Re: Prednisone update - /Jennie

[Guest guest]

Jennie I love arthritis tyelenol! It is my new friend! I found it

in February - only by mistake. I got hit on the head by my

malfunctioning garage door and got a concussion. The doctor told me

to take it because it lasts longer than other tyelenol. It is good

stuff.

Sounds like your job was like mine. I lug (or did - now I refuse)

in and out. I drive 30,000 miles a year on my car from customer to

customer. I am going to try to hang in there - I hear disability is

near impossible to get but September is coming. I am functional but

have already retrained myself to do another job (this one) because I

couldn't do executive support anymore (my hands). Now what is

left? So, I hope that this new rheumy, through Loma

University - very recommended may be able to help me through this.

Meanwhile, I will work on my degree and finish school. This way I

can do a job that I use my brain...I still have three kids at home

and no way to support them...sooooooo.... How do you make it with

cutting your hours? Did you find a way to do something else?

> > > > So I expected a miracle...ha ha...I have no insurance so I

> used

> > > alot

> > > > of my money that I really couldn't spare and went to my old

> > rheumy -

> > >

> > > > he knows that I will have insurance in a couple of months so

> we

> > are

> > > > doing a " band-aid " process until then. He put me on a burst

> of

> > > > prednisone.

> > > >

> > > > Before it always worked and I was supermom, superhuman,

> > superworker

> > > > and felt fabulous - like I didn't even have RA. I am barely

> > > feeling

> > > > a difference this time. It has had an effect - some, but

not

> > > alot.

> > > > Is this normal? Do we just progress too far that prednisone

> > alone

> > > > is not enough? Chalk this up to inexperience with this and

> > denial

> > > > up to now....I am now having to come down on the dosage from

> 20

> > mg

> > > > and dont want to... Has anyone else experienced this? What

> > > > happened? I feel yucky still!

[Guest guest]

I never really planned to stay in public accounting or as an auditor

forever. It was easy to go out and find a job as an accountant, or

financial analyst as I now am. I was lucky that I could do that.

When I was job hunting I was very outspoken that I wanted to work in

a place where everyone left at 5pm, partially because of the RA and

also because I have to get my daughter from preschool before 6pm. I

took a slight pay cut but once I start getting bonuses in a few

months it will work out to be a pay increase.

I am confident the rheumy can help you once you have insurance. All

I wanted when I got RA was to get on one of the biological drugs. It

has made an incredible difference for me. I was on MTX before that,

and it really helped a lot too.

Jennie

> > > > > So I expected a miracle...ha ha...I have no insurance so I

> > used

> > > > alot

> > > > > of my money that I really couldn't spare and went to my old

> > > rheumy -

> > > >

> > > > > he knows that I will have insurance in a couple of months

so

> > we

> > > are

> > > > > doing a " band-aid " process until then. He put me on a

burst

> > of

> > > > > prednisone.

> > > > >

> > > > > Before it always worked and I was supermom, superhuman,

> > > superworker

> > > > > and felt fabulous - like I didn't even have RA. I am

barely

> > > > feeling

> > > > > a difference this time. It has had an effect - some, but

> not

> > > > alot.

> > > > > Is this normal? Do we just progress too far that

prednisone

> > > alone

> > > > > is not enough? Chalk this up to inexperience with this and

> > > denial

> > > > > up to now....I am now having to come down on the dosage

from

> > 20

> > > mg

> > > > > and dont want to... Has anyone else experienced this?

What

> > > > > happened? I feel yucky still!

[Guest guest]

Hi Jennie - I just got my sed rate back and my rheumy decided (the

temp one) that we couldn't wait anymore. He started MTX.

Eww.....combined with the heat and working in that all day - it is

so hot here in CA and I work all day in that. Is it normal to feel

so sick to your stomach? Holy cow--- I didn't expect this and

usually I am a trooper but had to come home today from work.

In , " xponder70 " <xponder70@y...> wrote:

> I never really planned to stay in public accounting or as an

auditor

> forever. It was easy to go out and find a job as an accountant,

or

> financial analyst as I now am. I was lucky that I could do that.

> When I was job hunting I was very outspoken that I wanted to work

in

> a place where everyone left at 5pm, partially because of the RA

and

> also because I have to get my daughter from preschool before 6pm.

I

> took a slight pay cut but once I start getting bonuses in a few

> months it will work out to be a pay increase.

>

> I am confident the rheumy can help you once you have insurance.

All

> I wanted when I got RA was to get on one of the biological drugs.

It

> has made an incredible difference for me. I was on MTX before

that,

> and it really helped a lot too.

>

> Jennie

>

>

> > > > > > So I expected a miracle...ha ha...I have no insurance so

I

> > > used

> > > > > alot

> > > > > > of my money that I really couldn't spare and went to my

old

> > > > rheumy -

> > > > >

> > > > > > he knows that I will have insurance in a couple of

months

> so

> > > we

> > > > are

> > > > > > doing a " band-aid " process until then. He put me on a

> burst

> > > of

> > > > > > prednisone.

> > > > > >

> > > > > > Before it always worked and I was supermom, superhuman,

> > > > superworker

> > > > > > and felt fabulous - like I didn't even have RA. I am

> barely

> > > > > feeling

> > > > > > a difference this time. It has had an effect - some,

but

> > not

> > > > > alot.

> > > > > > Is this normal? Do we just progress too far that

> prednisone

> > > > alone

> > > > > > is not enough? Chalk this up to inexperience with this

and

> > > > denial

> > > > > > up to now....I am now having to come down on the dosage

> from

> > > 20

> > > > mg

> > > > > > and dont want to... Has anyone else experienced this?

> What

> > > > > > happened? I feel yucky still!

[Guest guest]

How much did he start you on? Did you take it with food? I take

17.5 mgs on Saturday mornings. I think the morning is important and

with food is too. I started on a smaller dose though, and worked up

to that. I can't remember if I felt sick. Tell your doc about the

reaction, but I'll bet you'll feel better tomorrow. I'll be

thinking of you

Jennie

> > > > > > > So I expected a miracle...ha ha...I have no insurance

so

> I

> > > > used

> > > > > > alot

> > > > > > > of my money that I really couldn't spare and went to

my

> old

> > > > > rheumy -

> > > > > >

> > > > > > > he knows that I will have insurance in a couple of

> months

> > so

> > > > we

> > > > > are

> > > > > > > doing a " band-aid " process until then. He put me on a

> > burst

> > > > of

> > > > > > > prednisone.

> > > > > > >

> > > > > > > Before it always worked and I was supermom,

superhuman,

> > > > > superworker

> > > > > > > and felt fabulous - like I didn't even have RA. I am

> > barely

> > > > > > feeling

> > > > > > > a difference this time. It has had an effect - some,

> but

> > > not

> > > > > > alot.

> > > > > > > Is this normal? Do we just progress too far that

> > prednisone

> > > > > alone

> > > > > > > is not enough? Chalk this up to inexperience with

this

> and

> > > > > denial

> > > > > > > up to now....I am now having to come down on the

dosage

> > from

> > > > 20

> > > > > mg

> > > > > > > and dont want to... Has anyone else experienced

this?

> > What

> > > > > > > happened? I feel yucky still!