Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 , Thank you for you sincerity. Just knowing you and the others are out there listening and understanding means the world to me. I am going to ask about getting an updated image of my hip. It's been 2 years. He has mostly been looking at my hands while my ortho doc keeps tabs on my shoulders and knee. I want to try a wait it out before calling my rheumatologist. It's only 2 more weeks. He always tells me to call and come in sooner if needed, but I want to hold out while I still can. Thanks for listening...Blessed Be..Marina > I'm not sure I can offer any great advice, Marina, but I'm very sorry to > hear that you are having such a hard time. I don't know how you've > managed to do your difficult job when you're feeling so bad. > > Would you consider trying to get in to see your rheumatologist sooner? > > Have you had any imaging studies done on your hip lately? > > > > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > > > [ ] The Pain Endures > > > > > > > > Hello, all!! I need to vent a little. I went back to work this past > > September after being off for 6 months due to surgical > > complications. Things were a little rough there in the begining. I > > was dependent on high doses of steroids to get me through the day > > because the Remicade failed me after 9 months and Kineret was > > worthless for me. The MTX isn't as effective and the plaquinal > > doesn't seem to do much either. Any way, I got started on Enbrel > > and, after 2 weeks, I was surprised at how effective it was. I > > didn't realize how miserable I was until I had some relief. I > > started out slowly with work. A few hours a week to kind of break > > me in. Now, I used to to 12 hour shifts 3x a week or more. My > > orthopedist didn't want me to do that cbecause he felt that an 8 > > hour shift 5x a week would be easier on me with the RA and FM. I > > agreed. Of course, my manager has found a way to let that bite me > > in the butt! She decided the 8 hour day I would work would be from > > 11am to 730pm. I like that I can sleep in, but I have found that > > when I am working or doing something stressful, 12 noon seems to be > > the witching hour for me. At that time I can feel the fatigue > > kicking in, though it is managable. By 4 or 5pm, I am completely > > spent. I tried the shift for the first time last week and I know it > > isn't going to work out for me. I have been with the same hospital > > for 12 years now. I have been in the same department for the last 8 > > years. I love what I do and I know that I will have to give it > > eventually. The Enbrel hasn't been as effective as it was in the > > begining. I know that it is in part do to the increased physical > > and mental stress at work. Working 5 days a week with those hours > > means that I have Saturday and Sunday to recover. My manager says > > she has to cover those hours because we are so busy in the later > > hours. As soon as she fills the 3 12hour shifts that are now > > available, or at least one of them, I can go to days. Of course, I > > have to wait until they go through their orientation first. > > Depending on their experience it could take as long as 8 months. I > > don't think I will live that long. I have tried to find a position > > in other departments, but the only ones available would put me in a > > worse position. I can't afford to go on disability at this time. I > > have to bee off for 4 consecutive months before I can collect long > > term disability. In August, I will have enough time built back up > > to allow me to go on disability (short term). I don't know if I > > will make it. Unfortunately, my RA (dx 2 years ago) has been very > > agressive. I have damage to many of my joints. The worse being my > > right hip. It has been causing such severe back pain that I feel > > like my hip and back are going to give out on me. I go see my rheumy > > in a few weeks. I know he will listen and advise me well. I just > > feel so frustrated and broken down, both physically AND emotionaly > > Thank you for listening. It is so theraputic talking to those who > > go through the same thing or at least similarly enough. Blessed > > Be...Marina in Oh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Hi Thanks for the advice I know my consultant has a clinic on a Wednesday so I will ring and ask to talk to one of his nurses who I see when I go for my check ups. Thats what bothers me its only the one knee the other is fine. thanks again Love Joyce in the Uk.. xxxxxxxxxxxxxxxxxxxxxxxxx <Matsumura_Clan@...