Re: Re: /Kathi

July 17, 2004

Kathi,

I think you have me confused with someone else. I'm the one who wrote in

that there is a difference between phsycial dependence and addiction and abuse.

And I always advocate talking with your doctor, as well as indicate that we are

all different and what works for one may not work for another.

If you're going to criticize someone, please make sure you have the right

person. I don't have a problem with someone disagreeing with me - but in this

case, I agree with your point of view, and have written messages indicating the

differences, as well as being upset at doctors who won't rx appropriate meds.

I know there have been a lot of messages written about this, and it's easy

to get confused over who said what. But I do object to being put in a bad light

when you have the wrong person.

Just wanted to get this straight. No problems.

Dix

[ ] RE: ..Thank you... Oxy

> > >

> > > > : First may I say thank you for your posts on narcotics, I

> > only

> > > > wish the stigma and misunderstanding would some how self

resolve.

> > > > Then I would like to say I am sorry, I was'nt trying to imply

> > anyone

> > > > should take anything only citing experience. I don't take any

med

> > > > before I have researched it throughly. Having scleroderma

they are

> > > > always trying to give me something, I think they feel they

must DO

> > > > something, and as there are no proven therapies they feel

> > helpless.

> > > > Judi is in the same kinda of situation, I believe. But, if

> > something

> > > > works, and for me oxy does, I have a half a life back, I will

> > > > continue to take it. It took alot of convincing for me to try

it,

> > and

> > > > then I was so embarrassed because I could have felt so much

> > better if

> > > > I had tried it to start off with. In IMHO there are alot more

> > scary

> > > > drugs, and steroids would be my NO.1 choice to NOT take, along

> > with

> > > > several others. I have gone off and on my oxy without any

> > withdrawal

> > > > problems, and I have been to a few pain clinics, their drug

of

> > > > choice was methadone, which ....I....could'nt tolerate. We

each

> > react

> > > > to drugs differently, so I would never knock anything that

works

> > for

> > > > some one else. It seems the stigma will never go away, and the

> > > > narcotics will always have a bad rap, it is to bad these

articles

> > > > don't compare them with other choices. And of course the

bottom

> > > > line ...all drugs are bad for you, you are putting a chemical

in

> > your

> > > > body that was never suppose to be there, of course the

wonderful

> > > > diseases were'nt suppose to either.....thank you for trying to

> > keep

> > > > us all educated......hugs Kathi in OK

July 17, 2004

Dixie, Kathi was not negatively criticizing you nor disagreeing with

you. She was lamenting the fact that the OxyContin that she mentioned in

her reply to your " Unsure of Myself " post sparked a tiny fire here.

Kathi was just using your name and alluding to the post as a point of

reference.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: ..Thank you... Oxy

>

> : I meant the drugs generally given for autoimmune

> diseases....but it does'nt matter, at this point I am sorry I ever

> suggested to Dixie the fact that if you are in pain, or tired,or

> depressed or anything else you should voice this to your PCP,

rheumy,

> whatever....I was'nt even suggesting she try what I try as I don't

> even have the same disease process going on, and did mention that. I

> have never asked for any drug, was not refferred to a pain clinic

for

> that reason, but had several docs pushing me to go because of MRI's

> and other tests, they said they knew I had to be in severe pain. I

> have never had a problem dealing with pain(had 3 kids ala natural)

> lol....and thought pain was something you just dealt with.....and

was

> quickly told by several doctors that NO ONE should have to, or be

> expected to live in chronic pain....and it really gets my goat when

> I hear addicted....most chronic pain folks are dependent not

> addicted.....dependent to have a LIFE....it makes me angry that

a

> has to be afraid of saying something to a new doc, because she will

> be looked at as a possible drug seeker....I have much appreciated

> your posts on all this.......and I truly feel even luckier at this

> point to have the docs I do.....my PCP starts every visit with ...1.

> Are you sleeping? 2.Are you taking your pain meds? Are they doing

the

> job? 3.Is there anything new going on that I should know? 4. Are you

> behaving?....which at this point when I laugh, he says good your

> sense of humor is intact....my rheumy does about the same, except he

> always ends my visit with....Red, keeping fighting the brave

> fight....I personally feel these are the questions that should be

> asked. I feel my PCP is my doc and friend....and I can ask him

> anything, and if he disagrees he flat out tells me....NO..or how

> about this instead or let me think about it because I don't know,

but

> I will find out. Why would any doc go into a field like rheumatolgy

> knowing that he/she would be seeing patients that deal with pain on

a

> day to day basis, with treatments that have no guarentee's and not

be

> willing to work with the patient through medicine and education to

> help relieve some of the pain? Don't we have the right to have the

> pain issue as well as disease addressed? When I read posts in this

> very group, that the pain or depression from the pain is so bad,

> putting themselves out of misery is an option, it makes me sooo

> angry. I am getting off the soap box now, and at this point will

> leave this exhaustive subject up to you and a....and boy I am

> glad you guys are the moderators......as always thank you for doing

> what you do....and I think I am going to go have a medicinal

> wine....but then maybe I'll have to worry about being an alcoholic(

> scuse the sarcasm there)......kathi in OK

July 18, 2004

Thanks . I'm sorry for misinterpreting that message.