Re: Re: ..Thank you... Oxy

[Guest guest]

Kathi,

We can¹t give up hope that one day this issue will be resolved. Hopefully

they will find a way to block the euphoria that drug users get when they

circumvent the time release action. So many people have had wonderful pain

relief and if my doctor would let me try it, I¹d do it in a heartbeat. I

miss so much life because of pain and can¹t stop wondering what my life

would be like if I found something to help.

The stigma of being an abuser isn¹t fair. I¹m so happy that you and others

have been helped so much. I know the decision wasn¹t made lightly. I know

you researched well before taking it and realize that the benefits far

outweigh the risks. I too have a fear of the steroids and feel they are

much more dangerous that pain meds. I have a fear of ALL drugs, but what

choice do I have. As those that know me know, I¹ve tried alternatives for

many years, and suffered a lot of joint damage during those years.

You have nothing to apologize for. This group is here to discuss what works

for us and that is all that you were doing.

You have to stay as pain free as you can so that you can prepare for the

happiest event, your first grandchild.

It is such a blessing to know that you will be able to enjoy this child so

much more since your life has been improved with pain meds.

a

> : First may I say thank you for your posts on narcotics, I only

> wish the stigma and misunderstanding would some how self resolve.

> Then I would like to say I am sorry, I was'nt trying to imply anyone

> should take anything only citing experience. I don't take any med

> before I have researched it throughly. Having scleroderma they are

> always trying to give me something, I think they feel they must DO

> something, and as there are no proven therapies they feel helpless.

> Judi is in the same kinda of situation, I believe. But, if something

> works, and for me oxy does, I have a half a life back, I will

> continue to take it. It took alot of convincing for me to try it, and

> then I was so embarrassed because I could have felt so much better if

> I had tried it to start off with. In IMHO there are alot more scary

> drugs, and steroids would be my NO.1 choice to NOT take, along with

> several others. I have gone off and on my oxy without any withdrawal

> problems, and I have been to a few pain clinics, their drug of

> choice was methadone, which ....I....could'nt tolerate. We each react

> to drugs differently, so I would never knock anything that works for

> some one else. It seems the stigma will never go away, and the

> narcotics will always have a bad rap, it is to bad these articles

> don't compare them with other choices. And of course the bottom

> line ...all drugs are bad for you, you are putting a chemical in your

> body that was never suppose to be there, of course the wonderful

> diseases were'nt suppose to either.....thank you for trying to keep

> us all educated......hugs Kathi in OK

>

>

>

>

[Guest guest]

You're so welcome, Kathi!

I'm not sure what you mean when you say, " it is to bad these articles

don't compare them with other choices. "

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] RE: ..Thank you... Oxy

> : First may I say thank you for your posts on narcotics, I only

> wish the stigma and misunderstanding would some how self resolve.

> Then I would like to say I am sorry, I was'nt trying to imply anyone

> should take anything only citing experience. I don't take any med

> before I have researched it throughly. Having scleroderma they are

> always trying to give me something, I think they feel they must DO

> something, and as there are no proven therapies they feel helpless.

> Judi is in the same kinda of situation, I believe. But, if something

> works, and for me oxy does, I have a half a life back, I will

> continue to take it. It took alot of convincing for me to try it, and

> then I was so embarrassed because I could have felt so much better if

> I had tried it to start off with. In IMHO there are alot more scary

> drugs, and steroids would be my NO.1 choice to NOT take, along with

> several others. I have gone off and on my oxy without any withdrawal

> problems, and I have been to a few pain clinics, their drug of

> choice was methadone, which ....I....could'nt tolerate. We each react

> to drugs differently, so I would never knock anything that works for

> some one else. It seems the stigma will never go away, and the

> narcotics will always have a bad rap, it is to bad these articles

> don't compare them with other choices. And of course the bottom

> line ...all drugs are bad for you, you are putting a chemical in your

> body that was never suppose to be there, of course the wonderful

> diseases were'nt suppose to either.....thank you for trying to keep

> us all educated......hugs Kathi in OK

[Guest guest]

Kathi,

You mean between the different classes of drugs or within one class?

I forgot to say that you have nothing to apologize for. I know you

weren't trying to push OxyContin on anyone. And we do need to hear

stories of those in the group who have or are using it. We're here to

learn about the drugs and the experiences that members have with them.

It's AOK, it's helpful!

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] RE: ..Thank you... Oxy

> >

> >

> > > : First may I say thank you for your posts on narcotics, I

> only

> > > wish the stigma and misunderstanding would some how self resolve.

> > > Then I would like to say I am sorry, I was'nt trying to imply

> anyone

> > > should take anything only citing experience. I don't take any med

> > > before I have researched it throughly. Having scleroderma they are

> > > always trying to give me something, I think they feel they must DO

> > > something, and as there are no proven therapies they feel

> helpless.

> > > Judi is in the same kinda of situation, I believe. But, if

> something

> > > works, and for me oxy does, I have a half a life back, I will

> > > continue to take it. It took alot of convincing for me to try it,

> and

> > > then I was so embarrassed because I could have felt so much

> better if

> > > I had tried it to start off with. In IMHO there are alot more

> scary

> > > drugs, and steroids would be my NO.1 choice to NOT take, along

> with

> > > several others. I have gone off and on my oxy without any

> withdrawal

> > > problems, and I have been to a few pain clinics, their drug of

> > > choice was methadone, which ....I....could'nt tolerate. We each

> react

> > > to drugs differently, so I would never knock anything that works

> for

> > > some one else. It seems the stigma will never go away, and the

> > > narcotics will always have a bad rap, it is to bad these articles

> > > don't compare them with other choices. And of course the bottom

> > > line ...all drugs are bad for you, you are putting a chemical in

> your

> > > body that was never suppose to be there, of course the wonderful

> > > diseases were'nt suppose to either.....thank you for trying to

> keep

> > > us all educated......hugs Kathi in OK

[Guest guest]

Say there, Kathi, this is the sort of discussion we need to have, so you

shouldn't have any regrets. If the exchanges could be free of personal

attacks and hard feelings that would be ideal, but none of the " adverse

effects " of the threads is your fault.