> wrote: I'll second that, a. Sorry you are having this trouble, Joyce. I'd call your physician ASAP. You don't want to take a chance with your prosthesis. Especially since I think you're saying that only one of your knees is bothering you and you aren't flaring, I'd call immediately. Let us know what happens. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org Re: [ ] Hi All need some advice > Hi Joyce, > > I can't say that my knees are painful when I flare, they just feel a > little swollen and are stiffer. If your are paining you so much > that you can't sleep, I'd think a call to the doctor may be wise. Is > it hot? Is it red? If so, I'd definitely see a doctor. > > a > > > > On Mar 20, 2006, at 10:45 AM, joyce madine wrote: > >> Hi a >> Thanks for getting back to me. No I didnt want to bother the doc >> in case it was nothing to fuss about.When you are in the flare does >> your knees pain as well.. I am not really in a flare just now. >> Love Joyce in the Uk >> xxxxxxxxxxxxxxxxxxx >> >> a Papola <a54@...> wrote: >> Hi Joyce. I had both of mine replaced 9 years ago. Occasionally >> during flares, my knees still swell. >> Have you called your doctor? You should get it checked out. >> >> a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Thank you so much ...I greatly appreciate your help! Mandi In a message dated 3/9/2008 11:11:29 A.M. Eastern Daylight Time, Rheumatoid.Arthritis.Support@... writes: Mandi, These are Cush's ten most recent entries at PubMed (_http://www.ncbi.http://www.nhttp://www.n_ (http://www.ncbi.nlm.nih.gov/sites/entrez) ): Early rheumatoid arthritis -- is there a window of opportunity? J Rheumatol Suppl. 2007 Nov;80:1-7. Review. PMID: 17985417 [PubMed - indexed for MEDLINE]2: Related Articles, LinksQuiceno GA, Cush JJ. Iatrogenic rheumatic syndromes in the elderly. Rheum Dis Clin North Am. 2007 Feb;33(1):123-Rheum Dis C PMID: 17367696 [PubMed - indexed for MEDLINE]3: Related Articles, LinksDao K, Cush JJ. Acute polyarthritis. Best Pract Res Clin Rheumatol. 2006 Aug;20(4):653-Best Pract Res PMID: 16979530 [PubMed - indexed for MEDLINE]4: Related Articles, LinksClegg DO, Reda DJ, CL, Klein MA, O'Dell JR, Hooper MM, Bradley JD, Bingham CO 3rd, Weisman MH, CG, Lane NE, Cush JJ, Moreland LW, Schumacher HR Jr, Oddis CV, Wolfe F, Molitor JA, Yocum DE, Schnitzer TJ, Furst DE, Sawitzke AD, Shi H, Brandt KD, Moskowitz RW, HJ. Glucosamine, chondroitin sulfate, and the two in combination for painful knee osteoarthritis. N Engl J Med. 2006 Feb 23;354(8):795-N En PMID: 16495392 [PubMed - indexed for MEDLINE]5: Related Articles, LinksCush JJ. Biological drug use: US perspectives on indications and monitoring. Ann Rheum Dis. 2005 Nov;64 Suppl 4:iv18-23. PMID: 16239379 [PubMed - indexed for MEDLINE]6: Related Articles, LinksCush JJ. Remodeling a rheumatology practice to facilitate early referral. Rheum Dis Clin North Am. 2005 Nov;31(4):591-Rheum Dis Cl PMID: 16287586 [PubMed - indexed for MEDLINE]7: Related Articles, LinksCush JJ, Yazici Y. Laboratory monitoring of biologic therapies. Clin Exp Rheumatol. 2005 Sep-Oct;23(5 Suppl 39):S90-2. PMID: 16273791 [PubMed - indexed for MEDLINE]8: Related Articles, Links JC Jr, Van der Heijde DM, Dougados M, Braun J, Cush JJ, Clegg DO, Inman RD, de Vries T, Tsuji WH. Baseline factors that influence ASAS 20 response in patients with ankylosing spondylitis treated with etanercept. J Rheumatol. 2005 Sep;32(9):1751-J PMID: 16142873 [PubMed - indexed for MEDLINE]9: Related Articles, LinksQuiceno GA, Cush JJ. Iatrogenic rheumatic syndromes in the elderly. Clin Geriatr Med. 2005 Aug;21(3):577-Clin Geriatr Med PMID: 15911208 [PubMed - indexed for MEDLINE]10: Related Articles, LinksCush JJ. Early arthritis clinics: if you build it will they come? J Rheumatol. 2005 Feb;32(2):203-J Rheumatol. 