Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 If dmards stop the progression...does that mean once you go off of it - it progresses again...that would mean if so you would need to take them the rest of your life ???? Jayne >> In most cases, I believe the answer to your question is " yes " . There have got to be exceptions, just like there are for any other generalization. :-) Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2000 Report Share Posted March 9, 2000 Re: [ ] dmards > From: PHDRWD@... > > If dmards stop the progression...does that mean once you go off of it - it > progresses again...that would mean if so you would need to take them the rest > of your life ???? Jayne > >> > In most cases, I believe the answer to your question is " yes " . There have > got to be exceptions, just like there are for any other generalization. :-) > > Patty > > ----------------------- Patty , Jayne and the rest, This is why I am so scared of what is to come of me..... Katrina ------------------------------------------------- > PERFORM CPR ON YOUR APR! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > 1/2121/1/_/494167/_/952630579/ > ------------------------------------------------------------------------ > > Please visit our new web page at: > http://www.wpunj.edu/icip/pa > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2000 Report Share Posted May 28, 2000 Gloria, I have never heard or read that dmards prevent joint damage, only that they slow the damage. They most often lose their effectiveness with time. I wonder who on this list used dmards and antibiotics concurrently and had good results which held up after the dmards were discontinued. Also I would like to know which dmards they were taking. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2000 Report Share Posted May 29, 2000 Re: using DMARDS and AP concurrently, I used methotrexate and Minocin concurrently with good results. Am off methotrexate since March and still on Minocin - doing great so far. Babs RA 8/98, DX 4/99, AP 11/99 200 mg. Minocin 112 mcg. Synthroid 2 mg. Hytrin 10 mg. Lipitor Mestinon Vits. & Misc. Suplmts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 > Gloria, > I have never heard or read that dmards prevent joint damage, only that they > slow > the damage. They most often lose their effectiveness with time. I wonder who > on this list used dmards and antibiotics concurrently and had good results > which > held up after the dmards were discontinued. Also I would like to know which > dmards they were taking. > Ann I have been taking methotrexate since September of '99 along with minocycline. I'm doing well on it (despite a slight flare recently, which always seems to happen to me in the Spring. Booting the methotrexate up to 15mg from 12.5mg seems to be helping with that). I can't give you details on how I would be doing without the metho because my doctor does not yet think it is time for me to experiment going off of it. If I do reach that point, I'll let you know. I had thought this was going to be a possibility until my latest new flare. Although I continue to take the minocycline, I am skeptical of its benefits. I am however, somewhat reluctant to stop taking it, as its action when combined with methotrexate may be part of the reason I'm doing so well over the past 9 months. I don't know for sure and certainly no doctor knows. Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 Hi, So many of us start several new things at once, so we are never sure what helps. I just want to say that there are plenty of people who have taken minocycline with nothing else, and most of these people have ended up experiencing great improvement or even remission of all their symptoms. I know that it feels like alternative/weird medicine, especially in view of many doctors' reactions, but it does work. Thanks and good luck, Gloria ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 Hi all, I'm wondering if you take a DMARD? and if so which one? My biggest questions are- how long did it take for you to start to feel relief from it and do you have a lot of morning stiffness? Sorry for my ignorance and letting you know I appreciate your wisdom. Thanks, Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 It's probably safe to say that the majority of us with active RA are on one or more DMARDs. I take MTX and it took effect right away when I started it. I also take Humira and I felt improvement within the first few days, although it's more common with a biological to have improvement within a few months. I have never taken plaquinil but I know that can take weeks or months to take effect. I had lots of morning stiffness before I took MTX and then it creeped back after I had been on it for a while, which is the reason we added Humira. It's common for that to happen, you are on a drug that is working well but the disease worsens and the drug doesn't cut it anymore. That is when you increase the dosage or add another drug. All in order to prevent joint destruction and enable us to function on a daily basis. Jennie > Hi all, > I'm wondering