Re: Good news for a change!

[Guest guest]

--- Moonrosefury@... wrote:

> Hi All

> I just wanted to let everyone know that from out of

> the blue my doctor

> from Philadelphia (the one I have had all the

> trouble with) called me

> on the phone. He went over my biopsy report, and he

> has FINALLY

> decided to put me on interferon treatment starting

> in a couple weeks

> soon as the paper work is done.

> I cannot begin to tell you how I feel but to me this

> is a possible new

> lease on life with the liver I have because IF the

> treatment works...I

> have a genotype virus that is curable in hep

> C....the severe fibrosis

> and the beginning of my cirrosis can be reversed.

> I dont think I have ever been so happy in my life to

> be given a chance

> at anything.

> Having this horrible disease of the liver has

> changed my life. It will

> stay changed forever. I look at everything so much

> more differently

> then I ever did before, and am thankful for every

> day I have here left

> on this earth.

> Thankyou for listening

> S.

> P.A.

>

>

Hi , I'm happy for you. Wonderful good news.To

be given 'A new lease on life " What a gift!!! Keep us

posted on your progress.OK? Ann in Illinois

__________________________________________________

[Guest guest]

....are you OK??????? Philly was hit by the plane that was headed for my neighboring airport! It is frightening! debby

[ ] Good News for a Change!

Hi AllI just wanted to let everyone know that from out of the blue my doctor from Philadelphia (the one I have had all the trouble with) called me on the phone. He went over my biopsy report, and he has FINALLY decided to put me on interferon treatment starting in a couple weeks soon as the paper work is done.I cannot begin to tell you how I feel but to me this is a possible new lease on life with the liver I have because IF the treatment works...I have a genotype virus that is curable in hep C....the severe fibrosis and the beginning of my cirrosis can be reversed.I dont think I have ever been so happy in my life to be given a chance at anything.Having this horrible disease of the liver has changed my life. It will stay changed forever. I look at everything so much more differently then I ever did before, and am thankful for every day I have here left on this earth.Thankyou for listening S.P.A.

[Guest guest]

> ....are you OK??????? Philly was hit by the plane that was

headed for my neighboring airport! It is frightening! debby

The plane crashed south east of Pittsburgh.

What a devastating day for the world!

Lyn

in Canada

[Guest guest]

Lynn, I realized after I send that stupid message that I had the wrong town! I guess I thought you lived in Philly. I have not gotten to watch much TV today....but felt sooooo stupid after I sent the wrong town! But even so, it has been a terrible thing indeed!

debby

[ ] Re: Good News for a Change!

> ....are you OK??????? Philly was hit by the plane that was headed for my neighboring airport! It is frightening! debbyThe plane crashed south east of Pittsburgh.What a devastating day for the world!Lynin Canada

[Guest guest]

I live near Philly. No plane hit here. It was on the opposite side of the

state that the plane crashed.

Shireen

>From: " Tex Pueschel " <tdcc2000@...>

>Reply-

>< >

>Subject: Re: [ ] Good News for a Change!

>Date: Tue, 11 Sep 2001 17:05:09 -0700

>

>....are you OK??????? Philly was hit by the plane that was headed for

>my neighboring airport! It is frightening! debby

> [ ] Good News for a Change!

>

>

> Hi All

> I just wanted to let everyone know that from out of the blue my doctor

> from Philadelphia (the one I have had all the trouble with) called me

> on the phone. He went over my biopsy report, and he has FINALLY

> decided to put me on interferon treatment starting in a couple weeks

> soon as the paper work is done.

> I cannot begin to tell you how I feel but to me this is a possible new

> lease on life with the liver I have because IF the treatment works...I

> have a genotype virus that is curable in hep C....the severe fibrosis

> and the beginning of my cirrosis can be reversed.

> I dont think I have ever been so happy in my life to be given a chance

> at anything.

> Having this horrible disease of the liver has changed my life. It will

> stay changed forever. I look at everything so much more differently

> then I ever did before, and am thankful for every day I have here left

> on this earth.

> Thankyou for listening

> S.

> P.A.

>

>

>

[Guest guest]

Judi- Really good stuff - thank you for sharing.