2005 Feb PMID: 15693079 [PubMed - indexed for MEDLINE] None of these look specific to Still's, but I'll see if I can find anything else at other locations. Not an MD On Sun, Mar 9, 2008 at 10:38 AM, <_MLH951@..._ (mailto:MLH951@...) > wrote: > HI I was hoping you may be able to help me. I have Stills disease > which has caused extensive erosive RA. Stills is a very rare disease and finding > information and research is difficult. I ran across some articles involving > Dr. J Cush who is active in treating Stills disease along with all RA > associated conditions. > > My problem is the last updated work I have found of his on Stills disease is > back in January of 2005, I was hoping with all your research skills you might > be able to point me in the right direction! > > I have checked out all the easily accessible info from things like the > International Stills disease .org and the like. > > Thanks, > > Mandi **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Mandi, These are Cush's ten most recent entries at PubMed (http://www.ncbi.nlm.nih.gov/sites/entrez): Early rheumatoid arthritis -- is there a window of opportunity? J Rheumatol Suppl. 2007 Nov;80:1-7. Review. PMID: 17985417 [PubMed - indexed for MEDLINE]2: Related Articles, LinksQuiceno GA, Cush JJ. Iatrogenic rheumatic syndromes in the elderly. Rheum Dis Clin North Am. 2007 Feb;33(1):123-34. Review. PMID: 17367696 [PubMed - indexed for MEDLINE]3: Related Articles, LinksDao K, Cush JJ. Acute polyarthritis. Best Pract Res Clin Rheumatol. 2006 Aug;20(4):653-72. Review. PMID: 16979530 [PubMed - indexed for MEDLINE]4: Related Articles, LinksClegg DO, Reda DJ, CL, Klein MA, O'Dell JR, Hooper MM, Bradley JD, Bingham CO 3rd, Weisman MH, CG, Lane NE, Cush JJ, Moreland LW, Schumacher HR Jr, Oddis CV, Wolfe F, Molitor JA, Yocum DE, Schnitzer TJ, Furst DE, Sawitzke AD, Shi H, Brandt KD, Moskowitz RW, HJ. Glucosamine, chondroitin sulfate, and the two in combination for painful knee osteoarthritis. N Engl J Med. 2006 Feb 23;354(8):795-808. PMID: 16495392 [PubMed - indexed for MEDLINE]5: Related Articles, LinksCush JJ. Biological drug use: US perspectives on indications and monitoring. Ann Rheum Dis. 2005 Nov;64 Suppl 4:iv18-23. PMID: 16239379 [PubMed - indexed for MEDLINE]6: Related Articles, LinksCush JJ. Remodeling a rheumatology practice to facilitate early referral. Rheum Dis Clin North Am. 2005 Nov;31(4):591-604. Review. PMID: 16287586 [PubMed - indexed for MEDLINE]7: Related Articles, LinksCush JJ, Yazici Y. Laboratory monitoring of biologic therapies. Clin Exp Rheumatol. 2005 Sep-Oct;23(5 Suppl 39):S90-2. PMID: 16273791 [PubMed - indexed for MEDLINE]8: Related Articles, Links JC Jr, Van der Heijde DM, Dougados M, Braun J, Cush JJ, Clegg DO, Inman RD, de Vries T, Tsuji WH. Baseline factors that influence ASAS 20 response in patients with ankylosing spondylitis treated with etanercept. J Rheumatol. 2005 Sep;32(9):1751-4. PMID: 16142873 [PubMed - indexed for MEDLINE]9: Related Articles, LinksQuiceno GA, Cush JJ. Iatrogenic rheumatic syndromes in the elderly. Clin Geriatr Med. 2005 Aug;21(3):577-88, vii. Review. PMID: 15911208 [PubMed - indexed for MEDLINE]10: Related Articles, LinksCush JJ. Early arthritis clinics: if you build it will they come? J Rheumatol. 2005 Feb;32(2):203-7. No abstract available. PMID: 15693079 [PubMed - indexed for MEDLINE] None of these look specific to Still's, but I'll see if I can find anything else at other locations. Not an MD On Sun, Mar 9, 2008 at 10:38 AM, <MLH951@...> wrote: > HI I was hoping you may be able to help me. I have Stills disease > which has caused extensive erosive RA. Stills is a very rare disease and finding > information and research is difficult. I ran across some articles involving > Dr. J Cush who is active in treating Stills disease along with all RA > associated conditions. > > My problem is the last updated work I have found of his on Stills disease is > back in January of 2005, I was hoping with all your research skills you might > be able to point me in the right direction! > > I have checked out all the easily accessible info from things like the > International Stills disease .org and the like. > > Thanks, > > Mandi Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.