Re: Re: The National Databank for Rheumatic Diseases

[Guest guest]

Me too.

Becky

[ ] Re: The National Databank for Rheumatic Diseases

Hi Sue, I just signed up with it, and waiting for my packet.

> I wonder if anyone on the list participates in the National

Databank

> for Rheumatic Diseases, as I do. I don't remember anyone ever

> mentioning it. This is their mission:

>

> " The National Databank for Rheumatic Diseases (NDB) performs unique

> clinical research in rheumatoid arthritis, osteoarthritis,

fibromyalgia

> and other rheumatic diseases, designed to improve the treatment and

> outcomes of these conditions. "

>

> Some of the articles that and a send mention Dr. Frederick

> Wolf, who is in charge.

>

> They also say the following:

>

> " We need your help if you have any form of arthritis (such as

> rheumatoid arthritis, osteoarthritis, psoriatic arthritis,

ankylosing

> spondylitis, gout, and all other forms) or muscle pain and back

> problems (such as back pain, shoulder pain, fibromyalgia, and

others)

> or immunological disorders (such as lupus, polymyositis,

vasculitis,

> and others), or any other condition for which you would see a

> rheumatologist or joint specialist. See the patient resources pages

for

> how you can help improve the treatment and outcomes of rheumatic

> diseases. "

>

> What it involves if you join is the filling out of a quite long

> questionnaire about your rheumatic disease, the medications you

take,

> how it affects you, etc. You can fill out the questionnaire online,

> which makes it a lot easier. You fill out a new one every six

months,

> but it's just a matter of editing the last one you did if you do it

> online. And you don't have to fill it all out at one time; you can

quit

> and come back another day.

>

> I like to do it because it enables me to participate in research

into

> rheumatic diseases.

>

> If you'd like to participate, here is the URL:

>

> https://www.arthritis-research.org/

>

> Sue