lung 6

> years ago. and she didn't take near that much med. and her clot was huge. by

> the Grace of God he gave us a miracle and healed her. but she still took

> Coumadin for 6 months.

>

> be nosy all you want,I don't mind. I am the world's worst to ask questions.

> :)

> Jena

> sorry

> >

> > sorry I haven't been on in several days. my daddy has been in the

> hospital

> > with bilateral blood clots in his lungs. scared the slop out of me. I

> have

> > been staying with my Mama. she went bazonnkers on me. daddy got to come

> home

> > yesterday afternoon and they sent me home and I went into a coma. I have

> 19

> > pain pills to last 10 days. it will never happen. my back fills like it

> is

> > completely separatered right now. :(

> >

> >

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