Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Jan No wonder I haven't seen anything from you. I have always enjoyed your recipes and inspirational emails. And yes the funny ones too. LOL Sorry to hear you have been so sick. I am very happy to hear you are getting over the worst of it. Our immune systems just can't handle what a healthy person can handle and that if very frustrating. Glad you are back..... Hugs in Ct. -----Original Message----- From: Jan =^..^= [mailto:azmomacat2@...] <Snip snip> Hi everyone, Sorry, I haven't posted much but have been reading almost everyday and keeping up. I am just recovering from the worst case of pneumonia I have ever had in my life....the prior one this bad was in 1968 when I worked for the telephone company and the employees were on a nationwide strike and I missed all but just a few days of the strike. It has been just a little over 2 weeks now and I am finally beginning to feel like a human again. The only nice thing about it is that I have been able to be on the prednisone (only thing for me that kicks it) during this time and have about 5 days to go on it. The prednisone is the only drug that I have ever taken that can reduce my daily, normal pain level of a 5 to a 1 or nothing and it kicks in either the 2nd or 3rd day. I've told my doctor, it sure would be nice to be able to bottle the effects of the prednisone and take it daily but the risk is too great for me to take it regularly. Oh well, the story of my life...the golden apple is always just out of reach so settle for applesauce. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Jan No wonder I haven't seen anything from you. I have always enjoyed your recipes and inspirational emails. And yes the funny ones too. LOL Sorry to hear you have been so sick. I am very happy to hear you are getting over the worst of it. Our immune systems just can't handle what a healthy person can handle and that if very frustrating. Glad you are back..... Hugs in Ct. -----Original Message----- From: Jan =^..^= [mailto:azmomacat2@...] <Snip snip> Hi everyone, Sorry, I haven't posted much but have been reading almost everyday and keeping up. I am just recovering from the worst case of pneumonia I have ever had in my life....the prior one this bad was in 1968 when I worked for the telephone company and the employees were on a nationwide strike and I missed all but just a few days of the strike. It has been just a little over 2 weeks now and I am finally beginning to feel like a human again. The only nice thing about it is that I have been able to be on the prednisone (only thing for me that kicks it) during this time and have about 5 days to go on it. The prednisone is the only drug that I have ever taken that can reduce my daily, normal pain level of a 5 to a 1 or nothing and it kicks in either the 2nd or 3rd day. I've told my doctor, it sure would be nice to be able to bottle the effects of the prednisone and take it daily but the risk is too great for me to take it regularly. Oh well, the story of my life...the golden apple is always just out of reach so settle for applesauce. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Jan, I¹m sorry you¹ve been so sick. I think we all wish we could safely take prednisone. Maybe one day they will find a way to decrease the side effects so that we can enjoy the benefits. Here is som dysphagia info: dysphagia@...: This mail list provides a forum for professionals to discuss clinical cases and various topics related to swallowing and swallowing disorders. Archives of this mail list are now available on http://lists.dysphagia.com/cgi-bin/wilma/dysphagia/ This website has been designed especially for patients suffering from dysphagia, and their carers and physicians. As you go through the site, you will find areas tailored primarily to your area of expertise. This is not just a website ... it is a stepping stone onto lots of other websites related to this condition, sites which can be of use to patients, carers and physicians. http://www.dysphagiaonline.com/private/en/welcome.phtml?lang=en a > Hi everyone, > Sorry, I haven't posted much but have been reading almost everyday and keeping > up. > I am just recovering from the worst case of pneumonia I have ever had in my > life....the prior one this bad was in 1968 when I worked for the telephone > company and the employees were on a nationwide strike and I missed all but > just a few days of the strike. It has been just a little over 2 weeks now and > I am finally beginning to feel like a human again. The only nice thing about > it is that I have been able to be on the prednisone (only thing for me that > kicks it) during this time and have about 5 days to go on it. The prednisone > is the only drug that I have ever taken that can reduce my daily, normal pain > level of a 5 to a 1 or nothing and it kicks in either the 2nd or 3rd day. > I've told my doctor, it sure would be nice to be able to bottle the effects of > the prednisone and take it daily but the