Re: Hello , New to this group

[Guest guest]

hello debbie and welcome to the group, my name is rosa and i am also

50 yrs old. I have RA, OA, and degenerative arthritis on my lower

back. I think that you you should ask your doc for the referral to

a rheumy, you might have to move if there isn't one near you. It is

very important for you to treat the RA and the rest of the stuff you

have. If you can't move you at least have to let your doc know

exactly how you feel sometimes you need to scream to get heard.

Hope you get the courage to stand up and say (HEY I AM IN PAIN)

I will keep you in my prayers, hope you get what you needs.

Hugs ROSA

> I'm Debbie and i am 50 yrs old with rha,sle lupus,hypothyroid

disease

> and hopefully thats it as far as the big stuff goes, lol. I have

been

> reading some of the posts in here and have been wondering

> something..How do you get your Doctors to hear you ? I live in

> Western NY state and there are no rhuemys here at all and i

> travelled 60 miles to one and she has moved away. i was dx 2 years

> ago and it has been the worst 2 years of my life so far.my pcp

will

> not give me pain meds at all nor would she refill any scripts i

had

> left from the rhuemy . so, for the past 6-8 months i have been on

> nothing for lupus or rha. if i went to the er they gave me pain

> killers but , short term like for 10 days. anyhow, i got cycsts

> behind my knee and my heels are swelling up and very painful. i

have

> not had shoes on in months now.i have an air brace to wear that

helps

> some with my knee. saw a ortho surgeon and he told me the cyst

broke

> while they were doing a test but, now the pain is back.and who

knows

> what the deal is with the backs of my feet. i have never heard of

> anyone ever having that....things are just so hard most days that

i

> think crazy thoughts. its hard to believe my life has changed so

much

> alreay. i am waiting for an answer on an appeal for ssi too. but ,

> i'm just tired of trying to get around and take a bath which helps

so

> much except for time to get out , lol/ sorry so long .........if

> anyone has this foot thing , please let me know .........

[Guest guest]

Hi Debbie,

Welcome to the group,

I'm Judi, 58, Dercum's disease, (will explain that one later)FM, post

polio, and recently hypothyroid. I thought living in a small town in

southern Indiana made medical care difficult, but guess you've got me

beat! You're definitely going to have to take a stand for yourself

and insist on proper care. It's not acceptable to say that they will

not treat your pain! Do you have insurance? If you have to work in

network, maybe they can refer you to another physician in the network

who will treat you properly. If you don't have to work within the

network, call around until you find someone who will work with you.

I'm sure other members of this group will have some good ideas for

you!

Judi

[Guest guest]

Welcome to the group, Debbie!

> I'm Debbie and i am 50 yrs old with rha,sle lupus,hypothyroid

disease

> and hopefully thats it as far as the big stuff goes, lol. I have

been

> reading some of the posts in here and have been wondering

> something..How do you get your Doctors to hear you ? I live in

> Western NY state and there are no rhuemys here at all and i

> travelled 60 miles to one and she has moved away. i was dx 2 years

> ago and it has been the worst 2 years of my life so far.my pcp will

> not give me pain meds at all nor would she refill any scripts i had

> left from the rhuemy . so, for the past 6-8 months i have been on

> nothing for lupus or rha. if i went to the er they gave me pain

> killers but , short term like for 10 days. anyhow, i got cycsts

> behind my knee and my heels are swelling up and very painful. i

have

> not had shoes on in months now.i have an air brace to wear that

helps

> some with my knee. saw a ortho surgeon and he told me the cyst

broke

> while they were doing a test but, now the pain is back.and who

knows

> what the deal is with the backs of my feet. i have never heard of

> anyone ever having that....things are just so hard most days that i

> think crazy thoughts. its hard to believe my life has changed so

much

> alreay. i am waiting for an answer on an appeal for ssi too. but ,

> i'm just tired of trying to get around and take a bath which helps

so

> much except for time to get out , lol/ sorry so long .........if

> anyone has this foot thing , please let me know .........