Re: My life with RA,......

[Guest guest]

That is so true!

> Well Tawny-

> If you do have Crohn's, at least some of the meds that work for RA

also work for Crohn's. I hope you'll get 2 for the price of one when

you find one that works. Cary

[Guest guest]

Tawny, fibromyalgia could be part of your problem, but it sounds as if

that isn't the only culprit.

When you tried MTX before, was it prescribed by your current

rheumatologist? Sometimes, some physicians overreact to mild elevations

in the liver function tests and inappropriately withdraw the MTX. I

think taking it by injection is the best way, especially since you have

GI problems.

Flares are unpredictable and individual, so it's impossible to say how

long it will last.

Please do have that long talk with your rheumatologist - and soon!

Hoping for better days for you in the very near future,

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: My life with RA,......

>

>

> , I will have a long talk with him on my next visit. I think now

> that the Medicare will come through, he will be able to help me

> more. We can get lab testing, and x-rays just to see how much damage

> new damage I have. I do need some surgery, I know that is going to

> be in my near future, whether I like it, or not. My right wrist is

> useless, I can do nothing with it.

> I know that when I was put on the MTX, it did help me. So, maybe I

> can go back on that once again. Is the injectons better, ? I

> have heard so many say they have less side effects taking the

> injection.

> I hope that I don't have Crohn's, that needs to be ruled out. I have

> a lot of medical problems right now.

> I have a question for you ? Could the fibro cause this much

> pain? Also, on flaring would this be a flare, how long does the

> flaring last? I know where my joints are, my skin is red, swollen,

> and warm to touch.

> Thanks for being so helpful and caring. That is what makes you so

> special, T

[Guest guest]

Tawny, fibromyalgia could be part of your problem, but it sounds as if

that isn't the only culprit.

When you tried MTX before, was it prescribed by your current

rheumatologist? Sometimes, some physicians overreact to mild elevations

in the liver function tests and inappropriately withdraw the MTX. I

think taking it by injection is the best way, especially since you have

GI problems.

Flares are unpredictable and individual, so it's impossible to say how

long it will last.

Please do have that long talk with your rheumatologist - and soon!

Hoping for better days for you in the very near future,

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: My life with RA,......

>

>

> , I will have a long talk with him on my next visit. I think now

> that the Medicare will come through, he will be able to help me

> more. We can get lab testing, and x-rays just to see how much damage

> new damage I have. I do need some surgery, I know that is going to

> be in my near future, whether I like it, or not. My right wrist is

> useless, I can do nothing with it.

> I know that when I was put on the MTX, it did help me. So, maybe I

> can go back on that once again. Is the injectons better, ? I

> have heard so many say they have less side effects taking the

> injection.

> I hope that I don't have Crohn's, that needs to be ruled out. I have

> a lot of medical problems right now.

> I have a question for you ? Could the fibro cause this much

> pain? Also, on flaring would this be a flare, how long does the

> flaring last? I know where my joints are, my skin is red, swollen,

> and warm to touch.

> Thanks for being so helpful and caring. That is what makes you so

> special, T

[Guest guest]

Yes, when I was prescribed with the MTX, it was by my current

rheumy. I do think I will talk to him about the elevated levels at

that time, see how high they were. We couldn't do a lot of lab work

either, and so that was another reason why he took me off of it.

I think if I do go back on the MTX, it will be the injections, I'm

getting to be such a pro now since the Humira. I'm the same one that

was scared to death to look at a needle, I am looking forward to

better days ahead, thanks so much, T

> Tawny, fibromyalgia could be part of your problem, but it sounds as

if

> that isn't the only culprit.

>

> When you tried MTX before, was it prescribed by your current

> rheumatologist? Sometimes, some physicians overreact to mild

elevations

> in the liver function tests and inappropriately withdraw the MTX. I

> think taking it by injection is the best way, especially since you

have

> GI problems.

>

> Flares are unpredictable and individual, so it's impossible to say

how

> long it will last.

>

> Please do have that long talk with your rheumatologist - and soon!