risk is too great for me to take it > regularly. Oh well, the story of my life...the golden apple is always just > out of reach so settle for applesauce. > and a...I need some help again on a subject if you have time. I need > to know about dyshagia and specifically...safe swallowing, taste, texture, > pressure, and temperature...and possibly experts in the field or support > groups. Thanking you in advance for all you do. You two are awesome. > We are getting spasmodic thunderstorms...maybe one a week. Don't envy you all > in the snow and continuous rain areas. I would be down more often than not or > housebound from October until Spring Thaw....have had to come to accept that. > Rained yesterday heavily and wouldn't you know it...my first real day out. > When I was in the ER for several hours on Sunday the week past, same > thing...thunderstorms. > It has been interesting to read about the Prosorba. Seems quite a few are > beginning to consider it. > Will close for now and leave my wishes with you all for painfree or nearly so > day and to say even though I am not posting regularly....I am here and my > thoughts and prayers are with you. > JAN in AZ (formerly of CA) =^..^= > > > > ~ " We all take different paths in life, but no matter where we go, we take a > little of each other everywhere. " ~ ~ " If I could reach up and hold a star for > every time you've made me smile, the entire evening sky would be in the palm > of my hand. " ~ > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Jan, I¹m sorry you¹ve been so sick. I think we all wish we could safely take prednisone. Maybe one day they will find a way to decrease the side effects so that we can enjoy the benefits. Here is som dysphagia info: dysphagia@...: This mail list provides a forum for professionals to discuss clinical cases and various topics related to swallowing and swallowing disorders. Archives of this mail list are now available on http://lists.dysphagia.com/cgi-bin/wilma/dysphagia/ This website has been designed especially for patients suffering from dysphagia, and their carers and physicians. As you go through the site, you will find areas tailored primarily to your area of expertise. This is not just a website ... it is a stepping stone onto lots of other websites related to this condition, sites which can be of use to patients, carers and physicians. http://www.dysphagiaonline.com/private/en/welcome.phtml?lang=en a > Hi everyone, > Sorry, I haven't posted much but have been reading almost everyday and keeping > up. > I am just recovering from the worst case of pneumonia I have ever had in my > life....the prior one this bad was in 1968 when I worked for the telephone > company and the employees were on a nationwide strike and I missed all but > just a few days of the strike. It has been just a little over 2 weeks now and > I am finally beginning to feel like a human again. The only nice thing about > it is that I have been able to be on the prednisone (only thing for me that > kicks it) during this time and have about 5 days to go on it. The prednisone > is the only drug that I have ever taken that can reduce my daily, normal pain > level of a 5 to a 1 or nothing and it kicks in either the 2nd or 3rd day. > I've told my doctor, it sure would be nice to be able to bottle the effects of > the prednisone and take it daily but the risk is too great for me to take it > regularly. Oh well, the story of my life...the golden apple is always just > out of reach so settle for applesauce. > and a...I need some help again on a subject if you have time. I need > to know about dyshagia and specifically...safe swallowing, taste, texture, > pressure, and temperature...and possibly experts in the field or support > groups. Thanking you in advance for all you do. You two are awesome. > We are getting spasmodic thunderstorms...maybe one a week. Don't envy you all > in the snow and continuous rain areas. I would be down more often than not or > housebound from October until Spring Thaw....have had to come to accept that. > Rained yesterday heavily and wouldn't you know it...my first real day out. > When I was in the ER for several hours on Sunday the week past, same > thing...thunderstorms. > It has been interesting to read about the Prosorba. Seems quite a few are > beginning to consider it. > Will close for now and leave my wishes with you all for painfree or nearly so > day and to say even though I am not posting regularly....I am here and my > thoughts and prayers are with you. > JAN in AZ (formerly of CA) =^..