Re: Tikosyn Dofetilide treatment is a GO

[Guest guest]

Hi Dolores: I have marked November 14th on my calendar and wishing you much

success.

They had me on 1000mcg of Dofetilide - and they thought this might be

causing the intestinal problems. They also suggested irritable bowel. As I

posted earlier, the food was lousy (not what I am accustomed to). My

daughters brought meals to me. They dropped the dosage down to 750 mcg a

day . Anyway, who knows what caused my problems - but it only lasted a few

days. You probably wont have this problem at all.

Also, I have a family history of Colon Cancer (Mother and her two Brothers).

I was due for my usual Colonoscopy, but it was put off because of the AFIB.

I am told now I can have it (ugh) and it's presently scheduled for Tuesday,

November 21st.......yet another trip to Duke!!!!!!!!!!!

(Gentle Suggestion): If you are an anxious person, I would suggest you ask

them to turn the monitor off in your room. I did this and believe me, it

helped tremendously!

Again, my prayers, thoughts and best wishes to you. Please keep us posted.

Ellen

Tikosyn Dofetilide treatment is a " GO "

> Hi Everyone and you particularly Ellen: After seeing the EP team at

> our Univ. hosp., we have decided to proceed with the dofetilide. I

> will enter the hosp. next Tues.Nov. 14 and they expect to keep me 3

> or 4 days, while they adjust the dosage. Should I not resume NSR

> with the meds alone, they propose to do another cardioversion while I

> am still in the hosp. Because of all of your info, Ellen, I am under

> no illusion that this will be a permanent cure. But as you say, if

> it gives me a few months, perhaps there will be something better. It

> is my understanding that there are many things on the horizon. I

> just hope that I don't experience the severe intestinal problems that

> you did Ellen. Another factor in all of this (way down on the list)

> is that they say dofetilide is very expensive. It probably will cost

> me $125.00 per month and that's in addition to the other meds that I

> take. Anyway, keep your fingers crossed for me. I really want to be

> listed in their " success " column. Dolores

>

>

>

> Web Page /group/AFIBsupport

> Afibbers Database- http://www.dialsolutions.com/af

> To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups

> Daily digest mode: Send a blank message to AFIBsupport-digestegroups

> Individual emails: Send a blank message to AFIBsupport-normalegroups

> Read on web only: Send a blank message to AFIBsupport-nomailegroups

>

[Guest guest]

Dolores:

I just wanted to remind you that I have a Dual Pacemaker (implanted July

2000). However, the other two members on our Board who are on Dofetilide,

do not have Pacemakers. There was also a 77 year old man in Duke (he was #4

in Duke), who did not have a Pacemaker. He does not have a computer and I

keep in touch with him by phone. He was in permanent AFib and although he

is not in NSR around the clock, he goes in and out - and is quite happy!

Ellen

Tikosyn Dofetilide treatment is a " GO "

>

>

> > Hi Everyone and you particularly Ellen: After seeing the EP team at

> > our Univ. hosp., we have decided to proceed with the dofetilide. I

> > will enter the hosp. next Tues.Nov. 14 and they expect to keep me 3

> > or 4 days, while they adjust the dosage. Should I not resume NSR

> > with the meds alone, they propose to do another cardioversion while I

> > am still in the hosp. Because of all of your info, Ellen, I am under

> > no illusion that this will be a permanent cure. But as you say, if

> > it gives me a few months, perhaps there will be something better. It

> > is my understanding that there are many things on the horizon. I

> > just hope that I don't experience the severe intestinal problems that

> > you did Ellen. Another factor in all of this (way down on the list)

> > is that they say dofetilide is very expensive. It probably will cost

> > me $125.00 per month and that's in addition to the other meds that I

> > take. Anyway, keep your fingers crossed for me. I really want to be

> > listed in their " success " column. Dolores

> >

> >

> >

> > Web Page /group/AFIBsupport

> > Afibbers Database- http://www.dialsolutions.com/af

> > To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups

> > Daily digest mode: Send a blank message to

AFIBsupport-digestegroups

> > Individual emails: Send a blank message to

AFIBsupport-normalegroups

> > Read on web only: Send a blank message to AFIBsupport-nomailegroups

> >

>

>

>

> Web Page /group/AFIBsupport

> Afibbers Database- http://www.dialsolutions.com/af

> To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups

> Daily digest mode: Send a blank message to AFIBsupport-digestegroups

> Individual emails: Send a blank message to AFIBsupport-normalegroups

> Read on web only: Send a blank message to AFIBsupport-nomailegroups

>

[Guest guest]

Interested to know about your pacemaker; Is it the DAO, (dynamic atrial

override)? This is specifically designed for AF patients, and while not a

cure per se, it does reduce ventricular response during an episode. Many AF

patients with this DAO pacemaker lead fully normal lives with it, although

many become pacemaker dependant.

Has the dual lead pacemaker reduced your AF episdoes and/or their severity

in terms of symptoms?

Tikosyn Dofetilide treatment is a " GO "

> >

> >

> > > Hi Everyone and you particularly Ellen: After seeing the EP team at

> > > our Univ. hosp., we have decided to proceed with the dofetilide. I

> > > will enter the hosp. next Tues.Nov. 14 and they expect to keep me 3

> > > or 4 days, while they adjust the dosage. Should I not resume NSR

> > > with the meds alone, they propose to do another cardioversion while I

> > > am still in the hosp. Because of all of your info, Ellen, I am under

> > > no illusion that this will be a permanent cure. But as you say, if

> > > it gives me a few months, perhaps there will be something better. It

> > > is my understanding that there are many things on the horizon. I

> > > just hope that I don't experience the severe intestinal problems that

> > > you did Ellen. Another factor in all of this (way down on the list)

> > > is that they say dofetilide is very expensive. It probably will cost

> > > me $125.00 per month and that's in addition to the other meds that I

> > > take. Anyway, keep your fingers crossed for me. I really want to be

> > > listed in their " success " column. Dolores

> > >

> > >

> > >

> > > Web Page /group/AFIBsupport

> > > Afibbers Database- http://www.dialsolutions.com/af

> > > To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups

> > > Daily digest mode: Send a blank message to

> AFIBsupport-digestegroups

> > > Individual emails: Send a blank message to

> AFIBsupport-normalegroups

> > > Read on web only: Send a blank message to

AFIBsupport-nomailegroups

> > >

> >

> >

> >

> > Web Page /group/AFIBsupport

> > Afibbers Database- http://www.dialsolutions.com/af

> > To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups

> > Daily digest mode: Send a blank message to

AFIBsupport-digestegroups

> > Individual emails: Send a blank message to

AFIBsupport-normalegroups

> > Read on web only: Send a blank message to AFIBsupport-nomailegroups

> >

>

>

>

> Web Page /group/AFIBsupport

> Afibbers Database- http://www.dialsolutions.com/af

> To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups

> Daily digest mode: Send a blank message to AFIBsupport-digestegroups

> Individual emails: Send a blank message to AFIBsupport-normalegroups

> Read on web only: Send a blank message to AFIBsupport-nomailegroups

>

>