Hugs,

-------------- Original message ----------------------

From: " nonny46 " <nonny46@...>

>

>

> Hi group,

>

> I know I don't post much, as sometimes I feel that I am so odd with

> my weird disease (Dercum's, for those who don't know me) but I read

> all the posts, pray for eveyrone, and just try to keep going like all

> of us do.

>

> Got some good news today, though. My doctor thought I might have an

> aortic aneurysm due to the large number of Dercum's tumors (lipomas)

> in my chest and abdomen, but the CT scan I had last week showed no

> aneurysm, just the tumors. All my bloodwork is good, weight staying

> level, blood pressure very low (108/70) and even though I'm often in

> a lot of pain, nothing I can't handle. Just the good news this

> morning gave me a boost of energy, and my husband and I worked at

> church for a couple of hours. We are cleaning and reorganizing the

> Sunday school rooms, and we had a good time.

>

> I'm scheduled to see a rheumy soon (whenever she calls with the

> appointment) as it is possible that Remicade and MTX may help shrink

> the tumors. One of our Dercum group members who also has RA and

> Ankylosing Spondylitis has noticed a significant change in her tumors

> and no new ones growing, so I may be asking you guys for information

> if it seems the rheumy will allow me to try this. No one who has

> only Dercum's has tried this, so I would be a guinea pig (once again)

> to see how it goes. I'm willing!

>

> I wish a very wonderful Thanksgiving to all--Be grateful for the joy

> of pure being.

>

> Peace,

> Judi

>

>

>

>

>

>

>

[Guest guest]

Judi- Really good stuff - thank you for sharing.

Hugs,

-------------- Original message ----------------------

From: " nonny46 " <nonny46@...>

>

>

> Hi group,

>

> I know I don't post much, as sometimes I feel that I am so odd with

> my weird disease (Dercum's, for those who don't know me) but I read

> all the posts, pray for eveyrone, and just try to keep going like all

> of us do.

>

> Got some good news today, though. My doctor thought I might have an

> aortic aneurysm due to the large number of Dercum's tumors (lipomas)

> in my chest and abdomen, but the CT scan I had last week showed no

> aneurysm, just the tumors. All my bloodwork is good, weight staying

> level, blood pressure very low (108/70) and even though I'm often in

> a lot of pain, nothing I can't handle. Just the good news this

> morning gave me a boost of energy, and my husband and I worked at

> church for a couple of hours. We are cleaning and reorganizing the

> Sunday school rooms, and we had a good time.

>

> I'm scheduled to see a rheumy soon (whenever she calls with the

> appointment) as it is possible that Remicade and MTX may help shrink

> the tumors. One of our Dercum group members who also has RA and

> Ankylosing Spondylitis has noticed a significant change in her tumors

> and no new ones growing, so I may be asking you guys for information

> if it seems the rheumy will allow me to try this. No one who has

> only Dercum's has tried this, so I would be a guinea pig (once again)

> to see how it goes. I'm willing!

>

> I wish a very wonderful Thanksgiving to all--Be grateful for the joy

> of pure being.

>

> Peace,

> Judi

>

>

>

>

>

>

>

[Guest guest]

Judi, that is great news:)!!!!! Please, don't ever feel odd, we all

deal with the same frustrations, pain, and we all need support. You

are such a great lady, your always here when someone needs a kind

word. We all love you so much, Tawny

>

> Hi group,

>

> I know I don't post much, as sometimes I feel that I am so odd with

> my weird disease (Dercum's, for those who don't know me) but I read

> all the posts, pray for eveyrone, and just try to keep going like

all

> of us do.

>

> Got some good news today, though. My doctor thought I might have

an

> aortic aneurysm due to the large number of Dercum's tumors

(lipomas)

> in my chest and abdomen, but the CT scan I had last week showed no

> aneurysm, just the tumors. All my bloodwork is good, weight

staying

> level, blood pressure very low (108/70) and even though I'm often

in

> a lot of pain, nothing I can't handle. Just the good news this

> morning gave me a boost of energy, and my husband and I worked at

> church for a couple of hours. We are cleaning and reorganizing the

> Sunday school rooms, and we had a good time.

