Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 I'm Debbie and i am 50 yrs old with rha,sle lupus,hypothyroid disease and hopefully thats it as far as the big stuff goes, lol. I have been reading some of the posts in here and have been wondering something..How do you get your Doctors to hear you ? I live in Western NY state and there are no rhuemys here at all and i travelled 60 miles to one and she has moved away. i was dx 2 years ago and it has been the worst 2 years of my life so far.my pcp will not give me pain meds at all nor would she refill any scripts i had left from the rhuemy . so, for the past 6-8 months i have been on nothing for lupus or rha. if i went to the er they gave me pain killers but , short term like for 10 days. anyhow, i got cycsts behind my knee and my heels are swelling up and very painful. i have not had shoes on in months now.i have an air brace to wear that helps some with my knee. saw a ortho surgeon and he told me the cyst broke while they were doing a test but, now the pain is back.and who knows what the deal is with the backs of my feet. i have never heard of anyone ever having that....things are just so hard most days that i think crazy thoughts. its hard to believe my life has changed so much alreay. i am waiting for an answer on an appeal for ssi too. but , i'm just tired of trying to get around and take a bath which helps so much except for time to get out , lol/ sorry so long .........if anyone has this foot thing , please let me know ......... Quote Link to comment Share on other sites More sharing options...
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