Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 to Tawny from ken...thank you for answering me...today was really tough on me, and sometimes I really need a friend to talk to. Today was " chemo " day, and that's always tough on me...anyway, thank you. kenawny <tawnyokc@...> wrote: > > Hi Ken,....I would like to welcome you to the group. > Sorry, for the > reason why your here, but you have came to the right > place for great > support, and wonderful friends. > I am 41 years old, live in Oklahoma, have been > married for 12 years, > and have 2 daughters, 22 and 12 years old. My > husband is a OTR truck > driver, so it's been kind of hard for our > relationship. Especially > now that I can't do as much, and just getting worse > every day. > I am on Humira every other week, and starting the > MTX this evening. > I took it before, and it raised my liver enzymes, > but I'm trying it > again. I've been having a terrible time, so I need > something. I > feel like I'm losing the loss of my left leg, and > just pain, you know > what I'm talking about. > I'm so sorry to hear what your going through, I know > how hard it must > be that you can't go like you always did. It's > tough, and then when > other's don't understand, it's worse. My family > just don't realize > what I'm going through, they are still thinking I'm > the same person > that always took care of everything, but I'm not. > Well, I would love to know more about you. You can > email me anytime, > I am usually always home too. Take care of > yourself, and hope times > get better soon, Tawny > > > > > > > > > > > > > Greting to you all. I am new to this > site..Mye-name is > > " squarehead " (I am Norwegian),and my name is Ken. > > I am 52, and married to a wonderful woman, who > tries > > her best to be a support to me, but we have had a > > " roke reversal " : I used to be the breadwinner, and > she > > stayed at home..not anymore. I am a twenty year > > trucker, never had an accident, or a ticket, but > last > > October, I awoke, on a run to Pipestone, Mn. to > hands > > so swollen,they looked like sausages! I could > hardly > > bend my legs, and I called my honey, and asked her > to > > meet me in Knoxville, Tn. and take me to the > > hospital.(I live in Asheville, N.C., and Ryder, > who I > > worked for, was located there.) > > I spent days and days in the hospital, and they > > diagnosed me with severe R.A., affecting nearly > every > > joint in my body. > > My company, who I worked for, for many years > just > > up and abandoned me. What good is a trucker to > them, > > who can no longer drive? > > When you're a ttrucker, you don't have much of > a > > social life, and very few chances to make friends, > > bedause you are on the road all the time...so here > I > > sit, day after day,in my wheelchair, wishing I had > > someone to talk with, someone who knows of the > pain I > > live with day after day. I give myself two > injections > > of Methotrexate every Tuesday,to total 80 units, > and > > an injections of Humira every Sat. On top of that, > I > > must take Folic acid, Mobic, and > > antidepressents...this in addition to the Meds I > must > > take for high blood pressure. > > The state was nice enough to see that they built > a > > thirty foot wheelchair ramp, and deck for me, and > > provided a power wheelchair for me,because I have > > " trigger finger " , and cannot use my hands well, > > anymore. Unfortunatly, I have no way to get > around, > > because my disability checks aren't enough to buy > a > > van I can put the chair in. > > So , here I sit. Is there anyone out there who > will > > e-mail me, anyone I can talk to, and be friends > with? > > Do any one of you feel inclined to be a friend > to > > me? God Bless you all, and may your hurting > diminish! > > > > Love, ken > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 to Tawny from ken...thank you for answering me...today was really tough on me, and sometimes I really need a friend to talk to. Today was " chemo " day, and that's always tough on me...anyway, thank you. kenawny <tawnyokc@...> wrote: > > Hi Ken,....I would like to welcome you to the group. > Sorry, for the > reason why your here, but you have came to the right > place for great > support, and wonderful friends. > I am 41 years old, live in Oklahoma, have been > married for 12 years, > and have 2 daughters, 22 and 12 years old. My > husband is a OTR truck > driver, so it's been kind of hard for our > relationship. Especially > now that I can't do as much, and just getting worse > every day. > I am on Humira every other week, and starting the > MTX this evening. > I took it before, and it raised my liver enzymes, > but I'm trying it > again. I've been having a terrible time, so I need > something. I > feel like I'm losing the loss of my left leg, and > just pain, you know > what I'm talking about. > I'm so sorry to hear what your going through, I know > how hard it must > be that you can't go like you always did. It's > tough, and then when > other's don't understand, it's worse. My family > just don't realize > what I'm going through, they are still thinking I'm > the same person > that always took care of everything, but I'm not. > Well, I would love to know more about you. You can > email me anytime, > I am usually always home too. Take care of > yourself, and hope times > get better soon, Tawny > > > > > > > > > > > > > Greting to you all. I am new to this > site..Mye-name is > > " squarehead " (I am Norwegian),and my name is Ken. > > I am 52, and married to a wonderful woman, who > tries > > her best to be a support to me, but we have had a > > " roke reversal " : I used to be the breadwinner, and > she > > stayed at home..not anymore. I am a twenty year > > trucker, never had an accident, or a ticket, but > last > > October, I awoke, on a run to Pipestone, Mn. to > hands > > so swollen,they looked like sausages! I could > hardly > > bend my legs, and I called my honey, and asked her > to > > meet me in Knoxville, Tn. and take me to the > > hospital.(I live in Asheville, N.C., and Ryder, > who I > > worked for, was located there.) > > I spent days and days in the hospital, and they > > diagnosed me with severe R.A., affecting nearly > every > > joint in my body. > > My company, who I worked for, for many years > just > > up and abandoned me. What good is a trucker to > them, > > who can no longer drive? > > When you're a ttrucker, you don't have much of > a > > social life, and very few chances to make friends, > > bedause you are on the road all the time...so here > I > > sit, day after day,in my wheelchair, wishing I had > > someone to talk with, someone who knows of the > pain I > > live with day after day. I give myself two > injections > > of Methotrexate every Tuesday,to total 80 units, > and > > an injections of Humira every Sat. On top of that, > I > > must take Folic acid, Mobic, and > > antidepressents...this in addition to the Meds I > must > > take for high blood pressure. > > The state was nice enough to see that they built > a > > thirty foot wheelchair ramp, and deck for me, and > > provided a power wheelchair for me,because I have > > " trigger finger " , and cannot use my hands well, > > anymore. Unfortunatly, I have no way to get > around, > > because my disability checks aren't enough to buy > a > > van I can put the chair in. > > So , here I sit. Is there anyone out there who > will > > e-mail me, anyone I can talk to, and be friends > with? > > Do any one of you feel inclined to be a friend > to > > me? God Bless you all, and may your hurting > diminish! > > > > Love, ken > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 Hey Ken---you found the right place This is a great bunch of folks who are here for each other thru good times and rough times. My dh (35) has RA, OA for apporx 5 years altho the symptoms were probably there prior--we just didnt know them. He just started Humira since his Enbrel seemed to not work anymore. How long have you been on Humira? I was concerned about the cancer risk with Humira so we talked long with dh doctor. He is a great Rheumy who we love! He eased my mind quite a bit. So any tips or insite on Humira would be great Hang out here anytime you need a friend, an ear, a hug (((((cyber hugs)))))....we are all in this together, like one big family! Im happy to meet you. I am Joe's wife, . I try and research and learn all I can about this. Some of these folks have been there/done that many times over and can give some great input! Welcome!!! Chat anytime...we gotta keep the list alive anyway...lol (and Joe...in PA) [ ] Re: in search of a friend or two > > > > >> >> Greting to you all. I am new to this site..Mye-name is >> " squarehead " (I am Norwegian),and my name is Ken. >> I am 52, and married to a wonderful woman, who tries >> her best to be a support to me, but we have had a >> " roke reversal " : I used to be the breadwinner, and she >> stayed at home..not anymore. I am a twenty year >> trucker, never had an accident, or a ticket, but last >> October, I awoke, on a run to Pipestone, Mn. to hands >> so swollen,they looked like sausages! I could hardly >> bend my legs, and I called my honey, and asked her to >> meet me in Knoxville, Tn. and take me to the >> hospital.(I live in Asheville, N.C., and Ryder, who I >> worked for, was located there.) >> I spent days and days in the hospital, and they >> diagnosed me with severe R.A., affecting nearly every >> joint in my body. >> My company, who I worked for, for many years just >> up and abandoned me. What good is a trucker to them, >> who can no longer drive? >> When you're a ttrucker, you don't have much of a >> social life, and very few chances to make friends, >> bedause you are on the road all the time...so here I >> sit, day after day,in my wheelchair, wishing I had >> someone to talk with, someone who knows of the pain I >> live with day after day. I give myself two injections >> of Methotrexate every Tuesday,to total 80 units, and >> an injections of Humira every