>

> I'm scheduled to see a rheumy soon (whenever she calls with the

> appointment) as it is possible that Remicade and MTX may help

shrink

> the tumors. One of our Dercum group members who also has RA and

> Ankylosing Spondylitis has noticed a significant change in her

tumors

> and no new ones growing, so I may be asking you guys for

information

> if it seems the rheumy will allow me to try this. No one who has

> only Dercum's has tried this, so I would be a guinea pig (once

again)

> to see how it goes. I'm willing!

>

> I wish a very wonderful Thanksgiving to all--Be grateful for the

joy

> of pure being.

>

> Peace,

> Judi

[Guest guest]

Judi, that is great news:)!!!!! Please, don't ever feel odd, we all

deal with the same frustrations, pain, and we all need support. You

are such a great lady, your always here when someone needs a kind

word. We all love you so much, Tawny

>

> Hi group,

>

> I know I don't post much, as sometimes I feel that I am so odd with

> my weird disease (Dercum's, for those who don't know me) but I read

> all the posts, pray for eveyrone, and just try to keep going like

all

> of us do.

>

> Got some good news today, though. My doctor thought I might have

an

> aortic aneurysm due to the large number of Dercum's tumors

(lipomas)

> in my chest and abdomen, but the CT scan I had last week showed no

> aneurysm, just the tumors. All my bloodwork is good, weight

staying

> level, blood pressure very low (108/70) and even though I'm often

in

> a lot of pain, nothing I can't handle. Just the good news this

> morning gave me a boost of energy, and my husband and I worked at

> church for a couple of hours. We are cleaning and reorganizing the

> Sunday school rooms, and we had a good time.

>

> I'm scheduled to see a rheumy soon (whenever she calls with the

> appointment) as it is possible that Remicade and MTX may help

shrink

> the tumors. One of our Dercum group members who also has RA and

> Ankylosing Spondylitis has noticed a significant change in her

tumors

> and no new ones growing, so I may be asking you guys for

information

> if it seems the rheumy will allow me to try this. No one who has

> only Dercum's has tried this, so I would be a guinea pig (once

again)

> to see how it goes. I'm willing!

>

> I wish a very wonderful Thanksgiving to all--Be grateful for the

joy

> of pure being.

>

> Peace,

> Judi

[Guest guest]

Judi,

anytime we have good news that's something to rejoice over. went to

church last wednesday, my baby Chas (17)is singing with a praise

band, i was in the back behind some TALL boys, (I'm a shorty) so I

couldnt see if she was onstage for sure. then i heard her voice

rising over the band's music, and i forgot all about aches and pains,

and thanked God that I have a daughter like her. We'll be agreeing in

prayer that the remicade & mtx will help you. have a blessed

thanksgiving.

Jane

>

> Hi group,

>

> I know I don't post much, as sometimes I feel that I am so odd with

> my weird disease (Dercum's, for those who don't know me) but I read

> all the posts, pray for eveyrone, and just try to keep going like

all

> of us do.

>

> Got some good news today, though. My doctor thought I might have

an

> aortic aneurysm due to the large number of Dercum's tumors

(lipomas)

> in my chest and abdomen, but the CT scan I had last week showed no

> aneurysm, just the tumors. All my bloodwork is good, weight

staying

> level, blood pressure very low (108/70) and even though I'm often

in

> a lot of pain, nothing I can't handle. Just the good news this

> morning gave me a boost of energy, and my husband and I worked at

> church for a couple of hours. We are cleaning and reorganizing the

> Sunday school rooms, and we had a good time.

>

> I'm scheduled to see a rheumy soon (whenever she calls with the

> appointment) as it is possible that Remicade and MTX may help

shrink

> the tumors. One of our Dercum group members who also has RA and

> Ankylosing Spondylitis has noticed a significant change in her

tumors

> and no new ones growing, so I may be asking you guys for

information

> if it seems the rheumy will allow me to try this. No one who has

> only Dercum's has tried this, so I would be a guinea pig (once

again)

> to see how it goes. I'm willing!

>

> I wish a very wonderful Thanksgiving to all--Be grateful for the

joy

> of pure being.

