Guest guest Posted November 20, 2004 Report Share Posted November 20, 2004 Joanne, What a terrible experience for you. How long did you have this reaction.? Did you continue with the Prosorba Column? Because I have a sulpha allergy that popped up after one week on Celebrex , I am limited to only drugs without a sulpha component. There aren't many of them. After the Arava that I am starting to take now, only cyclosporine is left. I was interested in the Prosorba treatment that I've been reading about in group. My doc said he would try and get me into some program at Northwestern University if I come to the end of the meds i can take. Thanks for answering. I'm still looking for someone with Lichen Panus. Most of the red lesions are fading to brown but my mouth and eyes are still in bad shape. Pat --- In , " easyspirit13@n... " < Easyspirit13@n...> wrot > Hi, > I only had one dose of humira a few years ago and landed in the hospital with a potent infection...Who knows if Humira was the causw? I do know that it worked great as I felt improvement in 1 wk and if needed I would like to try it again... > > Anyway talking about lichen panus (sp?) and goofy immune systems. While on the Prosorba treatment last month...(with no new mediations or changes) I, as always, washed my face with dove and used a very mild cream recommended by the dermatologist. I had used both for 10 yrs, but this time I woke up with my face burning. I looked into the mirror and my face looked burned and burned at least 2nd degree..and continued to worsen by the hour. This all happened within 24 hrs!!!!!.Long story short and 8! physicians and a trip to Hershey ER.....I was diagnosed with ERYSIPALIS OF THE FACE...BASICALLY A STREP INFECTION OF THE FACE. It was so acute that my face started peeling the next day. I was put on heavy duty penicillin for 2 wks and it eventually healed. But is was so sudden and so strange as the one deciding factor that it was erysipalis was there was a very obvious line from one ear to the other, under my chin. Above the line red, hot filled with fluid and very tight, and below absolutely normal skin... > But leave it to me...I always get something weird... > > So our immune systems definitely can be strange! > > Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2004 Report Share Posted November 20, 2004 Joanne, What a terrible experience for you. How long did you have this reaction.? Did you continue with the Prosorba Column? Because I have a sulpha allergy that popped up after one week on Celebrex , I am limited to only drugs without a sulpha component. There aren't many of them. After the Arava that I am starting to take now, only cyclosporine is left. I was interested in the Prosorba treatment that I've been reading about in group. My doc said he would try and get me into some program at Northwestern University if I come to the end of the meds i can take. Thanks for answering. I'm still looking for someone with Lichen Panus. Most of the red lesions are fading to brown but my mouth and eyes are still in bad shape. Pat --- In , " easyspirit13@n... " < Easyspirit13@n...> wrot > Hi, > I only had one dose of humira a few years ago and landed in the hospital with a potent infection...Who knows if Humira was the causw? I do know that it worked great as I felt improvement in 1 wk and if needed I would like to try it again... > > Anyway talking about lichen panus (sp?) and goofy immune systems. While on the Prosorba treatment last month...(with no new mediations or changes) I, as always, washed my face with dove and used a very mild cream recommended by the dermatologist. I had used both for 10 yrs, but this time I woke up with my face burning. I looked into the mirror and my face looked burned and burned at least 2nd degree..and continued to worsen by the hour. This all happened within 24 hrs!!!!!.Long story short and 8! physicians and a trip to Hershey ER.....I was diagnosed with ERYSIPALIS OF THE FACE...BASICALLY A STREP INFECTION OF THE FACE. It was so acute that my face started peeling the next day. I was put on heavy duty penicillin for 2 wks and it eventually healed. But is was so sudden and so strange as the one deciding factor that it was erysipalis was there was a very obvious line from one ear to the other, under my chin. Above the line red, hot filled with fluid and very tight, and below absolutely normal skin... > But leave it to me...I always get something weird... > > So our immune systems definitely can be strange! > > Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2004 Report Share Posted November 20, 2004 Joanne, What a terrible experience for you. How long did you have this reaction.? Did you continue with the Prosorba Column? Because I have a sulpha allergy that popped up after one week on Celebrex , I am limited to only drugs without a sulpha component. There aren't many of them. After the Arava that I am starting to take now, only cyclosporine is left. I was interested in the Prosorba treatment that I've been reading about in group. My doc said he would try and get me into some program at Northwestern University if I come to the end of the meds i can take. Thanks for answering. I'm still looking for someone with Lichen Panus. Most of the red lesions are fading to brown but my mouth and eyes are still in bad shape. Pat --- In , " easyspirit13@n... " < Easyspirit13@n...> wrot > Hi, > I only had one dose of humira a few years ago and landed in the hospital with a potent infection...Who knows if Humira was the causw? I do know that it worked great as I felt improvement in 1 wk and if needed I would like to try it again... > > Anyway talking about lichen panus (sp?) and goofy immune systems. While on the Prosorba treatment last month...(with no new mediations or changes) I, as always, washed my face with dove and used a very mild cream recommended by the dermatologist. I had used both for 10 yrs, but this time I woke up with my face burning. I looked into the mirror and my face looked burned and burned at least 2nd degree..and continued to worsen by the hour. This all happened within 24 hrs!!!!!.Long story short and 8! physicians and a trip to Hershey ER.....I was diagnosed with ERYSIPALIS OF THE FACE...BASICALLY A STREP INFECTION OF THE FACE. It was so acute that my face started peeling the next day. I was put on heavy duty penicillin for 2 wks and it eventually healed. But is was so sudden and so strange as the one deciding factor that it was erysipalis was there was a very obvious line from one ear to the other, under my chin. Above the line red, hot filled with fluid and very tight, and below absolutely normal skin... > But leave it to me...I always get something weird... > > So our immune systems definitely can be strange! > > Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2004 Report Share Posted November 20, 2004 Joanne, What a terrible experience for you. How long did you have this reaction.? Did you continue with the Prosorba Column? Because I have a sulpha allergy that popped up after one week on Celebrex , I am limited to only drugs without a sulpha component. There aren't many of them. After the Arava that I am starting to take now, only cyclosporine is left. I was interested in the Prosorba treatment that I've been reading about in group. My doc said he would try and get me into some program at Northwestern University if I come to the end of the meds i can take. Thanks for answering. I'm still looking for someone with Lichen Panus. Most of the red lesions are fading to brown but my mouth and eyes are still in bad shape. Pat --- In , " easyspirit13@n... " < Easyspirit13@n...> wrot > Hi, > I only had one dose of humira a few years ago and landed in the hospital with a potent infection...Who knows if Humira was the causw? I do know that it worked great as I felt improvement in 1 wk and if needed I would like to try it again... > > Anyway talking about lichen panus (sp?) and goofy immune systems. While on the Prosorba treatment last month...(with no new mediations or changes) I, as always, washed my face with dove and used a very mild cream recommended by the dermatologist. I had used both for 10 yrs, but this time I woke up with my face burning. I looked into the mirror and my face looked burned and burned at least 2nd degree..and continued to worsen by the hour. This all happened within 24 hrs!!!!!.Long story short and 8! physicians and a trip to Hershey ER.....I was diagnosed with ERYSIPALIS OF THE FACE...BASICALLY A STREP INFECTION OF THE FACE. It was so acute that my face started peeling the next day. I was put on heavy duty penicillin for 2 wks and it eventually healed. But is was so sudden and so strange as the one deciding factor that it was erysipalis was there was a very obvious line from one ear to the other, under my chin. Above the line red, hot filled with fluid and very tight, and below absolutely normal skin... > But leave it to me...I always get something weird... > > So our immune systems definitely can be strange! > > Joanne Quote Link to comment Share on other sites More sharing options...
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