>

> Hoping for better days for you in the very near future,

>

>

>

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> [ ] Re: My life with RA,......

>

>

> >

> >

> > , I will have a long talk with him on my next visit. I think

now

> > that the Medicare will come through, he will be able to help me

> > more. We can get lab testing, and x-rays just to see how much

damage

> > new damage I have. I do need some surgery, I know that is going

to

> > be in my near future, whether I like it, or not. My right wrist

is

> > useless, I can do nothing with it.

> > I know that when I was put on the MTX, it did help me. So, maybe

I

> > can go back on that once again. Is the injectons better, ? I

> > have heard so many say they have less side effects taking the

> > injection.

> > I hope that I don't have Crohn's, that needs to be ruled out. I

have

> > a lot of medical problems right now.

> > I have a question for you ? Could the fibro cause this much

> > pain? Also, on flaring would this be a flare, how long does the

> > flaring last? I know where my joints are, my skin is red,

swollen,

> > and warm to touch.

> > Thanks for being so helpful and caring. That is what makes you so

> > special, T

[Guest guest]

Yes, when I was prescribed with the MTX, it was by my current

rheumy. I do think I will talk to him about the elevated levels at

that time, see how high they were. We couldn't do a lot of lab work

either, and so that was another reason why he took me off of it.

I think if I do go back on the MTX, it will be the injections, I'm

getting to be such a pro now since the Humira. I'm the same one that

was scared to death to look at a needle, I am looking forward to

better days ahead, thanks so much, T

> Tawny, fibromyalgia could be part of your problem, but it sounds as

if

> that isn't the only culprit.

>

> When you tried MTX before, was it prescribed by your current

> rheumatologist? Sometimes, some physicians overreact to mild

elevations

> in the liver function tests and inappropriately withdraw the MTX. I

> think taking it by injection is the best way, especially since you

have

> GI problems.

>

> Flares are unpredictable and individual, so it's impossible to say

how

> long it will last.

>

> Please do have that long talk with your rheumatologist - and soon!

>

> Hoping for better days for you in the very near future,

>

>

>

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> [ ] Re: My life with RA,......

>

>

> >

> >

> > , I will have a long talk with him on my next visit. I think

now

> > that the Medicare will come through, he will be able to help me

> > more. We can get lab testing, and x-rays just to see how much

damage

> > new damage I have. I do need some surgery, I know that is going

to

> > be in my near future, whether I like it, or not. My right wrist

is

> > useless, I can do nothing with it.

> > I know that when I was put on the MTX, it did help me. So, maybe

I

> > can go back on that once again. Is the injectons better, ? I

> > have heard so many say they have less side effects taking the

> > injection.

> > I hope that I don't have Crohn's, that needs to be ruled out. I

have

> > a lot of medical problems right now.

> > I have a question for you ? Could the fibro cause this much

> > pain? Also, on flaring would this be a flare, how long does the

> > flaring last? I know where my joints are, my skin is red,

swollen,

> > and warm to touch.

> > Thanks for being so helpful and caring. That is what makes you so

> > special, T

[Guest guest]

Can you suggest an RD in OKC. I am forced to find a new one and Dr. Delafield

will not have a second opportunity to talk down to me. I have had a problem

finding one in my insurance network.

[Guest guest]

Can you suggest an RD in OKC. I am forced to find a new one and Dr. Delafield

will not have a second opportunity to talk down to me. I have had a problem

finding one in my insurance network.

[Guest guest]

My rheumy is Dr. Carson in Edmond, great doctor. phone#405-844-4978

> Can you suggest an RD in OKC. I am forced to find a new one and

Dr. Delafield will not have a second opportunity to talk down to me.

I have had a problem finding one in my insurance network.

>

[Guest guest]

My rheumy is Dr. Carson in Edmond, great doctor. phone#405-844-4978

> Can you suggest an RD in OKC. I am forced to find a new one and

Dr. Delafield will not have a second opportunity to talk down to me.

I have had a problem finding one in my insurance network.

