Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Dear Adam, I too am terrified at the prospect that PSC could be passed down to our babies. In 1995, I was told by Dr. Van Thiel (helped invent the tx) that my children would have a one in four chance of getting it. We kind of blew off the advice at the time, but then last year when my dear friend, the pastor from Denver died, his wife sent me an article about him because he was so loved all over the world. The article said that his 22 year old son had just been dx with PSC 2 years prior. I called Mike's wife to confirm this and she said that is was true. That is my only info about it. All we can do is pray that it's as you said....some kind of fluke!! Take care and God Bless! Jacquelyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2000 Report Share Posted May 13, 2000 Jacquelyn, Dr. Van Thiel was mistaken. No even knows if PSC is hereditary. And even if it was a recessive (single allele) genetic trait, your husband would also have to be a carrier. And based upon the incidence of PSC, this is very unlikely. And even if he was a carrier, the odds would be one in two not one in four. Though this doctor may be brilliant, he needs to review his basic high school biology and quit scaring people. Adam (Science teacher in CA, expecting first child in Aug, not worried about her having PSC) PS Did the preacher you mentioned below also have PSC or just his son? In a message dated 5/12/00 7:50:06 PM Pacific Daylight Time, Jqs2@... writes: > Dear Adam, > I too am terrified at the prospect that PSC could be passed down to our > babies. In 1995, I was told by Dr. Van Thiel (helped invent the tx) > that my children would have a one in four chance of getting it. We kind of > blew off the advice at the time, but then last year when my dear friend, the > pastor from Denver died, his wife sent me an article about him because he > was so loved all over the world. The article said that his 22 year old son had > just been dx with PSC 2 years prior. I called Mike's wife to confirm this > and she said that is was true. > That is my only info about it. All we can do is pray that it's as you > said....some kind of fluke!! > Take care and God Bless! > Jacquelyn Quote Link to comment Share on other sites More sharing options...
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