Sat. On top of that, I >> must take Folic acid, Mobic, and >> antidepressents...this in addition to the Meds I must >> take for high blood pressure. >> The state was nice enough to see that they built a >> thirty foot wheelchair ramp, and deck for me, and >> provided a power wheelchair for me,because I have >> " trigger finger " , and cannot use my hands well, >> anymore. Unfortunatly, I have no way to get around, >> because my disability checks aren't enough to buy a >> van I can put the chair in. >> So , here I sit. Is there anyone out there who will >> e-mail me, anyone I can talk to, and be friends with? >> Do any one of you feel inclined to be a friend to >> me? God Bless you all, and may your hurting diminish! >> >> Love, ken >> >> __________________________________________________ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 Hey Ken---you found the right place This is a great bunch of folks who are here for each other thru good times and rough times. My dh (35) has RA, OA for apporx 5 years altho the symptoms were probably there prior--we just didnt know them. He just started Humira since his Enbrel seemed to not work anymore. How long have you been on Humira? I was concerned about the cancer risk with Humira so we talked long with dh doctor. He is a great Rheumy who we love! He eased my mind quite a bit. So any tips or insite on Humira would be great Hang out here anytime you need a friend, an ear, a hug (((((cyber hugs)))))....we are all in this together, like one big family! Im happy to meet you. I am Joe's wife, . I try and research and learn all I can about this. Some of these folks have been there/done that many times over and can give some great input! Welcome!!! Chat anytime...we gotta keep the list alive anyway...lol (and Joe...in PA) [ ] Re: in search of a friend or two > > > > >> >> Greting to you all. I am new to this site..Mye-name is >> " squarehead " (I am Norwegian),and my name is Ken. >> I am 52, and married to a wonderful woman, who tries >> her best to be a support to me, but we have had a >> " roke reversal " : I used to be the breadwinner, and she >> stayed at home..not anymore. I am a twenty year >> trucker, never had an accident, or a ticket, but last >> October, I awoke, on a run to Pipestone, Mn. to hands >> so swollen,they looked like sausages! I could hardly >> bend my legs, and I called my honey, and asked her to >> meet me in Knoxville, Tn. and take me to the >> hospital.(I live in Asheville, N.C., and Ryder, who I >> worked for, was located there.) >> I spent days and days in the hospital, and they >> diagnosed me with severe R.A., affecting nearly every >> joint in my body. >> My company, who I worked for, for many years just >> up and abandoned me. What good is a trucker to them, >> who can no longer drive? >> When you're a ttrucker, you don't have much of a >> social life, and very few chances to make friends, >> bedause you are on the road all the time...so here I >> sit, day after day,in my wheelchair, wishing I had >> someone to talk with, someone who knows of the pain I >> live with day after day. I give myself two injections >> of Methotrexate every Tuesday,to total 80 units, and >> an injections of Humira every Sat. On top of that, I >> must take Folic acid, Mobic, and >> antidepressents...this in addition to the Meds I must >> take for high blood pressure. >> The state was nice enough to see that they built a >> thirty foot wheelchair ramp, and deck for me, and >> provided a power wheelchair for me,because I have >> " trigger finger " , and cannot use my hands well, >> anymore. Unfortunatly, I have no way to get around, >> because my disability checks aren't enough to buy a >> van I can put the chair in. >> So , here I sit. Is there anyone out there who will >> e-mail me, anyone I can talk to, and be friends with? >> Do any one of you feel inclined to be a friend to >> me? God Bless you all, and may your hurting diminish! >> >> Love, ken >> >> __________________________________________________ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 Hi Ken, I am so sorry I am getting back to you so late!!! I have just been so ill lately. I am so sorry you have been so ill yourself! I know what it is like to sit there and want to talk to someone and then to sit there and not understand why this happened to you!!! And our poor husband's and wives!!!!! My prayer's go out to them because they didn't expect us to get sick either. So consider me you new sister ok?? My name is and my maiden name was Swedish!! LUNDBERG, how much more swede can you get than that!! I am 46 years old and have been married to my hubby (the love of my life) for less than two years. My first marriage I was much too young, I was 18 and the best thing that came out of it was my daughter Corri who is giving us a granddaughter in April!! We live in Michigan on a small farm. I have RA, Sjogren's, fibromyalgia, hypothyroidism, and bipolarism. My bipolar has been in control for years though. I just got off the methotrexate that