>

[Guest guest]

I am so sorry. I think I kinda know sorta how you feel. I am changed cuz of

this illness, in more ways than just the pain part. I am so tired of not having

the ability to do the things I always liked doing. I see the commercials on TV

and I think gosh, why am I like this? I am not sure for you, but for me the

areas that hurt or swell change often. REAL often...and it makes it hard to

adapt, I think cuz so many different areas are affected. Even when it is my

fingers or hands, just exaactly where the swelling and pain is can be so

different from another tiime it is in my fingers or hands..meaning what movement

did not cause me pain last time causes me pain this time, cuz the affected spot

is just a little over here this time. If I figure out oh today I can pull up my

pants this way, next time that way causes pain. Just when I think oh I can hold

my comb this way- it does nt work quite the same today. I think not being able

to make concrete adaptations that work time after time keeps me from being more

accepting and positive minded, and the fatigue does not help, either.

Many gentle hugs for you. I wish I could make it better. :-)

- In , " Tawny " <tawnyokc@s...> wrote:

>

> I would like to get my RA in control. I have been in constant pain

> for almost 3 years now, with little relief. I have taken a lot of

> different meds, but none really seem to help the constant nagging

> pain. I am taking the med to prevent the progression of the

> disease. But, I still see my hands deforming, so then what?

> I can't exercise for the pain. I can't hardly walk, using my hands

> is tough. It's not what I won't, I have gave a good fight over the

> last couple of years, but all I see is the disease taking over my

> body each day. It's effecting my life so much, and it's hard.

> I don't sleep, and I cry until I make myself sick. But, what can I

> do? How can I take the RA positive? I pray for remission, just a

> little relief, but it hasn't happened yet.

[Guest guest]

I am so sorry. I think I kinda know sorta how you feel. I am changed cuz of

this illness, in more ways than just the pain part. I am so tired of not having

the ability to do the things I always liked doing. I see the commercials on TV

and I think gosh, why am I like this? I am not sure for you, but for me the

areas that hurt or swell change often. REAL often...and it makes it hard to

adapt, I think cuz so many different areas are affected. Even when it is my

fingers or hands, just exaactly where the swelling and pain is can be so

different from another tiime it is in my fingers or hands..meaning what movement

did not cause me pain last time causes me pain this time, cuz the affected spot

is just a little over here this time. If I figure out oh today I can pull up my

pants this way, next time that way causes pain. Just when I think oh I can hold

my comb this way- it does nt work quite the same today. I think not being able

to make concrete adaptations that work time after time keeps me from being more

accepting and positive minded, and the fatigue does not help, either.

Many gentle hugs for you. I wish I could make it better. :-)

- In , " Tawny " <tawnyokc@s...> wrote:

>

> I would like to get my RA in control. I have been in constant pain

> for almost 3 years now, with little relief. I have taken a lot of

> different meds, but none really seem to help the constant nagging

> pain. I am taking the med to prevent the progression of the

> disease. But, I still see my hands deforming, so then what?

> I can't exercise for the pain. I can't hardly walk, using my hands

> is tough. It's not what I won't, I have gave a good fight over the

> last couple of years, but all I see is the disease taking over my

> body each day. It's effecting my life so much, and it's hard.

> I don't sleep, and I cry until I make myself sick. But, what can I

> do? How can I take the RA positive? I pray for remission, just a

> little relief, but it hasn't happened yet.

[Guest guest]

Yes, it is hard to deal with, and there are days you just CANNOT deal

with it, I'm getting back like that once again. I'm having problems

with my lungs, and I'm worried about it. But, I just can't go to the

doctor when I want to, with no insurance, no money, kind of hard.

But, I do the best that I can, and that is all I can do. In the mean

time, I worry about what's going on, dealing with horrible pain, and

try to keep sane, which isn't easy. The Medicare does start in

January, if I'm still around by then, maybe I can seek some help.

