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Re: A short poem to ALLof you...answer if you feel like it..it gives me joy

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Ken,

What a truly touching verse! I can sympathize completely, as I

frequently wake several times a night, and don't want to disturb my

husband. That's usually the time when I decide SOMEONE needs praying

for, so I mentally go over my list and will add you to the list. So,

you know someone is thinking about you when you wake in the night.

You've got lots of friends and " family " here!

Judi in Indiana (dark, cloudy, cold Indiana!)

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Ken,

What a truly touching verse! I can sympathize completely, as I

frequently wake several times a night, and don't want to disturb my

husband. That's usually the time when I decide SOMEONE needs praying

for, so I mentally go over my list and will add you to the list. So,

you know someone is thinking about you when you wake in the night.

You've got lots of friends and " family " here!

Judi in Indiana (dark, cloudy, cold Indiana!)

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Greetings to you, my fellow sufferer. You have a knack for writing.

Thank you for sharing with us. I can certainly relate. Where you

wrote, towards the end, that you shed tears inside....I tell you I

cry almost every morning and then some. I have not been coping very

well lately as my r/a Dr. died in a plane crash. I think I am also

in alot more pain as I am no longer on enbrel. This is a very

difficult illness to make sense of. To me it is very frightening to

think that my body has turned against itself and for all the pain I

have to deal with. It is so very-very hard for me to cope with. I am

happy for you that you have a loved one to share your life with. I'm

sure that helps somewhat. I'm also thankful that we have this group.

Your words do not fall on deaf ears. Thank you for sharing what I'm

sure we all can relate to. It is so unfair and yet I do count my

blessings as I know it could be worse. AT least that's what I tell

myself. I'm not sure I totally believe it. I'm trying.

Thank you again and I'm sure you can consider us all your " new

friends. " Bless you & your loved ones. Marie-Ak

-- In , kenneth samuelsen

<squarehead52@y...> wrote:

>

> Greetings, from squarehead ken, to all of my new

> friends

> I awoke at 3,4,5,6,7,and 8,

> each time,to an argument:

> It was a terrible raging ongoing debate

> over which one the most pain sent!

> Neither shoulder could quite agree

> which one hurt the most,

> and joining the fray were each poor knee,

> then, my fingers had started to boast!

> All I wanted to do was sleep,

> 'twas much too early for meds,

> but pain had snuck in,sett'ling deep,

> and wouldn't get back out of bed!

> My Wife rested peacefully by my side,

> deep in childlike slumber,

> while slowly,beneath my poor ol' hide,

> my joints, and bones turned to lumber.

> I didn't wake her, for, what could she do?

> I was all alone in the night,

> I just laid there,alone, as I often do,

> trying my best in the fight.

> Some times, I just don't understand

> the unfairness of it all....

> Why did this come into my hands,

> and who,for understanding, do I call?

> My body's turned against me,

> no one really understands

> how I'm drowning in pain's sea,

> and I lack the strength to swim back to the sand

>

>

> Does anybody out there in the land of cyberspace

> understand how every day,inside ,I shed my tears?

> The lonliness,and pain and fear I face,

> or does my whining fall upon deaf ears?

>

> What I would give,just to know,

> that I could have a friend,

> somewhere to let my feelings go,

> as slowly,bit by bit, my body rends........

>

>

>

> thank you for listening.

> ken at " squarehead52@y... "

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Greetings to you, my fellow sufferer. You have a knack for writing.

Thank you for sharing with us. I can certainly relate. Where you

wrote, towards the end, that you shed tears inside....I tell you I

cry almost every morning and then some. I have not been coping very

well lately as my r/a Dr. died in a plane crash. I think I am also

in alot more pain as I am no longer on enbrel. This is a very

difficult illness to make sense of. To me it is very frightening to

think that my body has turned against itself and for all the pain I

have to deal with. It is so very-very hard for me to cope with. I am

happy for you that you have a loved one to share your life with. I'm

sure that helps somewhat. I'm also thankful that we have this group.

Your words do not fall on deaf ears. Thank you for sharing what I'm

sure we all can relate to. It is so unfair and yet I do count my

blessings as I know it could be worse. AT least that's what I tell

myself. I'm not sure I totally believe it. I'm trying.

Thank you again and I'm sure you can consider us all your " new

friends. " Bless you & your loved ones. Marie-Ak

-- In , kenneth samuelsen

<squarehead52@y...> wrote:

>

> Greetings, from squarehead ken, to all of my new

> friends

> I awoke at 3,4,5,6,7,and 8,

> each time,to an argument:

> It was a terrible raging ongoing debate

> over which one the most pain sent!