the Rheumatologis almost killed me on. I went into seizures and muscles and could not wake up. She did not know how to give it correctly. I go for a MRI on Thursday. I fall a lot. I have fallen own the steps a few times (basement) I lose my balance all the time. It scares me because both my parents have had 3 mini strokes. And about 4 years ago married to a very abusive 2nd husband he gave me two head injuries. One morning I was in the car with him when I just stopped breathing for no reason. I had taken no overdoses or no pills, he had to call life support on the road. I woke up on life support in the Intensive care unit. The injuries he gave me were at the back of my head. I could now be dealing with some small bleeders back there. UGH I am too young to deal with this and so are you and your wife!!!!!! Did they say you will regain the use of your legs??? Do you get phisical therepists come to your house to help you?? See what the RA association of america can help you since it's a private agency and gets it money from the private sector. It may help you with a van I'll do some research for you ok? Sorry to talk you to death!! Ken you rest so you get better, and go into remisson ya hear???? Hugs Nan JANE <janeatregis@...> wrote: > > Greting to you all. I am new to this site..Mye-name is > " squarehead " (I am Norwegian),and my name is Ken. > I am 52, and married to a wonderful woman, who tries > her best to be a support to me, but we have had a > " roke reversal " : I used to be the breadwinner, and she > stayed at home..not anymore. I am a twenty year > trucker, never had an accident, or a ticket, but last > October, I awoke, on a run to Pipestone, Mn. to hands > so swollen,they looked like sausages! I could hardly > bend my legs, and I called my honey, and asked her to > meet me in Knoxville, Tn. and take me to the > hospital.(I live in Asheville, N.C., and Ryder, who I > worked for, was located there.) > I spent days and days in the hospital, and they > diagnosed me with severe R.A., affecting nearly every > joint in my body. > My company, who I worked for, for many years just > up and abandoned me. What good is a trucker to them, > who can no longer drive? > When you're a ttrucker, you don't have much of a > social life, and very few chances to make friends, > bedause you are on the road all the time...so here I > sit, day after day,in my wheelchair, wishing I had > someone to talk with, someone who knows of the pain I > live with day after day. I give myself two injections > of Methotrexate every Tuesday,to total 80 units, and > an injections of Humira every Sat. On top of that, I > must take Folic acid, Mobic, and > antidepressents...this in addition to the Meds I must > take for high blood pressure. > The state was nice enough to see that they built a > thirty foot wheelchair ramp, and deck for me, and > provided a power wheelchair for me,because I have > " trigger finger " , and cannot use my hands well, > anymore. Unfortunatly, I have no way to get around, > because my disability checks aren't enough to buy a > van I can put the chair in. > So , here I sit. Is there anyone out there who will > e-mail me, anyone I can talk to, and be friends with? > Do any one of you feel inclined to be a friend to > me? God Bless you all, and may your hurting diminish! > > Love, ken > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 Hi Ken, I am so sorry I am getting back to you so late!!! I have just been so ill lately. I am so sorry you have been so ill yourself! I know what it is like to sit there and want to talk to someone and then to sit there and not understand why this happened to you!!! And our poor husband's and wives!!!!! My prayer's go out to them because they didn't expect us to get sick either. So consider me you new sister ok?? My name is and my maiden name was Swedish!! LUNDBERG, how much more swede can you get than that!! I am 46 years old and have been married to my hubby (the love of my life) for less than two years. My first marriage I was much too young, I was 18 and the best thing that came out of it was my daughter Corri who is giving us a granddaughter in April!! We live in Michigan on a small farm. I have RA, Sjogren's, fibromyalgia, hypothyroidism, and bipolarism. My bipolar has been in control for years though. I just got off the methotrexate that the Rheumatologis almost killed me on. I went into seizures and muscles and could not wake up. She did not know how to give it correctly. I go for a MRI on Thursday. I fall a lot. I have fallen own the steps a few times (basement) I lose my balance all the time. It scares me because both my parents have had 3 mini strokes. And about 4 years ago married to a very abusive 2nd husband he gave me two head injuries. One morning I was in the car with him when I just stopped breathing for no reason. I had taken no overdoses or no pills, he had to call life support on the road. I woke up on life support in the Intensive care unit. The injuries he gave me were at the back of my head. I could now be dealing with some small bleeders back there. UGH I am too young to deal with this and so are you and your wife!!!!!! Did they say you will regain the use of your legs??? Do you get phisical therepists come to your house to help you?? See what the RA association of america can help you since it's a private agency and gets it money from the private sector. It may help you with a van I'll do some research for you ok? Sorry to talk you to death!! Ken you rest so you get better, and go into remisson ya hear???? Hugs Nan JANE <janeatregis@...