Thanks so much, to hear your comforting words, it does help me

emotionally. I go through an emotional roller-coaster everyday, and

it's just so hard to take anymore. Sometimes, I do feel like I'm the

only one, and maybe I shouldn't be like this, I don't know it's just

too confusing to figure out myself, hugs to you, and prayers with

you, Tawny

> >

> > I would like to get my RA in control. I have been in constant

pain

> > for almost 3 years now, with little relief. I have taken a lot

of

> > different meds, but none really seem to help the constant nagging

> > pain. I am taking the med to prevent the progression of the

> > disease. But, I still see my hands deforming, so then what?

> > I can't exercise for the pain. I can't hardly walk, using my

hands

> > is tough. It's not what I won't, I have gave a good fight over

the

> > last couple of years, but all I see is the disease taking over my

> > body each day. It's effecting my life so much, and it's hard.

> > I don't sleep, and I cry until I make myself sick. But, what can

I

> > do? How can I take the RA positive? I pray for remission, just

a

> > little relief, but it hasn't happened yet.

[Guest guest]

Yes, it is hard to deal with, and there are days you just CANNOT deal

with it, I'm getting back like that once again. I'm having problems

with my lungs, and I'm worried about it. But, I just can't go to the

doctor when I want to, with no insurance, no money, kind of hard.

But, I do the best that I can, and that is all I can do. In the mean

time, I worry about what's going on, dealing with horrible pain, and

try to keep sane, which isn't easy. The Medicare does start in

January, if I'm still around by then, maybe I can seek some help.

Thanks so much, to hear your comforting words, it does help me

emotionally. I go through an emotional roller-coaster everyday, and

it's just so hard to take anymore. Sometimes, I do feel like I'm the

only one, and maybe I shouldn't be like this, I don't know it's just

too confusing to figure out myself, hugs to you, and prayers with

you, Tawny

> >

> > I would like to get my RA in control. I have been in constant

pain

> > for almost 3 years now, with little relief. I have taken a lot

of

> > different meds, but none really seem to help the constant nagging

> > pain. I am taking the med to prevent the progression of the

> > disease. But, I still see my hands deforming, so then what?

> > I can't exercise for the pain. I can't hardly walk, using my

hands

> > is tough. It's not what I won't, I have gave a good fight over

the

> > last couple of years, but all I see is the disease taking over my

> > body each day. It's effecting my life so much, and it's hard.

> > I don't sleep, and I cry until I make myself sick. But, what can

I

> > do? How can I take the RA positive? I pray for remission, just

a

> > little relief, but it hasn't happened yet.

[Guest guest]

That time I was waiting for my Medicare to kick in I was so ......bitter.....and

so angry, cuz I also could not afford to do anything about any of it. my

husband nd 2 of my 3 kids are also disabled and things were a horrid mess.

I miss working, I hate the pain, and I slip into depressions. I alo have

bipolar disorder so antidepressants are a big NO NO.

Some days I just cry all day, some days I just go back to bed and pull the

covers over my head. Then I cry more cuz until RA I was so full of it....2 or 3

jobs all my life and always on the run...nothing could slow me down ever. I

feel like RA was this brick wall that my racecar hit head on at about 200 MPH.

Gosh even the pain feels like it, too.

BUT have hope.....I also have better days------some days i make my husband set

up my scooter and I go zipping around with my little doggie on it and race my

kids. LOL

Please hang in there. Know people DO care!

- In , " Tawny " <tawnyokc@s...> wrote:

>

> Yes, it is hard to deal with, and there are days you just CANNOT deal

> with it, I'm getting back like that once again. I'm having problems

> with my lungs, and I'm worried about it. But, I just can't go to the

> doctor when I want to, with no insurance, no money, kind of hard.

> But, I do the best that I can, and that is all I can do. In the mean

> time, I worry about what's going on, dealing with horrible pain, and

> try to keep sane, which isn't easy. The Medicare does start in

> January, if I'm still around by then, maybe I can seek some help.

