Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 Hey Dixie...sorry to stick my snout in here, but wanted to add my 2 cents if that's ok... I'm on 125mg of methylprednisone a day (just started about 2 weeks ago) plus one to two baclofen a day as well (muscle relaxers). I'm going to start going to a pain clinic week after next. I had been there a few months ago for some abdominal muscular problems after gall bladder surgery. They did epidurals in my abdomen, ribs and back for that and they honestly weren't painful and worked great. I'm hoping they can do something similar for the muscle cramps in my legs and feet as well. I can't take the percocet or percodan because I'm allergic to about 99% of the painkillers out there. I had been on oxycontin 2 years ago after spinal surgery and that stuff is very very dangerous. I insisted my docs take me off of it after I started spasming and read up on it on the net. It actually permanantly rearranges the molecules in your body, so if you decide to take it be really careful. It's also highly addictive. Just keep looking for the right doctor hun..don't give up. I've been through more doctors in the past year,lol..only YOU know what's best for you and don't let them try to bulldoze you. Ok, I'll shut up now, lol. Hang in there Dixie!! Hugs- Ivy Quoting Dixie <dix7chix@...>: > > > > > Hi, and thanks for your message. > > So much of what you say makes sense. I do take meds though. A limited > amount of prednisone, and a limited amount of Percocet. I also have a muscle > relaxant for my fibro. But as the various illnesses progress, my Dr. is > opposed to my increasing my meds. He wants me to go to a pain clinic. > > I've been to 3 of them. The 1st one toldme I wasn't taking nearly enough > pain meds and to come back when I was and they weren't working. The 2nd said > he would treat me, but I had to stop seeing all other doctors! The 3rd said > he would only give me injections in my spine. I'm definitely freaked out by > someone giving me injections in my spine. > > What I really need to do is find a doctor who will allow me to take a > little more prednisone. I don't get side effects from it - no increased BP, > no weight gain, no signs of congestive heart, only a little internal bleeding > if I take more than a certain amount. I know what that is, so I know when to > stop. > > It would also help if I could take either 3 Percocet a day on bad days > instead of 2, or something different in addition that's not as addictive, > like Ultram. > > After the big whoop-te-do about Oxycontin, doctors here are paranoid > about Rxing strong narcotic painkillers. My PCP told me that the state has > people checking their records and that the legislature passed a law requiring > pharmacies to report all rx's of certain meds monthly. While it's ood that > they are stopping the " in and out " places where you can get anything you want > in 3 minutes for $50, it's really hurting those of us who need something > strong. > > For some reason, Percocet doesn't make me sleepy. If it can get the pain > down to a reasonable level, I feel so much better than I want to go out and > do things. It's when it dosn't help that much that I end up in bed. > > Gone on long enough! Thanks again. > > Dix > > [ ] Unsure of myself > > > > > > I have what is a problem to me that I'd like some advice on. > > Like pretty much everyone here, I have good days and bad days. > Unfortunately, there have been a lot more bad days recently than good ones. > I have meds I can take, but tend to be cautious about narcotic painkillers. > I also have muscle relaxers for my fibro, and valium for my AS when the > inflammation starts pinching the nerves. I try to take only what I need to > bring it down to a tolerable level. Sometimes, even 2 Percocet doesn't have > much of an impact. And that's something I rarely do - take 2 of a med. > > So, on the trally bad days, when it hurts just to walk, I'll go back > to bed and put on a relaxing CD. Sometimes, I'll end up spending most of the > day in bed. > > And I feel guilty when I spend a lot of time in bed. I think it goes > back to my childhood when I was told literally every day that I wasn't good > enough and I would never be good enough. Spent 15 years in therapy getting > rid of most of the " ghosts " . > > I was also taught that there was always someone worse than I was. My > Dad was fully fused from AS and worked full time. Of course, he took massive > amount of prednisone and painkillers to be able to do so, and died at age 51 > from the side effects of all those meds. It's one of the reasons I watch my > meds. > > But I know there are people all over the world who have many, many > more problems than I do, and a lot of them have no meds to help them out. > > So, the bottom line is that I don't know if I should be pushing > myself more than I do on the bad days, or if I should find a way to stop > feeling guilty for resting on those days. > > Any help would be most appreciated. > > Dix > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Dixie, Sorry I made you guys wait. When I read your reply, I had a good belly laugh. The name is slated to be....drum roll....Cecily Eva (I don't even know if I spelled it correctly. Iris --- Dixie <dix7chix@...> wrote: > ROFL!!!!!!!!!!!!!!!!!! We must know the names now! It's no fair to bait us, then not come > through! lolol > Dix > [ ] RE:Iris > > > She has decided to name the child the same name that she named > her cat (the > ugliest cat know to mankind) and the second name after the baby's > father's dog. > > > .......OK what is this name???? I have to admit to having a good > laugh when I read this. I have stopped asking the names, as I must > make a face, because I always get OH mom...still having a good > chuckle...Kathi in Ok > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 Dixie: I was in no way criticizing you, but actually going back to the original thread, where I was posting something to you in response of a query of yours. I would'nt dream of criticizing anyone, nor hurting anyone's feelings.....I am sorry you took it that way and can go back and find the original post if you wish...it was way before you even posted your feelings on the subject. If we had different opinions I would not critisize you, but agree to disagree...lol...sorry you took it that way....Kathi in ok > > > > You're so welcome, Kathi! > > > > > > > > I'm not sure what you mean when you say, " it is to bad these > > > articles > > > > don't compare them with other choices. " > > > > > > > > > > > > > > > > > > > > I'll tell you where to go! > > > > > > > > Mayo Clinic in Rochester > > > > http://www.mayoclinic.org/rochester > > > > > > > > s Hopkins Medicine > > > > http://www.hopkinsmedicine.org > > > > > > > > > > > > [ ] RE: ..Thank you... Oxy > > > > > > > > > > > > > : First may I say thank you for your posts on narcotics, I > > > only > > > > > wish the stigma and misunderstanding would some how self > resolve. > > > > > Then I would like to say I am sorry, I was'nt trying to imply > > > anyone > > > > > should take anything only citing experience. I don't take any > med > > > > > before I have researched it throughly. Having scleroderma > they are > > > > > always trying to give me something, I think they feel they > must DO > > > > > something, and as there are no proven therapies they feel > > > helpless. > > > > > Judi is in the same kinda of situation, I believe. But, if > > > something > > > > > works, and for me oxy does, I have a half a life back, I will > > > > > continue to take it. It took alot of convincing for me to try > it, > > > and > > > > > then I was so embarrassed because I could have felt so much > > > better if > > > > > I had tried it to start off with. In IMHO there are alot more > > > scary > > > > > drugs, and steroids would be my NO.1 choice to NOT take, along > > > with > > > > > several others. I have gone off and on my oxy without any > > > withdrawal > > > > > problems, and I have been to a few pain clinics, their drug > of > > > > > choice was methadone, which ....I....could'nt tolerate. We > each > > > react > > > > > to drugs differently, so I would never knock anything that > works > > > for > > > > > some one else. It seems the stigma will never go away, and the > > > > > narcotics will always have a bad rap, it is to bad these > articles > > > > > don't compare them with other choices. And of course the > bottom > > > > > line ...all drugs are bad for you, you are putting a chemical > in > > > your > > > > > body that was never suppose to be there, of course the > wonderful > > > > > diseases were'nt suppose to either.....thank you for trying to > > > keep > > > > > us all educated......hugs Kathi in OK > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.