> wrote: > > Greting to you all. I am new to this site..Mye-name is > " squarehead " (I am Norwegian),and my name is Ken. > I am 52, and married to a wonderful woman, who tries > her best to be a support to me, but we have had a > " roke reversal " : I used to be the breadwinner, and she > stayed at home..not anymore. I am a twenty year > trucker, never had an accident, or a ticket, but last > October, I awoke, on a run to Pipestone, Mn. to hands > so swollen,they looked like sausages! I could hardly > bend my legs, and I called my honey, and asked her to > meet me in Knoxville, Tn. and take me to the > hospital.(I live in Asheville, N.C., and Ryder, who I > worked for, was located there.) > I spent days and days in the hospital, and they > diagnosed me with severe R.A., affecting nearly every > joint in my body. > My company, who I worked for, for many years just > up and abandoned me. What good is a trucker to them, > who can no longer drive? > When you're a ttrucker, you don't have much of a > social life, and very few chances to make friends, > bedause you are on the road all the time...so here I > sit, day after day,in my wheelchair, wishing I had > someone to talk with, someone who knows of the pain I > live with day after day. I give myself two injections > of Methotrexate every Tuesday,to total 80 units, and > an injections of Humira every Sat. On top of that, I > must take Folic acid, Mobic, and > antidepressents...this in addition to the Meds I must > take for high blood pressure. > The state was nice enough to see that they built a > thirty foot wheelchair ramp, and deck for me, and > provided a power wheelchair for me,because I have > " trigger finger " , and cannot use my hands well, > anymore. Unfortunatly, I have no way to get around, > because my disability checks aren't enough to buy a > van I can put the chair in. > So , here I sit. Is there anyone out there who will > e-mail me, anyone I can talk to, and be friends with? > Do any one of you feel inclined to be a friend to > me? God Bless you all, and may your hurting diminish! > > Love, ken > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Hi Ken: This is from . Sorry I haven't written but my computer bust on me and I had to get a new one or say good bye to all my friends. I was trying to install a hard disk and it blew out the power supply. It had other things wrong too so they said it would cost $200. to fix with no guarantee it would work. So I decided to put that money towards a new tower. It is very nice but it is XP and I had windows 98 so I have to get used to the differences. Take care. Sincerely, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Hi Ken: This is from . Sorry I haven't written but my computer bust on me and I had to get a new one or say good bye to all my friends. I was trying to install a hard disk and it blew out the power supply. It had other things wrong too so they said it would cost $200. to fix with no guarantee it would work. So I decided to put that money towards a new tower. It is very nice but it is XP and I had windows 98 so I have to get used to the differences. Take care. Sincerely, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Greetings...I'm sorry it has taken so long to get back to you...my computer was down but good! I just now got it up again. Thank you for your sweet reply to me. You brightened up my whole week! And I would be highly honored to be able to consider you a " big sister " . It means so much to me! I am a rather " sensitive " person, a writewr, a poet, an artist, and much of my life I have felt that " I just don't fit in! " I've watched how males act, and for the life of me, I cannot figure out their thought processes, what makes the " majority " of them so insensitive, selfish, and uncaring!(NO, I am NOT gay!) but I have been accused of it, along with other un-niceties! I guess I feel too much love too easily, and give too much! Oh well, I LIKE who I am, ( and so do all the kids I meet! Thank you, big sister! I long to hear from you again, and you have the feelings from my heart,like lazy clouds stopping for a rest on the tops of the mountains I live in....it's a restful feeling. love...ken --- <nanday_blue@...