> Thanks so much, to hear your comforting words, it does help me

> emotionally. I go through an emotional roller-coaster everyday, and

> it's just so hard to take anymore. Sometimes, I do feel like I'm the

> only one, and maybe I shouldn't be like this, I don't know it's just

> too confusing to figure out myself, hugs to you, and prayers with

> you, Tawny

>

>

>

>

>

>

> > >

> > > I would like to get my RA in control. I have been in constant

> pain

> > > for almost 3 years now, with little relief. I have taken a lot

> of

> > > different meds, but none really seem to help the constant nagging

> > > pain. I am taking the med to prevent the progression of the

> > > disease. But, I still see my hands deforming, so then what?

> > > I can't exercise for the pain. I can't hardly walk, using my

> hands

> > > is tough. It's not what I won't, I have gave a good fight over

> the

> > > last couple of years, but all I see is the disease taking over my

> > > body each day. It's effecting my life so much, and it's hard.

> > > I don't sleep, and I cry until I make myself sick. But, what can

> I

> > > do? How can I take the RA positive? I pray for remission, just

> a

> > > little relief, but it hasn't happened yet.

[Guest guest]

That time I was waiting for my Medicare to kick in I was so ......bitter.....and

so angry, cuz I also could not afford to do anything about any of it. my

husband nd 2 of my 3 kids are also disabled and things were a horrid mess.

I miss working, I hate the pain, and I slip into depressions. I alo have

bipolar disorder so antidepressants are a big NO NO.

Some days I just cry all day, some days I just go back to bed and pull the

covers over my head. Then I cry more cuz until RA I was so full of it....2 or 3

jobs all my life and always on the run...nothing could slow me down ever. I

feel like RA was this brick wall that my racecar hit head on at about 200 MPH.

Gosh even the pain feels like it, too.

BUT have hope.....I also have better days------some days i make my husband set

up my scooter and I go zipping around with my little doggie on it and race my

kids. LOL

Please hang in there. Know people DO care!

- In , " Tawny " <tawnyokc@s...> wrote:

>

> Yes, it is hard to deal with, and there are days you just CANNOT deal

> with it, I'm getting back like that once again. I'm having problems

> with my lungs, and I'm worried about it. But, I just can't go to the

> doctor when I want to, with no insurance, no money, kind of hard.

> But, I do the best that I can, and that is all I can do. In the mean

> time, I worry about what's going on, dealing with horrible pain, and

> try to keep sane, which isn't easy. The Medicare does start in

> January, if I'm still around by then, maybe I can seek some help.

> Thanks so much, to hear your comforting words, it does help me

> emotionally. I go through an emotional roller-coaster everyday, and

> it's just so hard to take anymore. Sometimes, I do feel like I'm the

> only one, and maybe I shouldn't be like this, I don't know it's just

> too confusing to figure out myself, hugs to you, and prayers with

> you, Tawny

>

>

>

>

>

>

> > >

> > > I would like to get my RA in control. I have been in constant

> pain

> > > for almost 3 years now, with little relief. I have taken a lot

> of

> > > different meds, but none really seem to help the constant nagging

> > > pain. I am taking the med to prevent the progression of the

> > > disease. But, I still see my hands deforming, so then what?

> > > I can't exercise for the pain. I can't hardly walk, using my

> hands

> > > is tough. It's not what I won't, I have gave a good fight over

> the

> > > last couple of years, but all I see is the disease taking over my

> > > body each day. It's effecting my life so much, and it's hard.

> > > I don't sleep, and I cry until I make myself sick. But, what can

> I

> > > do? How can I take the RA positive? I pray for remission, just

> a

> > > little relief, but it hasn't happened yet.

[Guest guest]

Yes, I am looking for better times, I really need that right now. I

went off my anti-depressant about a month ago, it really wasn't

helping all that much, the pdoc wouldn't listen to me. I was dx with

bipolar about 10 years ago, and this doc told me I wasn't, so he just

basically put me on what he wanted to.

