Prosorba Column

[Guest guest]

Hi

For those interested....after 20 yrs and very severe RA, and out of desperation

to obtain pain relief and save my hands, I am about to start the 12 weeks of

apharesis via the Prosorba Column. If anyone has used this method to manage

their immune disease, I would be very interested in hearing of your experience

and of course any information would be greatly appreciated.

I understand that it is considered a treatment similar to dialysis whereby it

cleanses the blood of the nasty critters from RA, and hopefully helps slow down

the RA. At present, my spleen is enlarged which is a complication of RA and it

is time for something drastic.

Keep me in your prayers.

Joanne

[Guest guest]

Hi All,

Thanks a for all of the articles regarding the Prosorba treatment as we all

need to know the good bad the the ugly with these medications and treatments.

For anyone who may be afraid of this treatment, I can only tell you from one who

has done it all, as they say......this treatment is no more risky than the

medications we take for RA. As for a good response...for me time will tell. It

is a very personal choice for each of us and hopefuly our rheumatologists will

help us make that

choice with education.

Regarding the medications,I for one, after many months on methotrexate and times

where I had taken phenergan, one time when I took both, I ended up in critical

care for 2 days....and still suffer the consquences today from this reaction.

Although the reaction was extremely rare, it happened. In fact,my rheumatologist

in Florida stated that he had one other patient who suffered the same reaction

from MTX.... so I guess what I am trying to say is...medications or

treatments???they all have their risks and side effects.

After 20 yrs with RA I will continue to look and try new treatments that will

ease this pain and the loss of the use of my hands, feet, etc.

God Bless all of us with these very difficult decisions.

Joanne