> wrote: > > Hi Ken, > > I am so sorry I am getting back to you so late!!! I > have just been so ill lately. I am so sorry you > have been so ill yourself! I know what it is like > to sit there and want to talk to someone and then to > sit there and not understand why this happened to > you!!! And our poor husband's and wives!!!!! My > prayer's go out to them because they didn't expect > us to get sick either. So consider me you new > sister ok?? My name is and my maiden name was > Swedish!! > LUNDBERG, how much more swede can you get than > that!! > I am 46 years old and have been married to my hubby > (the love of my life) for less than two years. > My first marriage I was much too young, I was 18 > and the best thing that came out of it was my > daughter Corri who is giving us a granddaughter in > April!! We live in Michigan on a small farm. I > have RA, Sjogren's, fibromyalgia, hypothyroidism, > and bipolarism. My bipolar has been in control for > years though. > I just got off the methotrexate that the > Rheumatologis almost killed me on. I went into > seizures and muscles and could not wake up. She did > not know how to give it correctly. > I go for a MRI on Thursday. I fall a lot. I have > fallen own the steps a few times (basement) I lose > my balance all the time. It scares me because both > my parents have had 3 mini strokes. > And about 4 years ago married to a very abusive 2nd > husband he gave me two head injuries. > One morning I was in the car with him when I just > stopped breathing for no reason. I had taken no > overdoses or no pills, he had to call life support > on the road. I woke up on life support in the > Intensive care unit. The injuries he gave me were > at the back of my head. I could now be dealing with > some small bleeders back there. UGH I am too young > to deal with this and so are you and your wife!!!!!! > > Did they say you will regain the use of your legs??? > Do you get phisical therepists come to your house > to help you?? See what the RA association of > america can help you since it's a private agency and > gets it money from the private sector. It may help > you with a van > > I'll do some research for you ok? > > Sorry to talk you to death!! > Ken you rest so you get better, and go into remisson > ya hear???? > Hugs > Nan > > JANE <janeatregis@...> wrote: > > > > > > > Greting to you all. I am new to this > site..Mye-name is > > " squarehead " (I am Norwegian),and my name is Ken. > > I am 52, and married to a wonderful woman, who > tries > > her best to be a support to me, but we have had a > > " roke reversal " : I used to be the breadwinner, and > she > > stayed at home..not anymore. I am a twenty year > > trucker, never had an accident, or a ticket, but > last > > October, I awoke, on a run to Pipestone, Mn. to > hands > > so swollen,they looked like sausages! I could > hardly > > bend my legs, and I called my honey, and asked her > to > > meet me in Knoxville, Tn. and take me to the > > hospital.(I live in Asheville, N.C., and Ryder, > who I > > worked for, was located there.) > > I spent days and days in the hospital, and they > > diagnosed me with severe R.A., affecting nearly > every > > joint in my body. > > My company, who I worked for, for many years > just > > up and abandoned me. What good is a trucker to > them, > > who can no longer drive? > > When you're a ttrucker, you don't have much of > a > > social life, and very few chances to make friends, > > bedause you are on the road all the time...so here > I > > sit, day after day,in my wheelchair, wishing I had > > someone to talk with, someone who knows of the > pain I > > live with day after day. I give myself two > injections > > of Methotrexate every Tuesday,to total 80 units, > and > > an injections of Humira every Sat. On top of that, > I > > must take Folic acid, Mobic, and > > antidepressents...this in addition to the Meds I > must > > take for high blood pressure. > > The state was nice enough to see that they built > a > > thirty foot wheelchair ramp, and deck for me, and > > provided a power wheelchair for me,because I have > > " trigger finger " , and cannot use my hands well, > > anymore. Unfortunatly, I have no way to get > around, > > because my disability checks aren't enough to buy > a > > van I can put the chair in. > > So , here I sit. Is there anyone out there who > will > > e-mail me, anyone I can talk to, and be friends > with? > > Do any one of you feel inclined to be a friend > to > > me? God Bless you all, and may your hurting > diminish! > > > > Love, ken > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Greetings...I'm sorry it has taken so long to get back to you...my computer was down but good! I just now got it up again. Thank you for your sweet reply to me. You brightened up my whole week! And I would be highly honored to be able to consider you a " big sister " . It means so much to me! I am a rather " sensitive " person, a writewr, a poet, an artist, and much of my life I have felt that " I just don't fit in! " I've watched how males act, and for the life of me, I cannot figure out their thought processes, what makes the " majority " of them so insensitive, selfish, and uncaring!