Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 Judi, as a fellow Irish-Scot, I believe you when you say you wouldn't give up. You can get their number at www.remicare.com. Or you can call them at 1-866-RemiCare. I understand what it is like to have a doc write the wrong things in your chart. I just went through that with a surgeon who worked on my ankle. Fortunately, I have another surgeon I was going to who verified the discrepencies in his charting. So, hang in there, girl!! We Scots have to stick together to stick it out!!!....Blessed Be...Marina > > Marina, > > Thanks! I didn't know they had a support line--I'll look it up and > give them a call. Maybe have my GP call them. The rheumy I saw is > the only one withing 120 miles, and the other one who examined me at > IU in Indy was a jerk--after I read his notes on me and found out > most of what he wrote was wrong! I won't give up, that wouldn't be > me, tough Irish-Norwegian-Scot that I am. > > Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 Judi, as a fellow Irish-Scot, I believe you when you say you wouldn't give up. You can get their number at www.remicare.com. Or you can call them at 1-866-RemiCare. I understand what it is like to have a doc write the wrong things in your chart. I just went through that with a surgeon who worked on my ankle. Fortunately, I have another surgeon I was going to who verified the discrepencies in his charting. So, hang in there, girl!! We Scots have to stick together to stick it out!!!....Blessed Be...Marina > > Marina, > > Thanks! I didn't know they had a support line--I'll look it up and > give them a call. Maybe have my GP call them. The rheumy I saw is > the only one withing 120 miles, and the other one who examined me at > IU in Indy was a jerk--after I read his notes on me and found out > most of what he wrote was wrong! I won't give up, that wouldn't be > me, tough Irish-Norwegian-Scot that I am. > > Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Judi, A friend of mine was diagnosed with liver cancer in June of 2001. She was told she only had 6 months to live. She wanted more time than that (she is still with us) so she went to different oncologist until she found one who would work with her. He sent to to the cancer hospital in Texas to see what they could offer her. They recommended a treatment that was experimental for liver cancer but said her oncologist in town could administer it. He agreed to do so. The combination of chemo was being used for other cancers, just not liver. Any way, my point is, if you could find someone out of town who can help, maybe someone closer to you could administer it. I know what you mean about traveling to find someone to help you. I lucked out that my rheumy is close and will try anything to help me. He even has considered sending me out for a second opinion. HE came up with that!! Sometimes docs need a little reminder that they are human, too. And that they need to get in touch with their human side. Unfortunately, I don't think there are many humans working for insurance companies!! With the way my insurance company has been, I have come to the conclusion that their are no demons in hell, they all work for the insurance companies!! If we didn't have hope and faith, what would be the point?? I will keep you in my prayers in hope you get the answer you so desperately need.....Blessed Be...Marina > > , > > It's a complicated matter, and it just seems to get more and more > so. I understand why the doctor couldn't just plop me down and start > administering the therapy, but it is her attitude that depresses me > and others like me. It gets harder and harder to try to search the > world for doctors who are willing to tackle this. There were at > least 3 people from the group who went to Mayo, one of whom went back > twice and was told the second time they had no record of her first > visit, but they didn't think they could help her. U. Chicago Med. > has declined to treat anyone, as has Cleveland Clinic, saying it is > just not worth their time. > > Yes, I would travel to see my list friends physician, as she is only > in Michigan. BUT my insurance would not cover the treatments IF her > physician were willing to administer them. I am working currently > with another woman who lives in Indiana to see if her rheumy at > Methodist in Indy will see us both on the same day. > > The IV lidocaine therapy was a complete bust, really did not work > well with any who tried it, and far too dangerous as well. Total > body liposuction by one individual removed most of the current > tumors, but of course has not prevented new growth or brought about a > relief of the other symptoms. I am really hoping for the Remicade or > something similar that will shrink the tumors, as I am in a position > of needing surgery on my face/jaws soon to remove tumors that are > interfering with my facial movements and now vision as well. > > On the plus side, the service at church this morning was very > inspirational, all about hope, and hope is what I am leaning on along > with my faith, the most. Thank you so much, as well as all the rest > of the group here for supporting me, and I hope I can be of equal > help to all. > > Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Judi, A friend of mine was diagnosed with liver cancer in June of 2001. She was told she only had 6 months to live. She wanted more time than that (she is still with us) so she went to different oncologist until she found one who would work with her. He sent to to the cancer hospital in Texas to see what they could offer her. They recommended a treatment that was experimental for liver cancer but said her oncologist in town could administer it. He agreed to do so. The combination of chemo was being used for other cancers, just not liver. Any way, my point is, if you could find someone out of town who can help, maybe someone closer to you could administer it. I know what you mean about traveling to find someone to help you. I lucked out that my rheumy is close and will try anything to help me. He even has considered sending me out for a second opinion. HE came up with that!! Sometimes docs need a little reminder that they are human, too. And that they need to get in touch with their human side. Unfortunately, I don't think there are many humans working for insurance companies!! With the way my insurance company has been, I have come to the conclusion that their are no demons in hell, they all work for the insurance companies!! If we didn't have hope and faith, what would be the point?? I will keep you in my prayers in hope you get the answer you so desperately need.....Blessed Be...Marina > > , > > It's a complicated matter, and it just seems to get more and more > so. I understand why the doctor couldn't just plop me down and start > administering the therapy, but it is her attitude that depresses me > and others like me. It gets harder and harder to try to search the > world for doctors who are willing to tackle this. There were at > least 3 people from the group who went to Mayo, one of whom went back > twice and was told the second time they had no record of her first > visit, but they didn't think they could help her. U. Chicago Med. > has declined to treat anyone, as has Cleveland Clinic, saying it is > just not worth their time. > > Yes, I would travel to see my list friends physician, as she is only > in Michigan. BUT my insurance would not cover the treatments IF her > physician were willing to administer them. I am working currently > with another woman who lives in Indiana to see if her rheumy at > Methodist in Indy will see us both on the same day. > > The IV lidocaine therapy was a complete bust, really did not work > well with any who tried it, and far too dangerous as well. Total > body liposuction by one individual removed most of the current > tumors, but of course has not prevented new growth or brought about a > relief of the other symptoms. I am really hoping for the Remicade or > something similar that will shrink the tumors, as I am in a position > of needing surgery on my face/jaws soon to remove tumors that are > interfering with my facial movements and now vision as well. > > On the plus side, the service at church this morning was very > inspirational, all about hope, and hope is what I am leaning on along > with my faith, the most. Thank you so much, as well as all the rest > of the group here for supporting me, and I hope I can be of equal > help to all. > > Judi Quote Link to comment Share on other sites More sharing options...
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