>

> Peace,

> Judi

[Guest guest]

Judi,

anytime we have good news that's something to rejoice over. went to

church last wednesday, my baby Chas (17)is singing with a praise

band, i was in the back behind some TALL boys, (I'm a shorty) so I

couldnt see if she was onstage for sure. then i heard her voice

rising over the band's music, and i forgot all about aches and pains,

and thanked God that I have a daughter like her. We'll be agreeing in

prayer that the remicade & mtx will help you. have a blessed

thanksgiving.

Jane

>

> Hi group,

>

> I know I don't post much, as sometimes I feel that I am so odd with

> my weird disease (Dercum's, for those who don't know me) but I read

> all the posts, pray for eveyrone, and just try to keep going like

all

> of us do.

>

> Got some good news today, though. My doctor thought I might have

an

> aortic aneurysm due to the large number of Dercum's tumors

(lipomas)

> in my chest and abdomen, but the CT scan I had last week showed no

> aneurysm, just the tumors. All my bloodwork is good, weight

staying

> level, blood pressure very low (108/70) and even though I'm often

in

> a lot of pain, nothing I can't handle. Just the good news this

> morning gave me a boost of energy, and my husband and I worked at

> church for a couple of hours. We are cleaning and reorganizing the

> Sunday school rooms, and we had a good time.

>

> I'm scheduled to see a rheumy soon (whenever she calls with the

> appointment) as it is possible that Remicade and MTX may help

shrink

> the tumors. One of our Dercum group members who also has RA and

> Ankylosing Spondylitis has noticed a significant change in her

tumors

> and no new ones growing, so I may be asking you guys for

information

> if it seems the rheumy will allow me to try this. No one who has

> only Dercum's has tried this, so I would be a guinea pig (once

again)

> to see how it goes. I'm willing!

>

> I wish a very wonderful Thanksgiving to all--Be grateful for the

joy

> of pure being.

>

> Peace,

> Judi

[Guest guest]

That is good news, Judi!

I'd very much like to know what your rheumatologist says about the

possibility of treating your Dercum's with Remicade and MTX.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Good news for a change!

>

>

> Hi group,

>

> I know I don't post much, as sometimes I feel that I am so odd with

> my weird disease (Dercum's, for those who don't know me) but I read

> all the posts, pray for eveyrone, and just try to keep going like all

> of us do.

>

> Got some good news today, though. My doctor thought I might have an

> aortic aneurysm due to the large number of Dercum's tumors (lipomas)

> in my chest and abdomen, but the CT scan I had last week showed no

> aneurysm, just the tumors. All my bloodwork is good, weight staying

> level, blood pressure very low (108/70) and even though I'm often in

> a lot of pain, nothing I can't handle. Just the good news this

> morning gave me a boost of energy, and my husband and I worked at

> church for a couple of hours. We are cleaning and reorganizing the

> Sunday school rooms, and we had a good time.

>

> I'm scheduled to see a rheumy soon (whenever she calls with the

> appointment) as it is possible that Remicade and MTX may help shrink

> the tumors. One of our Dercum group members who also has RA and

> Ankylosing Spondylitis has noticed a significant change in her tumors

> and no new ones growing, so I may be asking you guys for information

> if it seems the rheumy will allow me to try this. No one who has

> only Dercum's has tried this, so I would be a guinea pig (once again)

> to see how it goes. I'm willing!

>

> I wish a very wonderful Thanksgiving to all--Be grateful for the joy

> of pure being.

>

> Peace,

> Judi

[Guest guest]

That is good news, Judi!

I'd very much like to know what your rheumatologist says about the

possibility of treating your Dercum's with Remicade and MTX.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Good news for a change!

>

>

> Hi group,

>

> I know I don't post much, as sometimes I feel that I am so odd with

> my weird disease (Dercum's, for those who don't know me) but I read

> all the posts, pray for eveyrone, and just try to keep going like all

> of us do.

>

> Got some good news today, though. My doctor thought I might have an

> aortic aneurysm due to the large number of Dercum's tumors (lipomas)

> in my chest and abdomen, but the CT scan I had last week showed no

> aneurysm, just the tumors. All my bloodwork is good, weight staying

> level, blood pressure very low (108/70) and even though I'm often in

> a lot of pain, nothing I can't handle. Just the good news this

> morning gave me a boost of energy, and my husband and I worked at

> church for a couple of hours. We are cleaning and reorganizing the

> Sunday school rooms, and we had a good time.