> Neither shoulder could quite agree

> which one hurt the most,

> and joining the fray were each poor knee,

> then, my fingers had started to boast!

> All I wanted to do was sleep,

> 'twas much too early for meds,

> but pain had snuck in,sett'ling deep,

> and wouldn't get back out of bed!

> My Wife rested peacefully by my side,

> deep in childlike slumber,

> while slowly,beneath my poor ol' hide,

> my joints, and bones turned to lumber.

> I didn't wake her, for, what could she do?

> I was all alone in the night,

> I just laid there,alone, as I often do,

> trying my best in the fight.

> Some times, I just don't understand

> the unfairness of it all....

> Why did this come into my hands,

> and who,for understanding, do I call?

> My body's turned against me,

> no one really understands

> how I'm drowning in pain's sea,

> and I lack the strength to swim back to the sand

>

>

> Does anybody out there in the land of cyberspace

> understand how every day,inside ,I shed my tears?

> The lonliness,and pain and fear I face,

> or does my whining fall upon deaf ears?

>

> What I would give,just to know,

> that I could have a friend,

> somewhere to let my feelings go,

> as slowly,bit by bit, my body rends........

>

>

>

> thank you for listening.

> ken at " squarehead52@y... "

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Marie,

I'm sorry that your doctor was killed. How tragic for his family and

all of his patients. I hope you find a new one, and can find relief.

Why did you stop enbrel if it was helping? I hope it wasn't for side

effects or insurance issues. It stinks when we find something that

helps, but side effects prohibit us from using it. It really gets my

goat when the insurance companies refuse to cover it.

Good luck with finding a new rheumy.

a

On Wed, 01 Dec 2004 02:36:57 -0000, snowespi <snowespi@...> wrote:

>

>

> Greetings to you, my fellow sufferer. You have a knack for writing.

> Thank you for sharing with us. I can certainly relate. Where you

> wrote, towards the end, that you shed tears inside....I tell you I

> cry almost every morning and then some. I have not been coping very

> well lately as my r/a Dr. died in a plane crash. I think I am also

> in alot more pain as I am no longer on enbrel. This is a very

> difficult illness to make sense of. To me it is very frightening to

> think that my body has turned against itself and for all the pain I

> have to deal with. It is so very-very hard for me to cope with. I am

> happy for you that you have a loved one to share your life with. I'm

> sure that helps somewhat. I'm also thankful that we have this group.

> Your words do not fall on deaf ears. Thank you for sharing what I'm

> sure we all can relate to. It is so unfair and yet I do count my

> blessings as I know it could be worse. AT least that's what I tell

> myself. I'm not sure I totally believe it. I'm trying.

> Thank you again and I'm sure you can consider us all your " new

> friends. " Bless you & your loved ones. Marie-Ak

>

>

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Marie,

I'm sorry that your doctor was killed. How tragic for his family and

all of his patients. I hope you find a new one, and can find relief.

Why did you stop enbrel if it was helping? I hope it wasn't for side

effects or insurance issues. It stinks when we find something that

helps, but side effects prohibit us from using it. It really gets my

goat when the insurance companies refuse to cover it.

Good luck with finding a new rheumy.

a

On Wed, 01 Dec 2004 02:36:57 -0000, snowespi <snowespi@...> wrote:

>

>

> Greetings to you, my fellow sufferer. You have a knack for writing.

> Thank you for sharing with us. I can certainly relate. Where you

> wrote, towards the end, that you shed tears inside....I tell you I

> cry almost every morning and then some. I have not been coping very

> well lately as my r/a Dr. died in a plane crash. I think I am also

> in alot more pain as I am no longer on enbrel. This is a very

> difficult illness to make sense of. To me it is very frightening to

> think that my body has turned against itself and for all the pain I

> have to deal with. It is so very-very hard for me to cope with. I am

> happy for you that you have a loved one to share your life with. I'm

> sure that helps somewhat. I'm also thankful that we have this group.

> Your words do not fall on deaf ears. Thank you for sharing what I'm

> sure we all can relate to. It is so unfair and yet I do count my

> blessings as I know it could be worse. AT least that's what I tell

> myself. I'm not sure I totally believe it. I'm trying.

> Thank you again and I'm sure you can consider us all your " new

> friends. " Bless you & your loved ones. Marie-Ak

>

>

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