Besides, it would be boring if we all agreed.

Your lush of a friend is drinking her wine right now and hopes nobody

ever tries to take it away from her, LOL. A toast to you!

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: ..Thank you... Oxy

> : I meant the drugs generally given for autoimmune

> diseases....but it does'nt matter, at this point I am sorry I ever

> suggested to Dixie the fact that if you are in pain, or tired,or

> depressed or anything else you should voice this to your PCP, rheumy,

> whatever....I was'nt even suggesting she try what I try as I don't

> even have the same disease process going on, and did mention that. I

> have never asked for any drug, was not refferred to a pain clinic for

> that reason, but had several docs pushing me to go because of MRI's

> and other tests, they said they knew I had to be in severe pain. I

> have never had a problem dealing with pain(had 3 kids ala natural)

> lol....and thought pain was something you just dealt with.....and was

> quickly told by several doctors that NO ONE should have to, or be

> expected to live in chronic pain....and it really gets my goat when

> I hear addicted....most chronic pain folks are dependent not

> addicted.....dependent to have a LIFE....it makes me angry that a

> has to be afraid of saying something to a new doc, because she will

> be looked at as a possible drug seeker....I have much appreciated

> your posts on all this.......and I truly feel even luckier at this

> point to have the docs I do.....my PCP starts every visit with ...1.

> Are you sleeping? 2.Are you taking your pain meds? Are they doing the

> job? 3.Is there anything new going on that I should know? 4. Are you

> behaving?....which at this point when I laugh, he says good your

> sense of humor is intact....my rheumy does about the same, except he

> always ends my visit with....Red, keeping fighting the brave

> fight....I personally feel these are the questions that should be

> asked. I feel my PCP is my doc and friend....and I can ask him

> anything, and if he disagrees he flat out tells me....NO..or how

> about this instead or let me think about it because I don't know, but

> I will find out. Why would any doc go into a field like rheumatolgy

> knowing that he/she would be seeing patients that deal with pain on a

> day to day basis, with treatments that have no guarentee's and not be

> willing to work with the patient through medicine and education to

> help relieve some of the pain? Don't we have the right to have the

> pain issue as well as disease addressed? When I read posts in this

> very group, that the pain or depression from the pain is so bad,

> putting themselves out of misery is an option, it makes me sooo

> angry. I am getting off the soap box now, and at this point will

> leave this exhaustive subject up to you and a....and boy I am

> glad you guys are the moderators......as always thank you for doing

> what you do....and I think I am going to go have a medicinal

> wine....but then maybe I'll have to worry about being an alcoholic(

> scuse the sarcasm there)......kathi in OK

[Guest guest]

I think it's important to have disagreements and discussions. It really does

help you learn more in the long run. People have to remember that just because

you disagree, it does not mean you are attacking them.

It is sometimes hard to know the feelings behind a message in email, and

sometimes easy to misinterpret a statement made in passing, as " fighting words " .

Noreen

[ ] Re: ..Thank you... Oxy

> : I meant the drugs generally given for autoimmune

> diseases....but it does'nt matter, at this point I am sorry I ever

> suggested to Dixie the fact that if you are in pain, or tired,or

> depressed or anything else you should voice this to your PCP, rheumy,

> whatever....I was'nt even suggesting she try what I try as I don't

> even have the same disease process going on, and did mention that. I

> have never asked for any drug, was not refferred to a pain clinic for

> that reason, but had several docs pushing me to go because of MRI's

> and other tests, they said they knew I had to be in severe pain. I

> have never had a problem dealing with pain(had 3 kids ala natural)

> lol....and thought pain was something you just dealt with.....and was

> quickly told by several doctors that NO ONE should have to, or be

> expected to live in chronic pain....and it really gets my goat when

> I hear addicted....most chronic pain folks are dependent not

> addicted.....dependent to have a LIFE....it makes me angry that a

> has to be afraid of saying something to a new doc, because she will

> be looked at as a possible drug seeker....I have much appreciated

> your posts on all this.......and I truly feel even luckier at this

> point to have the docs I do.....my PCP starts every visit with ...1.

> Are you sleeping? 2.Are you taking your pain meds? Are they doing the

> job? 3.Is there anything new going on that I should know? 4. Are you

> behaving?....which at this point when I laugh, he says good your

> sense of humor is intact....my rheumy does about the same, except he

> always ends my visit with....Red, keeping fighting the brave

> fight....I personally feel these are the questions that should be

> asked. I feel my PCP is my doc and friend....and I can ask him

> anything, and if he disagrees he flat out tells me....NO..or how

> about this instead or let me think about it because I don't know, but

> I will find out. Why would any doc go into a field like rheumatolgy

> knowing that he/she would be seeing patients that deal with pain on a

> day to day basis, with treatments that have no guarentee's and not be

> willing to work with the patient through medicine and education to

> help relieve some of the pain? Don't we have the right to have the

> pain issue as well as disease addressed? When I read posts in this

> very group, that the pain or depression from the pain is so bad,

> putting themselves out of misery is an option, it makes me sooo

> angry. I am getting off the soap box now, and at this point will

> leave this exhaustive subject up to you and a....and boy I am

> glad you guys are the moderators......as always thank you for doing

> what you do....and I think I am going to go have a medicinal

> wine....but then maybe I'll have to worry about being an alcoholic(

> scuse the sarcasm there)......kathi in OK