Hi from Laurie

[Guest guest]

Peg--

I don't always have someone with me. There have been several days I have

been alone. I'm sure Steve probably wrote about the seizures I had on the

11th? It was due to the high volume of anti-rej med they give on the 5th

day. I was alone then--very scary. Also had to have a spinal tap that day,

which Steve had to authorize from about 3.5 hrs away. It seems my worst

days are when I'm alone.

Just found out yesterday that there is posterior reversible something or

other in my brain due to lack of oxygen during the seizures. Has to do with

my vision. They say it will get better. Also some other finding

" consistent with chronic longstanding PSC " - encephelapothy (sp?). Am

finally getting to see my dr today (he's been out of town for a wk and will

ask him more).

No, I don't have Steve's computer. This is in a resource room at the Lied

Transplant Center. I have had a lot of back pain since the wee hrs this

a.m. and was looking forward to lying down on the htg pad after bkfst, but

housecleaning came and booted us out. Our youngest, Chad, 18, is here w/me

today. This is one wk that was organized for me to have someone w/me since

I was in co-operative care and now they booted us to out-patient. I am not

well enuf to be alone--don't have my meds straight in my head yet and can't

get from one place to another without feeling confused. Now that I'm in

" outpt " I have to go to have my blood drawn to another bldg and floor (still

hooked to the tx ctr) b/4 8 am everyday before I take my anti-rej med. Also

have to go to cafeteria for all meals. So much for lounging and resting in

jammies.

I'm still praying for Jacquelyn, though I don't know the exact prayer I

should be saying since I don't know precisely what is going on. I just pray

that He carry her in His arms, guide the drs in the right direction and do

as He feels best, His will.

You guys are in my

prayers.

Love,

Laurie