>

> I'm scheduled to see a rheumy soon (whenever she calls with the

> appointment) as it is possible that Remicade and MTX may help shrink

> the tumors. One of our Dercum group members who also has RA and

> Ankylosing Spondylitis has noticed a significant change in her tumors

> and no new ones growing, so I may be asking you guys for information

> if it seems the rheumy will allow me to try this. No one who has

> only Dercum's has tried this, so I would be a guinea pig (once again)

> to see how it goes. I'm willing!

>

> I wish a very wonderful Thanksgiving to all--Be grateful for the joy

> of pure being.

>

> Peace,

> Judi

[Guest guest]

Judi,

Please don¹t feel odd. You have a rare disease and that is not your fault.

So glad you got good news. Now if the Remicade and MTX works, that will be

really good news!

I hope you and your family have a nice Thanksgiving.

a

>

> Hi group,

>

> I know I don't post much, as sometimes I feel that I am so odd with

> my weird disease (Dercum's, for those who don't know me) but I read

> all the posts, pray for eveyrone, and just try to keep going like all

> of us do.

>

> Got some good news today, though. My doctor thought I might have an

> aortic aneurysm due to the large number of Dercum's tumors (lipomas)

> in my chest and abdomen, but the CT scan I had last week showed no

> aneurysm, just the tumors. All my bloodwork is good, weight staying

> level, blood pressure very low (108/70) and even though I'm often in

> a lot of pain, nothing I can't handle. Just the good news this

> morning gave me a boost of energy, and my husband and I worked at

> church for a couple of hours. We are cleaning and reorganizing the

> Sunday school rooms, and we had a good time.

>

> I'm scheduled to see a rheumy soon (whenever she calls with the

> appointment) as it is possible that Remicade and MTX may help shrink

> the tumors. One of our Dercum group members who also has RA and

> Ankylosing Spondylitis has noticed a significant change in her tumors

> and no new ones growing, so I may be asking you guys for information

> if it seems the rheumy will allow me to try this. No one who has

> only Dercum's has tried this, so I would be a guinea pig (once again)

> to see how it goes. I'm willing!

>

> I wish a very wonderful Thanksgiving to all--Be grateful for the joy

> of pure being.

>

> Peace,

> Judi

>

>

>

>

>

>

[Guest guest]

Judi,

Please don¹t feel odd. You have a rare disease and that is not your fault.

So glad you got good news. Now if the Remicade and MTX works, that will be

really good news!

I hope you and your family have a nice Thanksgiving.

a

>

> Hi group,

>

> I know I don't post much, as sometimes I feel that I am so odd with

> my weird disease (Dercum's, for those who don't know me) but I read

> all the posts, pray for eveyrone, and just try to keep going like all

> of us do.

>

> Got some good news today, though. My doctor thought I might have an

> aortic aneurysm due to the large number of Dercum's tumors (lipomas)

> in my chest and abdomen, but the CT scan I had last week showed no

> aneurysm, just the tumors. All my bloodwork is good, weight staying

> level, blood pressure very low (108/70) and even though I'm often in

> a lot of pain, nothing I can't handle. Just the good news this

> morning gave me a boost of energy, and my husband and I worked at

> church for a couple of hours. We are cleaning and reorganizing the

> Sunday school rooms, and we had a good time.

>

> I'm scheduled to see a rheumy soon (whenever she calls with the

> appointment) as it is possible that Remicade and MTX may help shrink

> the tumors. One of our Dercum group members who also has RA and

> Ankylosing Spondylitis has noticed a significant change in her tumors

> and no new ones growing, so I may be asking you guys for information

> if it seems the rheumy will allow me to try this. No one who has

> only Dercum's has tried this, so I would be a guinea pig (once again)

> to see how it goes. I'm willing!

>

> I wish a very wonderful Thanksgiving to all--Be grateful for the joy

> of pure being.

