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It's funny that you mentioned the caffeine, at work they always tease me

because I am downing mt. dew all the time. I also take Vivarin (caffeine

pills) my doctor approved me taking these. Every once in awhile they give me

a little bit of stomache upset, but usually no side effects at all. If I

don't take these, I have a really hard time even making it through the day.

I only take them when I am working, and avoid taking them on my days off.

I've been taking them for about 4 months now, and haven't had any problems.

I think each tabelet is equal to 2 cups of coffee.

Love,

------------------------------------------------------------------------

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  • 6 years later...

You've had quite an ordeal. Another member on the list

had chemical meningitis (I think that's what it was).

That is very scary stuff. I can't imagine docs being

so lackadaisical about spinal fluid leaking out, and

for them to put you on a bus is just outrageous to me!

I hope things heal and you get better quickly!!

--- Faith wrote:

> To add to my last post: I just want to say that my

> left leg used to

> go out on me. Like I would take a step and there

> would be no leg

> there to hold me up. I fell alot. The incontinence I

> experienced was

> pretty bad. I wet myself without even knowing. The

> only clue I had

> was the warmth. Very embarrassing. I experienced

> alot of pain. This

> was all pre-surgery.

>

> Post surgery: My left leg is numb. I know its there

> and I can wiggle

> my toes and I can walk on it. Its like its wrapped

> in a gel pad cast,

> but it isn't. Whats really odd is that it'll itch

> every now & then,

> but I can't feel me scratching it. I walk a little

> like I'm drunk and

> I still fall down frequently. But surgery was only

> five weeks ago. At

> first, right after surgery, I had to wear serenity

> pads. I would feel

> like I had to go to the bathroom, and when I got

> there, the pad was

> already full, but I still had to pee. Now, I haven't

> had an accident

> for about a week, but that was because I fell down

> twice trying to

> get to the toilet.

>

> Basically what i'm saying is i don't mind trading

> the feeling in my

> left leg with better control of my bladder.

>

> The bad stuff tht happened to me, the menengitis and

> seepage and

> stuff happens only one in a thousand. Thats the

> figure my primary

> care physician gave me.

>

> The biggest problem was thatthe neurologist did not

> close the wound

> completely. In fact it is still open and seeping,

> but it is getting

> beter.

>

> I just don't want to scare anyone away from having

> the surgery. Just

> be diligent with your neurosurgeon and don't feel

> bad about asking

> him to be sure to close the outside wound

> completely. This will keep

> it fresh in his mind.

>

> Also remember: I had a nasty horiszontal scar from

> when I was born

> with spina bifida in 1964 that he had to work with.

>

> The nerve damage will stop now according to the

> plan. So my right leg

> won't get worse. unrinary control won't get worse.

> The surgery is to

> prevent further nerve damage and if I had to do it

> all over again, I

> sincerely would.

>

> I have a walker for now. (temporary). I'm getting a

> basket for it,

> maybe some other stuff o dress it up. Maybe a

> bicycle flag or one of

> those horns. Hee hee. The hospital also gve me a

> bath bench so I can

> shower sitting down safely. Its actually pretty cool

> not to haave to

> stand up all that time. (It also big enough for

> two). Last but not

> least they gave me this harpoon shooting looking

> thing. it pick up

> what I've dropped so I dont have to bend. AND check

> this out, it has

> a magnetic tip! I can pick up screw and forks and

> all kinds of stuff.

>

> Just wanted to add that it isn't all that bad. Just

> speak up if you

> feek you are being treated badly or neglected.

>

> Thanks to all who helped me decide to go for it. And

> thanks to all of

> you who gave me realistic information. I don't know

> if I would have

> gone through it without your input.

>

> Hope I was just as helpful

> Faith

> The good news is I'm no longer needing to wear

> serenity pads.

>

>

>

>

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Hi Faith

I had exactly the same thing post op, two years ago. CSF leak which

became an infected abscess, contaminated the fluid and ended up with

infective meningitis. I was in a high dependency unit in a critical

state for two weeks, then when the infection subsided I had to have

further spinal surgery to repair the damage.

It was a dreadful time and was caused, I am sure, by negligence at the

post operative stage.

Sending best wishes for a good recovery,

Monika

--

Monika Sabor

South Wales

UK

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  • 2 weeks later...

>

> Hi Faith

>

> I had exactly the same thing post op, two years ago. CSF leak which

> became an infected abscess, contaminated the fluid and ended up

with

> infective meningitis. I was in a high dependency unit in a critical

> state for two weeks, then when the infection subsided I had to have

> further spinal surgery to repair the damage.

>

> It was a dreadful time and was caused, I am sure, by negligence at

the

> post operative stage.

>

> Sending best wishes for a good recovery,

>

> Monika

> --

> Monika Sabor

> South Wales

> UK

>

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Hi Monika,

Lucky for me I didn't have to have more surgery. It was bad enough

they had to give me a spinal tap. I'm so sorry you had to go through

that and I hope your recovery has gone well.

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