Re: Just Joined In

[Guest guest]

Hi . Welcome. I have dealt with RA for a long time too. I was in my

late teens/early 20's when RA was first suspected. Lot more they can do about

things now. In addition to this site - you might be interested in Arthritis

INsights chat room for people with Juvenille Rheumatoid - JRA.

Hugs and welcome.

> Hi, my name is and I was diagnosed with RA when I was 15.

> I'm now 21 and they thought I had a shot at being in remmission but

> I flared up again. It was upsetting so now I'm looking to talk to

> people who might understand. I've been on Enbrel for about 3 or 4

> years and was on a mixture of indocine, methotrexate and prednisone

> for awhile before that. Just looking for support and maybe some

> extra info.

>

> Thanks

>

>

>

>

>

>

[Guest guest]

Welcome , I hope that you enjoy the group. I'm sorry about

the RA, and hope it goes into remission soon for you. Is the meds

helping at all? We have all ages here, but there are a lot of young

ladies, so I think that will be cool for you:)

Us old folks are here too,lol You have a good day, and hope to hear

more about you soon, hugs Tawny

> Hi, my name is and I was diagnosed with RA when I was

15.

> I'm now 21 and they thought I had a shot at being in remmission but

> I flared up again. It was upsetting so now I'm looking to talk to

> people who might understand. I've been on Enbrel for about 3 or 4

> years and was on a mixture of indocine, methotrexate and prednisone

> for awhile before that. Just looking for support and maybe some

> extra info.

>

> Thanks

[Guest guest]

Hi , and welcome to the group. It's a wonderful group of caring,

supportive, understanding, empathetic and witty people. The group leaders are

fantastic, and send in lots of great information.

I'm Jo, in my 50's, married with grown children, 3 grandchildren and1 doggy.

We live in Illinois 30 miles south of Chicago just a few miles from the Indiana

border.

My main problems are RA, OA, IA, DDD, AS and fibro. Can't take any of the

meds for arthritis except prednisone. So it's that with muscle relaxers and

painkillers.

I'm sorry to hear you're flaring up again. But glad you found this great

group. Just jump right in anywhere. I'm looking forward to getting to know you

better.

Welcoming hugs,

Dix

[ ] Just Joined In

Hi, my name is and I was diagnosed with RA when I was 15.

I'm now 21 and they thought I had a shot at being in remmission but

I flared up again. It was upsetting so now I'm looking to talk to

people who might understand. I've been on Enbrel for about 3 or 4

years and was on a mixture of indocine, methotrexate and prednisone

for awhile before that. Just looking for support and maybe some

extra info.

Thanks

[Guest guest]

Hi,

I also just joined this list. The list I have been on belives only in

antibiotic treatment. I did well on that for about 11 years but this past

year the antibiotics are not working as well and I needed to find people who

are being helped my other meds. I'm still hoping the antibiotics will kick

in, but if not, I know there are other meds.

Thanks,

ette

[Guest guest]

Welcome to the group, ette!

Are you on minocycline? How much? Anything else?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Just Joined In

> Hi,

>

> I also just joined this list. The list I have been on belives only in

> antibiotic treatment. I did well on that for about 11 years but this

past

> year the antibiotics are not working as well and I needed to find

people who

> are being helped my other meds. I'm still hoping the antibiotics will

kick

> in, but if not, I know there are other meds.

>

> Thanks,

> ette

[Guest guest]

Hi ,

I am on minocycline 100 mg in the AM and doxycyline 100 mg in the PM. I

also take bextra or naprosyn and 4 mg of prednisone. I am still stiff in

the AM but I am doing a little better now. I had been thinking of trying

enbrel or something else, but I don't think I need it now.

What are you taking and how do you feel?

ette

[Guest guest]

Hi ette, Welcome to the group!

--- In , " Warren Portnoy " <wport@c...>

wrote:

> Hi,

>

> I also just joined this list. The list I have been on belives only

in

> antibiotic treatment. I did well on that for about 11 years but

this past

> year the antibiotics are not working as well and I needed to find

people who

> are being helped my other meds. I'm still hoping the antibiotics

will kick

> in, but if not, I know there are other meds.

>

> Thanks,

> ette

[Guest guest]

Hi ette, and welcome to the group.

It's a wonderful group of understanding, informative, empathetic, and witty

people, with two of the best moderators anywhere.

I'm Dix, have several types of arthritis. I tried antibiotic therapy, but

it didn't do anything for me. There are lots of meds on the market, so you

should be able to find a good one.

Do you have a good rheumatologist? Sometimes, I think that's half the

battle!

