Re: Re: New to group - response to RA factor and Sed rate

[Guest guest]

Judi,

I've never heard of Dercum's disease. Would you mind explaining it so I

know what you're going through when it flares? Besides wanting to add to my

body of knowledge, I also want to be able to respond appropriately when you're

having problems.

What small town in Indiana do you live in? I'm only 5 miles from the

Illinois/Indiana border.

Dix

[ ] Re: New to group - response to RA factor and Sed rate

Hi Abby,

Welcome to the group! Another member of the " frustration

foundation! " I don't have RA, but do have FM, Dercum's disease, and

who knows what other autoimmune bugs simmering. It is indeed a

frustration process trying to find out exactly what we have, get it

properly diagnosed and treat it, isn't it? All my labs are normal,

except when I go into a " Dercum flare " and then my SED rate jumps

slightly, which is due to the angiolipomas growing--they multiply

like oversexed bunnies sometimes.

I hope you find the answers you need, this is a very good group for

information, support, and comfort. And I really love your screen

name! I think coffee should be added to the list of food groups. My

only great regret about living in this small town in Indiana is there

is no Starbucks here!

Judi