I will have faith, there are others that feel like me, I know I'm not

alone, so that does help. Thanks for helping me, making me feel I'm

not alone, God bless, Tawny

> > > >

> > > > I would like to get my RA in control. I have been in constant

> > pain

> > > > for almost 3 years now, with little relief. I have taken a

lot

> > of

> > > > different meds, but none really seem to help the constant

nagging

> > > > pain. I am taking the med to prevent the progression of the

> > > > disease. But, I still see my hands deforming, so then what?

> > > > I can't exercise for the pain. I can't hardly walk, using my

> > hands

> > > > is tough. It's not what I won't, I have gave a good fight

over

> > the

> > > > last couple of years, but all I see is the disease taking

over my

> > > > body each day. It's effecting my life so much, and it's hard.

> > > > I don't sleep, and I cry until I make myself sick. But, what

can

> > I

> > > > do? How can I take the RA positive? I pray for remission,

just

> > a

> > > > little relief, but it hasn't happened yet.

[Guest guest]

Yes, I am looking for better times, I really need that right now. I

went off my anti-depressant about a month ago, it really wasn't

helping all that much, the pdoc wouldn't listen to me. I was dx with

bipolar about 10 years ago, and this doc told me I wasn't, so he just

basically put me on what he wanted to.

I will have faith, there are others that feel like me, I know I'm not

alone, so that does help. Thanks for helping me, making me feel I'm

not alone, God bless, Tawny

> > > >

> > > > I would like to get my RA in control. I have been in constant

> > pain

> > > > for almost 3 years now, with little relief. I have taken a

lot

> > of

> > > > different meds, but none really seem to help the constant

nagging

> > > > pain. I am taking the med to prevent the progression of the

> > > > disease. But, I still see my hands deforming, so then what?

> > > > I can't exercise for the pain. I can't hardly walk, using my

> > hands

> > > > is tough. It's not what I won't, I have gave a good fight

over

> > the

> > > > last couple of years, but all I see is the disease taking

over my

> > > > body each day. It's effecting my life so much, and it's hard.

> > > > I don't sleep, and I cry until I make myself sick. But, what

can

> > I

> > > > do? How can I take the RA positive? I pray for remission,

just

> > a

> > > > little relief, but it hasn't happened yet.

[Guest guest]

I should have said, some days - most days- I do not need my scooter. But, I am

VERY slow then.so some days I use it so I can keep up with the kids. THere are

days when my feet and knees and hips are fine-basically, but I guess from having

to step so cautiously so often, maybe I forgot how to be more quick or

something?

Heres another odd quirky thing. My husband says I used to make him feel bad cuz

he said I was a whirlwind of perfection and energy, wonder woman, but now he

does not feel so inferior to me, cuz I am more human now.

The kids who had gotten used to me being so on the go, now are VERY surprised if

I am not always home. (I am not yet sure if this is a good thing or not, yet,

LOL)

- In , " Tawny " <tawnyokc@s...> wrote:

>

> Yes, I am looking for better times, I really need that right now. I

> went off my anti-depressant about a month ago, it really wasn't

> helping all that much, the pdoc wouldn't listen to me. I was dx with

> bipolar about 10 years ago, and this doc told me I wasn't, so he just

> basically put me on what he wanted to.

> I will have faith, there are others that feel like me, I know I'm not

> alone, so that does help. Thanks for helping me, making me feel I'm

> not alone, God bless, Tawny

>

>

>

>

>

>

> > > > >

> > > > > I would like to get my RA in control. I have been in constant

> > > pain

> > > > > for almost 3 years now, with little relief. I have taken a

> lot

> > > of

> > > > > different meds, but none really seem to help the constant

> nagging

> > > > > pain. I am taking the med to prevent the progression of the

> > > > > disease. But, I still see my hands deforming, so then what?

> > > > > I can't exercise for the pain. I can't hardly walk, using my

> > > hands

> > > > > is tough. It's not what I won't, I have gave a good fight

> over

> > > the

> > > > > last couple of years, but all I see is the disease taking

> over my

> > > > > body each day. It's effecting my life so much, and it's hard.