if you take a DMARD? and if so which one? > > My biggest questions are- how long did it take for you to start to feel > relief from it and do you have a lot of morning stiffness? > > Sorry for my ignorance and letting you know I appreciate your wisdom. > > Thanks, > Abby > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 In a message dated 8/11/2004 7:26:44 AM Pacific Daylight Time, xponder70@... writes: It's probably safe to say that the majority of us with active RA are on one or more DMARDs. I take MTX and it took effect right away when I started it. I also take Humira and I felt improvement within the first few days, although it's more common with a biological to have improvement within a few months. Thank you for the response. I have been taking Sulfasalazine for for two weeks and felt better. It's been over a month now. I started with Prednisone 5mg per day but stopped it after one week due to the depression. I was feeling quite well. Very well. I've had a little bit of stiffness in the morning but not too bad. I recently had a VERY stressful situation and was hit like a ton of bricks again and realized just HOW well I was feeling since starting the med. The symptoms were back like gangbusters. I have taken a couple days of the prednisone and am much better again. I was feeling so much better, that aside from the slight stiffness in the AM, I was beginning to think it was all in my head. I was amazed at how this stress affected me. Just amazed and it also showed me that the Sulfasalazine was doing something. Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 In a message dated 8/15/2004 4:58:14 PM Pacific Daylight Time, xponder70@... writes: Does he/she know about stoping/starting the prednisone? I know you are on a low dose and haven't been on it for long, but usually you must wean off of it, otherwise you can experience extremely severe side effects. It can also throw you into an RA flare. Just another thing to be talking to your rheumy about to ensure you are being treated in the best way possible. Jennie No, she doesn't know I'm not taking it regularly, I don't see her again until October. When I had the reaction to Plaquenil, she let me titrate some Prednisone I had at home since I am an NP. Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 In a message dated 8/15/2004 4:58:14 PM Pacific Daylight Time, xponder70@... writes: Since RA is progressive, it's common for your meds to one day not work as well. That is when you need to discuss your meds with your rheumy. Does he/she know about stoping/starting the prednisone? I know you are on a low dose and haven't been on it for long, but usually you must wean off of it, otherwise you can experience extremely severe side effects. I will make sure I talk to her about all of this. It's all new in this respect. I'm glad you all are here to bounce things off of. I didn't realize the Sulfasalazine to be working so well .. and I certainly didn't realize that stress would affect me so profoundly. Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 I'm glad the medicine is working. Just so you know, you need to keep your doctor informed if the medicine stops working as well. Since RA is progressive, it's common for your meds to one day not work as well. That is when you need to discuss your meds with your rheumy. Does he/she know about stoping/starting the prednisone? I know you are on a low dose and haven't been on it for long, but usually you must wean off of it, otherwise you can experience extremely severe side effects. It can also throw you into an RA flare. Just another thing to be talking to your rheumy about to ensure you are being treated in the best way possible. Jennie > > In a message dated 8/11/2004 7:26:44 AM Pacific Daylight Time, > xponder70@y... writes: > > It's probably safe to say that the majority of us with active RA are > on one or more DMARDs. I take MTX and it took effect right away when > I started it. I also take Humira and I felt improvement within the > first few days, although it's more common with a biological to have > improvement within a few months. > > > Thank you for the response. I have been taking Sulfasalazine for for two > weeks and felt better. It's been over a month now. I started with Prednisone 5mg > per day but stopped it after one week due to the depression. I was feeling > quite well. Very well. I've had a little bit of stiffness in the morning but > not too bad. > > I recently had a VERY stressful situation and was hit like a ton of bricks > again and realized just HOW well I was feeling since starting the med. The > symptoms were back like gangbusters. I have taken a couple days of the > prednisone and am much better again. I was feeling so much better, that aside from the > slight stiffness in the AM, I was beginning to think it was all in my head. > > I was amazed at how this stress affected me. Just amazed and it also showed > me that the Sulfasalazine was doing something. > > Abby > > > Quote Link to comment Share on other sites More sharing options...
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