Dix

Re: [ ] Just Joined In

Hi,

I also just joined this list. The list I have been on belives only in

antibiotic treatment. I did well on that for about 11 years but this past

year the antibiotics are not working as well and I needed to find people who

are being helped my other meds. I'm still hoping the antibiotics will kick

in, but if not, I know there are other meds.

Thanks,

ette

[Guest guest]

Hi Dix,

Thanks for your warm welcome. I will be on vacation next week so I won't be

near my computer.

What meds are you taking for your RA? Are you worried at all about the side

effects?

I have a good rheumatologist. He's in Watchung, NJ. He believes in the

antibiotic treatments but other meds as well.

Thanks,

ette

[Guest guest]

ette,

You may have read in another post that I'm allergic to or have serious side

effects for all meds for arthritis, with the exception of prednisone, which I

take on an as needed basis. After that, it's painkillers.

I'm not worried about the side effects because I don't take them regularly,

and also drink tons of water each day.

Dix

Re: [ ] Just Joined In

Hi Dix,

Thanks for your warm welcome. I will be on vacation next week so I won't be

near my computer.

What meds are you taking for your RA? Are you worried at all about the side

effects?

I have a good rheumatologist. He's in Watchung, NJ. He believes in the

antibiotic treatments but other meds as well.

Thanks,

ette

[Guest guest]

In a message dated 1/3/2006 5:30:54 PM Central Standard Time,

peggylm20@... writes:

Hi to all, my name is Peggy and I am 46 years old. I was diagnosed

with RA in 1996, but until recently felt pretty good.

I have been on methotrexate since Oct. 2005 and am not sure if I feel

any better. Is anyone else taking this and if so how are you feeling?

I feel all alone with this and am looking for someone to talk to about

it. My husband and children are very supportive, but I don't think

they truly understand the daily pain. If you can help, I would love to

hear from you.

Hi Peggy! Welcome. I was taking Mtx for a while and it seemed to slowly stop

working. My rheuumy added Humira and i have seen great improvement. Since i

was doing so well she reduced my dosage from 6pills to 4...Well Being a busy

mom of 2 young kids, I stopped taking it simply because i forgot. Huge

mistake. I have had flare ups like i've never had before these past weeks. Even

if

the medicine dosent seem to be working still take it. Ask your doctor next

time about it. Might be time to up the dosage or try a different medicine all

together. hugs

[Guest guest]

Hi Peggy welcome to the group.

I am 48 , dx about 1999, shortly after the death of my younger brother.

I ad a good rheumy doc now, I take humeria. and ultracet for pain, I was

taking mobic, but had a reaction, so now back on predisone at least until

February when I see the doctor,

I live in Wisconsin, and I also have joined this group to have someone to talk

to,

You will find lots of support here. If you wish my email is

bizzare48@...

in WI

N2kids@... wrote:

In a message dated 1/3/2006 5:30:54 PM Central Standard Time,

peggylm20@... writes:

Hi to all, my name is Peggy and I am 46 years old. I was diagnosed

with RA in 1996, but until recently felt pretty good.

I have been on methotrexate since Oct. 2005 and am not sure if I feel

any better. Is anyone else taking this and if so how are you feeling?

I feel all alone with this and am looking for someone to talk to about

it. My husband and children are very supportive, but I don't think

they truly understand the daily pain. If you can help, I would love to

hear from you.

Hi Peggy! Welcome. I was taking Mtx for a while and it seemed to slowly stop

working. My rheuumy added Humira and i have seen great improvement. Since i

was doing so well she reduced my dosage from 6pills to 4...Well Being a busy

mom of 2 young kids, I stopped taking it simply because i forgot. Huge

mistake. I have had flare ups like i've never had before these past weeks. Even

if

the medicine dosent seem to be working still take it. Ask your doctor next

time about it. Might be time to up the dosage or try a different medicine all

together. hugs

[Guest guest]

Peggy,

Welcome to the group. I take methrotrexate and enbrel.

It took several months for me to see any results. But

when I did it was good. I could move my shoulders in

the mornings. You will find a lot of helpful info

here. And everyone is very supportive. I hope you feel

better soon.

Beth in AR

--- peggylm20 <peggylm20@...> wrote:

> Hi to all, my name is Peggy and I am 46 years old. I

> was diagnosed

> with RA in 1996, but until recently felt pretty

> good.

> I have been on methotrexate since Oct. 2005 and am

> not sure if I feel

> any better. Is anyone else taking this and if so how

> are you feeling?

> I feel all alone with this and am looking for

> someone to talk to about

> it. My husband and children are very supportive, but

> I don't think

> they truly understand the daily pain. If you can

> help, I would love to

> hear from you.

>

>

>

>

>

>

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