Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 -Have you tried doing a search on the web for polymyalgia rheumatica? If there is a web site there might be links to a support group. After all I found a group for relapsing polychondritus-rather rare . Also I suggest rather than leave the group completely become a lurker, then you can learn about new things without having to interact with those you might find objectionable. And yeah- I was in/am in another gruop where I was told I didn't know what I was talking about and yes it hurt but leaving the group completely was counterproductive because there was still lots to be learned there.-- ivyj60@... wrote: > Hi Dix- > > Yes, I know this is alot of prednisone to be on. > They tried me on 120 mg a day > to start but it wasn't doing anything. Not sure the > 125mg is much better. I > have my follow up with the rheum on Tuesday so we'll > see what she says. I > don't have much pain now but again, the leg and foot > cramps are excruciating > and I have them 24/7 still. I'm still not convinced > that she has the correct > diagnosis. I have that second opinion appt at the > end of August so we'll see > what comes of that. > I haven't seen anyone else in here with polymyalgia > rheumatica...nor anywhere > else for that matter. I'd love to talk to some > people with it to compare > notes. > > I know quite a bit about drug abuse and > dependencies. I worked in a pharmacy > for 3 years, as well as being a CNA and a Board > Certified Hypnotherapist (we > have to go through some pshychology and clinical > training for that). I also > minored in psychology in college as well. > > I'm not an addictive personality, thank God, but I > certainly understand how > the body can become addicted (physical addiction). > Right now it doesn't seem I > have a choice with the cortisone. I'm already > blowing up like a balloon from > it and look like Alfred Hitchcock, lol. Again, I'll > see what the doc says this > week as well as the second opinion. Luckily so far > no other side effects. > The doc doesn't want to put me on Fosamax for some > reason and I'm on Calcium > +D 600mg twice a day. I'm worried about my blood > sugar too but they're > monitoring that closely. > > Thanks for the info Dix...I appreciate it...again, > if you know of anyone or > can get me in touch with anyone with PMR I'd > appreciate it. > Thanks! > Hugs- > Ivy > > Quoting Dixie <dix7chix@...>: > > > > > > > > > > > Of course It's OK! That's part of what the > group is for is to share with > > each other about these things. > > > > That's a LOT of prednisone to take each day - > I'm only allowed to take 20 > > mg. a day, but I " cheat " and take 40 on bad days, > and 10 on the better days, > > and go off it for a while each month. I hope > you're taking Fosamax of > > Actonel and calcium with it. > > > > My doctor told me that Percocet is as strong > as Oxy, but much less > > dangerous. I know it's addictive, which is why I > watch it carefully. > > > > There are two kinds of addiction. The first > is stricly physical . . . > > after taking a med for a while, your body is used > to it, and if you want to > > go off it, you have to taper off under a doctor's > supervision. > > > > The 2nd kind of addiction is the one we all > fear - the kind where your > > body begins to crave the drug, and you'll do > anything to get it, and need > > more and more. People go to two doctors to get > the same med, 2 pharmacies, > > and pay for one Rx and have the other go to their > insurance. This is the > > type addiction that will land you in rehab . . . > or worse. > > > > Not everyone will get the 2nd kind of > addiction, and most people prefer > > to think of the first type as being dependent > because they don't want anyone > > to identify them with the 2nd kind. > > > > I can't take xanax or halcion, because I'll > become instantly addicted - > > the 2nd kind. So I know the signs very well, and > if I ever take a med that > > causes something similar, I'll throw them down the > toilet and call my Dr. > > > > Codeine in its various forms has never been a > problem that way for me. > > But I still watch it, because I don't want it to > become a problem. > > > > BTW, I'm a retired psychologist, and this is > the way we explain it to > > patients. There is some research indicating that > certain people are more > > likely to develop the 2nd type of addiction than > other people, who rarely > > develop it. They aren't sure if it's genetic, but > think there may be a > > connection. > > > > Dix > > > > [ ] Dixie > > > > > > > > > > > > Hey Dixie...sorry to stick my snout in here, but > wanted to add my 2 cents > > if > > > > that's ok... > > > > > > > > I'm on 125mg of methylprednisone a day (just > started about 2 weeks ago) > > plus > > > > one to two baclofen a day as well (muscle > relaxers). I'm going to start > > going > > > > to a pain clinic week after next. I had been > there a few months ago for > > some > > > > abdominal muscular problems after gall bladder > surgery. They did epidurals > > in > > > > my abdomen, ribs and back for that and they > honestly weren't painful and > > > > worked great. I'm hoping they can do something > similar for the muscle > > cramps > > > > in my legs and feet as well. > > > > > > > > I can't take the percocet or percodan because > I'm allergic to about 99% of > > the > > > > painkillers out there. I had been on oxycontin 2 > years ago after spinal > > > > surgery and that stuff is very very dangerous. I > insisted my docs take me > > off > > > > of it after I started spasming and read up on it > on the net. It actually > > > > permanantly rearranges the molecules in your > body, so if you decide to take > > it > > > > be really careful. It's also highly addictive. > > > > > > > > Just keep looking for the right doctor > hun..don't give up. I've been > > through > > > > more doctors in the past year,lol..only YOU know > what's best for you and > === message truncated === Quote Link to comment Share on other sites More sharing options...
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