> > > > > I don't sleep, and I cry until I make myself sick. But, what

> can

> > > I

> > > > > do? How can I take the RA positive? I pray for remission,

> just

> > > a

> > > > > little relief, but it hasn't happened yet.

[Guest guest]

I should have said, some days - most days- I do not need my scooter. But, I am

VERY slow then.so some days I use it so I can keep up with the kids. THere are

days when my feet and knees and hips are fine-basically, but I guess from having

to step so cautiously so often, maybe I forgot how to be more quick or

something?

Heres another odd quirky thing. My husband says I used to make him feel bad cuz

he said I was a whirlwind of perfection and energy, wonder woman, but now he

does not feel so inferior to me, cuz I am more human now.

The kids who had gotten used to me being so on the go, now are VERY surprised if

I am not always home. (I am not yet sure if this is a good thing or not, yet,

LOL)

- In , " Tawny " <tawnyokc@s...> wrote:

>

> Yes, I am looking for better times, I really need that right now. I

> went off my anti-depressant about a month ago, it really wasn't

> helping all that much, the pdoc wouldn't listen to me. I was dx with

> bipolar about 10 years ago, and this doc told me I wasn't, so he just

> basically put me on what he wanted to.

> I will have faith, there are others that feel like me, I know I'm not

> alone, so that does help. Thanks for helping me, making me feel I'm

> not alone, God bless, Tawny

>

>

>

>

>

>

> > > > >

> > > > > I would like to get my RA in control. I have been in constant

> > > pain

> > > > > for almost 3 years now, with little relief. I have taken a

> lot

> > > of

> > > > > different meds, but none really seem to help the constant

> nagging

> > > > > pain. I am taking the med to prevent the progression of the

> > > > > disease. But, I still see my hands deforming, so then what?

> > > > > I can't exercise for the pain. I can't hardly walk, using my

> > > hands

> > > > > is tough. It's not what I won't, I have gave a good fight

> over

> > > the

> > > > > last couple of years, but all I see is the disease taking

> over my

> > > > > body each day. It's effecting my life so much, and it's hard.

> > > > > I don't sleep, and I cry until I make myself sick. But, what

> can

> > > I

> > > > > do? How can I take the RA positive? I pray for remission,

> just

> > > a

> > > > > little relief, but it hasn't happened yet.

[Guest guest]

It's quite a life change that's for sure. Most don't understand what

RA, or the other chronic diseases are, and so they can't figure out

what's going on. Your whole life is turned upside down, and you

can't do what you use to, while people are just looking in to see if

your just wanting some attention. What I wouldn't do to go back to

work, and have my busy life back, know what I mean?

I do know what you mean, if I am not home, everyone is calling a

search scout looking for me,lol hugs, Tawny

> > > > >

> > > > >

> > > > > I am so sorry. I think I kinda know sorta how you feel. I

am

> > > > changed cuz of this illness, in more ways than just the pain

> > part. I

> > > > am so tired of not having the ability to do the things I

always

> > liked

> > > > doing. I see the commercials on TV and I think gosh, why am I

> > like

> > > > this? I am not sure for you, but for me the areas that hurt

or

> > swell

> > > > change often. REAL often...and it makes it hard to adapt, I

> > think

> > > > cuz so many different areas are affected. Even when it is my

> > fingers

> > > > or hands, just exaactly where the swelling and pain is can be

so

> > > > different from another tiime it is in my fingers or

> > hands..meaning

> > > > what movement did not cause me pain last time causes me pain

this

> > > > time, cuz the affected spot is just a little over here this

> > time. If

> > > > I figure out oh today I can pull up my pants this way, next

time

> > that

> > > > way causes pain. Just when I think oh I can hold my comb

this

> > way-

> > > > it does nt work quite the same today. I think not being able

to

> > make

> > > > concrete adaptations that work time after time keeps me from

> > being

> > > > more accepting and positive minded, and the fatigue does not

> > help,

> > > > either.