>

> Peace,

> Judi

>

>

>

>

>

>

[Guest guest]

HI JUDI... i am rae... and also new to this group... i was reading all the

e-mails and read about your Dercum... how many of these fatty tissues do you

have ? i have had recently 4 of them appear.. two in my elbows and two in my

neck area... one in my forearem... the ones in the elbow and forearm are in the

same arm... and they hurt most of the time, not the fatty blab but pushing on my

nerves...

i was just wondering about all of this... there are so many things out there

that we do not know of...(

thanks, rae

[ ] Good news for a change!

>

>

> Hi group,

>

> I know I don't post much, as sometimes I feel that I am so odd with

> my weird disease (Dercum's, for those who don't know me) but I read

> all the posts, pray for eveyrone, and just try to keep going like all

> of us do.

>

> Got some good news today, though. My doctor thought I might have an

> aortic aneurysm due to the large number of Dercum's tumors (lipomas)

> in my chest and abdomen, but the CT scan I had last week showed no

> aneurysm, just the tumors. All my bloodwork is good, weight staying

> level, blood pressure very low (108/70) and even though I'm often in

> a lot of pain, nothing I can't handle. Just the good news this

> morning gave me a boost of energy, and my husband and I worked at

> church for a couple of hours. We are cleaning and reorganizing the

> Sunday school rooms, and we had a good time.

>

> I'm scheduled to see a rheumy soon (whenever she calls with the

> appointment) as it is possible that Remicade and MTX may help shrink

> the tumors. One of our Dercum group members who also has RA and

> Ankylosing Spondylitis has noticed a significant change in her tumors

> and no new ones growing, so I may be asking you guys for information

> if it seems the rheumy will allow me to try this. No one who has

> only Dercum's has tried this, so I would be a guinea pig (once again)

> to see how it goes. I'm willing!

>

> I wish a very wonderful Thanksgiving to all--Be grateful for the joy

> of pure being.

>

> Peace,

> Judi

[Guest guest]

HI JUDI... i am rae... and also new to this group... i was reading all the

e-mails and read about your Dercum... how many of these fatty tissues do you

have ? i have had recently 4 of them appear.. two in my elbows and two in my

neck area... one in my forearem... the ones in the elbow and forearm are in the

same arm... and they hurt most of the time, not the fatty blab but pushing on my

nerves...

i was just wondering about all of this... there are so many things out there

that we do not know of...(

thanks, rae

[ ] Good news for a change!

>

>

> Hi group,

>

> I know I don't post much, as sometimes I feel that I am so odd with

> my weird disease (Dercum's, for those who don't know me) but I read

> all the posts, pray for eveyrone, and just try to keep going like all

> of us do.

>

> Got some good news today, though. My doctor thought I might have an

> aortic aneurysm due to the large number of Dercum's tumors (lipomas)

> in my chest and abdomen, but the CT scan I had last week showed no

> aneurysm, just the tumors. All my bloodwork is good, weight staying

> level, blood pressure very low (108/70) and even though I'm often in

> a lot of pain, nothing I can't handle. Just the good news this

> morning gave me a boost of energy, and my husband and I worked at

> church for a couple of hours. We are cleaning and reorganizing the

> Sunday school rooms, and we had a good time.

>

> I'm scheduled to see a rheumy soon (whenever she calls with the

> appointment) as it is possible that Remicade and MTX may help shrink

> the tumors. One of our Dercum group members who also has RA and

> Ankylosing Spondylitis has noticed a significant change in her tumors

> and no new ones growing, so I may be asking you guys for information

> if it seems the rheumy will allow me to try this. No one who has

> only Dercum's has tried this, so I would be a guinea pig (once again)

> to see how it goes. I'm willing!

>

> I wish a very wonderful Thanksgiving to all--Be grateful for the joy

> of pure being.

>

> Peace,

> Judi

[Guest guest]

Hi Judi

Thank goodness about the aneurysm! I have to say, you are the most cheerful

guinea pig I've ever " met " ! Let us know how the Remicade works, please. Happy

Turkey Day- Cary

[Guest guest]

Hi Judi

Thank goodness about the aneurysm! I have to say, you are the most cheerful

guinea pig I've ever " met " ! Let us know how the Remicade works, please. Happy

Turkey Day- Cary