Cary, the noncompliant patient

July 27, 2004

I'm glad you've got an appointment coming up so soon, Cary, LOL. I'll be

anxious to hear all about it.

I'll tell you where to go!

Mayo Clinic in Rochester

s Hopkins Medicine

Re: [ ] remicade/St. Louis?

> Hi Latisha

> No offense, but your rheumy sounds like a jerk. Wasting the Remicade

on

> you!!??????? Jeeez! Some people don't respond to one biologic but do

respond to

> another. I have been on Remicade for I think about 2 years or

so....it has

> made a huge difference for me, although I think that is starting to

lessen here

> lately. It kinda did help almost immediately at first, although I

think the

> first 2 initial doses it didn't last. I've been getting it every 8

weeks up

> till now. Now it seems it is only lasting about 4 weeks. Are you on

anything

> else with it? Does your doc dose it by weight, or by a flat dose?

The new

> recommendations are if it isn't working as well to increase frequency

rather than

> dose. That's according to the reps who give inservices to hospital

nurses.

> I'm waiting to see what my doc says, because, YES, GINA! I finally am

going

> back in on Aug 5th. I am, I guess, moderately non-compliant as a

patient. :>(

> Can't help myself! I never could listen to authority figures!

> Good luck with your move. I'm pretty sure we have people on this list

in St.

> Louis. I hope you find a doc who isn't so rude! Cary

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