> > > > >

> > > > > Many gentle hugs for you. I wish I could make it

better. :-)

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > - In , " Tawny " <tawnyokc@s...>

wrote:

> > > > > >

> > > > > > I would like to get my RA in control. I have been in

constant

> > > > pain

> > > > > > for almost 3 years now, with little relief. I have taken

a

> > lot

> > > > of

> > > > > > different meds, but none really seem to help the constant

> > nagging

> > > > > > pain. I am taking the med to prevent the progression of

the

> > > > > > disease. But, I still see my hands deforming, so then

what?

> > > > > > I can't exercise for the pain. I can't hardly walk,

using my

> > > > hands

> > > > > > is tough. It's not what I won't, I have gave a good

fight

> > over

> > > > the

> > > > > > last couple of years, but all I see is the disease taking

> > over my

> > > > > > body each day. It's effecting my life so much, and it's

hard.

> > > > > > I don't sleep, and I cry until I make myself sick. But,

what

> > can

> > > > I

> > > > > > do? How can I take the RA positive? I pray for

remission,

> > just

> > > > a

> > > > > > little relief, but it hasn't happened yet.

[Guest guest]

It's quite a life change that's for sure. Most don't understand what

RA, or the other chronic diseases are, and so they can't figure out

what's going on. Your whole life is turned upside down, and you

can't do what you use to, while people are just looking in to see if

your just wanting some attention. What I wouldn't do to go back to

work, and have my busy life back, know what I mean?

I do know what you mean, if I am not home, everyone is calling a

search scout looking for me,lol hugs, Tawny

> > > > > >

> > > > > > I would like to get my RA in control. I have been in

constant

> > > > pain

> > > > > > for almost 3 years now, with little relief. I have taken

a

> > lot

> > > > of

> > > > > > different meds, but none really seem to help the constant

> > nagging

> > > > > > pain. I am taking the med to prevent the progression of

the

> > > > > > disease. But, I still see my hands deforming, so then

what?

> > > > > > I can't exercise for the pain. I can't hardly walk,

using my

> > > > hands

> > > > > > is tough. It's not what I won't, I have gave a good

fight

> > over

> > > > the

> > > > > > last couple of years, but all I see is the disease taking

> > over my

> > > > > > body each day. It's effecting my life so much, and it's

hard.

> > > > > > I don't sleep, and I cry until I make myself sick. But,

what

> > can

> > > > I

> > > > > > do? How can I take the RA positive? I pray for

remission,

> > just

> > > > a

> > > > > > little relief, but it hasn't happened yet.

[Guest guest]

Oklahoma Arthritis Center, Edmond, 405-844-4978, Dr. Carson or Dr. Kumar. They

do require an insurance referral from your primary care doctor, even if your

insurance company does not require that you have a referral. And, the wait for

a new appt is about 4 months. I am a fairly new patient and was very impressed

with all the staff, nurses, lab tech, etc. Recently I had reason to contact

them with a question and the nurse called back within the hour, consulted the

doctor and had an answer to me within 3 hours of my original call. Rest assured

they are a medical office that listens to their patients and consider you a part

of your medical team. Several of we OK ladies use this office.

Janie in Oklahoma

Can you suggest an RD in OKC. I am forced to find a new one and Dr. Delafield

will not have a second opportunity to talk down to me. I have had a problem

finding one in my insurance network.

[Guest guest]

Oklahoma Arthritis Center, Edmond, 405-844-4978, Dr. Carson or Dr. Kumar. They

do require an insurance referral from your primary care doctor, even if your

insurance company does not require that you have a referral. And, the wait for

a new appt is about 4 months. I am a fairly new patient and was very impressed

with all the staff, nurses, lab tech, etc. Recently I had reason to contact

them with a question and the nurse called back within the hour, consulted the

doctor and had an answer to me within 3 hours of my original call. Rest assured

they are a medical office that listens to their patients and consider you a part

of your medical team. Several of we OK ladies use this office.

Janie in Oklahoma

Can you suggest an RD in OKC. I am forced to find a new one and Dr. Delafield

will not have a second opportunity to talk down to me. I have had a problem

finding one in my insurance network.