Re: Glad you are all here. . .

[Guest guest]

Ditto on what wrote. I wanted to add, too, I'm so impressed by

all the welcomes I've received here. Some of these groups tend to

be a bit " clique-ish " with the oldtimers barely suffering the

newbies. You guys are great.

Sabdra

--- In , " lisaplumeria " <lisamolino@h...>

wrote:

> Hi everyone,

> I am really new to the group so primarily I just read all the

words

> of wisdom that you all write. I had no respect for this disease

> until it hit with a vengence (I have ra, psoriatic arthritis and

> been told that I have fibromyalgia and chronic fatigue syndrome).

I

> guess if I was an old broodmare...well you know what they would do

> with me, now...sometimes it feels like it would be a blessing. If

> it wasn't for my kids, I would have a hard time getting up.

>

> Anyway, it is so nice to not feel alone. I have no family to

speak

> of 'cause they are so dysfunctional that I had to distance my

> children from them - it wasn't healthy and all I really had left

was

> my mom anyway. Friends don't understand (I hear all the time -

you

> look so healthy!) ha ha...if they only knew... So I just keep on

> truckin' Gotta work, gotta take care of my kids...

>

> But a HUGE thank you just knowing that you are all out there,

> feeling the same pains, aches and then to hear about what works

and

> doesn't. The article links that come across are wonderful and I

> enjoy getting to know all of you. I don't have much spare time

but

> enjoy skimming through some of the postings - can't hit all of

them.

>

> Thanks for being out there...I don't feel so alone.

> in CA

[Guest guest]

and , it's nice to hear that the group is a positive for you

and that you feel welcome.

As much as a and I try, with a group this large and with so much

turnover, we aren't always able to answer every question or personally

welcome each member promptly.

I do read every post though. If I haven't responded, it doesn't mean

that I don't care.

Also, some people join but then quickly leave, and so old-timers here

may hold back with a response to newbies until they see few posts from

that new person. Some people never write, they just read - and that's

perfectly OK. Lurkers are with us in a silent and important solidarity.

I know from my own experience that it can be quite frustrating to take

the time to write what I believe to be a thoughtful response and never

hear a word back, but it doesn't stop me from trying, LOL! That's just

the way it goes.

a and I have realized that we can't please everyone. Some of the

reasons given for leaving the groups have clearly illustrated that: too

much mail, not enough mail, too many OT posts, not enough OT posts, too

much information, not enough information, too much talk about God and/or

prayer, too much cliquishness, too many women, too many older women, and

so on.

Hope you'll stay and continue to find and help to make the group a good

one!

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: Glad you are all here. . .

> Ditto on what wrote. I wanted to add, too, I'm so impressed by

> all the welcomes I've received here. Some of these groups tend to

> be a bit " clique-ish " with the oldtimers barely suffering the

> newbies. You guys are great.

>

> Sabdra

>

>

> > Hi everyone,

> > I am really new to the group so primarily I just read all the

> words

> > of wisdom that you all write. I had no respect for this disease

> > until it hit with a vengence (I have ra, psoriatic arthritis and

> > been told that I have fibromyalgia and chronic fatigue syndrome).

> I

> > guess if I was an old broodmare...well you know what they would do

> > with me, now...sometimes it feels like it would be a blessing. If

> > it wasn't for my kids, I would have a hard time getting up.

> >

> > Anyway, it is so nice to not feel alone. I have no family to

> speak

> > of 'cause they are so dysfunctional that I had to distance my

> > children from them - it wasn't healthy and all I really had left

> was

> > my mom anyway. Friends don't understand (I hear all the time -

> you

> > look so healthy!) ha ha...if they only knew... So I just keep on

> > truckin' Gotta work, gotta take care of my kids...

> >

> > But a HUGE thank you just knowing that you are all out there,

> > feeling the same pains, aches and then to hear about what works

> and

> > doesn't. The article links that come across are wonderful and I

> > enjoy getting to know all of you. I don't have much spare time

> but

> > enjoy skimming through some of the postings - can't hit all of

> them.

> >

> > Thanks for being out there...I don't feel so alone.

> > in CA

[Guest guest]

,

Thank you - I try to read everything, but can't. Work is just too

much but there is so much good information on the site! You

contribute SO much! Thank you for the good stuff you put out there.

> > > Hi everyone,

> > > I am really new to the group so primarily I just read all the

> > words

> > > of wisdom that you all write. I had no respect for this

disease

> > > until it hit with a vengence (I have ra, psoriatic arthritis

and

> > > been told that I have fibromyalgia and chronic fatigue

syndrome).

> > I

> > > guess if I was an old broodmare...well you know what they

would do

> > > with me, now...sometimes it feels like it would be a

blessing. If

> > > it wasn't for my kids, I would have a hard time getting up.

> > >

> > > Anyway, it is so nice to not feel alone. I have no family to

> > speak

> > > of 'cause they are so dysfunctional that I had to distance my

> > > children from them - it wasn't healthy and all I really had

left

> > was

> > > my mom anyway. Friends don't understand (I hear all the time -

> > you

> > > look so healthy!) ha ha...if they only knew... So I just

keep on

> > > truckin' Gotta work, gotta take care of my kids...

> > >

> > > But a HUGE thank you just knowing that you are all out there,

> > > feeling the same pains, aches and then to hear about what works

> > and

> > > doesn't. The article links that come across are wonderful and

I

> > > enjoy getting to know all of you. I don't have much spare time

> > but

> > > enjoy skimming through some of the postings - can't hit all of

> > them.

> > >

> > > Thanks for being out there...I don't feel so alone.

> > > in CA

[Guest guest]

You're welcome, . No need to read everything, LOL!

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: Glad you are all here. . .

> ,

> Thank you - I try to read everything, but can't. Work is just too

> much but there is so much good information on the site! You

> contribute SO much! Thank you for the good stuff you put out there.

>