(NO, I am NOT gay!) but I have been accused of it, along with other un-niceties! I guess I feel too much love too easily, and give too much! Oh well, I LIKE who I am, ( and so do all the kids I meet! Thank you, big sister! I long to hear from you again, and you have the feelings from my heart,like lazy clouds stopping for a rest on the tops of the mountains I live in....it's a restful feeling. love...ken --- <nanday_blue@...> wrote: > > Hi Ken, > > I am so sorry I am getting back to you so late!!! I > have just been so ill lately. I am so sorry you > have been so ill yourself! I know what it is like > to sit there and want to talk to someone and then to > sit there and not understand why this happened to > you!!! And our poor husband's and wives!!!!! My > prayer's go out to them because they didn't expect > us to get sick either. So consider me you new > sister ok?? My name is and my maiden name was > Swedish!! > LUNDBERG, how much more swede can you get than > that!! > I am 46 years old and have been married to my hubby > (the love of my life) for less than two years. > My first marriage I was much too young, I was 18 > and the best thing that came out of it was my > daughter Corri who is giving us a granddaughter in > April!! We live in Michigan on a small farm. I > have RA, Sjogren's, fibromyalgia, hypothyroidism, > and bipolarism. My bipolar has been in control for > years though. > I just got off the methotrexate that the > Rheumatologis almost killed me on. I went into > seizures and muscles and could not wake up. She did > not know how to give it correctly. > I go for a MRI on Thursday. I fall a lot. I have > fallen own the steps a few times (basement) I lose > my balance all the time. It scares me because both > my parents have had 3 mini strokes. > And about 4 years ago married to a very abusive 2nd > husband he gave me two head injuries. > One morning I was in the car with him when I just > stopped breathing for no reason. I had taken no > overdoses or no pills, he had to call life support > on the road. I woke up on life support in the > Intensive care unit. The injuries he gave me were > at the back of my head. I could now be dealing with > some small bleeders back there. UGH I am too young > to deal with this and so are you and your wife!!!!!! > > Did they say you will regain the use of your legs??? > Do you get phisical therepists come to your house > to help you?? See what the RA association of > america can help you since it's a private agency and > gets it money from the private sector. It may help > you with a van > > I'll do some research for you ok? > > Sorry to talk you to death!! > Ken you rest so you get better, and go into remisson > ya hear???? > Hugs > Nan > > JANE <janeatregis@...> wrote: > > > > > > > Greting to you all. I am new to this > site..Mye-name is > > " squarehead " (I am Norwegian),and my name is Ken. > > I am 52, and married to a wonderful woman, who > tries > > her best to be a support to me, but we have had a > > " roke reversal " : I used to be the breadwinner, and > she > > stayed at home..not anymore. I am a twenty year > > trucker, never had an accident, or a ticket, but > last > > October, I awoke, on a run to Pipestone, Mn. to > hands > > so swollen,they looked like sausages! I could > hardly > > bend my legs, and I called my honey, and asked her > to > > meet me in Knoxville, Tn. and take me to the > > hospital.(I live in Asheville, N.C., and Ryder, > who I > > worked for, was located there.) > > I spent days and days in the hospital, and they > > diagnosed me with severe R.A., affecting nearly > every > > joint in my body. > > My company, who I worked for, for many years > just > > up and abandoned me. What good is a trucker to > them, > > who can no longer drive? > > When you're a ttrucker, you don't have much of > a > > social life, and very few chances to make friends, > > bedause you are on the road all the time...so here > I > > sit, day after day,in my wheelchair, wishing I had > > someone to talk with, someone who knows of the > pain I > > live with day after day. I give myself two > injections > > of Methotrexate every Tuesday,to total 80 units, > and > > an injections of Humira every Sat. On top of that, > I > > must take Folic acid, Mobic, and > > antidepressents...this in addition to the Meds I > must > > take for high blood pressure. > > The state was nice enough to see that they built > a > > thirty foot wheelchair ramp, and deck for me, and > > provided a power wheelchair for me,because I have > > " trigger finger " , and cannot use my hands well, > > anymore. Unfortunatly, I have no way to get > around, > > because my disability checks aren't enough to buy > a > > van I can put the chair in. > > So , here I sit. Is there anyone out there who > will > > e-mail me, anyone I can talk to, and be friends > with? > > Do any one of you feel inclined to be a friend > to > > me? God Bless you all, and may your hurting > diminish! > > > > Love, ken > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
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