Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 Hey all, I am right there with you. My rheumy told me that if he was to get a better look at what my blood work really looks like he would have to take me off of everything for about 3 months or longer so all the meds get out of my system. I told him " no way " . Take me off the meds and I will become bed ridden!! Don't need that!! They keep flipflopping on me with the RA and Lupus or they say I have both or maybe some other connective tissue disorder!! Definate on the FM and Sjogrens. Oye!! I don't know what to think sometimes!! What makes it difficult is that I don't have any of this in my family history!!! One thing he did say was that there are a lot of disorders that they just lump under rheumatoid because they just don't know!! Take care......Blessed Be.....Marina in Oh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 Hey all, I am right there with you. My rheumy told me that if he was to get a better look at what my blood work really looks like he would have to take me off of everything for about 3 months or longer so all the meds get out of my system. I told him " no way " . Take me off the meds and I will become bed ridden!! Don't need that!! They keep flipflopping on me with the RA and Lupus or they say I have both or maybe some other connective tissue disorder!! Definate on the FM and Sjogrens. Oye!! I don't know what to think sometimes!! What makes it difficult is that I don't have any of this in my family history!!! One thing he did say was that there are a lot of disorders that they just lump under rheumatoid because they just don't know!! Take care......Blessed Be.....Marina in Oh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 Oh Marina I know exactly how you feel hun!! BIG GENTLE HUGS I pray for you and everyone in the group dealing with these exhausting disorders. My hat is off to you for being able to do what you do !!!!!!! Thanks so much for all the insight that you give here. God bless you because I know how hard you work, my mom, grandmother, and aunts were all nurses. My mom worked on a terminal floor. Those dear people needed so much love. My mom is a strong woman and now even stronger having to deal with my dad. We will go through this battle together sis and remember what doesn't kill us only makes us stronger!!! Hugs Nan marina_troi <nefertiti@...> wrote: Hey all, I am right there with you. My rheumy told me that if he was to get a better look at what my blood work really looks like he would have to take me off of everything for about 3 months or longer so all the meds get out of my system. I told him " no way " . Take me off the meds and I will become bed ridden!! Don't need that!! They keep flipflopping on me with the RA and Lupus or they say I have both or maybe some other connective tissue disorder!! Definate on the FM and Sjogrens. Oye!! I don't know what to think sometimes!! What makes it difficult is that I don't have any of this in my family history!!! One thing he did say was that there are a lot of disorders that they just lump under rheumatoid because they just don't know!! Take care......Blessed Be.....Marina in Oh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 Oh Marina I know exactly how you feel hun!! BIG GENTLE HUGS I pray for you and everyone in the group dealing with these exhausting disorders. My hat is off to you for being able to do what you do !!!!!!! Thanks so much for all the insight that you give here. God bless you because I know how hard you work, my mom, grandmother, and aunts were all nurses. My mom worked on a terminal floor. Those dear people needed so much love. My mom is a strong woman and now even stronger having to deal with my dad. We will go through this battle together sis and remember what doesn't kill us only makes us stronger!!! Hugs Nan marina_troi <nefertiti@...> wrote: Hey all, I am right there with you. My rheumy told me that if he was to get a better look at what my blood work really looks like he would have to take me off of everything for about 3 months or longer so all the meds get out of my system. I told him " no way " . Take me off the meds and I will become bed ridden!! Don't need that!! They keep flipflopping on me with the RA and Lupus or they say I have both or maybe some other connective tissue disorder!! Definate on the FM and Sjogrens. Oye!! I don't know what to think sometimes!! What makes it difficult is that I don't have any of this in my family history!!! One thing he did say was that there are a lot of disorders that they just lump under rheumatoid because they just don't know!! Take care......Blessed Be.....Marina in Oh Quote Link to comment Share on other sites More sharing options...
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