^= > > > > ~ " We all take different paths in life, but no matter where we go, we take a > little of each other everywhere. " ~ ~ " If I could reach up and hold a star for > every time you've made me smile, the entire evening sky would be in the palm > of my hand. " ~ > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2004 Report Share Posted November 17, 2004 Thank you, ...It is nice to know you are thinking of me. I still have my recipes and all, however, I tend more to send them out personally now as our family here has become more serious about what is going on in the auto-immune world and wanting to find out out more about those things. I am still gleaning information from the many things the family here post though and am following everyone through their lives. Our RA family is very close to my heart and since it was the first place I found in my search for learning more about myself, it is especially dear to me. I have made many friends within the family and feel that we will be friends for many, many years. Has anyone heard from Carol from FL? I have sent her emails since the Hurricanes and they have all come back auto-answer refering to the first one that went through and that they had sustained damage....but nothing more. I have been very concerned. I am both looking forward to the holidays and dreading them at the same time. Looking forward because of the traditions and the things associated with the season but dreading it because I tend to overdo phsycially and emotionally and pay for it either during or afterwards. Always say this year will be different, but it never is because I throw myself into the holidays with not wanting to miss a thing. I am working on two very personal gifts to friends and family this year and hope to be able to get them done in time for the holidays for them....but this I have promised myself....if I don't...they will become a New Year love offering. Hope all is well with you and your family...and that your holidays will be wonderful no matter how you celebrate them. JAN in AZ (formerly CA) Jan No wonder I haven't seen anything from you. I have always enjoyed your recipes and inspirational emails. And yes the funny ones too. LOL Sorry to hear you have been so sick. I am very happy to hear you are getting over the worst of it. Our immune systems just can't handle what a healthy person can handle and that if very frustrating. Glad you are back..... Hugs in Ct. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2004 Report Share Posted November 17, 2004 Thank you, ...It is nice to know you are thinking of me. I still have my recipes and all, however, I tend more to send them out personally now as our family here has become more serious about what is going on in the auto-immune world and wanting to find out out more about those things. I am still gleaning information from the many things the family here post though and am following everyone through their lives. Our RA family is very close to my heart and since it was the first place I found in my search for learning more about myself, it is especially dear to me. I have made many friends within the family and feel that we will be friends for many, many years. Has anyone heard from Carol from FL? I have sent her emails since the Hurricanes and they have all come back auto-answer refering to the first one that went through and that they had sustained damage....but nothing more. I have been very concerned. I am both looking forward to the holidays and dreading them at the same time. Looking forward because of the traditions and the things associated with the season but dreading it because I tend to overdo phsycially and emotionally and pay for it either during or afterwards. Always say this year will be different, but it never is because I throw myself into the holidays with not wanting to miss a thing. I am working on two very personal gifts to friends and family this year and hope to be able to get them done in time for the holidays for them....but this I have promised myself....if I don't...they will become a New Year love offering. Hope all is well with you and your family...and that your holidays will be wonderful no matter how you celebrate them. JAN in AZ (formerly CA) Jan No wonder I haven't seen anything from you. I have always enjoyed your recipes and inspirational emails. And yes the funny ones too. LOL Sorry to hear you have been so sick. I am very happy to hear you are getting over the worst of it. Our immune systems just can't handle what a healthy person can handle and that if very frustrating. Glad you are back..... Hugs in Ct. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 Jan I don't know if I can help-but if you have specific questions related to dysphagia, I know a bit from nursing patients on various diets and neuro patients, etc for 4 years. Many people have dysphagia problems at some point as they age, sometimes permanent, sometimes temporary. I would be happy to help if I can. Cary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 Jan I don't know if I can help-but if you have specific questions related to dysphagia, I know a bit from nursing patients on various diets and neuro patients, etc for 4 years. Many people have dysphagia problems at some point as they age, sometimes permanent, sometimes temporary. I would be happy to help if I can. Cary Quote Link to comment Share on other sites More sharing options...
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